[mimommy]

Hello all! I am from the n. eastern suburbs of Detroit and am looking for a support group in this area. I know the tricounty group has a meeting in Farmington, but it is quite a hike from here. Is there anyone here from this area? Would you be interested in a group near R.O./Troy Beaumont or Henry Ford Macomb? I am seeking peer support for my young child.

[AMQmom]

I have two Celiac daughters - 4 and almost 8 years old. We live near Clarkston but I go to the Troy Beaumont area for appt.s pretty regularly. Keep me posted if you find more. I also know one 1st grade little girl in Clarkston with Celiac.

[mimommy]

AMQmom, on Jan 30 2009, 01:49 PM, said:

I have two Celiac daughters - 4 and almost 8 years old. We live near Clarkston but I go to the Troy Beaumont area for appt.s pretty regularly. Keep me posted if you find more. I also know one 1st grade little girl in Clarkston with Celiac.

Hello Clarkston! So nice to hear from you. I have been looking for a place where my 8 year old daughter can talk to and interact with other children with celiac. I did find the tccsg (tricounty celiac support group), but their meetings take place at a church at 11 Mile & Farmington Rd (I am near Lakeside mall.) Their web is tccsg.com. I am going to call the hospitals I mentioned and my pediatrician and Ped. GI to see if any one knows of any groups that meet closer to us or would help/support/give meeting space for a new group. Although I am hesitant to jump off and start from scratch, I will if I need to. I believe my daughter would benefit from this, and I know I would truly enjoy an outlet with face to face conversation with other parents--advice, experience. I am already interested in hearing your story--such as what doctors you see, how you handle school functions--because our children are the same age. I will do some legwork and post back later on this. One last note, I am considering starting a team for the celiac 5 mile walk/run in May. Check out the web address above to read about it. If you are interested, let me know. My husband and neihbor (neihbor, her daughter-in-law, and grandson have celiac also) said they would walk on the team if I start it.

[janetw]

There are two R.O.C.K. (Raising Our Celiac Kids) chapters in Michigan. I don't know anything about Michigan so I don't know if they are close to you:

Macomb Township - ROCK'n MI Support Group
Contact: Kimberly Fanelli
Macomb Township, MI 48044
Tel: (586) 226-8480
E-mail: kfanelli@mac.com

West Bloomfield - Support Group
Contact: Gail Smoler
Raising Our Celiac Kids (R.O.C.K.) - West Bloomfield Chapter
4358 Strathdale Court
West Bloomfield, MI 48323
Tel: (248) 851-9451
E-mail: GailS63@aol.com

[AMQmom]

I was all gung hoe to start a R.O.C.K. chapter closer to us, got all the paperwork then we had job loss. If you are interested, R.O.C.K. looks very simple to start!! MIMommy, PM me if you don't mind so we can exchange info - I did join Tri-County but never made it to a meeting despite my interest because of the drive (and since let the membership lapse).

Heads up - Kyle Dine is coming to Clarkston for a show in May. He has a C.D. out for kids that is really funny and all about food allergies. One song is about being gluten free (he unterstands that celiac is not an allergy - he faces food allergies and that is what got him started). There will be one show for kids up to grade 3 and one for 4-8. Pretty exciting!

Same age kids - can't beat that!!!! Hope to meet you and yours....