Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Test Results
0

9 posts in this topic

My 3 year old son's celiac panel came back today and the nurse today me that they ran 6 different test and 3 showed positve and 3 were perfectly normal. I guess I'm just confused. I thought it would be more like a yes or no question. Any one have a similar experiance?

0

Share this post


Link to post
Share on other sites


Ads by Google:
My 3 year old son's celiac panel came back today and the nurse today me that they ran 6 different test and 3 showed positve and 3 were perfectly normal. I guess I'm just confused. I thought it would be more like a yes or no question. Any one have a similar experiance?

I have certainly noticed that with celiac, there does not seem to be any cut and dry answers. Do you have the test results? If not, I would ask for a copy. I have found that I had lots of questions for all the knowledgable people on this forum that was so helpful! I know you have tons of questions!

0

Share this post


Link to post
Share on other sites

Testing in young children is often problematic. Results may or may not be accurate, and it is hard to know. In cases like this, the answer is "maybe."

0

Share this post


Link to post
Share on other sites

If one of the tests was total IgA, you would actually want that to come out normal :) If that one is too low it's very difficult to get an accurate result on the other tests, even if you're really sick. Also, some test are more specific for celiac than others. Anti-gliaden indicates a general problem with gluten (which could manifest in any part of your body). Ttg is more specific for autoimmune damage to your intestines (celiac disease).

What are your plans now? Is your son being referred to a specialist? It's best to wait on the gluten-free diet if you're going to do an endoscopy, but otherwise... do give the gluten-free diet a try! Gluten intolerance can do a lot of damage. For kids, sometimes the first sign of a problem is when they stop growing. :(

0

Share this post


Link to post
Share on other sites

Get copies of your results - post them here - some tests are 'better' (i.e., more sensitive and specific) than others. The tests do not all correlate 1:1, so you wouldn't necessarily test positive on all of them (which is why there isn't just one test - none are perfect).

0

Share this post


Link to post
Share on other sites




We go back to our specialist today. I'll get a copy of the results to post but what I do know is that his Total IgA was high (normal range was 20-150 and my son's was 202) and his tissue something or other was normal but his glaliadin Iga was a little high (normal was 1-11 and his was 15). I would rather just try the gluten free diet then put his little body through another surgery (he's already been through 2 this year). I will post a copy of the results, thanks for your help!

0

Share this post


Link to post
Share on other sites

What kind of surgery is his doctor proposing? :huh: Sometimes you can "wait and see," sometimes you can't.

I hope his appointment today is helpful.

0

Share this post


Link to post
Share on other sites

Ok so I got the results and the ran 5 test (I thought it was 6, sorry) and his Total IgA was positive along with his gliadin IgG. His Gliadin IgA, Tissue Iga, and Tissue IgG were all negative. The doctor went ahead and set up an endoscopy for next thursday. Hopefully we'll know something after that =/

0

Share this post


Link to post
Share on other sites

Hi Megan - good luck and I hope the procedure yields some answers. You may want to talk to the doctor beforehand to make sure that multiple biopsies are taken. Celiac Disease can have 'patchy' damage, and when only one sample is taken (which sometimes doctors do), its often not as accurate.

http://www.celiacdiseasecenter.columbia.ed.../C04-Biopsy.htm (see: Pitfalls in the biopsy diagnosis of celiac disease)

The total IgA test is not a Celiac test - so in terms of Celiac, his only elevated test was the AGA IgG.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,608
    • Total Posts
      918,334
  • Topics

  • Posts

    • How do you know what's causing what?
      Hi Kam, If you are going to continue the celiac testing with an endoscopy, you need to keep eating gluten until it's done. It can be hard for vegetarians to keep their vitamin D levels up.   This Vitamin D  Council link has some good info on ways to boost your levels. https://www.vitamindcouncil.org/about-vitamin-d/
    • Blood results - odd
      Your ferritin was very low!  My result was a 2 when I was diagnosed.    I hard a hard time breathing and the fatigue was awful due to low hemoglobin levels.  But after going gluten free and taking iron for a few months, I quickly recovered from iron-deficiency anemia.  I still have hemologobin levels that are slightly below range due to Thalassemia which is genetic and my body has adjusted for it.   My B12 and folate levels are  super high.  My B12 is over 2000!  Yeah, I googled and ruled out cancers, etc.  Looks like some of us do not process man-made B12 often included in supplements.  I opted for natural sources of B-12 and folate and my levels have come down a bit.   Let us know your results.  Read the Newbie 101 section under "Coping" within this forum for tips.   Be patient.  It can take months, to years to feel good.  But it will happen!    
    • How do you know what's causing what?
      Welcome to the forum!   Well.....in theory you should be able to heal within a few months (grow new villi, etc.).  The reality is that it takes so much longer -- like a year or two (I kid you not!)  Why?  celiac disease can damage more than just the gut.  Depending on what was damaged (nerves, bones, etc) can impact healing time.  The gluten-free diet has a very steep learning curve.  It's not just giving up gluten.  It's avoiding cross contamination.  Becoming an expert in reading labels.  Learning to avoid foods processed on shared lines in a facility.  Then there are intolerances that most celiacs develop.  The most common ones is lactose.  Why?  The villi tips release the enzymes to digest lactose.  No villi tips?  Then you can not digest lactose.  Often this is temporary, but if you are one of the many adults in this world, you might already be lactose intolerant or might become so as you age.   Other intolerances that members often report include corn or soy.   Some celiacs react to oats, even gluten free.  So avoid oats for six months.  So, try cutting out dairy for a few days and see how you feel.  Then add in those items that have the least lactose:  hard cheese, butter, yogurt and see how you feel.   Avoid eating out for six months until you have seen some improvement.   Read our Newbie 101 thread under coping for more ideas!  Hope you feel better soon.   
    • Recovery diet, nutrition, leaky gut?
      I am having my endoscopy on Tuesday. I want to begin to heal my gut asap. I spent this morning in the ER with stabbing pain in my right shoulder blade, pain to the left of my belly button and vomiting. It's referred pain from my small intestine. I couldn't move or breathe hardly it hurt so bad. I NEED to get everything together to heal my gut asap. I don't want to ever go through this again. What are your recommendations? I've been reading a bit on leaky gut - anyone have good experience/links Or would the autoimmune diet be better? Are they one in the same? I know I am also reacting to casein and possibly potatoes. 
    • Celiac.com: Celiac Patients Could Get Gluten-free Stipend
      Celiac disease is a sensitivity to the gluten found in wheat, barley, rye, spelt and oats that causes an autoimmune response in which the body attacks ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      60,707
    • Most Online
      1,763

    Newest Member
    Ree8080
    Joined