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Tsh 3rd Generation?


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15 replies to this topic

#1 Zella CE

 
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Posted 24 February 2009 - 10:18 PM

My Mom had the Celiac blood panel. Or so I thought. When looking at her results, the only thing on the piece of paper is:

TSH 3rd Generation 11305
Diagnoses: 1 degree - 244.9 degrees = Hypothyroidism

.... That's it.

Now, I did do a search within this forum and on Google, however I am wondering if doctors use different terminology and just lump it under one name?
Or did the doctor forget half the tests?

Any advice would be greatly appreciated, as usual :)
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********************

Celiac Disease - 5/2007
Scoliosis Surgery - 12/1997
Arthritis
Kyphoscoliosis
Degenerative Disc Disease
Enlarged Pituitary Gland
Vitamin D deficient
Folic Acid deficient
Iron deficient

... and loving life!!

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#2 Mother of Jibril

 
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Posted 25 February 2009 - 04:14 AM

Wow. TSH is a test for thyroid disorders, not celiac :blink:

So... now your mom knows that she's hypothyroid (which needs to be treated with replacement thyroid hormones)... all the more reason to test for celiac disease! Here are the tests:

Total IgA
Anti-gliaden IgA and IgG
Endomesial antibodies (EMA)
Tissue transglutaminase (ttg)
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Gluten free 08/08
Son has IgE allergies to peanuts and corn
Hashimoto's, MCAD, pregnancy loss at 17 weeks
HLA-DQB1*0302 (celiac), HLA-DQB1*0301 (gluten sensitive)
Serological equivalent 3,3 (subtype 8,7)
Extensive family history of autoimmune disorders and related symptoms

#3 Zella CE

 
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Posted 25 February 2009 - 04:31 AM

Wow. TSH is a test for thyroid disorders, not celiac :blink:

So... now your mom knows that she's hypothyroid (which needs to be treated with replacement thyroid hormones)... all the more reason to test for celiac disease! Here are the tests:

Total IgA
Anti-gliaden IgA and IgG
Endomesial antibodies (EMA)
Tissue transglutaminase (ttg)


LOL!!!!!!!!! I thought it didn't look right :)

Oh happy days! The doctor wrote on a piece of paper, check thyroid in 3 months. <---- that was it.

Great, I'm going to have a field day trying to get my Mom to have the right tests. The one "Celiac" blood test cost her $197.50.. I just say this because she makes a big hooplah about how much it cost.. She was wondering, being that her insurance doesn't cover the blood tests, are there any suggestions for her not having to pay "an arm and a leg" for the additional tests?

Any suggestions would be greatly appreciated :D

Thank you!
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********************

Celiac Disease - 5/2007
Scoliosis Surgery - 12/1997
Arthritis
Kyphoscoliosis
Degenerative Disc Disease
Enlarged Pituitary Gland
Vitamin D deficient
Folic Acid deficient
Iron deficient

... and loving life!!

#4 happygirl

 
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Posted 25 February 2009 - 05:08 AM

Trying the diet without testing is free.
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#5 Zella CE

 
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Posted 25 February 2009 - 06:40 AM

Trying the diet without testing is free.


Good point. I have a feeling it will be even harder to convince her to do that. She doesn't have the classic symptoms, therefore she sees no reason to investigate this whole "Celiac" business. She does her best to support me, but doesn't want to incur the expense to find out if she has it. My Dad is the same way. She swears he gave it to me and he swears that he didn't. I don't really care who "gave" it to me, I just want to make sure they are as healthy as possible. Based off of some of their symptoms (classic or not), I think they should at least check.. if anything, just to prove me wrong. :/

But they're adults and can fend for themselves.

I have to give my Mom credit though. She did try. It's not her fault the doctor forgot the other tests.

:P
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********************

Celiac Disease - 5/2007
Scoliosis Surgery - 12/1997
Arthritis
Kyphoscoliosis
Degenerative Disc Disease
Enlarged Pituitary Gland
Vitamin D deficient
Folic Acid deficient
Iron deficient

... and loving life!!

#6 curiousgeorge

 
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Posted 25 February 2009 - 06:41 AM

It sounds to me like you paid for a test you didn't get. Some curt phonecalls are likely in order.
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#7 Zella CE

 
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Posted 25 February 2009 - 06:52 AM

It sounds to me like you paid for a test you didn't get. Some curt phonecalls are likely in order.


Huh, okay. I don't know how much just one of the tests usually cost.

Does the $197.50 seem too much for the TSH?
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********************

Celiac Disease - 5/2007
Scoliosis Surgery - 12/1997
Arthritis
Kyphoscoliosis
Degenerative Disc Disease
Enlarged Pituitary Gland
Vitamin D deficient
Folic Acid deficient
Iron deficient

... and loving life!!

#8 Mother of Jibril

 
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Posted 25 February 2009 - 07:51 AM

Huh, okay. I don't know how much just one of the tests usually cost.

Does the $197.50 seem too much for the TSH?


It's definitely too much... even without insurance, it should cost about $50 to check your TSH.
  • 0
Gluten free 08/08
Son has IgE allergies to peanuts and corn
Hashimoto's, MCAD, pregnancy loss at 17 weeks
HLA-DQB1*0302 (celiac), HLA-DQB1*0301 (gluten sensitive)
Serological equivalent 3,3 (subtype 8,7)
Extensive family history of autoimmune disorders and related symptoms

#9 Zella CE

 
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Posted 25 February 2009 - 03:14 PM

Thank you for the information. :)

I will definitely look into this with my Mom. If there is a discrepancy with the amount she paid, then I would hope they would be willing to give her the right tests equal to the cost of what she has already paid for.

