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Any Celiac(s) From Canada
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134 posts in this topic

The list keeps growing.

I am originally from Moncton, now living in Halifax. To be more precise Cole Harbour (Sid Crosbyville). I was diagnosed 2 years ago. I am a silent Celiac, which means I don't get any symptoms. That is why I spend much time exploring this forum. I don't know if I am making mistakes unless I hear it from others.

Cheers,

DougE

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Hello from Northern BC.

Self diagnosed gluten , yeast, dairy, and sugar intolerant with multiple allergies, later confirmed by naturopath.

Allergic to grass and tree pollen for many years, and recently diagnosed by specialist with multiple connective tissue disease, and arthritis.

A vegetarian most of my life with return to meat eating for protein. 10 years ago noticed sensitivity to most items. I decided to do multiple elimination diets to pin point problem, eventually determined that I am most sensitive to gluten.

I will see allergist in Jan '10 for first time in 20 years to confirm what I already suspect.

I'm on a gluten free, dairy, yeast and sugar free diet by choice later encouraged by naturopath.

Feeling healthy and definitely wiser, and looking forward to a productive and prosperous new year and wish the same to everyone at Celiac.com.

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Toronto!

I are really annoyed about ontario not covering celiac testing. I think its just criminal.

If any of you have a good celiac friendly doc in Toronto (GI) please PM me.

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Hi curious george,

I live in Hamilton Ontario , my test was covered , the secret is to get it done at a hospital lab, the insurance did not cover the test from the lab at my doctor's office , make a few calls , it must be the same in Toronto. Good luck!

Miche

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Hi all, I'm new to the gluten free life and live in beautiful BC.

I haven't been officially tested for celiac disease or gluten allergy/sensitivity, but got tipped off to the gluten-free diet when a friend was diagnosed.

I've had multiple autoimmune issues since I was 9 (and more suspected since I've started to look at connections), and had a range of severe pain symptoms over the last year, some attributed to internal scar tissue, some to injury of the ureter.

Ultimately the Dr suggested my bloating and cramping was due to adhesions wrapped around the intestines, but merely days after avoiding gluten I've had pretty much zero bloating and pain after eating.

I don't know that I'll go for full testing at this point, everything I've read online suggest that I can still be healthy as long as I get enough grains and protiens.

I just wanted to say hi because I intend to follow the diet someone who has celiac's would and may go for testing in the future. I am confident this is the answerr for me, my brain is clearer, I'm WAY more calm and rational, I have no more digestional problems after eating, and my skin is no longer so itchy I cuould claw it off. I have noticed a bit of acne which is abnormal for me, but I'm hoping it's just any toxins leaving my body.

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Hi I'm Jen, I live in Qualicum Beach (Vancouver Island). I suffered for years with major stomach problems and was finally diagnosed as celiac about a year or two ago. Since I have been gluten free my life has changed completely. I was so sick and so toxic that I lost 25lbs in a month and was completely emaciated. Since going gluten free, I no longer suffer from flare ups and am very strict about what I put into my body. I am still learning and am always researching new recipes and trying to learn everything I can on how to keep myself safe.

Just wondering if anyone here attends Celiac support groups and if so, what are their thoughts on it??

Thanks,

Jen

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Hi, I am Toby, from Northern B.C. new here, just registered today.

Diagnosed as celiac as a small child. Re-diagnosed as celiac by biopsy in 1992, after three years of misdiagnosis by several doctors. In 1992 there were few choices available ( up here anyway ) for gluten free foods in the stores. Today, the selection and availability is nothing short of awesome. gluten-free beer, pizza, pasta, breads and mixes, life is good! One thing I have found that has not changed over the years is that most 'normal' people do not know what gluten is or whre it is present, and unfortunately this includes most people who work in restaurants. It has become second nature to decide what foods and ingredients are safe (not always right though!) but the issue of cross contamination is the most difficult thing we have to deal with. Bye for now.

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Vancouver Island, Chemainus, BC

Gluten free for 1 mnth. false/positive blood test last month. Doc said I could go back on wheat for 2 wks to do test all over again. I feel so much better, eating lots of fruit and veg, lots of energy. Eating breakfast, never did before because I always felt sick. I eat about 5x a day, small snacks and my reg. meals. I find it easy to not eat wheat because of how I feel if I do. find some people feel "sorry" for me because I can't have the regular bread and goodies, but have found really great products out there. Best way I can explain it is I have found that the wheat/gluten is POISON to me.

