Diagnosis At 50
Posted 18 February 2009 - 06:14 PM
Posted 18 February 2009 - 06:57 PM
Anyway, I just wanted to get a little personal info. out of the way. A person can have Celiac and have no noticeable symptoms. That person may have sustained some intestinal damage along the way, but not enough to impede absorbtion of nutrients. He may have had symptoms that were attributed to something else. From what I've read, when it comes to auto-immune disorders, sometimes some "trauma" sets it into high gear. Stress can do it, an illness can do it (for me it very well have been the flu in the beginning). A person carries genetic material that leaves him susceptible....like so many other things. It didn't necessarily "come out of the blue", just that something caused the immune system to go "wacky".
You would do yourselves a great favor by reading all you can on the subject. There is lots of materials out there...web, or books and certainly here. Peter Green has an excellent book out. Celiac for Dummies is loaded with info. Of course, you are welcome to ask questions here....or vent when needed. I wish you luck!
MUSIC IS THE BREATH OF LIFE
Posted 18 February 2009 - 07:42 PM
I too have had weird symptoms all my life. I was diagnosed with ulcerative colitis, ulcers, and many other things through out the years, but never celiac disease. One infectious disease doctor was sure I had HIV from blood transfusions in the early 80's, because I had candida found throughout my digestive tract during a scope.
Finally, when I was 53, I had 6 to 8 weeks of what I thought was the flu. I lost a lot of weight and had oily diarrhea. I finally figured out it was more than the flu. I did notice during that time that shredded wheat and triskets seemed to make my symptoms worse. I was tested for wheat and other allergies, and celiac disease. Celiac blood work was sky high. My GI doc said I have had active celiac all my life - hence the broken bones and severe osteoporosis found a few months earlier.
You are born with the gene and something activates it. It is not known for sure what activates the disease, but stress, trauma, surgery have been identified as possible culprits. Then again, sometimes it is diagnosed in infants. It is a weird disease, which makes it difficult to diagnose. It can masquerade for a long time.
Positive Biopsy Feb. 2007
Gluten Free since January 2007
HLA-DQB1 Molecular analysis, Allele 1 0201
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 2,3 (Subtype 2,9)
Posted 18 February 2009 - 10:34 PM
I am confused.. my fiance was diagnosed with Celiac's almost 2 years ago. He never experienced any symptoms of any kind prior to the severe occurance when he turned 50. I have read countless stories of misdiagnosis, but none of which I can find where someone just gets this out of the blue. He was experiencing unreal stress, which was used as the catylst of this disease... but I just dont get it.. how does this come from nowhere ... I hope someone can shed some light in my confusion.
If we try to serve both sides, we cannot stand our own ground.
Celiac.com - Celiac Disease Board Moderator
Posted 19 February 2009 - 10:58 AM
I don't ever remember having any problems in 62 years of eating food with gluten so it was a shock to me but shock or no shock, I wasn't interested in it getting worse. Gluten free I went.
0 user(s) are reading this topic
0 members, 0 guests, 0 anonymous users