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Any Celiac(s) From Canada


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133 replies to this topic

#1 Gerri

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Posted 26 February 2009 - 09:17 AM

I am new to Celiac (54 year old female), even though I have watched what I ate for many years. I had Gluten problems for many years. Always sick at Christmas, and holidays, acid reflux problems getting worse, vitamin D deficiency, vitamin B12 low, and a list of other health issues getting worse.

Last year my doctor at the time told me to go Gluten Free for the rest of my life. He hoped it would stop the progression of other autoimmune diseases. Since going gluten free my diabetes is controlled, and my sleep apnea's pressure is coming down. I have since been diagnosed with Celiac.

I am from Ontario Canada, and wonder if there are there are others from Canada here.

Hugs

Gerri
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#2 psawyer

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Posted 26 February 2009 - 09:49 AM

Hi.

There are a number of Canadians on here. I'm in Toronto here at work.
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Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)

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#3 Gerri

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Posted 26 February 2009 - 10:04 AM

I am in Kitchener, just west of Toronto. I see a naturopath in Toronto, and hopefully soon a Rheumy.

Don't work too hard. Hoping to talk again soon.

Hugs

Gerri

Hi.

There are a number of Canadians on here. I'm in Toronto here at work.


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#4 leadmeastray88

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Posted 26 February 2009 - 10:06 AM

Hi there!
I'm from Winnipeg, MB.

I have a cousin who is Celiac from Halifax also.
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~Kim~ Gluten-Free since July 2008
9 inguinal hernia surgeries in 3 years (2004-2007)
Symptoms Pre-Dx: constant abdominal cramps, acid reflux, nausea, vitamin B12 deficiency, chronic constipation, fatigue, hyperhidrosis, migraines
July 7/08 - tTG 1 (+>4) - Diagnosed with IBS, given Rx, sent home to "relax"
Gastro refused biopsy as I had "already been though enough"
Enterolab Results (Aug 2008) - Fecal Antigliadin IgA 11 (Normal Range <10 Units)
HLA-DQB1 Molecular Analysis, Allele 1 0202
HLA-DQB1 Molecular Analysis, Allele 2 0301
Sept/09 - New GP gave Celiac Dx based on response to diet and family history
National Celiac Disease Conference 2010 Volunteer

#5 curiousgeorge

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Posted 26 February 2009 - 10:56 AM

Toronto!

I are really annoyed about ontario not covering celiac testing. I think its just criminal.

If any of you have a good celiac friendly doc in Toronto (GI) please PM me.
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#6 psawyer

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Posted 26 February 2009 - 11:16 AM

Back in 2000, when I was diagnosed, the blood tests were still very new and were not commonly done. I had the endoscopy and biopsy, which was covered by OHIP.
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Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)

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#7 elye

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Posted 26 February 2009 - 11:54 AM

Hi, Gerri!

I'm in Ottawa, and share the anger over OHIP not covering the blood panel cost. It cost me ninety dollars four years ago, and my dad had it done last fall for $120.00. Expensive, and at times meaningless, for my dad's results were "negative", and I continue to suspect they were false. :( :angry:
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Emily

diagnosed type one diabetic 1973
diagnosed celiac winter 2005
diagnosed hypothyroid spring 2006

But healthy and happy! Posted Image


11 year-old Son had negative blood panel, but went on gluten-free diet of his own volition to see if his concentration would improve, his temper abate, and his energy level would increase. Miraculous response!

The great are great only because we are on our knees.
--Pierre Joseph Proudhon (1809-1865)

#8 Gerri

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Posted 26 February 2009 - 12:07 PM

Some of the test are oovered but not them all. I had to pay $180 for two test I believe out of 4. My tissue Transglutaminase (sp) came back low celiac, plus other health issues which are associated with Celiac, gave me my diagnoses of celiac. Get your doctor to order this test (tissue transglutaminase). If you have been off gluten for a while, it is my recommendation not to go for biopsy. Damage can be done in any area of the duoderum, and missed by the biopsy. You will know that your Celiac, by the way you feel off of gluten. To go back on Gluten, causes you to become very sick.

Hugs

Gerri





Toronto!

I are really annoyed about ontario not covering celiac testing. I think its just criminal.

If any of you have a good celiac friendly doc in Toronto (GI) please PM me.


