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Compulsive Eaters Anonymous Celiac and on strict abstinence food plan Rate Topic: -----

#1 User is offline   K-so 

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Posted 26 January 2009 - 03:18 PM

A month ago I started Compulsive Eaters Anonymous. A week later I found out I was full blown Celiac due to my mom's test results. The problem is I am about to add grains back into my diet and the CEA meal plan and celiac disease Sort of cross out items both ways, making my food choices even slimmer. I there anyone that is going through this too, or has already? I would love some feedback, experience, strength and hope.
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#2 User is offline   curlyfries 

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Posted 26 January 2009 - 06:54 PM

Welcome! :)

I have not had to deal with CEA, but I just wanted to say that there are still a lot of grains you can have on a Celiac diet. Going gluten free could be to your benefit (well, it's to everyone's benefit :P ).....but what I mean is......many people say gluten is highly addictive. I wonder if compulsive eating is or can be controlled to some degree by addictive-type foods? What do the experts say?
~~Lisa~~

"The greater the obstacle, the more glory in overcoming it."--Moliere

"I may not have gone where I intended to go, but I think I have ended up where I needed to be."--Douglas Adams


Friends may come and go but Sillies are Forever!!!!!!!--Amanda
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#3 User is offline   K-so 

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Posted 26 January 2009 - 07:03 PM

View Postcurlyfries, on Jan 26 2009, 08:54 PM, said:

Welcome! :)

I have not had to deal with CEA, but I just wanted to say that there are still a lot of grains you can have on a Celiac diet. Going gluten free could be to your benefit (well, it's to everyone's benefit :P ).....but what I mean is......many people say gluten is highly addictive. I wonder if compulsive eating is or can be controlled to some degree by addictive-type foods? What do the experts say?


That is one of the main points. Flour and sugar are the biggest offenders. In a couple of days I get to add grains back, just not the way everyone else in the program does. They get to eat ezekiel bread and stuff. On the other hand my mom and sister are celiac and can have flour and sweets. It's sort of a double edged sword right now. I'm looking for someone that gets that, and might have some feedback.
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#4 User is offline   curlyfries 

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Posted 26 January 2009 - 07:15 PM

Well, I'm on a Candida diet (gluten-free too, of course), so no grains or sugar in any form for me :( Not easy, but I've lost a lot of weight, which I needed to do, and I still eat plenty! :)
~~Lisa~~

"The greater the obstacle, the more glory in overcoming it."--Moliere

"I may not have gone where I intended to go, but I think I have ended up where I needed to be."--Douglas Adams


Friends may come and go but Sillies are Forever!!!!!!!--Amanda
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#5 User is offline   Stefani 

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Posted 27 January 2009 - 06:45 PM

View PostK-so, on Jan 26 2009, 04:18 PM, said:

A month ago I started Compulsive Eaters Anonymous. A week later I found out I was full blown Celiac due to my mom's test results. The problem is I am about to add grains back into my diet and the CEA meal plan and celiac disease Sort of cross out items both ways, making my food choices even slimmer. I there anyone that is going through this too, or has already? I would love some feedback, experience, strength and hope.



I had to google Compulsive Eaters Anonymous - I know of Overeaters Anonymous (OA) but never heard of CEA. I believe its the branch of OA that split off and focused more on the food plan. If you have some questions I might be able to help. Are you following the "gray sheet" or can you tell me more about the CEA diet? If you find it is too restrictive, you can always move over to OA (they follow the AA 12 steps) and follow a diet that is more inline with your needs. OA uses a food plan as a "tool" not as a requirement.

Stefani

Stomach and "mysterious illness" most of my life.
Hospitalized 3 times always told it was "IBS" and "pre-ulcer" condition.
I was also told "its in my head" and told to go see a psychologist.
Tested for allergies recently and everything negative, no biopsy yet.
However, if I eat any of the foods listed below I get a full blow allergic reaction
Allergic/Intolerant (self diagnosis) of:
Wheat Barley Rye Oats
Peanuts
Dairy
Tomatoes
Bell Peppers and ALL other hot peppers
Onions & Garlic
Soy
Too much citrus or chocolate hurts my stomach and bladder.
Other DX: Hypothyroid and Hyperlipidema.

