Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Is It Celiacs? Or Have I Been Gluttend


I hate gluten

Recommended Posts

I hate gluten Apprentice

So I started the Celiac diet with my son about a week ago. We both fit the bill plus my family has a history of autoimmune disorders. (no celiacs though, chrons and addisons). my sons blood test was neg. I go for my test on weds. ( I know I shoul have waited) I was ssssoooooo fatigued I could not get off the couch and could sleep all day and night. the first 48 hours were great. I woke up from my fog and had energy for the fist time in years. Well know for the past day plus some ive had very loose stool ( was on a crappy diet before, so the loose stool could be from eating healthier). I fit more of non GI symptoms before. What I do not understand is I felt sooooooooooooo good the first few days. Plus the diet is much better than the diet I ate before. (fast food junkie) Im eating fresh raw fruits and veggies along with gluten free snacks and every other food I stick in my mouth. yesterday I had a heat and serve bratweirst that I checked all the ingrediants on the safe list and in an hour I was nausious and vomited. Then a few hours later I ate rice cakes and was fine the rest of the night. This morning I am bloated with minor abdominal pain and some (not nearly like before) fatigue. Could this be that I ate gluten in the bratweirst. It was literally the only thing I ate other than rice cakes. It did not say gluten free, but i checked all the ingredients on the safe list and it was ok. Plus I never had GI symptoms before, it makes me question my decision to go gluten free. I go to the doctor on Weds but I am afraid to eat. any advise. like I said the first few days on the diet was great and I felt sooooo good. I am just worried.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Well, it sounds like you got glutened, or maybe just some other ingredient that your body can't handle. What brand was it?

How did you prepare the bratwursts? There are a number of kitchen items which can harbor gluten, and could easily contaminate your food. Anything made of wood, cast iron pans, pans with scratches, utensils with seams, crevices, rivets, etc. The inner walls of the microwave should be cleaned very carefully. Though it doesn't sound like it applies in this case, you'll need a new toaster for your gluten-free toast. If you have a toaster oven, you might need to replace it, depending on how easily it can be cleaned.

Link to comment
Share on other sites
Takala Enthusiast

While you will get conflicting advise on this, my personal rule is that I eat things that don't make me feel sick after they are consumed, and to **** with whatever anybody else thinks about that, including anyone on an internet board (not here, but there's another disease support board I used to post on where the mods thought it was fair game to troll me in private messages for my advocacy for healthy, gluten free eating habits- we are talking some seriously warped behaviors ) and some of the wretched "advice" I've gotten from the medical profession.

Now, about that bratwurst. It's probably what is making you feel bad. It may or may not be because it has gluten, it probably does, being a sausage. But it could also have other things in it that are making you feel ill, such as another ingredient you can't tolerate or it could have been spoilt. Whatever happened, an accidental glutening or generic upset stomach, it is going to take you a few days to get over it.

You did not say what brand of rice cake you ate, but be advised that some brands, such as Quaker, are cross contaminated and not considered safely gluten free.

Some people are going to tell you to keep eating gluten for the blood test, but since it's on wednesday and you've only been on a different diet for a week (and probably ate gluten unknowingly already) you will still have the antibodies to the wheat proteins in your blood if you have them because they won't go away that quickly.

Even if you have a negative blood test, if eating a gluten free diet makes you feel that much better, than not eating this way, I would encourage you to continue to do so. There are people (myself included) who went on the diet in spite of negative testing and/or incompetent medical personnel ignoring test results, or ignoring the connection between other auto immune conditions and celiac, and improved their health dramatically because of eating gluten free. The medical profession at the time was ignorant of the fact that there are people existing on a much wider range of symptoms of gluten intolerance than they are willing to give credit for.

Link to comment
Share on other sites
I hate gluten Apprentice

I actually went out and bought all new cooking supply and from toaster to utensils. But like I said it was a heat and serve brat by johnsonville. They are frozen and you put them in the micro for 2 min. I looked up every ingredient and it said it was safe. Like some of you said it was sausage, so who knows what could be in it. It was my super bowl treat. My big question is someone said that quaker rice cakes are not safe!?? I got the plain for my son to eat pbj's! I also got other ones and was going to look up the ingredients on them. That scares me. If it says rice and salt, why can I not trust it? Should I just be looking for things that say gluten-free?CONFUSED!! I also had the tortillaz quaker chessy nacho rice and corn crisps this is what I ate I thought they were rice cakes, but they were not. I did not have a problem with them, at least not vomiting after an hour of eating them. Is it possible to not have the gi side effects then start the diet and get them when you accident get gluten? Especially after only a week of being on the diet? After my appointment I am thinking about putting my son and I on Casien free also.

