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Annika Update


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6 replies to this topic

#1 Guhlia

 
Guhlia

    Ah yes.... Happy New Year to all, Red Bridge style... LOL

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Posted 30 January 2009 - 03:01 PM

For those who remember us... Annika is now almost 17 months. She just started gaining weight again and we managed to pack almost a full pound on her in 6 weeks. YAY! She's back on the growth charts. We just got a bunch of bloodwork back and it showed very VERY low IGF (insulin-like growth hormone) and acidosis (acidic blood pH). The doctor thinks this could be due to food intolerances and we're going in for an endoscopy Tuesday to rule out other things. Hopefully this will be the end of our journey. I feel like we've waited so long for answers. We're very slowly adding new foods back into her diet so we're hopeful the weight gains will continue. Thanks to all who have sent us well wishes and prayers over the past year or so. :)
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~Angie~

Gluten free since May 2004

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#2 Jestgar

 
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Posted 30 January 2009 - 03:09 PM

I'm so glad to hear she's doing well :)
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#3 Lisa

 
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Posted 30 January 2009 - 03:10 PM

Angie,

I'm so glad that things look promising and hope you have answers soon. I'd love to see an updated picture. I was there when she was born. ;) and wanted to name her "Goose Guhlia" :P

Hugs to you both!
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Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

#4 mommida

 
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Posted 30 January 2009 - 04:04 PM

I am so glad to hear things are getting better!
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Michigan

#5 jerseyangel

 
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Posted 30 January 2009 - 04:30 PM

I was there when she was born. ;) and wanted to name her "Goose Guhlia" :P
Hugs to you both!

:D I remember that! I also remember I sensed that you were pregnant right before you told us.....just sayin.... :lol:

Glad she's doing well, Ang--keep us posted on the biopsy.
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Patti


"Life is what happens while you're busy making other plans"

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"Bloom where you are planted"--Bev

#6 ravenwoodglass

 
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Posted 31 January 2009 - 07:18 AM

Thanks for the update. So good to hear that she is doing better.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#7 Guhlia

 
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    Ah yes.... Happy New Year to all, Red Bridge style... LOL

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Posted 02 February 2009 - 09:26 AM

Annika has a cold, so the endoscopy is rescheduled for 3 weeks from now. We also got back the 2nd round of bloodwork and it shows no signs of renal failure which is really positive. They're attributing the acidosis to dehydration at the time of the first test. Now we just need to determine what's causing the weight loss and the low IGF. Both of which could apparently be due to malabsorption or malnutrition.
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~Angie~

Gluten free since May 2004




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