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Any Celiac(s) From Canada
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HI, I'm from Vancouver Canada, and joined this site today. I got my world turned upsidedown just three days ago. I'm also blessed with a severe, severe dairy allergy, eggs, and sunflower seeds, just to name the most severe.

In the past three days I've come to understand that my carefree eating will now be very, very changed. Thank god I can have coffee still!!!!!!

I too will have a bunch of questions that will probably be repeats...like...I'm already confused...cornstarch is out as well? hmmm...is there a list of foods to avoid on here somwhere?

I think I'm very lucky. I live in a large city, so access to special diet items may be easier....and I work in a clinic with many fabulous professionals with great advice and experience with this. I guess life could be worse. lol

Anyone know how long it takes to start feeling relief from symptoms?

Welcome!

I'm pretty new at this too, so my advice might not be the best. First, I'm pretty sure you can still have corn starch. You have to watch out for things like 'food' starch, since it could possibly be wheat. There are gov't regulations in Canada and the US though, and manufacturers should have to state the type of starch if it does contain one of the main allergens (wheat is one of them). I was only diagnosed 2 months ago, and I've learned the big ones to watch out for are malt (it hides in everything!) and natural flavor. Although you can potentially have stuff containing natural flavor, it often requires more research (looking it up online or contacting the manufacturer).

As for the symptoms, I've also learnt that everyone has a different degree of celiac.. if that makes sense. What one person can have, another might not be able to. Some people are sick for a long time, others feel instant relief as soon as they switch over. The trick is to just stay positive. You will have some good days, and will have some bad days. I like trying new and different recipes (quinoa salad!) in order to keep my meals interesting!

Hope that helps a little... good luck! :)

Dani

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I'm having a great difficulty figuring out sushi. I know soy sauce is out, but is miso soup and wasabi? Also, is there anything added to the rice that I need to avoid? Any other Canadians know these answers? Honestly....I can give up the beer....but really...sushi is just too much to ask! lol

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Hi fellow Canadians

I live in Revelstoke British Columbia but was originally from the coast.

My niece is celiac too, but lives in Vancouver where more resources, gluten free goods are available, and more importantly, is a good cook!

I am not 'diagnosed' as celiac, although, 50 years ago, as a baby, I was!

Yes, back then, the belief was that it was something you grow out of.

The last 20 years of my life have been hell. I was diagnosed with generalised anxiety disorder, depression, ADD, by the professionals, went through multiple 'spirtual' healings, psychotherapy, 'interventions'. THe last few years of my marriage were in a fog, I was on anti-depressants, dexedrine.... I have had the intestinal problems, rash on my elbows, restless irratable legs, foggy headedness, anxiety, depression all my adult life. The doctors allways refered me to a psychiatrist. I had mentioned on several occasions that I was diagnosed celiac as a child.

I still am not sure, for sure if I am celiac. I insisted on a Gastronintologist a year ago, waited 6 months for the appointment and it got cancelled (it was a 3 hour drive) SO I keep thinking along the lines that I have been told- and going back to gluten.

My mental state is bad and am barely able to look after myself, I am living alone, so I really would appreciate some support. Going glutten free (or relatively) has allowed me to get off the drugs, but still being unsure of my diagnosis, and worried that I am just a hypochondriac, I still get doubts and end up going back to glutten. I am back on the diet now,(just started a few days ago) and want to insist to my doctor that I get a proper diagnosis.

My original decission to go gluten free came after severe stress causing symptoms that I discovered were glutten related, along with severe gastrointestinal problems. A month after going gluten free I went in, told the doctor I wanted a test, told him I had been off Gluten awhile, and he said it would still show the anti-bodies it I was.

There was no definitive test results with the blood test, and I have had no vist to the gastrointologist.

Long story.... I need some support here. Just to stick to the diet, and re-think 20 years of psychobabble.

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Shout out from Toronto. Hey everyone.

Still consider myself newly diagnosed (end of April 2009).

I've recently noticed that my neighbourhood Metro has created an organics section in every aisle where I can find gluten free food -- makes things easier for sure.

I'm on the look out for a corn tortilla (allergic to rice). Any suggestions? Sent an email to whole foods, but haven't heard back

K-Dawg

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Shout out from Toronto. Hey everyone.

Still consider myself newly diagnosed (end of April 2009).

I've recently noticed that my neighbourhood Metro has created an organics section in every aisle where I can find gluten free food -- makes things easier for sure.

I'm on the look out for a corn tortilla (allergic to rice). Any suggestions? Sent an email to whole foods, but haven't heard back

K-Dawg

I've found Manny's corn tortillas here in our store, looked them up at the company's website and they should be gluten-free. And LaTortillaFactory makes gluten-free teff tortillas - check the www.latortillafactory.com, I'm almost sure they are rice-free as well.

