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Random Bouts Of Dizziness/loss Of Balance


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11 replies to this topic

#1 UnhappyCoeliac

 
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Posted 01 February 2009 - 02:02 AM

I have still be struggling with the gluten free diet but have been gluten free for the last 3 days. But today I feel TERRRRRRRRIBLE I had a gluten free pizza but after walking home I dizzy when i turn my head quickly as I did to check for cars on my walk home I got a vertigo like feeling. And when i place my feet I feel vulnerable like they wont go where I want them too because I feel dizzy.

In the last year or so I have had two other experiences like this, both are when I have been overtired or up in excess of 28hrs or so.

I have been diagnosed for a 1 year. 22 years old currently and male. I carry some weight to so maybe it could be related to that <_< Anyone else experienced this.

I bought b12 vitamins just because I thought i may help. It comes from nowhere!
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#2 tom

 
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Posted 01 February 2009 - 03:41 AM

And when i place my feet I feel vulnerable like they wont go where I want them to . ..

This part sounds like ataxia.

Was the gluten-free pizza at a restaurant? CC might be hard to avoid.


P.S. I see Melbourne right NOW - Rafa vs Roger.
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>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07

#3 RiceGuy

 
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Posted 01 February 2009 - 05:33 AM

The vitamin B12 is a very good idea. Just make sure it's methylcobalamin, sublingual, and take at least 3mg per day. It may also be advisable to ask a doctor for a shot or two, in order to get your levels up more quickly. The blood test is simple enough, and although it isn't always accurate, in the case of extreme deficiency, I'd hope it would show up.

Other deficiencies should not be overlooked, such as B-complex, vitamin D3, and minerals including potassium and other electrolytes.

As was mentioned, CC could have occurred, but you know your body better than anyone else, and what symptoms to expect. However, it is not uncommon for new symptoms to show up after going gluten-free, when CC occurs.
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#4 rinne

 
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Posted 01 February 2009 - 05:40 AM

My symptoms included walking like I was drunk, when I hadn't had a drink in months, and other neuro symptoms from a B12 deficiency. It is very common for Celiacs to be deficient in this and other vitamins, Vitamin D too.

It is well worth the effort to have your doctor do the blood work to check your vitamin and mineral levels.

Of course, if you had the gluten free pizza out somewhere there is always the chance of cross contamination. :(

I hope you feel better soon. :)
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#5 UnhappyCoeliac

 
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Posted 01 February 2009 - 06:53 AM

What is CC guys?
I hadn't taken my vitamins for 3 days and now I have taken them again

I take daily most of the time when I am not lazy: d, multi, b12, fish oil

Yes Rafa V Roger was just one... I and most other Australians really like Roger Federer it was so sad to see him overcome with grief from his loss, bu Nadal is a terrific champ.

I took my vitamins and the dizziness has actually gone away. Do vitamin levals drop when your in a state of sleep depravation?

Minimal sleep last night and I am noticing I get these sort of symptoms when I have not slept adequate levals but sometimes when out, or when there is much to do its simply impossible to sleep for too much
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#6 Gfresh404

 
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Posted 01 February 2009 - 06:12 PM

I was going through the exact same thing and I think I know exactly what you're talking about. It used to happen to me all the time, to the point where I could not do anything. Try removing all dairy from your diet for at least one week. See if you notice a difference.

It might just be a coincidence that you felt like crap after eating pizza (cheese).

It could just be lactose intolerance but in my case, I believe it's a milk allergy, most likely casein - a protein in milk. Let me know if this helps. Good luck
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#7 Pegleg84

 
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Posted 18 February 2009 - 10:03 PM

Did you (or anyone else) have dizzy/vertigo spells before they were diagnosed with celiac? In the past couple years I have had a few incidents of mild constant vertigo and a couple serious dizzy spells, though they seem to be caused by sudden elevations of humidity, heat and air pressure. I spent nearly a month feeling dizzy while I was in Japan during the summer (extremely humid), and have had a couple heat-related dizzy spells. I've put it down to dehydration. But could people with undiagnosed celiac be prone to these conditions??? I could be completely off base, but what do you think?
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~ Be a light unto yourself. ~ - The Buddha

- Gluten-free since March 2009 (not officially diagnosed, but most likely Celiac). Symptoms have greatly improved or disappeared since.
- Soy intolerant. Dairy free (likely casein intolerant). Problems with eggs, quinoa, brown rice

- mild gastritis seen on endoscopy Oct 2012. Not sure if healed or not.
- Family members with Celiac: Mother, sister, aunt on mother's side, aunt and uncle on father's side, more being diagnosed every year.