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#9 princesskill

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Posted 30 March 2009 - 11:53 AM

im in ottawa
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dx PCOS (poly-cystic ovarian syndrome) winter 2008
dx Celiac March 12/09

Liz/26/Ottawa, Ontario, Canada


#10 debbiwi56

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Posted 31 March 2009 - 12:18 PM

Hello from New Brunswick. I was diagnosed about 2 and 1/2 years ago. I am 52. I was completely thrown for a loop with the diagnosis. I am an ovarian cancer survivor (10 yrs. now) so I'm afraid to say I had been suffering for what seems like eons before I finally gave in and went to the doctor. (I was so afraid that I would be told I had cancer again...my reason for putting it off). I try very hard to watch what I eat but still seem to feel like the dickens most of the time. My GI specialist tells me to continue with the diet and that's all I can do. Seems like I should be doing more....any ideas? :)
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#11 Tomkitchener

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Posted 19 April 2009 - 07:29 PM

Hi There, I am from Kitchener,ON,CA.

I am new to the forum, and have not yet been tested but will and pretty well am am sure I have some form of gluten intolerance. I have been on a gluten free diet for almost 2 months now and symptoms have significantly improved.

I look forward to getting to know everyone and sharing my thoughts with people in the same situation as myself.
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#12 Northern Celiac

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Posted 22 May 2009 - 11:27 AM

I am new to Celiac (54 year old female), even though I have watched what I ate for many years. I had Gluten problems for many years. Always sick at Christmas, and holidays, acid reflux problems getting worse, vitamin D deficiency, vitamin B12 low, and a list of other health issues getting worse.

Last year my doctor at the time told me to go Gluten Free for the rest of my life. He hoped it would stop the progression of other autoimmune diseases. Since going gluten free my diabetes is controlled, and my sleep apnea's pressure is coming down. I have since been diagnosed with Celiac.

I am from Ontario Canada, and wonder if there are there are others from Canada here.

Hugs

Gerri

Hi Gerri,
you found another Canadian as well. I am in Northeast B.C. in a very remote community(ft nelson) but am learning to cope with whats going on with me. I was finally diagnosed in April this yr2009 and have been working on going gluten-free ever since. I have gone through my own personal hell like you did. The worst part of it was the family doctor I was using wouldn't refer me to a specialist until he had his turn at me.
This was the worst part of it as I kept getting sicker. But you must have courage I have met celiacs who by all appearances have returned to normal health, and that is what I am shooting for.
Best Wishes
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#13 Northern Celiac

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Posted 23 May 2009 - 08:18 AM

Hello from New Brunswick. I was diagnosed about 2 and 1/2 years ago. I am 52. I was completely thrown for a loop with the diagnosis. I am an ovarian cancer survivor (10 yrs. now) so I'm afraid to say I had been suffering for what seems like eons before I finally gave in and went to the doctor. (I was so afraid that I would be told I had cancer again...my reason for putting it off). I try very hard to watch what I eat but still seem to feel like the dickens most of the time. My GI specialist tells me to continue with the diet and that's all I can do. Seems like I should be doing more....any ideas? :)

Hi Debbie,
I am a brand new celiac(hahaha, april 2009) and have come to terms with the disease quite quickly. I realize that if I want to get healthy and stay healthy the only way to do it is to stick to the diet. I keep telling myself"no dammit I don't want to be sick anymore.
Best wishes
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#14 Felidae

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Posted 23 May 2009 - 05:50 PM

Hi,
I'm from Alberta. I haven't been on here much lately. But hopefully I can get here more often.
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Tapioca intolerant
First cousin dx'd with Celiac Disease
Grandmother died of malnutrition b/c everything made her sick... sounds like celiac to me.
Gluten-free since June 2005
Dx with IBS February 2005
Blood tests both negative (or inconclusive?) for celiac (in 2002 and 2004)

#15 nomentanus

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Posted 31 May 2009 - 05:35 PM

Victoria, BC here, moving to Toronto someday.

Forget the test if you are avoiding wheat now. The test looks for anitbodies and assumes you are eating a lot of wheat right now. If not, the test doesn't work.

Everyone should be screened for celiac - it would save your province an immense amount of health care dollars. So says Fasano himself:


Gut. 2003 Feb;52(2):168-9. [BELOW]

Comment in:
Gut. 2003 Feb;52(2):170-1.
Gut. 2004 Jan;53(1):154-5.
Gut. 2004 Oct;53(10):1545-6.

European and North American populations should be screened for coeliac disease.
Fasano A.

Division of Pediatric GI and Nutrition, Center for Celiac Research, University of Maryland School of Medicine, Baltimore, USA. afasano@peds.umaryland.edu

PMID: 12524393

http://www.ncbi.nlm....pubmed/12524393
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