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Celiac.com Celiac Disease & Gluten-Free Diet Forum: Medical Marijuana For Symptom Control - Celiac.com Celiac Disease & Gluten-Free Diet Forum

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Medical Marijuana For Symptom Control Any potential? Rate Topic: -----

#1 User is offline   raisin 

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Posted 19 February 2009 - 05:27 PM

Now the legal status of this practice is extremely varied based on your area, so as a disclaimer : I'm not advocating doing anything illegal.

Either those still healing, or on occasions of accidental gluten-consumption; often prone to difficult menstruation, digestive/joint/muscle pains, loss of appetite, migraines, extreme stress, inability to sleep, depression, and many other problems marijuana has been used to treat.

Have there been any studies done on the potential benefits/harms of Medical Marijuana for Celiacs? Does any do/has anyone tried this, and if so, what was your conclusions?
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#2 User is offline   cat3883 

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Posted 19 February 2009 - 06:06 PM

My conclusion is that I like to do everything drug free if possible. Just go on a gluten free diet and everything will get better.
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#3 User is offline   raisin 

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Posted 19 February 2009 - 06:43 PM

It was a medical question, not a moral question.

Some of us can't cope without medical aid, like Ibuprofen, sleep medicine or caffeine, herbs like Slippery Elm, etc. If you don't need anything of the sort, good for you.
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#4 User is offline   luvthelake21 

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Posted 19 February 2009 - 07:30 PM

Just my 2cents I think pot would make a lot of people feel better. I am sure it could be harmful but so is smoking cigaretts and you get no benefit from them. When I was young my Aunt had cancer and her husband would go buy her some pot in the city, after she smoked it she would be able to eat. All these years later I still think that is what saved her.
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#5 User is offline   maile 

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Posted 19 February 2009 - 07:37 PM

View Postluvthelake21, on Feb 19 2009, 07:30 PM, said:

When I was young my Aunt had cancer and her husband would go buy her some pot in the city, after she smoked it she would be able to eat. All these years later I still think that is what saved her.



this is quite a common reaction and also why the use for medicinal purposes is legal in Canada (it has to be prescribed and is supposed to come from gov't controlled source) I've seen it mentioned as a use for MS patients as well but never heard of it for celiac.
Enterolab:
Fecal Anti-gliadin IgA 11 Units (Normal Range <10 Units)
Fecal Anti-tissue Transglutaminase IgA 18 Units (Normal Range <10 Units)
Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)
Fecal Anti-casein (cow’s milk) IgA 9 Units (Normal Range <10 Units)
Serologic equivalent: HLA-DQ 1,1 (Subtype 5,5)
(this makes sense, my mother had MS)


What if there were no hypothetical questions?
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#6 User is offline   Jestgar 

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Posted 19 February 2009 - 07:41 PM

I think it would be hard to justify its use for celiac disease, since the treatment is just 'don't eat gluten'.
"But then, in all honesty, if scientists don't play god, who will?"
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My sources are unreliable, but their information is fascinating.
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#7 User is offline   dilettantesteph 

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Posted 20 February 2009 - 07:11 AM

I hear that you should use a pipe and not rolling papers as the adhesive contains gluten. Just in case.
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#8 User is offline   ravenwoodglass 

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Posted 20 February 2009 - 07:20 AM

There is actually quite a bit on the net about it. It can be quite helpful it seems for a lot of things. Although it wouldn't be appropriate as a substitute for the diet it could help when folks were glutened. In states where it can be prescibed it appears celiac is one of the things they prescribe it for.
Unfortunately even in states where the state has legalized it for medical use it is still illegal under Federal Law.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
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#9 User is offline   GFqueen17 

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Posted 20 February 2009 - 09:49 AM

View PostJestgar, on Feb 19 2009, 10:41 PM, said:

I think it would be hard to justify its use for celiac disease, since the treatment is just 'don't eat gluten'.


The poster said "for those still healing or for accidental gluten consumption"


I think it would be extremely helpful but I dont think that people who dont have celiac disease would understand and therefor it would be very difficult to make legal for us.
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#10 User is offline   Jestgar 

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Posted 20 February 2009 - 10:18 AM

View PostGFqueen17, on Feb 20 2009, 09:49 AM, said:

The poster said "for those still healing or for accidental gluten consumption"

I understand. I just don't think you could make a viable legal argument for it's use.
"But then, in all honesty, if scientists don't play god, who will?"
- James Watson

My sources are unreliable, but their information is fascinating.
- Ashleigh Brilliant

Leap, and the net will appear.

