Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Hello Everyone, I'm New Here...
0

22 posts in this topic

I just thought I'd introduce myself...I'm Jill, 24 yrs old. I was diagnosed with celiac when I was 2, it went into remission when I was 15, then a year ago it came out of remission. I also am alergic to corn (which is in everything!) so it can be difficult sometimes to find things to eat.

I think the hardest thing with celiac is trying to find time to cook my meals. I work full time, so my cooking normally happens on the weekends. I try to cook in large amounts so I can eat left overs during the week. I dont know about you guys, but I find that most of the time, my food tastes better than store bought. Plus I think if I eat another low carb burger I'll vomit :P I make my own bread in my breadmaker, I just made my first bisquits and gravy today!!! They didn't turn out too bad.

So just thought I'd say hi :D:D

P.S. anyone else allergic to corn?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hello Jill!

0

Share this post


Link to post
Share on other sites

Howdy!!

I'm trying to figure out how to post my personal pic...I wont tell you what color my hair is :lol:

0

Share this post


Link to post
Share on other sites

Hello :D welcome to the board

I guess a question that pops into my mind is how could your celiac go to remission? Are you meaning that you could eat gluten?? Because once your a celiac your a celiac there is no remission. Symptoms or not damage will be done when you eat gluten.

There are alot of people here I think that can't tolerate corn. I can have corn but my mom is allergic to certain kinds of corn...she loves corn though.

0

Share this post


Link to post
Share on other sites

Hello, I am new too!

0

Share this post


Link to post
Share on other sites




I have read that many people who are diagnosed at an early age have symptoms that go away during adolescence (puberty). This info would fit with you being 15 when you had what you call "remission". However with celiac, there is no remission. The symptoms may have temporarily went away, but you were still doing damage by eating gluten. :(

-Jessica :rolleyes:

0

Share this post


Link to post
Share on other sites

Hi Katie :) Yeah, it did go into remission...I could eat gluten for a couple WONDERFUL years. But then it came back out from remission. At least that's what my doctor's let me know.

0

Share this post


Link to post
Share on other sites

Hey there Sdore! We both registered today!

Jessica, sounds like you're right...I did not know that I was damaging myself. I'm glad that I'm back on the gluten-free diet, I certainly feel better :lol:

0

Share this post


Link to post
Share on other sites

Hi~

Sorry to tell you this but symptoms may go away over the years but that does not mean it is in remission. There is no such thing with celiac. Once you have it there is no getting rid of it the only way to control it is with a gluten free diet otherwise symptoms or not your intestines will be damaged. Many doctors don't have the proper knowledge about celiac.

I'm glad you are feeling better again :D

0

Share this post


Link to post
Share on other sites

Yep, you are on the right track now. ;)

-Jessica :rolleyes:

0

Share this post


Link to post
Share on other sites

Hi Jill and Sdore,

Welcome to the board!!! There are a bunch of really great people here who are always willing to help (me included!! :D )

Jill, I just recently purchased my own bread machine and I must say I am having loads of fun with it!!! With the amount of bread I eat, it was well worth my while to purchase one instead of paying $6.00 a loaf.

Hope to see both of you posting soon!

Karen

0

Share this post


Link to post
Share on other sites

Yeah, Kaiti and Jessica are right. There is no remission. Couple of years ago doctors thought so, because they didn't know much about celiac. But they also thought all celiacs are skinny and must have diarrhea, which also isn't true. Now they know, that there can't be a remission with celiac. The symptoms can just disappear for some years starting with adolescence. But some doctors didn't keep up with the news, because they probably thought: 'Oh, it's so rare, so why should I inform myself.' Kinda stupid thinking <_< , but oh well... I guess that's why there are so many docs that aren't up to date.

But a hearty welcome to you on this message board.

Hugs, Stef

0

Share this post


Link to post
Share on other sites

Uups, of course a big welcome to you also sdore. I almost didn't see you :lol:

Hugs, Stef

0

Share this post


Link to post
Share on other sites

You guys are right, once a celiac, always a celiac. :(

Thank goodness the doctors are starting to get their heads out of their ostrich holes and wake up to this disease. I went to my family doctor last week and during our discussions, she mentioned that she is now on the lookout much more for celiac than before, and that most doctors she knows now realize how underdiagnosed it is.... She also mentioned that in medical school, they were taught that it is a child's disease and to only check for it if they had distended bellies. <_< My, we have come a long way, eh???? ;)

Karen

(who is having way too much fun with these emoticons..... ;)

0

Share this post


Link to post
Share on other sites

Wow!! I have only been on this board for one day and I have learned SO much. I am shocked to think that I was obliviously damaging my body for all those years :blink: Thank you everybody SO much for your help and for welcoming me :D

I just LOVE my bread machine Canadian Karen! The bread tastes so much better!

