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17 Years


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8 replies to this topic

#1 flagbabyds

 
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Posted 12 February 2009 - 10:36 AM

woohoo!

17 years ago today i was FINALLY diagnosed with celiac disease and i've been gluten free ever since then!!!

I seem to post a yearly thread every year to tell everyone that i've been doing it for 17 years, and YOU CAN TOO!
it gets easier!


yay i can't believe it's been this long, time really does fly...

  • 0
Molly

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#2 maile

 
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Posted 12 February 2009 - 11:41 AM

Congratulations and thanks for the update, it gives a newbie like me great encouragement
  • 0
Enterolab:
Fecal Anti-gliadin IgA 11 Units (Normal Range <10 Units)
Fecal Anti-tissue Transglutaminase IgA 18 Units (Normal Range <10 Units)
Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)
Fecal Anti-casein (cow’s milk) IgA 9 Units (Normal Range <10 Units)
Serologic equivalent: HLA-DQ 1,1 (Subtype 5,5)
(this makes sense, my mother had MS)


What if there were no hypothetical questions?

#3 ravenwoodglass

 
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Posted 12 February 2009 - 01:25 PM

Happy Anniversary!!!!!!
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#4 Hummingbird4

 
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Posted 12 February 2009 - 05:50 PM

That's terrific! Happy 17th anniversary. You were just a baby at diagnosis. How was it growing up with this food restriction? I love your attitude.

I see you go to UPS - how do you like it? (my daughter and I will probably check it out next year) And, how are they accommodating your dietary needs?
  • 0
Diagnosed Celiac in June 2008 by biopsy and blood tests.
DQ2.2 (HLA DQA1*0201:DQB1*0202) and DQ2.5trans (HLA DQA1*05) positive.

#5 happygirl

 
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Posted 12 February 2009 - 05:52 PM

Congratulations, Molly! No doubt - this will encourage many others!
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#6 Canadian Karen

 
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Posted 12 February 2009 - 07:59 PM

Wow Molly! What a wonderful surprise to see your wonderful face! You made my day!

Hugs to you!
Karen
  • 0
Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

#7 Canadian Karen

 
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Posted 12 February 2009 - 08:01 PM

Might I add, you are getting more and more beautiful every year!

You go girl!

:D
  • 0
Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

#8 Kaycee

 
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Posted 12 February 2009 - 08:08 PM

Congratulations Molly. I know how you feel. Tomorrow it will be 3 years for me. It is a day not to forget. I might just bring out the chocolate and wine, as tomorrow here is the 14th.
Cathy
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#9 Jenny (AZ via TX)

 
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Posted 12 February 2009 - 08:11 PM

That's incredible! Congratulations.
  • 0
Jenny
(Texas girl in AZ)

Diag: 2/2008
Bloodwork - positive, 2/19/08
Biopsy - positive, 2/26/08
Colonoscopy - clean as a whistle!, 2/27/08




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