Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Tsh 3rd Generation?
0

16 posts in this topic

My Mom had the Celiac blood panel. Or so I thought. When looking at her results, the only thing on the piece of paper is:

TSH 3rd Generation 11305

Diagnoses: 1 degree - 244.9 degrees = Hypothyroidism

.... That's it.

Now, I did do a search within this forum and on Google, however I am wondering if doctors use different terminology and just lump it under one name?

Or did the doctor forget half the tests?

Any advice would be greatly appreciated, as usual :)

0

Share this post


Link to post
Share on other sites


Ads by Google:

Wow. TSH is a test for thyroid disorders, not celiac :blink:

So... now your mom knows that she's hypothyroid (which needs to be treated with replacement thyroid hormones)... all the more reason to test for celiac disease! Here are the tests:

Total IgA

Anti-gliaden IgA and IgG

Endomesial antibodies (EMA)

Tissue transglutaminase (ttg)

0

Share this post


Link to post
Share on other sites
Wow. TSH is a test for thyroid disorders, not celiac :blink:

So... now your mom knows that she's hypothyroid (which needs to be treated with replacement thyroid hormones)... all the more reason to test for celiac disease! Here are the tests:

Total IgA

Anti-gliaden IgA and IgG

Endomesial antibodies (EMA)

Tissue transglutaminase (ttg)

LOL!!!!!!!!! I thought it didn't look right :)

Oh happy days! The doctor wrote on a piece of paper, check thyroid in 3 months. <---- that was it.

Great, I'm going to have a field day trying to get my Mom to have the right tests. The one "Celiac" blood test cost her $197.50.. I just say this because she makes a big hooplah about how much it cost.. She was wondering, being that her insurance doesn't cover the blood tests, are there any suggestions for her not having to pay "an arm and a leg" for the additional tests?

Any suggestions would be greatly appreciated :D

Thank you!

0

Share this post


Link to post
Share on other sites

Trying the diet without testing is free.

0

Share this post


Link to post
Share on other sites
Trying the diet without testing is free.

Good point. I have a feeling it will be even harder to convince her to do that. She doesn't have the classic symptoms, therefore she sees no reason to investigate this whole "Celiac" business. She does her best to support me, but doesn't want to incur the expense to find out if she has it. My Dad is the same way. She swears he gave it to me and he swears that he didn't. I don't really care who "gave" it to me, I just want to make sure they are as healthy as possible. Based off of some of their symptoms (classic or not), I think they should at least check.. if anything, just to prove me wrong. :/

But they're adults and can fend for themselves.

I have to give my Mom credit though. She did try. It's not her fault the doctor forgot the other tests.

:P

0

Share this post


Link to post
Share on other sites




It sounds to me like you paid for a test you didn't get. Some curt phonecalls are likely in order.

0

Share this post


Link to post
Share on other sites
It sounds to me like you paid for a test you didn't get. Some curt phonecalls are likely in order.

Huh, okay. I don't know how much just one of the tests usually cost.

Does the $197.50 seem too much for the TSH?

0

Share this post


Link to post
Share on other sites
Huh, okay. I don't know how much just one of the tests usually cost.

Does the $197.50 seem too much for the TSH?

It's definitely too much... even without insurance, it should cost about $50 to check your TSH.

0

Share this post


Link to post
Share on other sites

Thank you for the information. :)

I will definitely look into this with my Mom. If there is a discrepancy with the amount she paid, then I would hope they would be willing to give her the right tests equal to the cost of what she has already paid for.

There's still hope yet!

Just to clarify, I don't want her or my Dad just to get tested for the fun of it. She has a lot of peripheral neuropathy issues, intermittent C (which she swears is just because she eats too much dairy), arthritis and now she has developed some sort of rash on her cheeks. I don't necessarily think the rash is DH, but I have noticed that it shows up more depending on what she is eating.

Dad, on the other hand, has (I'm just gonna list his, lol):

Acid reflux

D

C

Gas/bloating

Arthritis

Thrombocythemia - he takes medication for this

Prostate Cancer - surgery

Basil Cell Carcinoma - surgery

Hernia - surgery

Scoliosis - surgery

Hemorrhoids

Diverticulitis - dx back in the early 90's

Those are just the things I can remember off the top of my head. His sister also has gluten-intolerance and is a self-diagnosed Celiac.

