Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Synthroid Versus Levothyroxin
0

12 posts in this topic

After reading the post about the name brand synthroid not being positive that it is gluten free, I spoke to my doctor about trying the generic version. Of course, I got the generic that wasn't listed on glutenfreedrugs.com. I did e-mail Mylan and got a phone call back saying that they don't put gluten in any of their medications. They said that the use corn and rice for the fillers. My doctor did tell me when some of his patients changed to the generic they needed to take an extra pill a week. I do absorb medication in strange ways, so we will see.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I too am on Synthroid. Not everyone can take the generic Levothyroxine and have to take name brand. The name brand Synthroid from Abbott laboratories is gluten free. Hope this helps.

0

Share this post


Link to post
Share on other sites

If you look on glutenfreedrugs.com, Abbott can no longer guarantee that all strengths of synthroid are gluten free. I did call them and was told they survey their suppliers and the suppliers say their isn't gluten, yet Abbott will not say yes there is gluten or no there is not. All I know since the last time I filled my synthroid, I feel like I am getting glutened from somewhere. At first I thought that it was the holidays, but it is still going on. Others on this site have called Abbott also. I know that Abbott seems to be doing the CYA, but I just feel I need to be told yes or no, not figure it out for yourself.

0

Share this post


Link to post
Share on other sites

Did I miss something? You have one company (Abbott) that says their suppliers say there is no gluten but they won't make a guarantee. You have another company (Mylan) that says they don't put gluten in their generic product.

We all have to make our choices on these but I don't see either of these are any more likely or less likely to be an issue. If anything, the fact that Abbott routinely surveys their suppliers instead of just saying "WE don't add any" makes me slightly more trusting of them.

0

Share this post


Link to post
Share on other sites




I take the generic Synthriod, Mylan's Levothyroxin, and was started on samples of the name brand, I've noticed no difference between the two, personally. I know everyone's different, and some have issues, but as long as you're feeling well, stay with the same dose. Likewise, if you start slowing down again, have your PCP up your dose, or draw bloods for comparison. FYI- I'm not the celiac, DH is, so if the Mylan's brand is glutened, I wouldn't know.

0

Share this post


Link to post
Share on other sites

I take Levothyroxine. Not sure what brand or whatever. But I've never had a problem with it.

0

Share this post


Link to post
Share on other sites

I had my thyroid removed in February 2009, and I have just had a personal experience with using Synthroid. After taking the 112 mcg dosage for 2 weeks, I started having progressively worsening intestinal cramping. At first, I thought it was a virus, but since it lasted much longer and I had no other virus-type symptoms, I narrowed the problem down to being the last thing I changed in my diet---that is, when I began taking Synthroid PINK-colored 112 tablets! My husband and I did some research and found out that these 112 mcg tablets contain Red Dye No. 27 Lake, which is not gluten-free. This is what the manufacturer uses to color their tablets PINK. Although we have no chemical proof of our findings, the intestinal cramping stopped immediately when I stopped using the Synthroid brand. I switched to using Levoxyl's 112 mcg pill, which Monarch industries guarantees IS gluten-free. My husband spoke directly to an Abbott representative, and they STILL WILL NOT guarantee that their Synthroid brand of 112 mcg tablets is gluten-free. A couple of days later, an Abbott representative called my husband back and asked if he would be willing to give them details of my adverse reaction to using their Synthroid product so that they would have an official report for the company. Perhaps this is a requirement of the FDA whenever someone has a reaction. My advice for any Celiac with a very sensitive and reactive colon is to NOT use Synthroid brand of PINK 112 mcg tablets. (Note: Other dosages they manufacturer do not contain any red dye so they might be okay.) Hope this information helps others.

0

Share this post


Link to post
Share on other sites

Good note about the dye :(

I take the yellow 100mcg Synthroid tablets. I started with generic levothyroxine, but I finally saw an endocrinologist and he wanted me to switch to the name brand (to ensure a more accurate dose from batch to batch). Personally, I haven't noticed much of a difference... I wouldn't hesitate to go back on the generic if I couldn't afford the name brand.

0

Share this post


Link to post
Share on other sites

I have taken both. I have taken the generic far more and longer than the brand name. I don't have any problems with it either. I only have to pay $10.00 for a three month supply if I get the generic. I have not tried to ask for the brand name one. I suspect the ins. would not pay as well. I had an endocrinologist once tell me the same thing about switching to synthroid to ensure more consistency between batches because most of his patients were on that. I was on the generic at the time and he said well then it should not matter as long as you are taking the same brand of generic the dose should be consistent from batch to batch.

0

Share this post


Link to post
Share on other sites

Wow.

I take Levoxyl 137 mcg - and I still have my thyroid!

