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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Swollen Hands After Waking Up
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16 posts in this topic

Since going gluten free, I started having swollen hands when I wake up. After an hour or so they are better, they are not swollen huge. I use to get this when I had to much salt. I guess you can say they are more sore than swollen. Just curious if anyone else had this.

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I get this too, it's not horrible or anything but i notice it every morning. It usually goes away 15 min or so after getting up. I had it before i went gluten free and going gluten-free has not changed it.

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I had this too, right after going gluten free. For me it lasted a month or two, and I haven't noticed it since (only been gluten free for about 5 months or so).

For me it was hands first, then my feet started doing it too, but to a lesser degree than my hands.

My hands were just swollen enough that my skin felt tight, and my joints hurt.

My doc tested for a bunch of other auto immune stuff and everything was "normal" :rolleyes: .

No idea why it was happening, but I haven't had it for quite a while. Hope yours just goes away too. I thought I was crazy - and I think maybe my doc did too, because I could never show her. The swelling always went away within 30 minutes of getting up and moving.

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Thank god I am not crazy! It is swollen just enough for my ring not to come off but like everyone says it goes away. My doc says it can be a sign of Lupus though. But I do not trust him very much anyway. I told him to please run any test he thought I needed. (Plus a big list of blood test I gave him) I figured I rather get all the test ran at once versus wasting my time with multiple trips and co pays. You should see the list of stuff I had him run. He thinks Im nuts. He told me I was depressed and wanted to start me on antidepressants. WHATEVER. I changed my diet and now I actually feel good, swollen hands and all. Thanks for the replies, its good to know I am not crazy, well.... that crazy.

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I also had swollen hands and feet for awhile, and read it can happen from poor digestion of proteins. So I reduced protein intake, and it went away. I've since been able to increase the amount of protein back up to normal without a problem. The swelling coincided with the ravenous appetite, and both seemed to have diminished at the same time, though slowly, over several months.

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Old post, but this is one of my current concerns too.

I've had tingling and swelling in my hands and feet for a few years now, and it's worse in the morning often, but it still stays all day long.

I'm going to call my doctor today to try and get to the bottom of it. I'm still worried about my kidneys, even moreso when I read about eating less salt and less protein as things that helped others.

I'm pretty sure I've got neuropathy as well, b12 can help these problems, and at the very least I've got various 'carpal tunnel' type pressure points multiple parts of my arms and in my ankles, but I wouldn't think that tingling and pain from that would be up to as much variation from day to day as I get.

I suppose diabetes is a possibility too, I haven't been tested for that in over a year now, and even if I didn't have it before I guess it doesn't mean I don't have it now, even though these are symptoms I've had for awhile.

Anyone else who has gotten this to go away/gotten an explanation as to why?

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I get swollen hands from accidental glutening.

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I've had that in the summer ever since I was pg with my youngest, 5 years ago. I thought it was heat related. hmm

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I used to have badly swollen legs, hands and my left side of my face would sag. (Yikes! - I thought stroke!)

Gluten would do it but it didn't disappear until I totally eliminated all salt, msg, processed foods and reduced my intake of protein. All I eat now for animal protein is fish.

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I stopped eating corn a couple days ago in hopes of this getting better, since I often don't feel too well after I eat nachos or popcorn or tortillas. But that could also be a salt issue. It's too soon to tell yet if that's helping me or not, since it varies so much regardless. But I'm going to stick corn free for awhile now.

If eating less protein does help it, then wouldn't that indicate kidney problems? What else could be the issue with protein? I guess I have been eating more meat since being diagnosed, since meat seems to be chockfull of nutrients.

I do know that last time I fasted, on day 3 my engagement ring was much looser and I was full of energy. (This is the reason why I think corn or something else I'm eating is still making me sick, because I know I have felt better just not eating.) I don't remember if there was any difference in the tingling though.

It definitely has been hot lately, so there I suppose there's a chance it will go away now that I'm gluten-free when fall hits.

It's worse if I'm active the day before too. It makes me think of what people with arthritis say maybe, except it's definitely not just the joints, almost feels like inter-joint.

If it is just gluten...ahh, it's going to be tough figuring out where I'm getting it from.

If I do get the standard gluten reaction to corn I suppose I have to not just avoid corn but make sure I don't get even trace amounts of corn too, huh?

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If your corn source was popcorn, tortilla's and nacho's, cavernio, I would suspect the salt and msg content of those products. All of them, excepting the popcorn which would only have salt, would have high amounts of salt and msg.