Anyway, they both support me, but don't want to spend the big bucks to get tested. They have a PPO and it has a high deductible, hence all this hesitation to pursue further testing. This is great information about the test being cheaper than what my Mom paid, hopefully this will be an incentive to have her get the right tests - insurance permitting (and cooperating).

0

Share this post


Link to post
Share on other sites

I agree, that is WAY too much for thryoid tests. I highly suspect you paid for what you didn't get and it was a lab screw up. Is there a chance that they celiac stuff just hasn't come in yet? They likley went to different labs. Pretty much anywhere can do a tsh but not celiac panel.

0

Share this post


Link to post
Share on other sites
I agree, that is WAY too much for thryoid tests. I highly suspect you paid for what you didn't get and it was a lab screw up. Is there a chance that they celiac stuff just hasn't come in yet? They likley went to different labs. Pretty much anywhere can do a tsh but not celiac panel.

Well, she had the tests done about 5 months ago.. So, I'm hoping they would have all come back. We put a call in to the doctor to find out if maybe she forgot to send all of the test results. At the time of the Celiac panel she also had her cholesterol checked and a couple other routine blood tests. She said that they filled 6 viles of blood. I remember when I did the panel, they took more like 12-16 viles. What is the typical number of viles for a full panel?

Thank you again, all this is really helping :)

0

Share this post


Link to post
Share on other sites
I remember when I did the panel, they took more like 12-16 viles. What is the typical number of viles for a full panel?

Wow! When I had my celiac panel done, I also checked my TSH and ANA... I think we used maybe three vials :blink: Definitely not twelve!

0

Share this post


Link to post
Share on other sites

I had a whack of stuff done when I had it. I stopped counting at 16 viles.

celiac panel, full thryoid panel, cbc, a bunch of vitamens, homoccystine, c-reactive protein and some other stuff that I forget at the moment.

What did they do for her thyroid?

0

Share this post


Link to post
Share on other sites
Wow! When I had my celiac panel done, I also checked my TSH and ANA... I think we used maybe three vials :blink: Definitely not twelve!

It is quite possible that I had everything under the sun tested.. So, maybe she actually had the right amount. I'll have to find the results for my panel.. now I'm curious :)

0

Share this post


Link to post
Share on other sites
I had a whack of stuff done when I had it. I stopped counting at 16 viles.

celiac panel, full thryoid panel, cbc, a bunch of vitamens, homoccystine, c-reactive protein and some other stuff that I forget at the moment.

What did they do for her thyroid?

The doctor mailed her a piece of paper that said:

"slightly low thyroid level, check in three months"

That was it. No other follow-up or further information was provided.

Yeah, I would say anything over 10 viles and you just sort of stop caring.. haha :P

0

Share this post


Link to post
Share on other sites

Egads, she needs to follow up on the thryoid stuff. Its not something that should just be followed. I'm sure she feels HORRID.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,642
    • Total Posts
      921,567
  • Topics

