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Hip/low Back Pain


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#16 BoiseNoise

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Posted 13 February 2010 - 10:50 AM

I have not been diagnosed as celiac or gluten-intolerant, but was trialing a gluten-free diet because of my mom's recent diagnosis, and because of a few issues that I have had.

Anyway, after having been carefully gluten-free for about three weeks, I started having some fairly severe lower-back pain that seems to come and go intermittently, almost at random. It's primarily in my lower back, but sometimes also shows up in my left hip joint. I've tried yoga exercises, and I've also been drinking cranberry juice (since my dad has kidney-related back pain and suggested that). Nothing is working.

A couple of days ago, I "cheated" on my gluten-free diet at a favorite Chinese restaurant. Then I just went on and ate whole-grain cereal for breakfast, a sandwich for lunch, etc. . . . and my back pain seems to have gone away! I was wondering whether there could be a relationship of some kind. The whole time that I've been trying to eat gluten-free, I've felt a bit malnourished, as if my stomach wasn't quite right, and it just felt as if something was "missing." After reading the posts above, I'm thinking that maybe the lack of whole wheat caused a change in my digestion that then caused the back pain.

Really, I'm confused, and don't know what to think! This back pain thing is new to me, and its appearance did seem to coincide with the start of a gluten-free dieet. :(
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#17 Canadian Girl

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Posted 14 February 2010 - 07:47 AM

I was diagnosed approx 6 weeks ago, and went gluten free. about 2 weeks abo i started having terrible pain in the left side of my back, so bad that i couldn't move in the morning. it was terrible, I wrote a post about it and was told that it was possible cc or maybe nightshade veggies, or even milk or soy. i called my dr and she is doing a physical on my back in a few days and will send me to see a specialist. It seems to have gotten a little better thankfully but could it poss have been from one thing i ate that had gluten in it, and lasted this long? has anyone noticed a trend of the pain occuring in the LEFT side of your back?? That seems to be what I have been reading, and that's where it is in my back. it's on the left side, below my shoulder but above my hip, and feels like it's right in the center of my body, like massage wouldn't be deep enough to reach it. I was talking to a friend who's a nurse who told me not to take this too far and that i'm just getting older... I'M 23!!!! :angry: she seems to think that it's all a joke and that i should be careful what i eat but that not much will happen if i do eat gluten! we had dinner last weekend and there was chicken broth in something that made me bloated.. i think it was the chicken broth??? and she got mad at me for saying that it bloated me!!! sorry kinda went off course here but just needed to vent! <_<
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#18 bluebonnet

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Posted 14 February 2010 - 02:38 PM

I was diagnosed a year ago in November. While I did not go through the biopsy testing, I have type 1 diabetes, Raynaud's Phenomenon, Apthous Stomatitis(mouth ulcers) and all of the GI problems that most of you have, anemia and failure to thrive as a child, hip/joint pain, positive dietary response to a gluten-free diet, etc.. I am 49 years old and have had most of these for most of my life, so my M.D., although he would have liked me to remain on gluten long enough to do the biopsy, is operating under the assumption that I have Celiac disease and not just an intolerance.

Since being dx'd last year, I have remained faithful to a gluten-free diet but as most of you know, sometimes the toxic stuff creeps in where least expected and I get zapped and this is were it gets interesting for me. I work for a Chiropractor, who is also a very good friend and very supportive of me regarding the Celiac. He and his wife researched right along side me so that they would know what I was dealing with. (They gave me a beautiful goodie basket for Christmas filled with all kinds of delicious gluten free products that they carefully shopped for.) Because it is available to me, I frequently receive chiropractic adjustments, especially when I am having hip and low back pain. After being glutened a little over a week ago, I began having severe low back/hip difficulties. Today, after yet another adjustment for the same problem, the doctor told me he had been noting over this past year every time I had had this problem as well as whether I had recently been glutened. With every single occurrence there has been an episode of glutening.

Not necessarily significant info for most of you, but it is interesting to see it documented in my own history and not just an anecdote or symptom listed in a book somewhere. The Dr. (my boss) is guessing that along with chemical changes that take place in the body because of the gluten which may cause instability in the muscles and tendons around the joints themselves, that referral pain from the gastric distress and bloating that occur may also cause a shift in the spine, throwing the hip/pelvis off balance.

wow...this was very interesting to me! i have low back and hip pain from degenerative changes (in my mid 30's) and i'm hoping as i recover (into week 5) these improve (atleast i was told the pain could go away but the spinal damage is beyond repair).
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#19 jackay

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Posted 14 February 2010 - 05:27 PM

I get very tight muscles in my lower back and burning pain in my upper back muscles right below my shoulder blades. The pain definitely seems to be food related. I am intolerant to many foods besides gluten and am having a hard time determining what is all bothering me. I am 100% convinced that all my back problems are food related.

