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Has Anyone Had Any Success With Tso/whipworm And/or Hookworm Therapy?


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#1 Bookie53463

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Posted 01 February 2009 - 06:30 AM

Hi everyone,

I was just wondering if anyone here has tried TSO/Whipworm and/or Hookworm therapy for their Celiac disease. It seems potentially helpful (granted there doesn't appear to be a tremendous amount of research on it). While trying out different diets might ultimately help me, fixing my immune system so I can live a comparatively normal life is far more appealing...

Helminthic therapy
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#2 ravenwoodglass

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Posted 01 February 2009 - 11:07 AM

This sounds like one of the worst ideas for treating celiac that I have ever heard of. Please don't try it. If you have celiac it is genetic and those worms are not going to change your genes. Also celiacs have a hard time absorbing nutrients they get from their food until they are healed. The worms are going to make that even harder. The treatment is not approved nor throughly researched. Please don't do it.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#3 Integrativedoc

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Posted 20 February 2009 - 06:17 PM

Hi everyone,

I was just wondering if anyone here has tried TSO/Whipworm and/or Hookworm therapy for their Celiac disease. It seems potentially helpful (granted there doesn't appear to be a tremendous amount of research on it). While trying out different diets might ultimately help me, fixing my immune system so I can live a comparatively normal life is far more appealing...

Helminthic therapy


I was wondering how you linked the treatment of whipworms specifically to the treatment of Celiac disease?
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#4 Bookie53463

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Posted 03 April 2009 - 02:26 AM

I was wondering how you linked the treatment of whipworms specifically to the treatment of Celiac disease?



Celiac disease is an autoimmune disorder not entirely unlike Crohn's, IBD, etc. and hookworm/TSO appear to function as a sort of gut specific cortisone (similar to endocort) though with seemingly fewer side effects
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#5 Liz617

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Posted 17 April 2010 - 02:05 PM

While I agree we should proceed with caution regarding parasitic treatments for celiac disease, the argument put forth below is incorrect. Even if it were true that celiac disease is caused by genes (this is probably only a small part of its cause), it would not follow that treatment required altering one's genes. There are genetic contributions to asthma, but we don;t treat that with gene-therapy. I think we should be open-minded about hookworms' (and other parasites') potential to treat autoimmune disorders. Sure, it's gross to think about having worms in your intestines, but the side effects (e.g., anemia) are manageable and probably less severe than steroid treatments. For me, I'd rather have worms and be able to eat bagels than to remain gluten-free for the rest of my life. Let's encourage further scientific study...


This sounds like one of the worst ideas for treating celiac that I have ever heard of. Please don't try it. If you have celiac it is genetic and those worms are not going to change your genes. Also celiacs have a hard time absorbing nutrients they get from their food until they are healed. The worms are going to make that even harder. The treatment is not approved nor throughly researched. Please don't do it.


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#6 VioletBlue

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Posted 17 April 2010 - 11:21 PM

For me, I'd rather have worms and be able to eat bagels than to remain gluten-free for the rest of my life. Let's encourage further scientific study...


That's a really sad statement. You'd rather carry around a dirty life sucking parasite in your gut then avoid gluten. That's just sad.
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"My mother always told me, it's okay to play with a man's mind
as long as you put it back where you got it when you're done with it."

#7 ravenwoodglass

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Posted 18 April 2010 - 03:50 AM

While I agree we should proceed with caution regarding parasitic treatments for celiac disease, the argument put forth below is incorrect. Even if it were true that celiac disease is caused by genes (this is probably only a small part of its cause), it would not follow that treatment required altering one's genes. There are genetic contributions to asthma, but we don;t treat that with gene-therapy. I think we should be open-minded about hookworms' (and other parasites') potential to treat autoimmune disorders. Sure, it's gross to think about having worms in your intestines, but the side effects (e.g., anemia) are manageable and probably less severe than steroid treatments. For me, I'd rather have worms and be able to eat bagels than to remain gluten-free for the rest of my life. Let's encourage further scientific study...


