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Joint Pain In Children?


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13 replies to this topic

#1 mimommy

 
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Posted 29 January 2009 - 03:28 PM

Hello. I am new here and am so very happy to have found a place to ask questions and share my concerns! I would like to know if any of you have noticed that your child, like mine, complains of stiffness and/or pain? My 8 year old has been diagnosed with celiac disease recently, but has complained of tender achy pains in her legs for years. From the onset of her worst celiac symptoms (1 year ago) she had ankle pain for months, and told me today that she has pains in her finger and leg. When I was growing up I had awful pain in my legs--my dad called it "growing pains". As it turns out, inflammatory issues have plagued me my entire life (I have not been tested for celiac yet.) My heart breaks to hear my daughter--who is so young--talk about being in pain.
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#2 Fiddle-Faddle

 
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Posted 29 January 2009 - 03:56 PM

My 16-year-old student would scream "celiac!!!!" in answer to your question (as would I).

She went faithfully to physical therapy for three YEARS, and was on various meds for the pain that they said was some variant of juvenile rheumatoid arthritis. After 2 weeks gluten-free, her pain went from 8 (on a scale of 1-10) to 0-1.

Turns out, she does have the genes for celiac--but none of her doctors even thought of celiac, even though it turns out that she also has (surprise surprise) intestinal issues.

I'm not saying that celiac is the one and only cause of joint pain in children. But it IS the first one I think of, and should be ruled out (or in).
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#3 shayesmom

 
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Posted 29 January 2009 - 05:48 PM

Hello. I am new here and am so very happy to have found a place to ask questions and share my concerns! I would like to know if any of you have noticed that your child, like mine, complains of stiffness and/or pain? My 8 year old has been diagnosed with celiac disease recently, but has complained of tender achy pains in her legs for years. From the onset of her worst celiac symptoms (1 year ago) she had ankle pain for months, and told me today that she has pains in her finger and leg. When I was growing up I had awful pain in my legs--my dad called it "growing pains". As it turns out, inflammatory issues have plagued me my entire life (I have not been tested for celiac yet.) My heart breaks to hear my daughter--who is so young--talk about being in pain.

One of the students at my dd's school was just dx'd with Celiac (and egg and dairy allergy) two weeks ago. She has suffered for YEARS with joint pains. Already, it is getting better.

So yes, it is totally possible that this was one of those "non-classic" symptoms at work.

I hope your dd starts feeling better soon!
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Vicky

#4 Amyleigh0007

 
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Posted 29 January 2009 - 06:32 PM

Yes! One of my 8 year old son's main symptoms was leg pain. He would have muscle cramps and knee and ankle pain. He would sleep with a heating pad every night. Everyone told me it was "gowing pains". The funny thing was he was not growing. The pain has gotten much better now that he is gluten free. I can't remember the last time he complained. And, by the way, he has grown more in the last 10 months then he did in the previous 3 years.
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Amy

1989: I am diagnosed with IBS.
3/08: 8-year-old son diagnosed with Celiac (blood test and biopsy) and allergies to corn, egg whites, soy, peanuts, walnuts, wheat, and clam.
6/08: My Celiac test is negative.
7/08: I go completely gluten free despite negative test and NO MORE IBS SYMPTOMS!!
7/09: My Enterolab gluten sensitivity gene testing results indicate I have one Celiac gene and one gluten sensitivity gene.
8/09: I am diagnosed with Celiac based on gene testing results and positive response to diet.

#5 climbmtwhitney

 
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Posted 29 January 2009 - 06:44 PM

Hi.

Yes!!!

My 5-year old who's been diagnosed gluten intolerant used to get terrible leg pains. Poor little guy--they would wake him up out of his sleep. I used to have to stay with him and gently rub his legs until the Motrin kicked in and he fell back to sleep. We were also told they were just "growing pains". But, since he's been gluten free he hasn't had them--I can't even remember 1x since going gluten-free.

And, I, who am Celiac, was tested a couple of times as a child for rheumatoid arthritis because my pains were so bad. And, as an adult I would get random shooting pains. For several hours they might be in my foot every several seconds. Then later they would move somewhere else like my chest, leg, knee, arm, etc. Mine, too, are gone!

I hope your daughter feels better soon. :)

Jill
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Jillian

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I was dx Celiac 2008 + casein, soy, legume, & nightshade intolerant; dx hypothyroid 2006

14 yr. old daughter dx Celiac + plus casein & soy intolerant 2008
12 yr. old daughter dx gluten intolerant 2008
9 yr. old son dx Celiac 2008 + casein intolerant. DH Rash.

#6 debmom

 
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Posted 30 January 2009 - 05:50 AM

My daughter had similar issues with leg pain, joint pain and restless leg syndrome. All are better on a gluten free diet. Occasionally she complains of pain, but not nearly as often.
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#7 mimommy

 
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Posted 30 January 2009 - 06:14 AM

"as an adult I would get random shooting pains. "



That is EXACTLY how my daughter described it. She has been on a strict gluten free diet since last August, with a few mishaps and accidental contaminations. I have been rechecking and rereading all food labels again to be absolutely certain there is no hidden gluten. Just the thought that we could help her avoid the inflammatory problems in my family is compelling. I am seriously thinking of going gluten free myself. After joining this forum I have realized I may be contaminating her in the process of preparing foods for the rest of the family. Thank you all for sharing these experiences--my nearest support group is about an hour drive from where we live.