PS: I still haven't found any starch free sour cream and gluten-free jerky here. :(

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I've found Manny's corn tortillas here in our store, looked them up at the company's website and they should be gluten-free. And LaTortillaFactory makes gluten-free teff tortillas - check the www.latortillafactory.com, I'm almost sure they are rice-free as well.

PS: I still haven't found any starch free sour cream and gluten-free jerky here. :(

Thanks Pac! Guess I'm going to whole foods tomorrow. I'll check out the LaTortillaFactory site as well.

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Metro has corn tortillas in the bakery section along with the regular ones. They are even marked gluten-free!

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Metro has corn tortillas in the bakery section along with the regular ones. They are even marked gluten-free!

No way! Thanks!

I'll have to check out the metro near me. If there are none, I'll be asking you what metro you go to. lol

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I currently live in Michigan, but moving to North Bay Ontario beginning of September!!!

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I grew up in the GTA and am currently in Winnipeg (diagnosed here in the 'Peg)

I'm brand new here, hi to my fellow Canadians :)

Hi there!

I'm from Winnipeg, MB.

I have a cousin who is Celiac from Halifax also.

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Hey Jillian:

Welcome to the board!!

I live in toronto, but I"ve spent lots of time in the Peg as my mother lived there. She recently moved to a middle of nowhere place (lol) called Roseisle.

Hope you find this board helpful!

I grew up in the GTA and am currently in Winnipeg (diagnosed here in the 'Peg)

I'm brand new here, hi to my fellow Canadians :)

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Hi There,

New to the site today, and just looking around the board to see what the chattter is. Fellow Canuck Chef Kevin here from sleepy little Bear River, Nova Scotia... down around Digby. I'm a personal chef & instructor by trade (and genetics), operate a catering business and two websites (so far). My wife and I are also importers of organic coconut oil, coconut flour and other coconut products from Vietnam, all of which are certified gluten-free, and we supply all four Atlantic Provinces with our organic products.

I noticed this sushi problem and wanted to let you know that Superstore here carried Life Source soy sauce which is gluten-free, so you should be able to use that and still get your sushi fix :)

One thing I did notice (or didn't notice really) is any reference to coconut flour as a gluten-free alternative to other flours. Coconut flour is low-carb, has the highest fibre of nearly any flour on the planet and is amazing to bake/cook with. Many of my cooking class participants are either celiac or are wheat free and absolutely love it. Not sure if I'm allowed to add my website or email address here, but if so I will send you folks a link to check out more information on our website here at The Down East Coconut Company. I'm sure one of the moderators will let me/us know :)

Yours in Natural Health,

Chef Kevin

I'm having a great difficulty figuring out sushi. I know soy sauce is out, but is miso soup and wasabi? Also, is there anything added to the rice that I need to avoid? Any other Canadians know these answers? Honestly....I can give up the beer....but really...sushi is just too much to ask! lol
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I'm from Newfoundland, Haha.

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I'm from white rock, BC, about to move to Kamloops.

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Hi - I'm from Delta BC just south of Vancouver. I was diagnosed with kidney disease 2 1/2 years ago and did a massive diet change. I was then diagnosed with Celiac in July 2009. I don't have any abdominal problems but do suffer from autoimmune issues. I have been gluten free for about a month, now, and already feel less tired and achy. I hoping to halt osteoporosis and avoid any more iron IV's. Not sure if my kidneys will improve but just to feel well is my aim!!

I have found that Save on Foods/Price Right/ Overwaitea are a wonderful source of gluten free products. I haven't ventured into baking with different flours, yet, but will in the future.

Cheers

Barb

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Another Canuck here from Regina Saskatchewan. Just registered today!

Will post soon.

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Hello all, Vancouver calling.

Anyone else with a recently-diagnosed depressed eight year old?

I'm getting tired of baking things that he doesn't even want to try.

Susan

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Welcome Susan,

This category of the form http://www.celiac.com/gluten-free/index.php?showforum=7 has a lot of parents of children with celiac disease and this one http://www.celiac.com/gluten-free/index.php?showforum=10 is specifically for parents with children with celiac disease. Of course, you're welcome to post anywhere you want :) but you might find those boards give you better responses.

Welcome & good luck,

Jillian

Hello all, Vancouver calling.

Anyone else with a recently-diagnosed depressed eight year old?

I'm getting tired of baking things that he doesn't even want to try.

Susan

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Heya, I'm in Kingston Ontario :)

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Hi I'm Mike, a Brit, living in Burlington, Ontario. Just joined this forum today.

Still awaiting diagnosis but been gluten free for nearly a month and feeling a million times better.

Kinda scared that I have to eat gluten again in the coming weeks ready for my biopsy.