Link to comment
Share on other sites
EmmyLouWho? Newbie

I actually contacted Quaker to find out. Quaker does not recommend any of their products due to cross-contamination. This has been a big one for me to learn. So, generally I do look for things that say gluten-free. But if I have a favorite thing or something looks like it might be okay I make sure to contact the maker. Usually I call right there in the store since there's often a number on the label somewhere. Sometimes checking is a pain but it's completely worth it when I know I can enjoy something and not have to worry about the after effects. I've come to the understand that there just is a level of inconvenience that comes with this disease and I end up making a lot of things now from scratch and freeze in portions. It's becoming second-nature to check labels and take extra time in the kitchen.

Link to comment
Share on other sites
RiceGuy Collaborator

Is this the brat you had?

Open Original Shared Link

Although it says it's gluten-free, there is MSG in it, which does cause people problems. It may be that you won't be able to pin this one down, but I'm sure you'll figure things out over time.

Link to comment
Share on other sites
Rya Newbie

I wouldn't go on a Casein-free diet until you have given the gluten-free diet a solid 3 months. It takes your intestines that long to completely heal. Lactose might be something to consider, though, only if you are noticing difficulty digesting dairy products. This may or may not resolve once your intestines are healed.

I agree it could be contamination with the Quaker products.

Also, bratwurst is notoriously high in fat. Fat is the first thing that is malabsorbed when intestinal damage is present.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

A dairy-free diet does help many, especially during the initial healing process. Even if it wasn't dairy that made you sick, it doesn't hurt to avoid it. In actuality, casein and other animal proteins cause the body to loose calcium, up to three times faster than plant proteins.

Link to comment
Share on other sites
I hate gluten Apprentice

Ok so yesterday my hands were swollen (like when you eat to much sodium) my stomach was achey and I was fatigued again (not nearly as bad as the day before, no vomiting or D) Today I am feeling tons beter. My stomach is still sore but not anywhere near as bloated. I was told that if I was glutened it would prob be 3 days before feeling better, and omgolly it is three days and feeling much better. I can not believe it I have developed the GI signs now. UGHHHH. You could not pay me to ever eat gluten again. (i sound like a person with a hangover that swears off drinking) Im sure I will want or crave some in the future but not anytime soon. Is it possible to not have the gi signs in the beginning and develop them while you are on the diet when you accidentily ingest gluten. Thats crazy!! Thanks to all have replied. My doctors appointment is less than 24 hours away, can not wait!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Help Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SuzanneL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Weak Positive Test

    2. - SuzanneL posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Weak Positive Test

    3. - Scott Adams replied to Braver101's topic in Coping with Celiac Disease
      2

      Constant sweating with celiac disease

    4. - Scott Adams replied to Julie Riordan's topic in Traveling with Celiac Disease
      2

      Any ideas for travelling

    5. - trents replied to Julie Riordan's topic in Traveling with Celiac Disease
      2

      Any ideas for travelling


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,493
    • Most Online (within 30 mins)
      7,748

    Greensandtea
    Newest Member
    Greensandtea
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @SuzanneL! Which tTG was that? tTG-IGA? tTG-IGG? Were there other celiac antibody tests run from that blood draw? Was total IGA measured? By some chance were you already cutting back on gluten by the time the blood draw was taken or just not eating much? For the celiac antibody tests to be accurate a person needs to be eating about 10g of gluten daily which is about 4-6 pieces of bread.
    • SuzanneL
      I've recently received a weak positive tTG, 6. For about six years, I've been sick almost everyday. I was told it was just my IBS. I have constant nausea. Sometimes after I eat, I have sharp, upper pain in my abdomen. I sometimes feel or vomit (bile) after eating. The doctor wanted me to try a stronger anti acid before doing an endoscopy. I'm just curious if these symptoms are pointing towards Celiac Disease? 
    • Scott Adams
      I'm sorry to hear about what you're going through. It must be really frustrating and uncomfortable. Have you talked to your healthcare provider about these sudden sweating episodes? It might be helpful to discuss this with them to rule out any other underlying issues or to see if there are specific strategies or treatments that can help manage this symptom. Additionally, staying hydrated and wearing breathable clothing may provide some relief. 
    • Scott Adams
      I am not sure where you are going, but we have articles in this section which may be helpful: https://www.celiac.com/celiac-disease/gluten-free-travel/ 
    • trents
      There are supplements available that can help breakdown minor amounts of gluten such as you might experience with cross contamination when dining out and you order gluten free items from a menu. But they will not help when larger amounts of gluten are consumed. One such product that many on this forum attest to as having helped them in this regard is GliadinX. The inventor of GlidinX is one our forum sponsors so you should know that.
×
×
  • Create New...