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Hip/low Back Pain


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#1 silk

 
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Posted 28 January 2009 - 11:22 AM

I was diagnosed a year ago in November. While I did not go through the biopsy testing, I have type 1 diabetes, Raynaud's Phenomenon, Apthous Stomatitis(mouth ulcers) and all of the GI problems that most of you have, anemia and failure to thrive as a child, hip/joint pain, positive dietary response to a gluten-free diet, etc.. I am 49 years old and have had most of these for most of my life, so my M.D., although he would have liked me to remain on gluten long enough to do the biopsy, is operating under the assumption that I have Celiac disease and not just an intolerance.

Since being dx'd last year, I have remained faithful to a gluten-free diet but as most of you know, sometimes the toxic stuff creeps in where least expected and I get zapped and this is were it gets interesting for me. I work for a Chiropractor, who is also a very good friend and very supportive of me regarding the Celiac. He and his wife researched right along side me so that they would know what I was dealing with. (They gave me a beautiful goodie basket for Christmas filled with all kinds of delicious gluten free products that they carefully shopped for.) Because it is available to me, I frequently receive chiropractic adjustments, especially when I am having hip and low back pain. After being glutened a little over a week ago, I began having severe low back/hip difficulties. Today, after yet another adjustment for the same problem, the doctor told me he had been noting over this past year every time I had had this problem as well as whether I had recently been glutened. With every single occurrence there has been an episode of glutening.

Not necessarily significant info for most of you, but it is interesting to see it documented in my own history and not just an anecdote or symptom listed in a book somewhere. The Dr. (my boss) is guessing that along with chemical changes that take place in the body because of the gluten which may cause instability in the muscles and tendons around the joints themselves, that referral pain from the gastric distress and bloating that occur may also cause a shift in the spine, throwing the hip/pelvis off balance.
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#2 Stefani

 
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Posted 28 January 2009 - 12:28 PM

I was diagnosed a year ago in November. While I did not go through the biopsy testing, I have type 1 diabetes, Raynaud's Phenomenon, Apthous Stomatitis(mouth ulcers) and all of the GI problems that most of you have, anemia and failure to thrive as a child, hip/joint pain, positive dietary response to a gluten-free diet, etc.. I am 49 years old and have had most of these for most of my life, so my M.D., although he would have liked me to remain on gluten long enough to do the biopsy, is operating under the assumption that I have Celiac disease and not just an intolerance.

Since being dx'd last year, I have remained faithful to a gluten-free diet but as most of you know, sometimes the toxic stuff creeps in where least expected and I get zapped and this is were it gets interesting for me. I work for a Chiropractor, who is also a very good friend and very supportive of me regarding the Celiac. He and his wife researched right along side me so that they would know what I was dealing with. (They gave me a beautiful goodie basket for Christmas filled with all kinds of delicious gluten free products that they carefully shopped for.) Because it is available to me, I frequently receive chiropractic adjustments, especially when I am having hip and low back pain. After being glutened a little over a week ago, I began having severe low back/hip difficulties. Today, after yet another adjustment for the same problem, the doctor told me he had been noting over this past year every time I had had this problem as well as whether I had recently been glutened. With every single occurrence there has been an episode of glutening.

Not necessarily significant info for most of you, but it is interesting to see it documented in my own history and not just an anecdote or symptom listed in a book somewhere. The Dr. (my boss) is guessing that along with chemical changes that take place in the body because of the gluten which may cause instability in the muscles and tendons around the joints themselves, that referral pain from the gastric distress and bloating that occur may also cause a shift in the spine, throwing the hip/pelvis off balance.



I can so relate! My chiropractor thought I had a herniated disc due to all the extreme symptoms I was having at the time. I literally crawled into the office on my hands and knees! But low and behold HE is the one that figured out I was allergic to wheat, and once I stopped eating it (I was already soy and dairy free) my back ache went away!!!

However, whenever I get an accidental dosing of any of my allergens I get HORRIBLE low back and rib pain. Its awful and totally debilitating....

So I know what you are talking about :-) Hurray for Chiropractors as mine figured out my wheat allergy AND fixed my back ;-)

Stefani
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Stomach and "mysterious illness" most of my life.
Hospitalized 3 times always told it was "IBS" and "pre-ulcer" condition.
I was also told "its in my head" and told to go see a psychologist.
Tested for allergies recently and everything negative, no biopsy yet.
However, if I eat any of the foods listed below I get a full blow allergic reaction
Allergic/Intolerant (self diagnosis) of:
Wheat Barley Rye Oats
Peanuts
Dairy
Tomatoes
Bell Peppers and ALL other hot peppers
Onions & Garlic
Soy
Too much citrus or chocolate hurts my stomach and bladder.
Other DX: Hypothyroid and Hyperlipidema.