I was getting chiropractic adjustments for a long time but that wasn't helping anymore. If the pain gets too bad, I'll start in again with that. I do find that laying on my back with a rolled towel under my hips for about 15 minutes really does help the lower back pain. I've read that it puts more of an S curve in the spine. I haven't found anything other than hot showers that helps with the upper back pain.
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#20 jerseyangel

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Posted 14 February 2010 - 05:44 PM

I've been reading all of your experiences with interest. Before being diagnosed for probably 2 years I would wake up with severe hip pain--my right hip would hurt so bad that it was difficult to turn over in bed. I would get up, walk around--slowly at first, and take a warm shower. The pain would subside, and start all over again the next morning.

I didn't equate it with what was going on with my digestive tract, but once I went gluten-free, I never got that hip pain again. It's been almost 5 years, and never once since I went gluten-free have I felt it.
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#21 katinagj

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Posted 16 February 2010 - 09:50 AM

I was diagnosed a year ago in November. While I did not go through the biopsy testing, I have type 1 diabetes, Raynaud's Phenomenon, Apthous Stomatitis(mouth ulcers) and all of the GI problems that most of you have, anemia and failure to thrive as a child, hip/joint pain, positive dietary response to a gluten-free diet, etc.. I am 49 years old and have had most of these for most of my life, so my M.D., although he would have liked me to remain on gluten long enough to do the biopsy, is operating under the assumption that I have Celiac disease and not just an intolerance.

Since being dx'd last year, I have remained faithful to a gluten-free diet but as most of you know, sometimes the toxic stuff creeps in where least expected and I get zapped and this is were it gets interesting for me. I work for a Chiropractor, who is also a very good friend and very supportive of me regarding the Celiac. He and his wife researched right along side me so that they would know what I was dealing with. (They gave me a beautiful goodie basket for Christmas filled with all kinds of delicious gluten free products that they carefully shopped for.) Because it is available to me, I frequently receive chiropractic adjustments, especially when I am having hip and low back pain. After being glutened a little over a week ago, I began having severe low back/hip difficulties. Today, after yet another adjustment for the same problem, the doctor told me he had been noting over this past year every time I had had this problem as well as whether I had recently been glutened. With every single occurrence there has been an episode of glutening.

Not necessarily significant info for most of you, but it is interesting to see it documented in my own history and not just an anecdote or symptom listed in a book somewhere. The Dr. (my boss) is guessing that along with chemical changes that take place in the body because of the gluten which may cause instability in the muscles and tendons around the joints themselves, that referral pain from the gastric distress and bloating that occur may also cause a shift in the spine, throwing the hip/pelvis off balance.



I honestly wish I had seen this a year ago. I've been suffering from terrible hip and lower back pain for years. I am only 22 so the fact that I have had to use a cane to walk frequently in the past 2 years told me there was SOMETHING wrong. Xrays showed nothing. I went to a good chropractor after finding out I had slight scoliosis, and whle it helped, I was always plagued again later by the hip pain(and still had to use a cane to walk quite often). It would be like my hip was catching on my spine. Horrible shooting pain. If I moved my hip at all I would end up screaming. It was terrible! My upper back pain went away after getting my spine aligned, but since the hip pain never left I knew there was something still wrong. Only the other day did I realize that my hip pain is completely gone since going gluten free. My lower back pain is for the most part gone. Just a little bit of pain left but I am sure that it will leave soon as I can feel it getting better. Anyways, I just wanted to say you are not alone! And its nice that there is someone I can relate to in that aspect. My family was starting to think I was faking it...lol
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#22 BoiseNoise

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Posted 20 February 2010 - 04:10 PM

I figured out what was going on with my back pain! It was, indeed, indirecty caused by going gluten-free, and I stumbled onto the reason why: people with impaired kidney function of any kind, even mild, should avoid high-protein diets. By going gluten-free and cutting out breads, pasta, etc., my diet inadvertently moved to a much higher protein ratio (after all, you have to eat SOMETHING!) The result was that my kidneys started "acting up" and causing a lot of pain.

I am back on a normal "glutenous" diet now. My back pain went away almost instantly and has not recurred, and I feel much better overall. I guess this illustrates the folly of trying to go gluten-free without a definite diagnosis that requires it. ;)

BTW, I'm not saying that gluten-free diets are necessarily bad for your kidneys. More fruits and vegetables and less protein, and I would probably have been fine. I'm just posting what I discovered in case it might help anyone else who finds themselves in a similar situation.
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#23 Anchi

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Posted 19 February 2012 - 12:47 PM

Oh my gosh, I don't know if this can be proven, but I DEFINITELY think you're on to something!

I began low-carbing a few years ago, and didn't eat any grains for about 8 months. I felt fantastic! About 7 months in to the diet, I started running regularly, and had no problems. A month later, I reintroduced grains (I would eat wheat most often, sometimes oats) and also began having serious problems with my right IT band. I was in so much pain and I was so stiff that I had to give up running for many, many months. (Even though I was stretching and doing yoga regularly!)

When I finally started running again, it was after a period of being grain-free. In fact, I started training for road races and for a marathon. I felt great at the beginning, but guess what I introduced back into my diet during training? Grains. The pain was not as severe as I was doing about 7 hours of yoga per week, but I still ached each day and always had to watch that leg.

It could be coincidence, but I nearly fell out of my chair when I saw your post!



