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Test Results


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8 replies to this topic

#1 Megan6516

 
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Posted 26 January 2009 - 11:52 AM

My 3 year old son's celiac panel came back today and the nurse today me that they ran 6 different test and 3 showed positve and 3 were perfectly normal. I guess I'm just confused. I thought it would be more like a yes or no question. Any one have a similar experiance?
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#2 sugarsue

 
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Posted 26 January 2009 - 03:28 PM

My 3 year old son's celiac panel came back today and the nurse today me that they ran 6 different test and 3 showed positve and 3 were perfectly normal. I guess I'm just confused. I thought it would be more like a yes or no question. Any one have a similar experiance?


I have certainly noticed that with celiac, there does not seem to be any cut and dry answers. Do you have the test results? If not, I would ask for a copy. I have found that I had lots of questions for all the knowledgable people on this forum that was so helpful! I know you have tons of questions!
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Susan
LYME diagnosed 11/2010, allergic to wheat, Hashimoto's Thyroiditis, allergic to all grasses, most trees, dust
Mom to 9 year old dd, lyme, diagnosed 11/2011, highly gluten intolerant, epilepsy w/ generalized seizures, mitocondrial markers, malabsorption, recurring candida - Gluten-free Casein-free since 9/16/08. Diagnosed with P.A.N.D.A.S. 6/20/09, seizure free since going gluten-free!
and 10 yr old dd, Lyme diagnosed 11/2011, severe dust allergy, allergic to most trees/grasses/weeds. Positive gluten intolerance testing. Gluten Free since 12/09/08. Diagnosed with P.A.N.D.A.S. 6/20/09

#3 psawyer

 
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Posted 26 January 2009 - 03:32 PM

Testing in young children is often problematic. Results may or may not be accurate, and it is hard to know. In cases like this, the answer is "maybe."
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Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)

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#4 Mother of Jibril

 
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Posted 26 January 2009 - 05:23 PM

If one of the tests was total IgA, you would actually want that to come out normal :) If that one is too low it's very difficult to get an accurate result on the other tests, even if you're really sick. Also, some test are more specific for celiac than others. Anti-gliaden indicates a general problem with gluten (which could manifest in any part of your body). Ttg is more specific for autoimmune damage to your intestines (celiac disease).

What are your plans now? Is your son being referred to a specialist? It's best to wait on the gluten-free diet if you're going to do an endoscopy, but otherwise... do give the gluten-free diet a try! Gluten intolerance can do a lot of damage. For kids, sometimes the first sign of a problem is when they stop growing. :(
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Gluten free 08/08
Son has IgE allergies to peanuts and corn
Hashimoto's, MCAD, pregnancy loss at 17 weeks
HLA-DQB1*0302 (celiac), HLA-DQB1*0301 (gluten sensitive)
Serological equivalent 3,3 (subtype 8,7)
Extensive family history of autoimmune disorders and related symptoms

#5 happygirl

 
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Posted 26 January 2009 - 05:30 PM

Get copies of your results - post them here - some tests are 'better' (i.e., more sensitive and specific) than others. The tests do not all correlate 1:1, so you wouldn't necessarily test positive on all of them (which is why there isn't just one test - none are perfect).
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#6 Megan6516

 
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Posted 27 January 2009 - 08:05 AM

We go back to our specialist today. I'll get a copy of the results to post but what I do know is that his Total IgA was high (normal range was 20-150 and my son's was 202) and his tissue something or other was normal but his glaliadin Iga was a little high (normal was 1-11 and his was 15). I would rather just try the gluten free diet then put his little body through another surgery (he's already been through 2 this year). I will post a copy of the results, thanks for your help!
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#7 Mother of Jibril

 
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Posted 27 January 2009 - 09:28 AM

What kind of surgery is his doctor proposing? :huh: Sometimes you can "wait and see," sometimes you can't.

I hope his appointment today is helpful.
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Gluten free 08/08
Son has IgE allergies to peanuts and corn
Hashimoto's, MCAD, pregnancy loss at 17 weeks
HLA-DQB1*0302 (celiac), HLA-DQB1*0301 (gluten sensitive)
Serological equivalent 3,3 (subtype 8,7)
Extensive family history of autoimmune disorders and related symptoms

#8 Megan6516

 
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Posted 28 January 2009 - 05:16 PM

Ok so I got the results and the ran 5 test (I thought it was 6, sorry) and his Total IgA was positive along with his gliadin IgG. His Gliadin IgA, Tissue Iga, and Tissue IgG were all negative. The doctor went ahead and set up an endoscopy for next thursday. Hopefully we'll know something after that =/
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#9 happygirl

 
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Posted 28 January 2009 - 05:20 PM

Hi Megan - good luck and I hope the procedure yields some answers. You may want to talk to the doctor beforehand to make sure that multiple biopsies are taken. Celiac Disease can have 'patchy' damage, and when only one sample is taken (which sometimes doctors do), its often not as accurate.

http://www.celiacdis.../C04-Biopsy.htm (see: Pitfalls in the biopsy diagnosis of celiac disease)

The total IgA test is not a Celiac test - so in terms of Celiac, his only elevated test was the AGA IgG.
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