Well I better go to bed! Gotta work tomorrow morning...everyone have a good night!

0

Share this post


Link to post
Share on other sites

@ jbugsly: You're so right. Bread tastes so much better, once you have your own bread machine. I would take bread from the health shop anymore, if they'd pay me for it :lol:

Good night then, Stef

0

Share this post


Link to post
Share on other sites

Good morning everyone :D

Hey Steph the kicking cutie, I noticed your picture your a karate gal. Can I ask what style? I took Karate for 9 yrs, I am only one rank away from my black belt. I take Okinowan Shorin Ru (hope I spelled that right :rolleyes: )

0

Share this post


Link to post
Share on other sites

Welcome from me too!

How does one find out they're in remission? I have a long list of foods/drinks I'd have if I wasn't celiac disease... haha... I'd start at the top of that list and keep going till my remission was over!

Yea, I know I'm fooling myself. But it's a nice dream... of a Pizza Hut stuffed crust pizza and a tall frosty beer...

0

Share this post


Link to post
Share on other sites

@ jbugsly: I started Shotokan Karate, one of the more famous karate styles (at least in germany), when I was 9 years old. I'm 28 now. And I added kickboxing, when I was 17, which became my absolute favorite immidiately those days (and stayed until today). In my eyes, it's much better then the "old" non-contact karate styles (Shotokan is one of the non-contact styles, other styles can be different), because you actually hit the target and you learn to moderate or stop your kick as well as hit it with an "umph" and not just kick around in the air and probably hurt your joints also with that. So you get a better feeling for fighting. And I still practice and teach both every day (I'm actually still an active competitor. The "grandma" among the competition women so to speak :lol: ) and notice the huge difference all the time. I also compete in musical freestyle forms and musical weapons forms (with the Bo now, it were the Kamas before). Musical forms came from the traditional katas in karate. Another evidence that kickboxing comes from karate and not thaiboxing (despite the name).

The suit you see in the picture isn't a karate gi, it's a kickboxing suit. The difference is the color, a karate gi is white. The reason why it looks so much like karate, is, because it actually IS :blink: karate. Well, the top with the "V-neck" in that pic, that I'm wearing is normally known for a Taekwon Do suit top. The karate jackets (as you might know) have two sides which overlap each other in the front, not the "V-neck". In the school where I learnt kickboxing, only our actual black belts were allowed to wear a "real" karate top. The color belts had to wear the Taekwon Do tops, to show that they're on their way to a black belt in karate/kickboxing. Kickboxing is also called the modern karate or sports karate. It's karate with gloves. A lot of people (laymen) don't know that. Kickboxing doesn't come from thaiboxing as a lot of people think cause of the name and the false explanations found in books and internet. It was founded by americans. Thaiboxing comes from Thailand, kickboxing from the USA. Actually it was Joe Lewis, who started it. 1964 he came to Okinawa with the US Marines and learnt karate from Shimabukuro Eizo, John Korab and Kinjo Kinsoku. He was also the student of Nakamura Shigeru who mentioned the term "full-contact" for the first time. Well, this "full-contact" was brought back to the USA as "kickboxing" with Joe Lewis, who became the first "full-contact" (kickboxing) world champion 1974 in Los Angeles. I don't mean the contact karate world champions before 1974, like Mike Stone, i'm talking about the full-contact karate/kickboxing. Until then everybody in the USA had used the term karate at the tournaments. So it's the "old" karate moves, just converted into high stances and a few things changed. The only things, that come from the thaiboxing are the rules, like for competition. But other than that it's karate. The first big (modern) karate/kickboxing fighters were: Chuck Norris (the actor), Bill "Superfoot" Wallace (Bill is great. I met him in germany where he taught us a few things. He acted with Bruce Lee and in some other movies.), Alan Steen and Mike Stone. They helped to make the modern sports karate/kickboxing very popular.

Our kickboxing style which I practice is called "All-Style-Karate" and in fact our style came from a shotokan karate school in germany, but not the one I trained in before. Kind of ironic :P , but well. Some kickboxing style don't only come from karate anymore. In some cases taekwon do is also mixed in there. It mixed so much during the last couple of years, it's amazing...

The Karate style you trained is called Okinawan Shorin Ryu and the Shorin Ryu was actually founded by Matsumura Sokon. I don't know, if that's the Okinawan Shorin Ryu or not. It doesn't say in my study books. You might be able to tell me ;)

Well, sorry that this is so long now, but I actually didn't really go into depth, cause then it would be 5 pages long. But I hoped, I could give you some information.