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#6 User is offline   K-so 

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Posted 27 January 2009 - 06:57 PM

View PostStefani, on Jan 27 2009, 08:45 PM, said:

I had to google Compulsive Eaters Anonymous - I know of Overeaters Anonymous (OA) but never heard of CEA. I believe its the branch of OA that split off and focused more on the food plan. If you have some questions I might be able to help. Are you following the "gray sheet" or can you tell me more about the CEA diet? If you find it is too restrictive, you can always move over to OA (they follow the AA 12 steps) and follow a diet that is more inline with your needs. OA uses a food plan as a "tool" not as a requirement.

Stefani


Its a sister program to OA for sure. The strictness of the meal plans is there to eliminate the worry and obsession of food. Its really been a ton of food, just no snacks. (veggies can be weighed into 8 oz servings) I've lost 20 lb.s in this first month. I feel soooo much better. Really I'm irritated because I can't eat certain things because of the program AND several things because of celiac disease. I need to get creative. Tomorrow is the first day I add grains and some starches back into my diet. Right now I have as options brown rice, Queanwa(sp), and Irish outmeal. My Sponsor has no knowledge of Celiac disease so she doesn't really know how to help. Dido for her sponsor. Looking for recipe ideas, how to stay on my meal plan one day at a time, and just someone that understands. This is the first time I've really been confident about a food program, and i would like to keep it up.
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#7 User is offline   Stefani 

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Posted 28 January 2009 - 09:02 AM

View PostK-so, on Jan 27 2009, 07:57 PM, said:

Its a sister program to OA for sure. The strictness of the meal plans is there to eliminate the worry and obsession of food. Its really been a ton of food, just no snacks. (veggies can be weighed into 8 oz servings) I've lost 20 lb.s in this first month. I feel soooo much better. Really I'm irritated because I can't eat certain things because of the program AND several things because of celiac disease. I need to get creative. Tomorrow is the first day I add grains and some starches back into my diet. Right now I have as options brown rice, Queanwa(sp), and Irish outmeal. My Sponsor has no knowledge of Celiac disease so she doesn't really know how to help. Dido for her sponsor. Looking for recipe ideas, how to stay on my meal plan one day at a time, and just someone that understands. This is the first time I've really been confident about a food program, and i would like to keep it up.


My diet consists of breakfast - Bob's Red Mill gluten free hot cereal - yum - and an egg.
Lunch is usually a meat with a bunch of vegetables. I get creative with sauces and have made my own sweet and sour sauce that is really good.
Dinner is a fruit smoothie and a very light meal - usually lunch left overs or a sweet potato.

If your going to add oatmeal back into your diet - beware! Oatmeal has gluten and makes me sick as a dog - however, it seems "some" people can eat it with no problem. I would show your sponsor the Bob's Red Mill and ask if you can do that in place of the oatmeal and quinoa.

Here is a link to all the Bob's Red Mill cereals -
http://www.bobsredmi...ome.php?cat=124
I use the "Mighty Tasty" one - cause it is mighty tasty. They also have some rice cereals.

My suggestion - since your sponsor does not have a full understanding of Celiac, I would hire a nutritionist to develop and eating plan for you that conforms to CEA standards. And in the mean time - ask your Higher Power for guidance on what to do .... and follow your gut instinct. If something a sponsor suggests seems wrong or misguided, it probably is. There have been instances of well meaning sponsors almost killing a sponsee with the wrong diet. Sponsors are often well intentioned, but usually lack a nutritional degree. I would seek outside help with this.

Just like with your 12 step program - your dietary changes for Celiac are for life. We are so lucky that in this day and age there are so many gluten free products out there. Keep searching for recipes - there are thousands out there on the net. And Good Luck!!

Stefani

Stomach and "mysterious illness" most of my life.
Hospitalized 3 times always told it was "IBS" and "pre-ulcer" condition.
I was also told "its in my head" and told to go see a psychologist.
Tested for allergies recently and everything negative, no biopsy yet.
However, if I eat any of the foods listed below I get a full blow allergic reaction
Allergic/Intolerant (self diagnosis) of:
Wheat Barley Rye Oats
Peanuts
Dairy
Tomatoes
Bell Peppers and ALL other hot peppers
Onions & Garlic
Soy
Too much citrus or chocolate hurts my stomach and bladder.
Other DX: Hypothyroid and Hyperlipidema.