#3 ang1e0251

 
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Posted 29 January 2009 - 06:45 AM

I had tremendous shoulder pain for years. Acupuncture gave me temporary relief but the pain persisted. I assumed I had arthritis or bursitis. I finally had to take Alleve every day to function and sleep but it would still wake me at night.

I went gluten-free and surprise, no more pain! I didn't start the diet for that and I was floored to find out it completely took away the pain. You're right, it reoccurs when glutened. If someone would have told me that, I wouldn't have believed it.

I'm glad you've figured it out.
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#4 angieInCA

 
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Posted 29 January 2009 - 08:12 AM

I had been suffering with lower back and left hip pain for about 3 years before going Gluten Free.

After many MRI's and X-Ray's my Dr's could find no reason for the pain and thought that I might have small Synovial Cysts in the spine and hip joint. I was told the only cure would be to operate and they wouldn't even consider it till the pain was so bad that I could no longer walk. I was told I would probably end up in a wheel chair by the time I was 55. The pain had gotten so bad that the only sleep I was getting was by chemical assistance and I was living on anti-inflammatories just to be able to function through the day.

In Oct. I went gluten-free and within 3 weeks my hips and back were pain free. My Dr's were astounded. One still doesn't believe it was the Gluten causing the problems <_<

Now when I get Glutened the pain comes back with-in 24 hours and stays with me for a couple of days.

I also had pain in my hands and feet which has now disappeared but re-occures when Glutened.
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Transplanted Southerner in Sunny So.Cal.
Misdiagnosed 47 years
Diagnosed Gluten Intollerent Aug. 22. '08
Blood Tests Weak Positive to Negative probably due to low Gluten intake for 8 weeks before testing.
Opted not to have Biopsy.
Positive DH testing Oct. 30,'08
Gluten free since Oct. 28, '08

Diagnosed with Fibromyalgia May 10,'13


#5 *lee-lee*

 
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Posted 29 January 2009 - 08:29 AM

same here...i had hip/joint pain for a year before figuring out celiac. within 4 months of going gluten free, i don't have any more pain!!
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5/23/2008 - blood positive for antibodies
6/24/2008 - negative biopsy
8/11/2008 - DQ2 gene present

7/1/2008 - gluten-free
(and dairy-light until 12/1/2008)

#6 silk

 
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Posted 29 January 2009 - 10:14 AM

Wouldn't it be interesting to know (although you would probably never get any member of the medical field to admit a mis-diagnosis) how many people have had gallbladder surgery, treatment without result for joint pain or low back pain, treatment for IBS, Crohn's or Fibromyalia when in actuality, the person's problems stemmed from Celiac disease? Before we found out what was wrong with me we were checking into gallbladder, etc. I started to follow a gallbladder diet that I found on the net and actually began to feel a bit better. Weird stuff on the diet but most notably, the diet calls for no wheat or breads, potatoes, etc. My husband has a lot of low back and joint paint and wakes at least once every night because he is hurting. He is very supportive and knowledgable about Celiac and eats a lot of gluten-free stuff but does have his cookies and milk and regular breads, etc. For as much as he knows about the disease and it's symptoms, because he does not have the GI issues, he is not attributing his pain to Celiac. Not saying that he has it, but it would be interesting to see him give it a go for several weeks to see if things would change.
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#7 Amber M

 
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Posted 29 January 2009 - 04:17 PM

same here...i had hip/joint pain for a year before figuring out celiac. within 4 months of going gluten free, i don't have any more pain!!

I also have had lower back pain for years with no diagnosis other than I have my last lower two vert. somehow fused, they think a birth defect since I never had surgery. Since gluten free, the only time I have a bad back ache now is when I have been glutened too. My daughter has spondilosis of the spine, which can be caused by celiac I have read. I firmly believe it causes many symptoms we are not even aware of.
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Amber Martin
Gluten Free since Mid July 2008 (except a few slips)
Soy Free for over 30 years, Corn free Jan. 2009
Allergic to Clams, legumes, Soy, Pine Pollen
Still can't digest all grains (except brown rice), processed sugar
Gene Test: HLA-DQB1-Allele 1 0301
HLA-DQB1-Allele 2 0603 (genes from both parents)
Serologic equivalent HLA-DQ 3,1 (subtype 7,6)
Imulogical Gluten Sensitivity
Gluten Ataxia
Tested negative for Celiac on Blood Test after being gluten free
Tested negative for Celiac on Single Biopsy-upper intest. after being gluten free for 3 months
Candida

#8 cyberprof

 
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Posted 30 January 2009 - 11:28 PM

same here...i had hip/joint pain for a year before figuring out celiac. within 4 months of going gluten free, i don't have any more pain!!