Hugs, Stef

0

Share this post


Link to post
Share on other sites

Hello to Jill and Sdore

I have learned a lot from this forum and I look forward to hearing from you guys. So welcome to the group!

MOM :D:rolleyes:

0

Share this post


Link to post
Share on other sites

Also new at this and haven't quite figure it out yet... I found out I have Celiac just 4 months ago...

0

Share this post


Link to post
Share on other sites

Hi Jill and Sdore!!!!

I am fairly new to this too, but these people on here are so smart and they can really help you understand your disease. I've learned more here in a week then i did talking to doctor's for 2 months. I hope you both are feeling better!!

Stay Healthy!!! :D

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,124
    • Total Posts
      919,497
  • Topics

  • Posts

    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
    • I had a negative biopsy and was still diagnosed with Celiac. My GI ran a bunch of tests looking for the cause of my 15+ years of diarrhea and the only thing that came back positive was the entire Celiac panel. All very high. So he performed an endoscopy with biopsy. The biopsy was negative. So he ordered a genetic test. When that came back as "high risk" he decided a trial gluten free diet was in order. After 8 weeks my symptoms resolved and my antibodies were back to normal. Since then, follow up testing had shown I have osteoporosis. I am a 40 year old male.  So yes, you can definitely still have it and have significant damage with a negative biopsy. 
    • Pork Fried Rice  (Gluten Free, Dairy Free) Prep time: About 15 minutes Cook time: About 10 minutes Makes: 3-4 servings   Ingredients: 4 Pork Chops,  1/2 teaspoon salt 1/4-1/2 teaspoons black pepper 1/4-1/2 teaspoon red pepper flakes (optional) 1 Tablespoon Coconut Oil 1/2 large or 1 small onion 2 large carrots 2 cloves garlic, minced 1/4 green cabbage, very finely sliced 1-2 heads of broccoli, roasted and salted(optional) 2-3 eggs 2-3 cups cooked white rice  2 Tablespoons gluten-free Tamari or Coconut Aminos Sriracha (optional)   Instructions: 1. Cut pork chops into small bite sized pieces.  2. Next add a tablespoon of coconut oil to a large wok and heat on medium-high heat for a about a minute.   3. Add your chopped pork chops to the wok and season with the salt, black pepper.  Cook for about 6-8 minutes or until lightly browned. 4. While your pork chops are cooking, dice your onion, mince your garlic cloves, chop your carrots and finely slice your cabbage. 5. Once your pork is lightly browned, add all your veggies and stir fry over medium-high heat fro about 5 minutes. 6. Make a hole in the middle of your veggies and add your eggs.  Scramble your eggs with a big metal spatula until they are cooked and then mix everything together. 7. Add your cooked rice and about 2 Tablespoons of Tamari. Mix everything together and cook for another 3-4 minutes or just enough to warm up the rice.
    • Annual celiac antibody testing is, in my opinion (and based on what celiac researchers have published), is critical, especially for a 12 year old.  Life is going to get harder for her.  Peer pressure is huge (I have a 15 year old daughter), and remaining diet compliant can be tough.   In Dr. Fasano's, Gluten Freedom, he discusses a young patient who became ill in high school after being gluten free for years.  His parents were perplexed.  Dr. Fasano took the young man aside and he confessed that while on a date, he didn't want to bring up his celiac disease.  So, he ate pizza.  He was too embarrassed to tell his parents.   My daughter does not have celiac disease.  She was first tested two years ago.  Since she is symptom free, is not anemic and her other lab work is fine, we'll wait to test her in another year.  It all depends on the patient, but every few years, testing is recommended for all undiagnosed first-degree relatives.   It certainly sounds like your younger children should be screened.   I wish you both well!      
    • Perhaps you should consider asking for a GI referral.  You might just skip the blood tests and go directly to an endoscopy/biopsies while you are still consuming gluten.  It is the "gold" standard for a celiac diagnosis anyway!   Here's the deal with going gluten free.  You can do it.  It costs nothing, but you must give it six months or longer.  You'd need to think like a celiac, but it can be done!  I'll tell you my tale.  My hubby went gluten-free 15 years ago per the very poor advice of his GP/PCP and my allergist.  After a year of mistakes and learning, he got well.  It worked!  Thirteen years later, I was formally diagnosed.  (It was a shock as I was only anemic at the time.)  Hubby would be the first to say that I have had way more support from family, friends and medical.  I must say, it's nice to see those lab results.  It really helped me adhere to the diet in the beginning too.   So, you know your medical situation.  You must do what's best for you!   I hope you feel better soon!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,161
    • Most Online
      1,763

    Newest Member
    Jashan8534
    Joined