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#8 User is offline   K-so 

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Posted 28 January 2009 - 09:16 AM

View PostStefani, on Jan 28 2009, 11:02 AM, said:

My diet consists of breakfast - Bob's Red Mill gluten free hot cereal - yum - and an egg.
Lunch is usually a meat with a bunch of vegetables. I get creative with sauces and have made my own sweet and sour sauce that is really good.
Dinner is a fruit smoothie and a very light meal - usually lunch left overs or a sweet potato.

If your going to add oatmeal back into your diet - beware! Oatmeal has gluten and makes me sick as a dog - however, it seems "some" people can eat it with no problem. I would show your sponsor the Bob's Red Mill and ask if you can do that in place of the oatmeal and quinoa.

Here is a link to all the Bob's Red Mill cereals -
http://www.bobsredmi...ome.php?cat=124
I use the "Mighty Tasty" one - cause it is mighty tasty. They also have some rice cereals.

My suggestion - since your sponsor does not have a full understanding of Celiac, I would hire a nutritionist to develop and eating plan for you that conforms to CEA standards. And in the mean time - ask your Higher Power for guidance on what to do .... and follow your gut instinct. If something a sponsor suggests seems wrong or misguided, it probably is. There have been instances of well meaning sponsors almost killing a sponsee with the wrong diet. Sponsors are often well intentioned, but usually lack a nutritional degree. I would seek outside help with this.

Just like with your 12 step program - your dietary changes for Celiac are for life. We are so lucky that in this day and age there are so many gluten free products out there. Keep searching for recipes - there are thousands out there on the net. And Good Luck!!

Stefani


Brown rice, Quinoa, and and Irish oatmeal are the things i can eat that are gluten free, but thats kinda it. Thank you for the support. Most of the gluten free products have some sort of sugar or flour in them so they're out. Thats why I keep looking for alternatives. Guess I'm just obsessing on this. I eat alot of veggies and I think thats going to have to do. Thank you so much for your input. A nutritionist is not financially possible so I learn what I can from my mom and sister, they both have nutritionists.
Again thank you so much!
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#9 User is offline   jnclelland 

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Posted 28 January 2009 - 11:24 AM

View PostK-so, on Jan 28 2009, 10:16 AM, said:

Brown rice, Quinoa, and and Irish oatmeal are the things i can eat that are gluten free, but thats kinda it. Thank you for the support. Most of the gluten free products have some sort of sugar or flour in them so they're out. Thats why I keep looking for alternatives. Guess I'm just obsessing on this. I eat alot of veggies and I think thats going to have to do. Thank you so much for your input. A nutritionist is not financially possible so I learn what I can from my mom and sister, they both have nutritionists.
Again thank you so much!



Is brown rice allowed on the CEA plan? That's my primary grain these days. Quinoa is great, too, and very versatile. I also eat sweet potatoes for carbs when I want a bit more variety.

It's wonderful that you've found so much recovery through CEA - I'll just reiterate the suggestion that if you do end up finding the CEA food plan to be incompatible with your celiac needs, OA offers all the same 12-step benefits and a lot more flexibility in choosing a food plan. That doesn't mean that you can't have a plan with as much structure as you need, just that YOU get to choose what works for you.

Good luck getting it all figure out! :)

Jeanne
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#10 User is offline   curlyfries 

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Posted 28 January 2009 - 11:52 AM

Sorry no one has shown up that's going through the same thing as you. I know what you really wanted was someone to commiserate with ;)
~~Lisa~~

"The greater the obstacle, the more glory in overcoming it."--Moliere

"I may not have gone where I intended to go, but I think I have ended up where I needed to be."--Douglas Adams


Friends may come and go but Sillies are Forever!!!!!!!--Amanda
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#11 User is offline   Stefani 

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Posted 28 January 2009 - 12:04 PM

View PostK-so, on Jan 28 2009, 10:16 AM, said:

Brown rice, Quinoa, and and Irish oatmeal are the things i can eat that are gluten free, but thats kinda it. Thank you for the support. Most of the gluten free products have some sort of sugar or flour in them so they're out. Thats why I keep looking for alternatives. Guess I'm just obsessing on this. I eat alot of veggies and I think thats going to have to do. Thank you so much for your input. A nutritionist is not financially possible so I learn what I can from my mom and sister, they both have nutritionists.
Again thank you so much!