Mee Three! I had been diagnosed with Degenereative Disk Disease in my low back. If I did yoga daily I would have less pain but usually took ibuprofen every day for the pain.

That (along with my plantar faciitis) went away within a month of going gluten free. Mine doesn't come back with mild glutenings and I haven't (knock on wood) had a major glutening. I'm very happy!
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Diagnosed by biopsy 2/12/07. Negative blood tests. Gluten-free (except for accidents) since 2/15/07. DQ2.5 (HLA DQA1*05:DQB1*0201)

Son, age 18, previously delayed growth 3rd percentile weight, 25th percentile height (5'3" at age 15). Negative blood work. Endoscopy declined. Enterolab positive 3/12/08. Gene results: HLA-DQB1 Molecular analysis, Allele 1 0201 HLA-DQB1 Molecular analysis, Allele 2 0503 Serologic equivalent: HLA-DQ 2,1(Subtype 2,5) Went gluten-free, casein-free 3/15/08. Now 6'2" (Over six feet!) and doing great.

"Great difficulties may be surmounted by patience and perseverance." Abigail Adams (1744-1818) 2nd First Lady of the United States

#9 silk

 
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Posted 01 February 2009 - 04:25 PM

Mee Three! I had been diagnosed with Degenereative Disk Disease in my low back. If I did yoga daily I would have less pain but usually took ibuprofen every day for the pain.

That (along with my plantar faciitis) went away within a month of going gluten free. Mine doesn't come back with mild glutenings and I haven't (knock on wood) had a major glutening. I'm very happy!



I've been glutened twice in the past two weeks and my lowback, (sacrum) and hip hurts so much that I'm wondering if I'll ever walk upright or sit comfortably for more than a few minutes at a time ever again. Eating rice cereal for the next three months just to make sure this doesn't happen again! :(
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#10 silk

 
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Posted 05 February 2009 - 10:06 AM

Update: The pain I was having was not responding to the chiropractic adjustments so my chiropractor sent me to my family M.D. for an anti-inflammatory med hoping that once the inflammation was under control, the adjustments would take care of the structural problems. Family m.d., who dx'd me for the celiac disease, would not provide the meds. He did a few simple physical tests, diagnosed me as having a frozen sacro illiac joint and told me that three weeks was not a very long time to suffer from that condition and that it would resolve itself and if not, I should get back to him in another month and he would refer me to a physical therapist!. Said that he did not feel that anti=inflammatory agents ever really did any good. I explained my thoughts on the pain/problems being preceeded by the getting glutened and he poo-pooed that theory with the statement that 'even if you did get glutened, that's a digestive issue and should not be related to anything else and that once the food had gone through the digestive system the problem would be over and not last for 3 weeks.

The problem got so bad that by yesterday a.m I could hardly move and my husband had to dress me and take me to the hospital where they gave me nice drugs which were enough to curb the pain and relax the muscles so that when I got adjusted things actually moved and I am feeling somewhat better today. However, the nurses and docs that I saw in the e.r. were appalled that my family dr. would not prescribe an anti-inflammatory agent and that he wanted me to wait another month, in pain, before doing anything. That is taking the 'take two aspirin and call me in the morning' statement to a whole new level of ridiculous!

Obviously, I will be finding another Dr.
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#11 ang1e0251

 
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Posted 05 February 2009 - 10:15 AM

I am also appalled that he wouldn't prescibe anti-infammatories, my experience with dr's is that they hand them out like candy. The poo-pooing, yeah, I've heard that before. My dr asked me what the symptoms of my last glutening were and then laughed when I mentioned the last one in my feet. He said that's going too far!!

Frankly good luck finding a GP that get's it. They usually only have a minimal amount of knowledge of celiac disease, IMO. I don't rely on them for the info, that's why I'm here!!
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#12 tarnalberry

 
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Posted 05 February 2009 - 11:57 AM

a "frozen" SI joint *can* cause that much pain. I am prone to that problem due to hypermobility. quite honestly, I'd either call the dr. back and say "write me a script for PT right now" or get another dr. a good PT - along with the chiro, depending on the type of chiropractic - should be able to help you manage and strengthen the appropriate muscles in the pelvis to reduce the chances of this occuring. of course, this isn't quite like treating a sprained ankle; it takes some skill.
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA

#13 celiacsoyfree

 
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Posted 05 February 2009 - 12:25 PM

This is just my theory to hip/leg pain in celiac's and others.