  • Posts

    • I was only asking because when ferritin is low that you can experience hair loss/fatigue etc. even if your other iron levels are in range. This just happened to me so I thought I would share just in case it helps you. Ferritin should be above 50, not just "in range."  I've been on iron supplements and much better now. This may not be your problem at all, but I would have them check your ferritin levels. Low iron or anemia is common with celiac. The ferritin test is measuring how much iron is stored in your body. FYi: Iron binding capacity is really telling you how much protein your liver is making in order to carry that iron around. Usually, iron binding capacity will be higher in the range when iron is low.
    • Hello I'm happy to join, any help is greatly appreciated as it can be difficult by times for sure. Unfortunately, I have been told my doctor has definitely not been doing anything correctly and very backwards about Alot of things. I live in canada, and there are celiac support groups I have found but I am about 2 hours away from any. I live in a pretty rural area. Although,  I have still received some help from them , they prefer a diagnosis before helping out to much. My doctor has me on a waiting list to see a gastrointestinal specialist but whenever I called her office to inquire about an appointment time I was told there was a very long wait and that I was considered to be a non emergency. So I am waiting to get an appointment. I have seen a dermatoligist for some of my rashes and she said it was dermatitis and gave me different creams for them.  It is frustrating because I don't know how to go about getting a actual diagnosis besides this biopsy. I was told to request a different specialist, but supposedly there is a waiting period for most in our area. 
    • Thanks for all of the replies. I've just found out I'm not getting to see a dietician because of not having a definite diagnosis which is another blow. I've had loads of bloods done but they just say they're all normal. I did have low vitamin D and high parathyroid but it's sorted itself out after a course of high dose vitamin D and they're not checking it again for a year. No chance of getting referred to endocrinology, gastro won't do it and neither will my gp. I've tried giving up coffee and all fizzy juice and it hasn't made a difference. I'm exhausted and scared and still have no clue what to do next. My gp has zero experience dealing with this type of thing - last time I was there she said it could be because I've restricted my diet too much and I should eat more gluten-free replacement products - everything I've read online says this is the worst thing to do! I'm asking for a copy of the last blood results this week so I can go through them myself but other than that I'm pretty stuck. 
    • I really am iffy on talking about this side of my gluten issues, I think I am about to ruin my reputation on this forum coming about as some extreme crazy guy saying this but I wanted to get this off my chest and perhaps see if anyone else might share a similar trauma. I get emotional recalling it, this side of my reactions, as it is most ingrained and very traumatizing experience, and I am not proud of it as the mentality I have now disgust me but I am going to come out about it. One of the scariest things in this world is when your own mind turns against you, when you can not think about what you want to think about, when you can not do what you know you should be able to do. When I got glutened really bad these where things I felt with my own mind would start looping, and thoughts would not come together. I would loose comprehension, feel like I know I should be able to think about something but my mind was not working. The same thing looped over and over and over like a broken record, This led to anger, anxiety, depression, panic, top it off with loss of feeling in my hands and feet, and the pains in the gut......it was a nightmare. I would go as far as beating my head against walls and punching them out of frustration as to why my own body and mind where not working, I just wanted it to end the pain to stop. I still have scars on my fist from punching into a nail in a stud once and kept going.....I scared everyone and myself distanced my self from loved ones. And started running a bucket list accepting that I was going to die soon. Hell to this day parts of the brain damage seem to be permanent as I can no longer do computer programing or some forms of math, they just no longer make any sense or connect. Then we learned what was causing it, and once the symptoms started to fade, I would get very angry if someone in the shared house did something stupid and got me sick again. The fear of going back to that caused violent and drastic actions to get away from what was making me sick. The sheer fear of my own mind turning on me led me to drastic actions to prevent it, throwing everything away I thought could make me sick, making sure no one else used that kitchen, used freezer paper and gloves when fixing my foods and working in there. I really destroyed and burned all bridges I had then and alienated myself from others. In the end it motivated me to learn how to cook, to get and renovate my own apartment in a building downtown, and start a business to pay for my new diet, by selling safe food to others with this issues locally at farmer markets. But it changed me on a very deep level, that traumatic experience to this day I have a issue looking at others and dealing with other humans who eat that stuff.......the stuff that breaks my mind and body so horrifically. If I have to compare it to something its like watching aliens drinking antifreeze and eating poison.....it causes a subconscious level of disgust and slight envy. I really can not even look at the stuff without recall what it does and feeling a twitch. I know I am the alien here, but it feels vise versa, and I look down on the normal people as odd creatures.  I go to the store and find myself overly avoiding contamination, keeping stuff in my own bags, asking the cashier to scan and bag it as I pass it not letting it touch that flour I see on the belt. I am hyper sensitive to the stuff I know and that fear semi dominates my mind as crazy as it sounds.  I am recovering and am forcing myself to try to mingle with other humans overlooking that one thing, but that deep rooted trauma still flares up as a protective measure especially around foods.  I could talk on and on about the other side effects but this one is the hardest to talk about it, and I feel others might be able to relate to it.    
    • Time.  You need time to heal.  Yeah, I am like a broken record!  😄 So...Lycra is your best friend for now (that and old baggy sweats!).  Hang in there!  Hugs!     
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,647
    • Most Online
      3,093

    Newest Member
    iFitCeliac
    Joined