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Celiac.com Celiac Disease & Gluten-Free Diet Forum: Dh Flair Up - Celiac.com Celiac Disease & Gluten-Free Diet Forum

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Dh Flair Up How does it start? Rate Topic: -----

#1 User is offline   sugarsue 

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Posted 24 February 2009 - 05:52 PM

I'm worried about dd7's legs. The dark purple spots where she had her leisons (diagnosed molluscum but I have always wondered if DH since they cleared up after going gluten free) have not all gone away yet and they are getting irritated again. Tonight, her skin is dry and red and painful. This is a common thing that would happen in the past before things got bad. The entire inner thigh area has a fine red, itchy, sensitive rash on it.

Over the weekend, we made chinese food and I ended up putting teryiaki sauce in it that had regular soy sauce in it :o My dd who can't have any gluten was not eating it so I thought we'd be OK. :(
That's the only thing I can think of that might have gotten her messed up again. Does this sound like anything you've seen before? Can DH start like this? What is your DH like when you get a flair up?

Thanks!
Susan
LYME diagnosed 11/2010, allergic to wheat, Hashimoto's Thyroiditis, allergic to all grasses, most trees, dust
Mom to 9 year old dd, lyme, diagnosed 11/2011, highly gluten intolerant, epilepsy w/ generalized seizures, mitocondrial markers, malabsorption, recurring candida - Gluten-free Casein-free since 9/16/08. Diagnosed with P.A.N.D.A.S. 6/20/09, seizure free since going gluten-free!
and 10 yr old dd, Lyme diagnosed 11/2011, severe dust allergy, allergic to most trees/grasses/weeds. Positive gluten intolerance testing. Gluten Free since 12/09/08. Diagnosed with P.A.N.D.A.S. 6/20/09
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#2 User is offline   ravenwoodglass 

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Posted 25 February 2009 - 04:09 AM

If you can get her to a derm while the rash is active you can ask him to do a biopsy looking for DH. He would biopsy the skin next to the lesions. The purple scarring you talk about of is one of the hallmarks of DH so a visit to a derm may be quite helpful.
Also I could be wrong but I don't think molluscum itches. If the rash is itchy that would be another indication that it is DH.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
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#3 User is offline   SLB5757 

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Posted 26 June 2009 - 10:59 AM

Wow -

I should have read this forum years ago - specifically the DH section. My daughter who is 10 now was diag. with molluscum as a child (maybe at 7 years old) She broke out in many blisters/rash that was all over her lower abdomen, back, upper thigh and bum area. Docs said it was mulluscum and would clear after 6-8 mos. She itched relentleslly day after day and there wasn't a thing I could do since she had seen a doc. She got the purple scarring over ever single spot that she had.

She has never had an outbreak like that since that day - but will get "itchy bumps" on her scalp that she itched til they bleed. I use neosporin and usually lecture her about not itching them. She says she cant help it - but I assume it's just shampoo sensitivity.

two days ago she developed a different patch of "bumps on her right calve. I would say there are maybe 10-15 bumps that itch her terribly. I never put together that she could have celiac or DH til now. She has been having diah. for the last week!! I just told her she should probably try staying away from dairy for a while in case that is the issue.

Maybe I should look into the possibility (although docs. around here are not very versed with Celiac. ).

Just very interesting to see other people having similar issues. Maybe if we were still with teh previous Ped they would start to put two and two together :( Feeling like a bad mom!!
*Multiple allergies including IGE positive RAST to Wheat, Rye, Barley and Oats.
*Diagnosed with IBS 3/09.
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