Celiac.com - Celiac Disease Board Moderator
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#11 User is offline   julirama723 

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Posted 20 February 2009 - 11:51 AM

Medical marijuana does help with nausea and it does give users an appetite. I knew a woman with cancer who used marijuana as a last resort because she absolutely could NOT eat anything.

However, I think it might not be the best idea for a celiac patient to use it, just because of the specific dietary needs of the patient. I'm not saying that every celiac would do this, but I think good judgement seems to fly out the window under the influence of controlled substances. Or, maybe not a lapse in judgement, but the inability to think clearly--what if someone who has just been glutened uses marijuana to assist with appetite, only to accidentally eat something with more gluten?

I'm not saying it would happen, but look at all the times people have accidentally eaten gluten, being of sound mind and body. I can see where the chance of that happening would increase dramatically, smoking pot.
Graves Disease 5/95-5/97
Noticeable GI distress started 8/07
Mom Dx Celiac 9/08
Dietary Response POS 10/08
Bloodwork and Biopsy NEG 12/08
IgA Deficient
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#12 User is offline   elonwy 

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Posted 20 February 2009 - 12:01 PM

I smoke, so I'll pipe up here. (pun not intended, but enjoyed)
I get a definite benefit from smoking when I have gluten symptoms. It calms the raging belly storm and eases the pain. It affects my appetite in the opposite way, when I get glutened I want to eat constantly, and the weed actually chills that out.
As for the judgement issues... I think there is a big difference between getting stoned out of your gourd and smoking some medical marijuana to ease your pain. When you're smoking it for pain relief, its like any other pain reliever, you don't get as "high" on it when its working on the pain, where as when you do it symptom free, you get baked.
I wouldn't go driving a car or anything, but I find the weed actually makes me less manic and less prone to eating everything in sight. It is however, a distinct possibility that I'm just weird.
Positive Bloodwork 7/8/05
Inconclusive Biopsy 7/20/05
gluten-free since 7/23/05
Never felt better.


"So here's us, on the raggedy edge, come a day when there won't be room for naughty men like us to slip about at all. - Malcolm Reynolds"
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#13 User is offline   maile 

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Posted 20 February 2009 - 12:53 PM

View Postelonwy, on Feb 20 2009, 12:01 PM, said:

When you're smoking it for pain relief, its like any other pain reliever, you don't get as "high" on it when its working on the pain, where as when you do it symptom free, you get baked..I wouldn't go driving a car or anything, but I find the weed actually makes me less manic and less prone to eating everything in sight. It is however, a distinct possibility that I'm just weird.


I think you've got a very good point! I'm not a user but I have watched someone in palliative care for a long time and was able to observe the effect of drugs on people in pain. In this person's case she was on Fentynl (sp? ....and yes, not anything like weed) and it was the drug that made her lucid and as normal as she could be under the circumstances. So I could certainly see the benefits for some!
Enterolab:
Fecal Anti-gliadin IgA 11 Units (Normal Range <10 Units)
Fecal Anti-tissue Transglutaminase IgA 18 Units (Normal Range <10 Units)
Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)
Fecal Anti-casein (cow’s milk) IgA 9 Units (Normal Range <10 Units)
Serologic equivalent: HLA-DQ 1,1 (Subtype 5,5)
(this makes sense, my mother had MS)


What if there were no hypothetical questions?
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#14 User is offline   ravenwoodglass 

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Posted 20 February 2009 - 02:45 PM

View Postelonwy, on Feb 20 2009, 12:01 PM, said:

As for the judgement issues... I think there is a big difference between getting stoned out of your gourd and smoking some medical marijuana to ease your pain. When you're smoking it for pain relief, its like any other pain reliever, you don't get as "high" on it when its working on the pain, where as when you do it symptom free, you get baked.


This is a very valid point that actually applies to a lot of drugs. Also I think when folks use it to relieve symptoms they don't always consume like the folks that are doing it to get 'high'. Most people think of the 'pot head' sort of thing where folks smoke themselves into a stupor and just sit around all day. When folks are using it as a medicine they generally use much smaller amounts.
People don't think of the person who has a glass of wine with every dinner as having a drinking problem, they can see the difference between them and the person who downs a bottle or a 12 pack a night. But those same folks can't see the difference between the person who smokes a couple hits for symptom relief and the guy who smokes 3 joints and just sits in the corner or even the person in the alley shooting heroin.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
0

#15 User is offline   luvthelake21 

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Posted 20 February 2009 - 09:47 PM

I know of Lawyers, Business people, and Working people who smoke and live a very productive life. I think if it was good enough for the Indians it should be good enough for us. At least its natural. I also beleive used in moderation it would help for many medical uses including Celiac.
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