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Celiac.com Celiac Disease & Gluten-Free Diet Forum: Well, It Figures! - Celiac.com Celiac Disease & Gluten-Free Diet Forum
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Well, It Figures!
Not a happy camper here......
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Posted 22 March 2005 - 10:17 AM
I posted before about the one thing that I most mourned when I had to go gluten free was Clamato Juice because I used to LOVE having my weekend Caesar (it's a Canadian concoction with vodka, clamato juice, worshesthire sauce, tabasco sauce and celery salt, sounds weird, but it is delicious!!!!) Anyway, I almost cried when I e-mailed Motts and they replied that it was NOT gluten free. 
I was at the A & P supermarket a couple of weeks ago and read the ingredients on their name brand clam juice. It was different than Motts so I thought, "Hey, maybe........."  I e-mail them and this is a reply:
Dear Mrs.
Our Corporate Brands Department has informed us that the Master Choice Tomato Clam Cocktail Regular does not contain "Gluten" 1.89L.  But, the product will be updated shortly and unfortunately the recipe will contain gluten. The label will be updated at that time to reflect the formulation change. 
Thank you for your patience.
Regards,
Karen Knight
Customer Care Specialist
A&P Canada
1-877-763-7374
I have gone out and purchased a supply of bottles so at least I can have Caesars for awhile!!!!!
Karen
positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)
Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.
Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......
"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden
Laughter is the shortest distance between two people.
-- Victor Borge
"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury
"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
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Posted 22 March 2005 - 10:36 AM
Hi there, Karen,
I just wanted to tell you that I enjoyed reading your post...seems that you are in touch with your feelings about all of this...
One thing I am learning is that I MUST keep applauding myself for continuing to accept that liife is diffferent now...
I am different...healthier...and that's all that matters...
Food is food...there will always be some great things that I can eat...
But, health is health...
Food now only REALLY matters to me if I know it won't hurt me...
I'm glad that you will get a little 'withdrawal time' from your favorite drink...perhaps you can find a new favorite that is 100% safe for you? Maybe even someone you'll like even more?
Love, Gina
"Get busy living
or get busy dying."
From: The Shawshank Redemption
--------------------------------------------------------------
gluten-free since Jan 1 '05
Positive response to diet within days, felt 'alive again' within 2 weeks
Feb 22 '05:
Diagnosed "Celiac Sprue, and IBS" by a GI doc, Dr. David Lin of Danville, CA
via blood testing 53 days after I began the gluten-free diet on my own:
Test results at 53 days POST going gluten-free were:
Gliadin AB IgA = 29.9
Since 30+ = positive for Celiac Disease when ingesting gluten, my doc
diagnosed me with Celiac Sprue then and there.
Gliadin AB IgG was 5.6 at that point
-------------------------------------------
Endoscopy with biopsies, AND colonoscopy with biopsies were done,
only to rule out other possible GI problems (especially intestinal
lymphoma) - My doctor told me the results indicated "no current damage
found" - and that as long as I stay gluten-free, I don't need another
biopsy for ten years.
Follow-up blood testing was done about one year later, by the same
Gastro doc, in Nov '05:
Gliadin AB IgA =26, Gliadin AB IgG <1
Blood testing done again by him, 5 months later (March '06)
He then told me my tests results were back to normal, and "Keep up the
good work! You can't argue with success!" :-)
I now see him one time per year for routine testing to make sure I am
staying gluten-free.
------------------------------------------------------------------------------------------
ADDTIONALLY:
I was also diagnosed as positive for antibodies and autoimmune
response to gliadin by Enterolab, via stool specimen taken 56 days
gluten-free
and I have one of the two genes that 'cause' Celiac Disease:
"HLA-DQ8," via Enterolabs cheek cell test kit
---------------------------------------------------------------------
I began a COMPLETE 'Gluten-free Casein-free' diet in Nov '05, due to:
"positive" for casein antibodies from Enterolab (in Feb '05)
and
"positive" for casein IgG (Elisa) via York Labs' finger-prick blood
test, Sept '05
and continued 'stomach pains,' although nothing compared to before
going gluten-free....