There's still hope yet!

Just to clarify, I don't want her or my Dad just to get tested for the fun of it. She has a lot of peripheral neuropathy issues, intermittent C (which she swears is just because she eats too much dairy), arthritis and now she has developed some sort of rash on her cheeks. I don't necessarily think the rash is DH, but I have noticed that it shows up more depending on what she is eating.

Dad, on the other hand, has (I'm just gonna list his, lol):

Acid reflux
D
C
Gas/bloating
Arthritis
Thrombocythemia - he takes medication for this
Prostate Cancer - surgery
Basil Cell Carcinoma - surgery
Hernia - surgery
Scoliosis - surgery
Hemorrhoids
Diverticulitis - dx back in the early 90's

Those are just the things I can remember off the top of my head. His sister also has gluten-intolerance and is a self-diagnosed Celiac.

Anyway, they both support me, but don't want to spend the big bucks to get tested. They have a PPO and it has a high deductible, hence all this hesitation to pursue further testing. This is great information about the test being cheaper than what my Mom paid, hopefully this will be an incentive to have her get the right tests - insurance permitting (and cooperating).
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********************

Celiac Disease - 5/2007
Scoliosis Surgery - 12/1997
Arthritis
Kyphoscoliosis
Degenerative Disc Disease
Enlarged Pituitary Gland
Vitamin D deficient
Folic Acid deficient
Iron deficient

... and loving life!!

#10 curiousgeorge

 
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Posted 25 February 2009 - 03:24 PM

I agree, that is WAY too much for thryoid tests. I highly suspect you paid for what you didn't get and it was a lab screw up. Is there a chance that they celiac stuff just hasn't come in yet? They likley went to different labs. Pretty much anywhere can do a tsh but not celiac panel.
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#11 Zella CE

 
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Posted 25 February 2009 - 05:48 PM

I agree, that is WAY too much for thryoid tests. I highly suspect you paid for what you didn't get and it was a lab screw up. Is there a chance that they celiac stuff just hasn't come in yet? They likley went to different labs. Pretty much anywhere can do a tsh but not celiac panel.


Well, she had the tests done about 5 months ago.. So, I'm hoping they would have all come back. We put a call in to the doctor to find out if maybe she forgot to send all of the test results. At the time of the Celiac panel she also had her cholesterol checked and a couple other routine blood tests. She said that they filled 6 viles of blood. I remember when I did the panel, they took more like 12-16 viles. What is the typical number of viles for a full panel?

Thank you again, all this is really helping :)
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********************

Celiac Disease - 5/2007
Scoliosis Surgery - 12/1997
Arthritis
Kyphoscoliosis
Degenerative Disc Disease
Enlarged Pituitary Gland
Vitamin D deficient
Folic Acid deficient
Iron deficient

... and loving life!!

#12 Mother of Jibril

 
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Posted 25 February 2009 - 06:47 PM

I remember when I did the panel, they took more like 12-16 viles. What is the typical number of viles for a full panel?


Wow! When I had my celiac panel done, I also checked my TSH and ANA... I think we used maybe three vials :blink: Definitely not twelve!
  • 0
Gluten free 08/08
Son has IgE allergies to peanuts and corn
Hashimoto's, MCAD, pregnancy loss at 17 weeks
HLA-DQB1*0302 (celiac), HLA-DQB1*0301 (gluten sensitive)
Serological equivalent 3,3 (subtype 8,7)
Extensive family history of autoimmune disorders and related symptoms

#13 curiousgeorge

 
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Posted 25 February 2009 - 06:51 PM

I had a whack of stuff done when I had it. I stopped counting at 16 viles.

celiac panel, full thryoid panel, cbc, a bunch of vitamens, homoccystine, c-reactive protein and some other stuff that I forget at the moment.

What did they do for her thyroid?
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#14 Zella CE

 
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Posted 25 February 2009 - 07:40 PM

Wow! When I had my celiac panel done, I also checked my TSH and ANA... I think we used maybe three vials :blink: Definitely not twelve!


It is quite possible that I had everything under the sun tested.. So, maybe she actually had the right amount. I'll have to find the results for my panel.. now I'm curious :)
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********************

Celiac Disease - 5/2007
Scoliosis Surgery - 12/1997
Arthritis
Kyphoscoliosis
Degenerative Disc Disease
Enlarged Pituitary Gland
Vitamin D deficient
Folic Acid deficient
Iron deficient

... and loving life!!

#15 Zella CE

 
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Posted 25 February 2009 - 07:43 PM

I had a whack of stuff done when I had it. I stopped counting at 16 viles.

celiac panel, full thryoid panel, cbc, a bunch of vitamens, homoccystine, c-reactive protein and some other stuff that I forget at the moment.

What did they do for her thyroid?


The doctor mailed her a piece of paper that said:
"slightly low thyroid level, check in three months"

That was it. No other follow-up or further information was provided.

Yeah, I would say anything over 10 viles and you just sort of stop caring.. haha :P
  • 0

********************

Celiac Disease - 5/2007
Scoliosis Surgery - 12/1997
Arthritis
Kyphoscoliosis
Degenerative Disc Disease
Enlarged Pituitary Gland
Vitamin D deficient
Folic Acid deficient
Iron deficient

... and loving life!!




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