Regarding the meats, what kind are you eating? Processed meats or are you cooking them yourself? Any kind of sandwich meats, sausage type meats or anything with a coating on it would contain high amounts of salt and msg. It can be hidden as well. I was buying frozen boneless, skinless chicken breasts which only listed three ingredients: chicken and 'flavourings'. When I called up the company to ask what was in the 'flavourings', they said it was carageenan. Hah! That's a natural source of MSG!!!!!

So, MSG can be hidden under alot of names. If you're interested in charting that in your food intake you should check out this website:

http://www.truthinlabeling.org/

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Since going gluten free, I started having swollen hands when I wake up. After an hour or so they are better, they are not swollen huge. I use to get this when I had to much salt. I guess you can say they are more sore than swollen. Just curious if anyone else had this.

When I wake up I can't even move my fingers they are so stiff and painful. It takes a few minutes to slowly limber them up. They are mostly pain free for the rest of the day but by the end of the day they are sore again. I've had this for almost a year and it's the same after 6 weeks of gluten-free diet. I have very painful feet as well. I'm looking for answers, too!

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I try to eat only local organic meat for personal ethical reasons. That said, I'm sure it has a lot of salt in it, and the sandwich meat I eat I could easily see having MSG, although I would doubt the sausages do. I do like my sausages and sandwich meat. The sandwich meat is just such a nice, fast, easy, grain free, sugar free snack :-(

The tortillas were made from masa harina with lime and corn flour, and the popcorn isn't the bagged, seasoned already stuff (blech), and the nachos are plain corn chips with corn and sea salt and I had been making my own salsa for them. (Well, before going dairy free I would put cheese on them too.)

I do think I may have an MSG issue though regardless.

Thinking about you being pregnant and getting it, I don't know exactly when I started having the hurting hands and feet specifically, outside of the pressure-on-the-nerve type problems, but I do know that when I tried birth control pills for the first time a few years back was when my bloating got really awful, and I think the stiff, tingling, sore hands and feet came not long after that.

Hormonal changes can really screw things up, somehow. I have a cousin who had a growth in her brain that became cancerous only when she became pregnant, and the doctors warned her about it too, so it wasn't just coincidence.

Oh well, if I find anything interesting or new out I'll post again.

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I know, I know...I love sandwich meats too. As well as any kind of dried sausage. That was a huge let down when I knew I had to stop eating them.

But, I do feel great!

Do keep an eye on the msg thing and keep us posted. I'd be interested to see if it's part of the swollen limbs issue.

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I have the same problem. Still trying to figure out what is causing it. At my worst, my hands, feet and eyes are swollen every morning. I'm starting to think its salt. Eating gluten free can be challenging and sometimes you choose not so healthy alternatives, at least I do, like chips or processed gluten free foods, which might be high in salt. I always used to blow up big time after eating chinese, but then Chinese food has all three baddies. Right now I'm being very good in the gluten department, but its still not cutting the mustard. I think I need to cut back on salt and possibly look for sources of MSG too. Please let us know if you figure it out.

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Thought I should post because I remembered stuff I had forgotten.

Waking up this morning, I haven't found anything new but experienced a different type of sensation that I suspect is linked to B vitamin problems causing nerve damage due to the nature of the pain.

It's a variably pulsating pain, not with my pulse but less often and more random, and it hurts quite a bit for a second or so, and then dies down. I remember now that when I started to get that it would wake me up at night, and that was when a doctor prescribed me pain meds for it. They actually worked the couple days I was on it amazingly well, took away all the tingling and swolleness feeling too (unsure if took away any swelling itself, wasn't wearing a ring), but of course there are side effects like fatigue...just what I needed, MORE brain fog, and then I found out it was actually an anti-epileptic and might not be properly approved for neuropathic pain. (I'm very wary of any drugs that involve neurologic stuff since bad experiences with anti-depressants.)

Anyways, since I started taking large amounts of B12 daily that stabbing type pain pretty much disappeared, although not the tingling and soreness and swolleness.

I'm not taking my B12 everyday lately. I had been not taking it daily because I bought one that has B6 in it as well and I'm certain that there's a fairly low dose for toxicity to that which can actually cause the nerve damage instead of fix it. I'll just have to buy a separate pill again is all.

I do know that some nerve damage may not be fixable, if that is truly what it is. What I don't like is the feeling that the tingling may be covering more of my hands and feet than it used to.

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    • Will my doctor test me? So many symptoms...
      Remember that you have to be eating a normal gluten diet for the testing so don't cut back & don't stop eating it. Make sure they do the full, current celiac panel: Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
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      Also can be termed this way: Endomysial Antibody IgA
      Tissue Transglutaminase IgA 
      GLIADIN IgG
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    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
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