UPDATE: ALL remaining symptoms disappeared within weeks of going gluten-free&CF!
**********************
My PAST illnesses I believe are attributable to Untreated Celiac Disease:
Recurrent ear and throat infections in childhood
Frequent childhood stomach aches, underweight, picky eater
Tooth enamel problems/excessive cavities in childhood
Diagnosed in 20's with non-allergic rhinitis
Two spontaneous abortions (childless)
IBS diagnosis at age 28 (all better post going gluten-free and casein-free)
["Horrible" digestive problems from ages 32-47 - excess gas,
diarrhea gone post gluten-free!]
Reflux diagnosis at age 35 ('reflux' gone post gluten-free)
ADHD diagnosis at age 38 and at age 48 (not as bad with Gluten-free Casein-free diet)
Broke elbow in 2 places, age 39
Osteopenia diagnosed at age 44 (bone scan revealed thinning of spine -
taking Calcium and Vit D now)
Fibromyalgia diagnosis at age 40 (fatigue and pain all gone post gluten-free!)
Minor depression with anxiety diagnosed at age 42 (taking Paxil)
Skin cancer - squamous at age 43 and pre-melanoma at age 45
Adult acne (this, too, went away, but only after going dairy-free)
Topical dermatitis (so bad I needed steroid shots) diagnosed at age 46
(That's gone now, too!)
Excessive bruising of skin began at age 45:
I was told by derm doc AND family physician "That's just thin, aging
skin, nothing you can do about that" (GUESS WHAT?! ...NO unusual
bruising POST going gluten-free! I can now wear skirts and shorts
again!)
SO many years of being sick...
Hopefully, others will benefit from Science, and the increasing media
attention being given to Celiac Disease and gluten-based illnesses,
and will not have to go through what I, and others on here, have had
to go through.
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Posted 22 March 2005 - 10:50 AM
Hi Gina!
Well, the way I figure it, ranting and raving over the unfairness of this disease is not going to change one crumb..... and since one of my continuing symptoms is fatigue (some days much worse than others......), I am not going to use up any energy in being angry at the situation - I don't have much energy to go around!!!!
Actually, I have pretty well gotten used to this diet - I don't even think twice about things I used to have all the time before (except my Caesar, that is!!!!) 
Karen
Karen
positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)
Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.
Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......
"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden
Laughter is the shortest distance between two people.
-- Victor Borge
"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury
"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
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Posted 22 March 2005 - 11:21 AM
@ Karen, maybe you could stock up a lot of these bottles. Then buy the ingredients and try to mix it on your own. And then just always go back and forward and compare, until you mixed it with the "right" taste of the original. I know, things like that can make you angry. It would have made me a lot angry, too. But isn't that a good idea?
Hugs, Stef
Stef
Next goals:
Results for 2011:
1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting
August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)
gluten-free since 07/21/2004
Shermans Dale, PA
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Posted 22 March 2005 - 11:54 AM
I'm already a pro (I am a Caesar connoisseur ) But because of the fact that the main ingredient (the clam juice) was off limits to me, I could no longer make my beloved "weekend drink"..... After a long week, there was nothing better than having a weekend bbq in the backyard and have a nice cold Caesar drink with it!! 
Oh well, at least I should be able to stock up enough to last me through this summer (I wonder how long of a shelf life they have, how long can I store it before it is no good any more  )
Hey Coulter, now that we have moved to a house where the girls can have their own rooms, things are much more peaceful in the household.....  If I put them back together again, there would be World War III for sure!!  Eileen is into AC/DC and Pink Floyd, guitar lessons, etc. and Rhiannon is still in the Dora the Explorer stage...... Nope, the two don't mix!!!! Even if the drink was the elixir of life, it's wouldn't be worth it!!!!  I can store a bunch in the basement though.....
Karen
Karen
positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)
Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.
Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......
"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden
Laughter is the shortest distance between two people.
-- Victor Borge
"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury
"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
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