#8 GFinDC

 
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Posted 19 February 2009 - 12:54 AM

Did you (or anyone else) have dizzy/vertigo spells before they were diagnosed with celiac? In the past couple years I have had a few incidents of mild constant vertigo and a couple serious dizzy spells, though they seem to be caused by sudden elevations of humidity, heat and air pressure. I spent nearly a month feeling dizzy while I was in Japan during the summer (extremely humid), and have had a couple heat-related dizzy spells. I've put it down to dehydration. But could people with undiagnosed celiac be prone to these conditions??? I could be completely off base, but what do you think?


I used to get almost constant sinus infections and ear pressure before going gluten-free. I always blamed that on hayfever before but I think gluten was the real cause of both my infections and balance probs. I've had some more recent episodes of starting to pass out that have cleared up. I blame those on my thyroid cyst that I think was compressing my carotid artery. Just a theory. I also had bad balance problems when I was taking HCTZ hypertension meds recently but they cleared up when I stopped that stuff and cut out most salt from my diet.. My blood pressure stayed much lower after cutting out the salt too. Of courser then again I had lots of problems due to something in wine that caused my feet and ankles to swell and other bad things to happen like not being able to sleep. Dairy does the sleep thing to me also.
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#9 mushroom

 
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Posted 19 February 2009 - 01:10 AM

Did you (or anyone else) have dizzy/vertigo spells before they were diagnosed with celiac? In the past couple years I have had a few incidents of mild constant vertigo and a couple serious dizzy spells, though they seem to be caused by sudden elevations of humidity, heat and air pressure. I spent nearly a month feeling dizzy while I was in Japan during the summer (extremely humid), and have had a couple heat-related dizzy spells. I've put it down to dehydration. But could people with undiagnosed celiac be prone to these conditions??? I could be completely off base, but what do you think?

I had a terrible spell of vertigo for 6 months, which resolved spontaneously. Don't think gluten related. The one symptom that was definitely related was dizziness and fainting from gas and bloating pressure. Haven't had this happen since gluten free. (I have always felt faint when I get too hot; don't relate this to gluten though.) I guess I am just a dizzy kind of person--must be because I am blonde :lol:
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#10 bellis

 
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Posted 26 December 2009 - 05:28 PM

I have still be struggling with the gluten free diet but have been gluten free for the last 3 days. But today I feel TERRRRRRRRIBLE I had a gluten free pizza but after walking home I dizzy when i turn my head quickly as I did to check for cars on my walk home I got a vertigo like feeling. And when i place my feet I feel vulnerable like they wont go where I want them too because I feel dizzy.

In the last year or so I have had two other experiences like this, both are when I have been overtired or up in excess of 28hrs or so.

I have been diagnosed for a 1 year. 22 years old currently and male. I carry some weight to so maybe it could be related to that <_< Anyone else experienced this.

I bought b12 vitamins just because I thought i may help. It comes from nowhere!

do you still get dizzy? I am gluten-free for about 3 months but get bad gas with dizziness associated. My dizziness and gas go together. . wierd!
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#11 haleym

 
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Posted 26 December 2009 - 05:40 PM

I have still be struggling with the gluten free diet but have been gluten free for the last 3 days. But today I feel TERRRRRRRRIBLE I had a gluten free pizza but after walking home I dizzy when i turn my head quickly as I did to check for cars on my walk home I got a vertigo like feeling. And when i place my feet I feel vulnerable like they wont go where I want them too because I feel dizzy.

In the last year or so I have had two other experiences like this, both are when I have been overtired or up in excess of 28hrs or so.

I have been diagnosed for a 1 year. 22 years old currently and male. I carry some weight to so maybe it could be related to that <_< Anyone else experienced this.

I bought b12 vitamins just because I thought i may help. It comes from nowhere!


My sister and I get that also, and my sister says that it can be related to hypoglycemia, so you may want to watch that. I am a massage therapist, and I got a horrid dizzy spell in the middle of working with one of my patients... it's a good thing I was sitting on my stool because I really could have fallen on my patient, the room was spinning so much!
Good luck, keep us posted!
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#12 Guest_dyscelia_*

 
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Posted 29 December 2009 - 07:02 PM

I was actually diagnosed with POTS (postural orthostatic tachycardia syndrome) before I ever discovered the celiac. I didnt have the classic pots symptoms, but I was dizzy-vertigo style- very frequently. I'm a nursing student so I did my own research and found a connection between POTS and celiac and asked my doctor to test me for celiac. Turns out the celiac CAUSED the pots!!!!

Do you consistantly follow a gluten free diet? Unfortunately the only way I feel better is by really strict adherance. I had a coffee from starbucks the other day thinking it was harmless, but ended up getting dizzy a little while later. I then called starbucks and found out that the particular coffee I had ordered had gluten in it!!! <_<

I hope you can find some relief from your gluten free diet!! Keep with it, it worked for me!! :)
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