Since celiac disease effects far more than just the gut and the antibody reaction begins the minute gluten enters the system through the mucous membranes in the mouth I seriously doubt that having worms compromising your intestines is going to help with the autoimmune reaction. Celiac is much, much more than just a gut disease. I would not risk brain, liver, gallbladder, lymphoma, arthritis, and other organs just to avoid a tummy upset from gluten. I 'treated' my celiac with hordes of drugs, for the symptoms for years. If you read my sig you can see how far that got me.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#8 ursenay

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Posted 27 March 2012 - 01:54 PM

That's a really sad statement. You'd rather carry around a dirty life sucking parasite in your gut then avoid gluten. That's just sad.


You need to suspend your bias. Far from being "dirty life sucking" parasites, intestinal helminths evolved along with humans (and every other higher animal). It's entirely likely that because of our obsession with sterility and "cleanliness" (a joke if ever there was one) that we've induced diseases like Chron's and celiac that are virtually unknown outside the "developed" world. If you understand how the immune system works, it needs something to do. When we rid ourselves of parasites (which are in many cases essentially harmless), our immune system looks for something to do. In this case, it merrily goes along attacking the intestinal lining giving us the wonderful symptoms of celiac disease.

The research on helminthic therapy for Chron's and celiac, while not voluminous yet, is quite compelling. It makes complete sense from a cellular physiology point of view, and I for one am going to be actively seeking it out now that I know it's available.

Just FYI, the "dirty life-sucking parasites" under discussion are no dirtier nor more life-sucking than the trillions of bacteria that live on your skin, in your hair follicles, inside your nose, inside your mouth, under your fingernails, inside your vagina (if you have one), and from end to end in your intestinal tract. Try killing all those little guys off and see how long you live. I'd give you hours at most, even if it were possible to kill them all, which it isn't.
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#9 mommida

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Posted 27 March 2012 - 06:21 PM

Parasitic infections have different stages. When the worm is in an younger stage it is migrating through the body. It is possible that it would reach maturity in a wrong major organ and cause damage there instead of the intended gut lining. During this time your body should respond by making Eosinophils. Eosinophils are white blood cells with (in lay person's terms) a spear normally reserved to fight parasitic infection. Major problem! Eosinophils will damage normal tissue. It can not tell the difference it just attacks. (It is not comparable to a maggot only eating dead, rotting, and/or infected flesh.)The health risk of a parasitic infection IMO would out weigh any benefit.

Search for more information about damage of eosinophils...
Eosinophilic esophagitus
or any other eosinophilic gastrointestinal disorder.

Do you seriously want to risk being put on a feeding tube? :huh:
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#10 dilettantesteph

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Posted 28 March 2012 - 04:00 AM

You need to suspend your bias. Far from being "dirty life sucking" parasites, intestinal helminths evolved along with humans (and every other higher animal). It's entirely likely that because of our obsession with sterility and "cleanliness" (a joke if ever there was one) that we've induced diseases like Chron's and celiac that are virtually unknown outside the "developed" world. If you understand how the immune system works, it needs something to do. When we rid ourselves of parasites (which are in many cases essentially harmless), our immune system looks for something to do. In this case, it merrily goes along attacking the intestinal lining giving us the wonderful symptoms of celiac disease.

The research on helminthic therapy for Chron's and celiac, while not voluminous yet, is quite compelling. It makes complete sense from a cellular physiology point of view, and I for one am going to be actively seeking it out now that I know it's available.

Just FYI, the "dirty life-sucking parasites" under discussion are no dirtier nor more life-sucking than the trillions of bacteria that live on your skin, in your hair follicles, inside your nose, inside your mouth, under your fingernails, inside your vagina (if you have one), and from end to end in your intestinal tract. Try killing all those little guys off and see how long you live. I'd give you hours at most, even if it were possible to kill them all, which it isn't.