Really lucky that there are two great health food stores just here in town who have been really, really helpful.

I'm learning to cook and loving it!

Good to be here! :D

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Heya, I'm in Kingston Ontario :)

I used to live in Kingston! :)

I'm living in Surrey, B.C. now although it's my daughter that has celiac, not myself as far as I know.

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I'm having a great difficulty figuring out sushi. I know soy sauce is out, but is miso soup and wasabi? Also, is there anything added to the rice that I need to avoid? Any other Canadians know these answers? Honestly....I can give up the beer....but really...sushi is just too much to ask! lol

We are sushi addicts and are traumatized about not getting to go out for sushi. :( We use the Braggs brand gluten free soy sauce at home, but I'm worried about the wasabi and cross contamination in restraunts. One of the food services people at the Children's hospital was telling us we can get shushi ready fish in Vancouver so we might have to start makig out own! lol

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Shout out from Toronto Ontaro!

Welcome to the board.

K-Dawg

I am new to Celiac (54 year old female), even though I have watched what I ate for many years. I had Gluten problems for many years. Always sick at Christmas, and holidays, acid reflux problems getting worse, vitamin D deficiency, vitamin B12 low, and a list of other health issues getting worse.

Last year my doctor at the time told me to go Gluten Free for the rest of my life. He hoped it would stop the progression of other autoimmune diseases. Since going gluten free my diabetes is controlled, and my sleep apnea's pressure is coming down. I have since been diagnosed with Celiac.

I am from Ontario Canada, and wonder if there are there are others from Canada here.

Hugs

Gerri

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Hey everyone! Im a 29 year old male from Edmonton. Havent been on the site for awhile, but plan to visit more often. Anyways just wanted to say hi..

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Welcome Canadians

I am living on Vancouver Island, I am originally from PEI. I have found this website very helpful especially in the beginning. I was diagnosed in Apr 2008, and have been strictly gluten free ever since, couldn't have it any other way. My sister got tested after I was diagnosed and she also has celiac disease and is Type 1 diabetic, she is symptom free as of today and is having a hard time going gluten free because she has no symptoms.

I would love to know of anyone who has found some great gluten free products,as I am always on the hunt for better cheaper products.

Krista

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    • by the way, I do find the lab who does the gluten sensitive test Gluten Allergy IgE Test This test is used to determine if a person has an allergic reaction to gluten, a protein found in wheat, barley, and rye.  Roughly 1 in 30 adults and 1 in 40 children suffer from a Gluten Allergy.  An IgE test looks for antibodies which develop in a person who has a particular allergy.  Gluten Allergy can display symptoms similar to other conditions such as Celiac Disease.  Unlike an allergy, Celiac Disease can do permanent harm to the body if left untreated.  Allergy testing when a person is experiencing symptoms can help identify or rule out an allergy as the cause.

      Gluten Allergy is typically less severe than other Gluten related conditions like Celiac Disease.  People with Gluten Allergy will often experience abdominal discomfort, bloating, gas, constipation, or diarrhea when they eat products containing gluten.  These symptoms usually stop when a person cuts gluten out of their diet.

      A Gluten Allergy IgE test can be ordered to help determine if someone allergic to gluten.  This test can also be ordered when a person is testing for Celiac Disease and has had negative results on Celiac specific antibody tests.  An allergy test can also be ordered prior to Celiac testing to rule out Gluten Allergy as a likely cause for a person’s symptoms.
    • so does it mean a person who carry dq2 or dq8 gene will have high chance to develp celiac disease if they continue to eat gluten or some other stuff trigger it??      
    • I just wanted to share my experience. I started with the endoscopy because I was having symptoms of a hernia + I had a colonoscopy at the same time to test for Chron's. While getting the scope the doctor noticed damage of the small intestine and did biopsies and they came back positive for Celiac disease. We followed up with the necessary blood work to confirm and those all came back like yours, negative, however my genetic testing was positive. So although rare, it is possible to test negative on the blood work and still have damage and be a positive. I don't know why my blood work was off, but I am glad I had the scope first because I would have never known the damage I was doing if I relied solely on the blood work. 
    • You're welcome. Good that you're having the gene test as well. If you DO have the gene(s) then you realize one can present with celiac at any point in life -- any age -- so you would need to be tested like you were, every 2 years in the absence of symptoms. If one develops symptoms then they need to be tested right away instead of waiting for the 2 yr. mark. It's not common, but is possible to test negative on the blood and still have villi damage on endoscopic biopsy. So depending on the results of the gene test....... you might see if your doc will do a endoscopy for you OR you might be what they refer to as something like a pre-celiac where you're not testing positive yet but most likely will soon.
    • Just don't give up.  Good luck and best wishes to you.  Let me know how it's going for you.  Been there, done this.  It ain't fun.
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