I spent several years asking to get my thyroid checked because I was rashy, exhausted and gaining weight regardless. NOBODY would run any kind of test - they (several doctors, OB/GYN, GP) just told me I had "elbow disease" - which is a euphemism for overeating. If anything, I've always eaten about half what other people eat and most people comment on the small amounts I eat. So, I finally went to one of those "mall health fairs" and spent $35.00 to get a blood test, which showed, lo and behold! My TSH was roughly 3.5. I then found an endo, who immediately said, basically, "Of course you need to be on meds, and we need to get a sonogram," etc., which made me feel better - until the jerk decided the other reason why I felt bad was because I was "depressed" and gave me samples and a 'scrip for Effexor. Which I refused to take until I did some research and then I REALLY refused to take it. C'mon - something that usually requires liquid Prozac to wean you off of it? NO THANKS!

BUT, I've always been on Mylan - when the company that makes it is in West Virginia, and you LIVE in West Virginia, that's what you get :)

0

Share this post


Link to post
Share on other sites

I've been gluten free for over a year and suddenly I have been so ill for almost two weeks. I know I am not eating anything with gluten. The only thing I have done is started a new thyroid prescription (levothyroxine/synthroid). Upon closer inspection I realize that I am taking Abbott's name brand pills now rather than my usual generic. I am stopping the new script immediately and ordering more medication...back to the generic!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,334
    • Total Posts
      920,437
  • Topics

  • Posts

    • Thank you cyclinglady! We'll just keep pushing forward and we'll get things figured out one way or another. You have been most helpful and informative and given me some great resources and things to consider. I really appreciate it! I definitely feel better as I've felt like a crazy mom lately thinking through the test results and everything. Even if it turns out to not be celiac or gluten related, at least I can say we did our due diligence and looked under every rock to find the source of his troubles. Thanks again!  Take care! 
    • Anxiety is quite a common symptom with undiagnosed celiacs. It should improve if not disappear when you go gluten free. Be sure to CONTINUE eating gluten until the endoscopy!   Welcome to the club!
    • Although serological tests are useful for identifying celiac disease, it is well known that a small minority of celiacs are seronegative, and show no blood markers for celiac disease. A team of researchers wanted to define the prevalence and features of seronegative compared to seropositive celiac disease, and to establish whether celiac disease is a common cause of seronegative villous atrophy. View the full article
    • This was absolutely me before diagnosis.  The worst of all of my Celiac symptoms occurred in the morning.  The anxiety was terrible in the mornings, I had horrible nausea, no appetite, felt light headed, dizzy and shaky, diarrhea, stomach cramps... the works.  Honestly, I don't know if it was the symptoms causing the anxiety, the anxiety making my symptoms worse, or a combination.  I almost dropped out of school because I felt so terrible every morning I didn't want to leave the house to go to class.  The first few doctors I saw insisted all of my symptoms were psychological and tried to give me anti-depressants/anti-anxiety meds, but I knew there was something else wrong with me.  I had always been a bit "high-strung," but for the year I was really sick before diagnosis, the anxiety got out of control. I was diagnosed with celiac disease 6 months ago and have been gluten free ever since.  It took time, but everything is gradually improving.  The morning anxiety is much improved and some mornings, is completely gone.  I realized a month or two ago that I no longer spend the first hour after waking up gagging and dry-heaving, something I had done for so many years that I just thought it was normal for me.  I can brush my teeth and my tongue without feeling like I'm going to puke.  I eat breakfast now, which I have never done, because I was always too anxious and nauseous in the mornings to be hungry.  I am not "all better."  I still have bad days and even bad weeks.  If I get glutened the anxiety comes back full force.  If I'm super-stressed out or letting my health slide (not eating well, not sleeping enough) the AM anxiety seems to return.  But, it has been slowly improving over the last 6 months and has become so much more manageable.   Your anxiety could be a separate disorder from the celiac disease, but for me, it seems it was absolutely related and continues to get better.  Don't get discouraged if you don't see an immediate improvement or experience relapses after improving.  Often, I feel like it's a two-step-forward, one-step-back kind of thing, but it is getting better.
    • I have suffered with GERD for 20 years and accidently found out it was a gluten intolerance. I had gone on Atkins years ago and noticed that I had no GERD symptoms while on the diet. I didn't make the connection at that time. Then I went on the Mayo Diet back in the winter and once again, the constant was having no bread primarily. I had also noticed that I would have major attacks anytime I ate Italian food. I blamed it on the onions, the tomatoes, herbs...but I could tolerate all those foods separately. Then, like a lightning bolt...it hit me...the culprit was the "innocent" pasta. BINGO!!  I went gluten-free in March 2016 and I have had no GERD now in 5 months. I feel as if it is a gift to me.   
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,389
    • Most Online
      1,763

    Newest Member
    EJ653
    Joined