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Need Crash Course In Asperger's Syndrome


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#1 Canadian Karen

 
Canadian Karen

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Posted 26 February 2009 - 09:09 AM

Hi. My cousin and his girlfriend will soon be inheriting two small children to care for. One is a girl who is 7, the other is a boy who is 10. The boy has been diagnosed with Asperger's Syndrome. Neither my cousin or his girlfriend (long time, live in girlfriend) have any children thus far, although knowing both of them, if anyone could make life better for these children, it is those two kind souls....... The children's mother ran out on them and the father works in another province, so until the father is able to return to care for his children, my cousin and his girlfriend stepped up and offered to care for them.

Can you offer any good links for me to give to them to help learn how best to help this boy? Thank you so much for any help you can suggest!

Karen
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Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

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#2 sugarsue

 
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Posted 26 February 2009 - 09:50 AM

Wow, that is amazing that they are doing this. It does sound like they are two kind souls! I would recommend they find a Dan! doctor, if possible in their area. They would be a great local source of support and information. I hope maybe these links might help. A friend of mine at work recommended them.

http://www.aspergers.com/
http://www.autism-so...=life_aspergers
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Susan
LYME diagnosed 11/2010, allergic to wheat, Hashimoto's Thyroiditis, allergic to all grasses, most trees, dust
Mom to 9 year old dd, lyme, diagnosed 11/2011, highly gluten intolerant, epilepsy w/ generalized seizures, mitocondrial markers, malabsorption, recurring candida - Gluten-free Casein-free since 9/16/08. Diagnosed with P.A.N.D.A.S. 6/20/09, seizure free since going gluten-free!
and 10 yr old dd, Lyme diagnosed 11/2011, severe dust allergy, allergic to most trees/grasses/weeds. Positive gluten intolerance testing. Gluten Free since 12/09/08. Diagnosed with P.A.N.D.A.S. 6/20/09




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