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Best Book About Celiac Disease
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9 posts in this topic

Okay guys, I thought something needed to go here, and I have to say that my all time favorite book about celiac disease is Danna Korn's book "Wheat Free, Worry Free".

What is the best book about Celiac Disease/Gluten Intolerance that you have read??

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The book "Dangerous Grains" by James Braly M.D. and Ron Hoggan M.A. is EXCELLENT!

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Ummm......I would have to agree with you, Wheat-Free Worry-Free was pretty good.

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There is a new book comming out this spring called "A personal touch on Celiac Disease", a few of us on this message board have put stories and recipes in it so you should look for it when it comes out!

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I LOVE :wub: Bette Hagaman's Cookbooks, they have such great information in the front of them, along with GREAT recipes!! My favorite is her The Gluten Free Gourmet Cooks Fast and Healthy. I use it alot. There is a great recipe in there for enchilada sauce!!

She has a new book comming out this month that deals with cooking comefort foods. I can't wait to get it!!

Ok...that's my 2cents!!

-Jessica :P

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the best (ok, the only one, but it's extremely good) book i ever read on wheat intolerance/wheat allergy is "Against the Grain," by Jax Peters Lowell. I've probably read through the entire thing 4 or 5 times, and it is great!! Not only does it have tons of information, tips, & recipes, ...it is HILARIOUS! Reading it makes me feel like maybe i'm not the biggest weirdo for having to dissect my food in front of everyone at a dinner party. :) I swear, any celiac/wheat intolerant person who reads this will finally be able to laugh out loud at all the funny/eccentric things (i.e. eating caviar w/ a spoon, bringing your own rice pasta to Italian restaurants) that one tends to go through with gluten/wheat intolerance. Especially after you've just been diagnosed (as I had), it's great to know that there's someone else out there who has the same annoying issues as i do (i.e. difficulty eating out at restaurants, dining with friends), and can offer some good advice on how to cope.

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I enjoyed the humor in Against the Grain too but I think it is important to not that it was published quite a while ago so some of the nutritional information offered is no longer accurate.

I appreciated he down to earth approach for asking for what you need prepared the way you need it without apologizing for it. She is really good!!

Sue

gluten-free for 22 days

(but who's counting??)

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"The Gluten Free Kitchen" by Roben Ryberg is also a very good book.

My husband and I used to eat out at least 4 nights a week. That was our lifestyle. I am adjusting to cooking my own food and eating at home. It is a major challenge but I am excited about it because I am already feeling soooo much better.

I need to add that this board is a real lifesaver! I love it. Thanks everyone for your knowledgeable support. It is great. The one thing I have learned very quickly is to not take other people's word for what I can and can't eat. I appreciate that frequently people post the website or book where they got their information so I can check it out for myself.

My attitude is that I am not giving up one thing that I don't have to but I am also not putting anything in my mouth that will rob me of my health. That means doing a lot of research and playing private detective about everything I eat but it is worth it.

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I have to agree with Jessica that Bette Hagaman's Cookbooks are my favorites. It is good to have good info, but the recipies are what I enjoy. She certainly knows her stuff. My wife found a bunch of them on Ebay for a little less $$ as well. It is nice to save money when all the gluten-free flour is expensive out here.

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    • Hi Beachgrl, It won't hurt anything to go gluten-free now, except the possibility of getting a diagnosis of celiac disease.  When i went gluten-free, it seemed like the initial changes were spread over about 6 weeks.  I had gut spasms for that time.  And other changes, all for the better.  Initial recovery from celiac damage can take up to 18 months, so it can be a slow thing.  Some people get better much faster of course, because we are all individuals and not identical. Going gluten-free for celiac disease is a lifetime commitment though, and some people have a hard time doing that without a diagnosis.  Even minor amounts of gluten can cause us to react, so it is best to eat a very simple diet of whole foods at first.  Avoid dairy and processed foods.  I hope it works out for you.  I know some people with Crohns disease eat gluten-free and find it helps them.  Gluten is a tough thing to digest for all people, but most don't have an immune reaction to it like celiacs do.  
    • Honestly, I would not trust the school to provide a gluten-free meal except for fruit, salads, veggies, etc. I sub in a school cafeteria and I swear everything is breaded or on bread. Utensils are shared. They're very clean but unless you have a very knowledgeable person in there, I just wouldn't chance it. I found a slim Jim type snack that says gluten-free on it. If you want to give me your email or FB account, I can send you some very valuable info on 504's though. They carry the student right through college. I kept a copy of what a friend wrote about her daughter being in a sorority and just how the 504 helped immensely. But, I would definitely get one and still be prepared to pack a lunch. All our meals are delivered frozen and we just hear them up. If your school actually fixes food, that's different. 
    • Oh, I would suggest providing gluten-free goodies (e.g. Candy) or even a frozen cupcake (kept in the teacher's freezer) in the event of a party.  My daughter's classmate is severely allergic to peanuts.  Her mom did that and Abby was never left out!  😊
    • Hi Nobody, Welcome to the forum!  I noticed you said you have been avoiding wheat products.  That's good, but are you avoiding rye and barley also?  Wheat, rye, and barley are the 3 grains that cause reactions in celiac patients.  About 10% also react to oats. If you haven't had the full celiac antibodies test panel, it might be worthwhile getting that done now.  The ttg is just a basic test and is generally followed up by an endoscopy or the full celiac panel. I wouldn't worry a lot about getting cancer.  That doesn't happen often. It is possible some of the other grains you might be eating are contaminated.  A group did a test on several off the shelf products a few years ago that would not normally be thought of as having gluten and found some actually did have low levels of gluten.  Things like corn meal for example.    
    • I can not help you with the the 504 plan, but I do know that I would do it.  My daughter is 15 and so far has tested negative for celiac disease, but in the event she does test positive, she will need a 504 plan to help keep her safe.  I am sure other parents will chime in.  This topic has come up repeatedly.  Until then, try a search with the forum.  Lots of people have posted with their comments and experiences.   As far as lunch is concerned, my kid has not purchased a school lunch since the 1st grade.  She says they are gross.  (Poor me!).  But, I would not trust the school to provide a gluten-free lunch.  Sure, they are required by law, but let's face it, who is working in the kitchens, ordering, etc?  I am on a University campus and have called out food service for not following gluten-free safe practices!    I would pack a lunch, at least until her health has stabilized.  The 504 plan is great for extra trips to the bathroom and hand washing.  It provides some protection in the classroom.   Keep advocating for her Mom!  You are doing a great job!  
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