That's why i sent you the LINK to bobs red mill in an earlier post - they have a BROWN RICE cereal. Ingredients: organic whole grain brown rice
Bob's Red Mill cereals don't have sugar in them.
http://www.bobsredmill.com/product.php?pro...=124&page=1

Stomach and "mysterious illness" most of my life.
Hospitalized 3 times always told it was "IBS" and "pre-ulcer" condition.
I was also told "its in my head" and told to go see a psychologist.
Tested for allergies recently and everything negative, no biopsy yet.
However, if I eat any of the foods listed below I get a full blow allergic reaction
Allergic/Intolerant (self diagnosis) of:
Wheat Barley Rye Oats
Peanuts
Dairy
Tomatoes
Bell Peppers and ALL other hot peppers
Onions & Garlic
Soy
Too much citrus or chocolate hurts my stomach and bladder.
Other DX: Hypothyroid and Hyperlipidema.

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#12 User is offline   K-so 

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Posted 28 January 2009 - 01:28 PM

View Postjnclelland, on Jan 28 2009, 01:24 PM, said:

Is brown rice allowed on the CEA plan? That's my primary grain these days. Quinoa is great, too, and very versatile. I also eat sweet potatoes for carbs when I want a bit more variety.

It's wonderful that you've found so much recovery through CEA - I'll just reiterate the suggestion that if you do end up finding the CEA food plan to be incompatible with your celiac needs, OA offers all the same 12-step benefits and a lot more flexibility in choosing a food plan. That doesn't mean that you can't have a plan with as much structure as you need, just that YOU get to choose what works for you.

Good luck getting it all figure out! :)

Jeanne

Yeah! Brown rice seems to be the way to go, as long as it is not in flour form.
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#13 User is offline   K-so 

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Posted 28 January 2009 - 01:32 PM

View PostStefani, on Jan 28 2009, 02:04 PM, said:

That's why i sent you the LINK to bobs red mill in an earlier post - they have a BROWN RICE cereal. Ingredients: organic whole grain brown rice
Bob's Red Mill cereals don't have sugar in them.
http://www.bobsredmill.com/product.php?pro...=124&page=1

OK gtcha now. Im slow sometimes. This is perfect! Lots of choices for breakfast. Buckwheat, rice, this is a good start. I'll see if whole Foods carries these. Yeah!
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#14 User is offline   K-so 

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Posted 28 January 2009 - 01:34 PM

View Postcurlyfries, on Jan 28 2009, 01:52 PM, said:

Sorry no one has shown up that's going through the same thing as you. I know what you really wanted was someone to commiserate with ;)

This is good too. Even though my sister has dealt with celiac disease for at least a year now she is tired of giving my mom and I tips. So I really appreciate the comments.
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#15 User is offline   julirama723 

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Posted 28 January 2009 - 02:28 PM

I wish I were more knowledgeable about OA and CEA so I could offer more help!

Are you limited in some way by how often you can eat the grains, serving sizes, grams of carbohydrates, calories? When you add foods, are you watching for previous symptoms? Are you adding foods back slowly? (I'm very curious about the plan. :))

I can't eat rice (or any other grains...) but I DO love me some quinoa! (My body handles it well, but I don't think it's actually a grain...maybe someone can clarify?) Since I can't do rice, I make Mexican quinoa which is GREAT--I make mine with TONS of veggies, and it's a very healthy dish. My fiance even likes Mexican quinoa better than Mexican rice! Who woulda thought?

Another thought is to add said grains to other dishes. Maybe you add rice or quinoa to soup, so it's a textural bonus, but not an overload of grains at one time. Or, add lots of finely-chopped cooked veggies to the rice or quinoa. Have a stirfry, and eat it over brown rice.

Just a few thoughts!
Graves Disease 5/95-5/97
Noticeable GI distress started 8/07
Mom Dx Celiac 9/08
Dietary Response POS 10/08
Bloodwork and Biopsy NEG 12/08
IgA Deficient
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