I've done some reading on this too, and it does sound compelling. I would also like to hear from anyone who has tried it. I think I'll wait until it's more proven, if it does get to me more proven, before I'd try it myself.

The only research I could find where it was used for celiac disease found that it didn't work. Does anyone know of any research where it was found to work?
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#11 Gemini

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Posted 28 March 2012 - 09:22 AM

That's a really sad statement. You'd rather carry around a dirty life sucking parasite in your gut then avoid gluten. That's just sad.


I agree! Far from being a biased answer, this IS what you said it is....sad. Anyone who thinks that introducing a parasite into your gut so you can eat a bagel again, has bigger problems than Celiac Disease. Why would anyone be so attached to a piece of bread? :blink:
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#12 dilettantesteph

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Posted 29 March 2012 - 03:32 AM

I agree! Far from being a biased answer, this IS what you said it is....sad. Anyone who thinks that introducing a parasite into your gut so you can eat a bagel again, has bigger problems than Celiac Disease. Why would anyone be so attached to a piece of bread? :blink:

That would be sad. Some of us get glutened pretty often from unintentional gluten ingestion. It would be pretty nice to not have that happen anymore.
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#13 cavernio

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Posted 30 March 2012 - 04:41 PM

I wouldn't do that.
a) it's unclear if it will actually work
B) it may, as mommida says, not stay in your intestines. If it moves, not only will it definitely NOT help, it can embed in your liver or something.
c) seems likely that wherever you'd buy these eggs from aren't actually going to be eggs, or they won't be viable eggs. Something ridiculous like 50% of drugs bought off the internet (not sure where else you'd find such an odd therapy) are fake
d) even if it stays in your intestines, and you start to feel better, and it reduces or even stops your body's immune attacks to gluten, it will damage your intestines and will also absorb nutrients that you still need. Sounds like borrowing from Peter to pay Paul...
e) you have a freakin worm living in you....ewwwwwwwwwwwwww. And you'd know about it. Every little pain or gurgle and I'd be like 'omg, it's the worm'
f) if it turns sour, there's not necessarily a clear cut, easy way to get rid of the damned thing(s). There are drugs, but like most things, its hard to find something 100% effective.
g) I've read quite a few opinions, some from GI's, that say that the vast majority of US citizens already have parasites living in them. I mean, all it takes is 1 bite of undercooked meat, your hands not washed properly once.

You have to take any info about these types of things with a grain of salt. The vast majority of stuff I've read about germ theories and us not having enough of them so our immune system decides to attack something else, is correlational research by epidemiologists, not microbiological studies in controlled environments.
Just for example about what to worry about when thinking about field data, when I was doing reading about iron deficiency on the internet, there was one guy's website that was like hit 3 or 4 or something, who was determined that north american's are all killing themselves from having too much iron. His data didn't seem falsified or flawed in anyway, but his interpretation of it was questionable. He had data from a large number of mexicans who were anemic or something, and found they also had less heart disease, less cancer, fewer health problems overall, etc. compared to americans. But would you say that low iron caused all those benefits? EVEN if it did, knowing the negative of effects of being anemic, would you want to be anemic?
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#14 ljubljanan

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Posted 14 December 2012 - 06:30 AM








No, but i am going to get it in about a month!! So excited. Ill let you know how it goes.

For all the naysayers who have commented: Do your research!!








Hi everyone,

I was just wondering if anyone here has tried TSO/Whipworm and/or Hookworm therapy for their Celiac disease. It seems potentially helpful (granted there doesn't appear to be a tremendous amount of research on it). While trying out different diets might ultimately help me, fixing my immune system so I can live a comparatively normal life is far more appealing...

Helminthic therapy



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#15 ljubljanan

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Posted 14 December 2012 - 06:36 AM


Clearly you have done No research on this. The worms used re supposed to stay in you for 5 years to 10 years depending on the type. The quantity dispensed is at such a low level that the world health organization does not suggest treatment even if you got them not on purpose.