I don't think it's a coincidence. For at least 5 years I have had off and on: lower back pains, stabbing pains in hips and legs, shin pains, tingling in my feet, pain in hip area, shoulder pain (for many many years) all on the right side. My right leg often felt like it wasn't my leg, sometimes I thought I we getting appendicitis when I had sharp pains in right lower abdomen...other symptoms...around when I started having hip pain I broke out in hives for the first time ever after eating pizza. For years I have suffered from fatigue, pms where my legs felt like lead, interrupted sleep, foggy brain, Raynaud's syndrome. I have had thyroid checked, hip x-ray, chiropractic work (which help...she gave me a digestive enzyme which helped at the time), physical therapy (that helped a lot with hip pain), MRI on hip, internal sonogram (thinking it was my ovary..even had a laparoscopy with no results). The only thing anyone found was that I was anemic. All these doctors and NO ONE EVER MENTIONED GLUTEN INTOLERANCE!!! Makes me so mad. It took a friend who's daughter has celiacs to suggest a gluten-free diet...WOW! Within 3 days I felt huge changes. I had drenching night sweats that seemed to be detoxing my body. I slept solid, all night! and so many pains went away. I started feeling an energy I never had. I even started running, which I've never done. I only drank one cup of coffee instead of drinking cups all day long. I have not yet been tested..trying to find a doctor who understands all this. Everytime I eat wheat now I feel sick for 3 days, as if I'm getting a cold, can hardly walk, have sharp pains in right hip and leg, numbness in right heel, and have night sweats. Why do Doctors not understand the problems of gluten??? I wish someone had told me this years ago. My mother had these same pains when she was my age and Doctors could find nothing. Later in life she had severe arthritis in both hips and had a hip replacement. She died a year ago just before her second hip replacement, and was in constant pain and anxiety. If I'd known what I know now I think she would have been much better if she were wheat free. Her sister died of Wegner's (sp) an autoimmune disease...could that have been caused by gluten? I wonder if my family has the gene for wheat intolerance or Celiac. We originate from Northern France.
I'm now reading WHEAT BELLY by Dr. William Davis in which he writes about how wheat has become so genetically modified it is probably causing many of todays diseases and digestive issues. I highly recommend this book!
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#24 Anchi

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Posted 19 February 2012 - 12:54 PM

I get very tight muscles in my lower back and burning pain in my upper back muscles right below my shoulder blades. The pain definitely seems to be food related. I am intolerant to many foods besides gluten and am having a hard time determining what is all bothering me. I am 100% convinced that all my back problems are food related.

I was getting chiropractic adjustments for a long time but that wasn't helping anymore. If the pain gets too bad, I'll start in again with that. I do find that laying on my back with a rolled towel under my hips for about 15 minutes really does help the lower back pain. I've read that it puts more of an S curve in the spine. I haven't found anything other than hot showers that helps with the upper back pain.


I have had burning pain in my upper right shoulder below the blade for years. I have a huge knot there and have had it worked on off and on over the years. I noticed since I went gluten free it is not nearly as painful. I also used to feel a lot of tension in my upper back and had a lot of anxiety. gluten-free has cleared that up too, along with many many other issues. Just need to find a Dr. who understands this. I sometimes wonder also if there are other foods that bother me, because I think I'm being really good about avoiding gluten, and then suddenly the symptoms return.
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#25 CiaraPearle

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Posted 23 July 2012 - 04:22 PM

Explain this one to me. I have been gluten free for a year, and all of the sudden I have this horrible joint pain, hips, knees, shoulders but I had these before I went gluten free and I have eaten anything with gluten in it lately so I don't know why it would be like this.. I am seriously considering going to a bone specialist but a coworker recently said that it might be something in my stomach causing this reaction, could I possibly be having other allergies?
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#26 nvsmom

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Posted 23 July 2012 - 07:33 PM

If you had it before going gluten-free, I would assume that you are somehow being glutened. Perhaps go through your old brands to check if anything has changed, or consider if you are exposing yourself to cc through new people or places that do not keep wheat grains away from gluten-free food, utensils or other equipment.

I hope your joints are feeling better soon.

OT, this is an interesting old thread you found, and it seems very relevant to me. I have lots of aches that fit in around this topic starting with snapped knee ligaments, worn out cartilage, sore back with sciatic pain and seized muscles, then a burst disc with leg paralysis, and now I have IB pain, and a weak aches shoulder.... I hope some of it goes away, I am only four weeks into the diet.
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#27 kate1

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Posted 25 July 2012 - 12:13 PM

Explain this one to me. I have been gluten free for a year, and all of the sudden I have this horrible joint pain, hips, knees, shoulders but I had these before I went gluten free and I have eaten anything with gluten in it lately so I don't know why it would be like this.. I am seriously considering going to a bone specialist but a coworker recently said that it might be something in my stomach causing this reaction, could I possibly be having other allergies?





I used to associate the lower back ache just to the coeliac but I have been gluten free two years and still get that same awful aching etc when I have had dairy of any kind.
I went dairy free too and keep trying to reintroduce in the hope that I am healed and it was temporary but never feel well after the dairy.
My symptoms for dairy dont really fit the ones that are standard so its confusing.
I think its something in the proteins in dairy.
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