#1 In Chinese medicine, the IT band/hip area is part of the meridian that is liked to the digestive system. (liver, stomach, spleen, gallbladder, intestines) When that area gets "sticky" i.e. glutenized, blocked, imbalanced, one feels the pain in the hip, IT band, low back, joints.

The blockage of chi needs releasing and the digestive tract cleansing.

acupuncture/massage
yoga, strecthing the hips and IT band.
walking
hot bath/sauna
yogurt
colostrum/whey protein
apple cider vinegar treatment (clears your sinuses too. you may notice sinus issues when the intestines is sick)
lemon juice/water
fiber (in food or supplements)

#2 Since celiac disease and getting glutenized causes malabsorbtion and stress, the body does not get enough nourishment. Extremity pain, neuropathy, paratheses, and aching in old injuries results from a need for b12 and extra vitamins.

Again, this is my opinion based on just my experience and research I've done.

I think gentle exercise like walking, yoga, swimming, physical therapy, stretching help release the blocked chi. If you're in pain and you sit there and let it fester, it has no where to go but to circulate in your body.
Helping the body to rid itself of the toxins through diet and homeopathic medicine will help the body recover faster.

Recently, I came off celebrex and experienced horrific aching in my hips/IT Band. Celebrex effects the GI tract. It was also one less thing for my liver to deal with. Now all this junk needed to come out and I took care of it with specific low back/hip/IT band stretches and diet.

good luck!!!!
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gluten free since 10/23/08
soy free since 2006

#14 Zella CE

 
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Posted 02 March 2009 - 04:20 PM

Ditto on the low back pain! :P

I have Scoliosis, Kyphosis, Degenerative Disc Disease and Arthritis - once going gluten-free the low back pain miraculously subsided.

Interesting thing was, when I was drinking Starbucks Frappuccinos up to three times a day (after my dx), I was still having intermittent intestinal cramping and severe back pain. Oh and add that to the menstrual cramps, eeeeeeeyikes, I was a mess!!

Luckily, I found out about the Frapps - this was only after landing in the hospital because I collapsed at the eye doctor (that's a whole different story).. but in the hospital they said that I was being glutened by something. Light bulb when on and I was like the frapps!! I guess they can't avoid the CC in those blenders - even though they had a dedicated blender for me - it still wasn't enough.

So, long story shortish, anytime I am severely contaminated I get the following:
- hot flashes
- severe cramping
- the big D or C - usually both
- slight hallucinations (I attribute this to becoming overheated)
- double vision
- peripheral neuropathy
- bone pain
- lower back pain
- migraines

If it is slight contamination from CC:
- lower back pain
- intestinal cramping
- migraines
- peripherial neuropathy

So, you can add me to the gluten-causes-me-back-pain-train :D
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********************

Celiac Disease - 5/2007
Scoliosis Surgery - 12/1997
Arthritis
Kyphoscoliosis
Degenerative Disc Disease
Enlarged Pituitary Gland
Vitamin D deficient
Folic Acid deficient
Iron deficient

... and loving life!!

#15 julirama723

 
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Posted 03 March 2009 - 07:55 AM

This is just my theory to hip/leg pain in celiac's and others.

#1 In Chinese medicine, the IT band/hip area is part of the meridian that is liked to the digestive system. (liver, stomach, spleen, gallbladder, intestines) When that area gets "sticky" i.e. glutenized, blocked, imbalanced, one feels the pain in the hip, IT band, low back, joints.


Oh my gosh, I don't know if this can be proven, but I DEFINITELY think you're on to something!

I began low-carbing a few years ago, and didn't eat any grains for about 8 months. I felt fantastic! About 7 months in to the diet, I started running regularly, and had no problems. A month later, I reintroduced grains (I would eat wheat most often, sometimes oats) and also began having serious problems with my right IT band. I was in so much pain and I was so stiff that I had to give up running for many, many months. (Even though I was stretching and doing yoga regularly!)

When I finally started running again, it was after a period of being grain-free. In fact, I started training for road races and for a marathon. I felt great at the beginning, but guess what I introduced back into my diet during training? Grains. The pain was not as severe as I was doing about 7 hours of yoga per week, but I still ached each day and always had to watch that leg.

It could be coincidence, but I nearly fell out of my chair when I saw your post!
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Graves Disease 5/95-5/97
Noticeable GI distress started 8/07
Mom Dx Celiac 9/08
Dietary Response POS 10/08
Bloodwork and Biopsy NEG 12/08
IgA Deficient




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