Does anyone get stabbing pains under their fingernails? Like needles?
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#8 Rondar2001

 
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Posted 30 January 2009 - 09:18 AM

Count my daughter in for these symptoms. She's 8 now and still complains once and awhile about muscle aches, but much less than before going gluten free.
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DD diagnosed Celiac by biopsy May 2008 at 7 years old.
DD diagnosed with Asthma November 2009 at 8 years old.

#9 jmjsmomma

 
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Posted 30 January 2009 - 09:32 AM

Yep, leg pains here too. My five year old had almost nightly leg cramps for the last couple of years. We were told they were growing pains too, which made sense to me as I suffered terribly with leg cramps as a child (although my celiac panel just came back negative). After being gluten-free since Jan 9, my son has had only one leg cramp!
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Shannon

6 yo son dx Celiac 1.8.09 Gluten Free since 1.9.09
4 yo son negative panel, completely asymptomatic
2 yo daughter IGA deficient, genetic test came back DQ2-, DQ8- praise God!

#10 CeliacMom2008

 
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Posted 31 January 2009 - 06:33 AM

Add my son to the list of Celiac's who had leg pain. He was tested as a toddler for arthritis. We were told he was getting us up at night complaining of leg pain for attention. We were told his arches weren't formed yet and that was causing ankle pain. We were told he was having growing pains. All of these were told to us by his various pediatricians. Then a little over a year ago he was diagnosed with Celiac because of intestinal issues. And wouldn't you know it...gluten free and leg pain free as well. He also stopped having dark circles under his eyes so frequently, allergies got much better, started going to bed at a normal kid time instead of right after dinner, his mood swings disappeared, and he grew 4 inches in one year. So yes, I believe Celiac was the cause of my son's leg pains as well as a whole laundry list of other problems!
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#11 mimommy

 
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Posted 31 January 2009 - 07:00 AM

Add my son to the list of Celiac's who had leg pain. He was tested as a toddler for arthritis. We were told he was getting us up at night complaining of leg pain for attention. We were told his arches weren't formed yet and that was causing ankle pain. We were told he was having growing pains. All of these were told to us by his various pediatricians. Then a little over a year ago he was diagnosed with Celiac because of intestinal issues. And wouldn't you know it...gluten free and leg pain free as well. He also stopped having dark circles under his eyes so frequently, allergies got much better, started going to bed at a normal kid time instead of right after dinner, his mood swings disappeared, and he grew 4 inches in one year. So yes, I believe Celiac was the cause of my son's leg pains as well as a whole laundry list of other problems!



Interesting--the dark circles under my daughters eyes have gone away, too!
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#12 conviviality

 
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Posted 31 January 2009 - 08:00 PM

Hello. I am new here and am so very happy to have found a place to ask questions and share my concerns! I would like to know if any of you have noticed that your child, like mine, complains of stiffness and/or pain? My 8 year old has been diagnosed with celiac disease recently, but has complained of tender achy pains in her legs for years. From the onset of her worst celiac symptoms (1 year ago) she had ankle pain for months, and told me today that she has pains in her finger and leg. When I was growing up I had awful pain in my legs--my dad called it "growing pains". As it turns out, inflammatory issues have plagued me my entire life (I have not been tested for celiac yet.) My heart breaks to hear my daughter--who is so young--talk about being in pain.


Most definitely this pain can be due to celiac. I now know my lifelong pain was due to celiac disease. It also led to a severe case of fibromyalgia. I was able to control the fibromyalgia by reprogramming my body to deal with stress differently, but continued to suffer from chronic fatigue and other celiac symptoms over the years. I seriously doubt these are growing pains. Especially if its been ongoing for years.
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#13 sugarsue

 
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Posted 31 January 2009 - 08:19 PM

This thread is very interesting for me! My 7 yr old dd who has negative celiac and gluten intolerance testing, but has been gluten free since december is someone who has had a history of leg pain. She also often slept with a pillow under her legs and cried herself to sleep and we wrote it off as growing pains. I've taken her to the Ortho Ped. since there have been 2 times that she could not even walk and she had to wear a boot for the pain for a week at a time and they could never find anything wrong with her. But now that I am thinking of it, she has not had any leg pain since going gluten free!
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Susan
LYME diagnosed 11/2010, allergic to wheat, Hashimoto's Thyroiditis, allergic to all grasses, most trees, dust
Mom to 9 year old dd, lyme, diagnosed 11/2011, highly gluten intolerant, epilepsy w/ generalized seizures, mitocondrial markers, malabsorption, recurring candida - Gluten-free Casein-free since 9/16/08. Diagnosed with P.A.N.D.A.S. 6/20/09, seizure free since going gluten-free!
and 10 yr old dd, Lyme diagnosed 11/2011, severe dust allergy, allergic to most trees/grasses/weeds. Positive gluten intolerance testing. Gluten Free since 12/09/08. Diagnosed with P.A.N.D.A.S. 6/20/09

#14 ryebaby0

 
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Posted 01 February 2009 - 06:24 PM

Add us in too -- my son was "dx" with JRA about 2 months before his celiac dx. (I cry, thinking of how he limped to the bus stop and we kept trying "better shoes") The phantom/pins/numb pains in his legs did eventually go away as well (although when it's really hot, they seem to reoccur in a less-serious way) A multi-vitamin is sometimes helpful too, I've read it's an absorption issue in the first months/years of gluten-free life (my son has been gluten-free for 5 years now)
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Mom/wife to celiacs dx 12/03 and 12/04


Success is never final and failure never fatal. It's courage that counts -George Tilton




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