I wouldn't do that.
a) it's unclear if it will actually work
B) it may, as mommida says, not stay in your intestines. If it moves, not only will it definitely NOT help, it can embed in your liver or something.
c) seems likely that wherever you'd buy these eggs from aren't actually going to be eggs, or they won't be viable eggs. Something ridiculous like 50% of drugs bought off the internet (not sure where else you'd find such an odd therapy) are fake
d) even if it stays in your intestines, and you start to feel better, and it reduces or even stops your body's immune attacks to gluten, it will damage your intestines and will also absorb nutrients that you still need. Sounds like borrowing from Peter to pay Paul...
e) you have a freakin worm living in you....ewwwwwwwwwwwwww. And you'd know about it. Every little pain or gurgle and I'd be like 'omg, it's the worm'
f) if it turns sour, there's not necessarily a clear cut, easy way to get rid of the damned thing(s). There are drugs, but like most things, its hard to find something 100% effective.
g) I've read quite a few opinions, some from GI's, that say that the vast majority of US citizens already have parasites living in them. I mean, all it takes is 1 bite of undercooked meat, your hands not washed properly once.

You have to take any info about these types of things with a grain of salt. The vast majority of stuff I've read about germ theories and us not having enough of them so our immune system decides to attack something else, is correlational research by epidemiologists, not microbiological studies in controlled environments.
Just for example about what to worry about when thinking about field data, when I was doing reading about iron deficiency on the internet, there was one guy's website that was like hit 3 or 4 or something, who was determined that north american's are all killing themselves from having too much iron. His data didn't seem falsified or flawed in anyway, but his interpretation of it was questionable. He had data from a large number of mexicans who were anemic or something, and found they also had less heart disease, less cancer, fewer health problems overall, etc. compared to americans. But would you say that low iron caused all those benefits? EVEN if it did, knowing the negative of effects of being anemic, would you want to be anemic?

I wouldn't do that.
a) it's unclear if it will actually work
B) it may, as mommida says, not stay in your intestines. If it moves, not only will it definitely NOT help, it can embed in your liver or something.
c) seems likely that wherever you'd buy these eggs from aren't actually going to be eggs, or they won't be viable eggs. Something ridiculous like 50% of drugs bought off the internet (not sure where else you'd find such an odd therapy) are fake
d) even if it stays in your intestines, and you start to feel better, and it reduces or even stops your body's immune attacks to gluten, it will damage your intestines and will also absorb nutrients that you still need. Sounds like borrowing from Peter to pay Paul...
e) you have a freakin worm living in you....ewwwwwwwwwwwwww. And you'd know about it. Every little pain or gurgle and I'd be like 'omg, it's the worm'
f) if it turns sour, there's not necessarily a clear cut, easy way to get rid of the damned thing(s). There are drugs, but like most things, its hard to find something 100% effective.
g) I've read quite a few opinions, some from GI's, that say that the vast majority of US citizens already have parasites living in them. I mean, all it takes is 1 bite of undercooked meat, your hands not washed properly once.

You have to take any info about these types of things with a grain of salt. The vast majority of stuff I've read about germ theories and us not having enough of them so our immune system decides to attack something else, is correlational research by epidemiologists, not microbiological studies in controlled environments.
Just for example about what to worry about when thinking about field data, when I was doing reading about iron deficiency on the internet, there was one guy's website that was like hit 3 or 4 or something, who was determined that north american's are all killing themselves from having too much iron. His data didn't seem falsified or flawed in anyway, but his interpretation of it was questionable. He had data from a large number of mexicans who were anemic or something, and found they also had less heart disease, less cancer, fewer health problems overall, etc. compared to americans. But would you say that low iron caused all those benefits? EVEN if it did, knowing the negative of effects of being anemic, would you want to be anemic?


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