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Hello Everyone, I'm New Here...


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21 replies to this topic

#1 Guest_jbugsly_*

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Posted 21 March 2005 - 04:31 PM

I just thought I'd introduce myself...I'm Jill, 24 yrs old. I was diagnosed with celiac when I was 2, it went into remission when I was 15, then a year ago it came out of remission. I also am alergic to corn (which is in everything!) so it can be difficult sometimes to find things to eat.

I think the hardest thing with celiac is trying to find time to cook my meals. I work full time, so my cooking normally happens on the weekends. I try to cook in large amounts so I can eat left overs during the week. I dont know about you guys, but I find that most of the time, my food tastes better than store bought. Plus I think if I eat another low carb burger I'll vomit :P I make my own bread in my breadmaker, I just made my first bisquits and gravy today!!! They didn't turn out too bad.

So just thought I'd say hi :D :D

P.S. anyone else allergic to corn?
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#2 MySuicidalTurtle

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Posted 21 March 2005 - 04:33 PM

Hello Jill!
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#3 Guest_jbugsly_*

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Posted 21 March 2005 - 04:38 PM

Howdy!!

I'm trying to figure out how to post my personal pic...I wont tell you what color my hair is :lol:
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#4 KaitiUSA

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Posted 21 March 2005 - 04:41 PM

Hello :D welcome to the board

I guess a question that pops into my mind is how could your celiac go to remission? Are you meaning that you could eat gluten?? Because once your a celiac your a celiac there is no remission. Symptoms or not damage will be done when you eat gluten.

There are alot of people here I think that can't tolerate corn. I can have corn but my mom is allergic to certain kinds of corn...she loves corn though.
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Kaiti
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Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"

"One Nation, Under God"

Feel free to email me anytime....jkbrodbent@yahoo.com

#5 sdore

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Posted 21 March 2005 - 04:45 PM

Hello, I am new too!
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#6 angel_jd1

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Posted 21 March 2005 - 04:48 PM

I have read that many people who are diagnosed at an early age have symptoms that go away during adolescence (puberty). This info would fit with you being 15 when you had what you call "remission". However with celiac, there is no remission. The symptoms may have temporarily went away, but you were still doing damage by eating gluten. :(

-Jessica :rolleyes:
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Jessica
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#7 Guest_jbugsly_*

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Posted 21 March 2005 - 04:49 PM

Hi Katie :) Yeah, it did go into remission...I could eat gluten for a couple WONDERFUL years. But then it came back out from remission. At least that's what my doctor's let me know.
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#8 Guest_jbugsly_*

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Posted 21 March 2005 - 04:53 PM

Hey there Sdore! We both registered today!


Jessica, sounds like you're right...I did not know that I was damaging myself. I'm glad that I'm back on the gluten-free diet, I certainly feel better :lol:
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#9 KaitiUSA

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Posted 21 March 2005 - 04:56 PM

Hi~
Sorry to tell you this but symptoms may go away over the years but that does not mean it is in remission. There is no such thing with celiac. Once you have it there is no getting rid of it the only way to control it is with a gluten free diet otherwise symptoms or not your intestines will be damaged. Many doctors don't have the proper knowledge about celiac.

I'm glad you are feeling better again :D
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Kaiti
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Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"

"One Nation, Under God"

Feel free to email me anytime....jkbrodbent@yahoo.com

#10 angel_jd1

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Posted 21 March 2005 - 05:06 PM

Yep, you are on the right track now. ;)

-Jessica :rolleyes:
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#11 Canadian Karen

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Posted 21 March 2005 - 07:39 PM

Hi Jill and Sdore,

Welcome to the board!!! There are a bunch of really great people here who are always willing to help (me included!! :D )

Jill, I just recently purchased my own bread machine and I must say I am having loads of fun with it!!! With the amount of bread I eat, it was well worth my while to purchase one instead of paying $6.00 a loaf.

Hope to see both of you posting soon!

Karen
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Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

#12 stef_the_kicking_cuty

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Posted 21 March 2005 - 07:40 PM

Yeah, Kaiti and Jessica are right. There is no remission. Couple of years ago doctors thought so, because they didn't know much about celiac. But they also thought all celiacs are skinny and must have diarrhea, which also isn't true. Now they know, that there can't be a remission with celiac. The symptoms can just disappear for some years starting with adolescence. But some doctors didn't keep up with the news, because they probably thought: 'Oh, it's so rare, so why should I inform myself.' Kinda stupid thinking <_< , but oh well... I guess that's why there are so many docs that aren't up to date.

But a hearty welcome to you on this message board.

Hugs, Stef
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Results for 2011:
1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting
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Shermans Dale, PA

#13 stef_the_kicking_cuty

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Posted 21 March 2005 - 07:41 PM

Uups, of course a big welcome to you also sdore. I almost didn't see you :lol:

Hugs, Stef
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Stef

Next goals:
Results for 2011:
1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting
August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)
gluten-free since 07/21/2004
Shermans Dale, PA

#14 Canadian Karen

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Posted 21 March 2005 - 07:51 PM

You guys are right, once a celiac, always a celiac. :(

Thank goodness the doctors are starting to get their heads out of their ostrich holes and wake up to this disease. I went to my family doctor last week and during our discussions, she mentioned that she is now on the lookout much more for celiac than before, and that most doctors she knows now realize how underdiagnosed it is.... She also mentioned that in medical school, they were taught that it is a child's disease and to only check for it if they had distended bellies. <_< My, we have come a long way, eh???? ;)

Karen
(who is having way too much fun with these emoticons..... ;)
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Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

#15 Guest_jbugsly_*

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Posted 21 March 2005 - 07:56 PM

Wow!! I have only been on this board for one day and I have learned SO much. I am shocked to think that I was obliviously damaging my body for all those years :blink: Thank you everybody SO much for your help and for welcoming me :D

I just LOVE my bread machine Canadian Karen! The bread tastes so much better!

Well I better go to bed! Gotta work tomorrow morning...everyone have a good night!
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