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QUEBEC MONTREAL OVER HERE ! :)

ive had celiac for 1 and a half years and still adjusting to the whole forever thing :(

anyone else from montreal or quebec for that fact send me a message i would love to talk :D

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I am new to Celiac (54 year old female), even though I have watched what I ate for many years. I had Gluten problems for many years. Always sick at Christmas, and holidays, acid reflux problems getting worse, vitamin D deficiency, vitamin B12 low, and a list of other health issues getting worse.

Last year my doctor at the time told me to go Gluten Free for the rest of my life. He hoped it would stop the progression of other autoimmune diseases. Since going gluten free my diabetes is controlled, and my sleep apnea's pressure is coming down. I have since been diagnosed with Celiac.

I am from Ontario Canada, and wonder if there are there are others from Canada here.

Hugs

Gerri

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Hi Krista,

I am from Toronto and diagnosed last fall. It is a challenge to say the least. I am finding some really good products though.

Last weekend I tried a new bread that my sister in law found for me to try. It is the closest thing that I have found to regular bread. I have found the website and you can order directly from them. The company is O'Doughs. I tried the Flax Bread and it is soft and fluffy and a decent enough size.

Some of the mixes are really good from Bob's Red Mill. They deliver to Canada and are really good. I have found Gluten Free Oatmeal from Cream Hill Estates out of Quebec. I can tolerate Oatmeal and it is good to bake with. I have also bought Pamela's All Purpose Baking flour and pancake mix. I did buy it in the States though. A big bag was about 18 dollars US and is enough for alot of products.

I am slowly finding out that I can substitute the gluten-free flour mix for regular flour in recipes. If you can find a cooking class for gluten-free cooking that is a good way to get started.

I have found that corn pasta is better then the rice pasta. I bought Mrs. Peepers corn pasta and it stays together and is not slimey like rice pasta nor does it become mush when you cook it.

I hope that this helps.

Lisa

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Hi K Dawg,

I am here from Brampton. New to this as well. I have found a bread that is absolutely wonderful and it is produced here in Toronto. O'Doughs Flax Bread. They have a website and you can order from the factory.

It is soft and fluffy and a decent sized loaf. You could actually make a sandwich with this bread without toasting it.

I was diagnosed last fall and it is a challenge.

Good luck.

L

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Hi I'm Mike, a Brit, living in Burlington, Ontario. Just joined this forum today.

Still awaiting diagnosis but been gluten free for nearly a month and feeling a million times better.

Kinda scared that I have to eat gluten again in the coming weeks ready for my biopsy.

Really lucky that there are two great health food stores just here in town who have been really, really helpful.

I'm learning to cook and loving it!

Good to be here! :D

Hi Mike, im just curious what brought you to burlington all the way from england?! Also, what part of England are you from? Yrs ago i first heard of gluten when i was working for M&S as a student in England (milton keynes to be precise) and now here i am, diagnosed with celiac a yr ago....

cheers ;)

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Originally born in Montreal, lived in Toronto for 49 years and now I am in Dallas Texas. I understand that Ontario Pizza Hut stores have gluten-free pizza - we don't. From what I've read, Ontario has many more options for gluten-free food than we do.

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Burnaby, B.C. over here!

It's crazy to see so many people just a skytrain ride away.

I've been feeling sick for about two years ago, nauseous, stomach pain. It keeps getting worse. A year ago my fiance's best friend got a negative test for Celiac, but as his mom is a Celiac he went off gluten. He's been feeling great. It was my fiance who made the connection between our symptoms first, and now I find my mom who's been taking medication for IBS is now going gluten free after finding eliminating a lot of bread products has stopped her problems.

I had three vials of blood taken from me today, some sort of liver panel, and some sort of tissue test and a couple other things. Either way, I know the tests aren't always accurate and I plan on going gluten free.

And same with what others have said, I can't figure out sushi. I've found wheat free soy sauce brands to look for, but what about wasabi? And how would I find out what is exactly used in the preparation process that garuntees there is no gluten?

Nice to meet you all :)

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Hi,

from the east side of toronto, ON which is Oshawa (i know i know one day soon i will move from this dirty town) good to know there are alot of us from Canada.

Mia :)

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Hello from Beachville ontaio! (near london)

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Hi everyone

I live in Richmond BC, I have been gluten free since August 2006 after struggling with huge digestive problems, stunted growth as a child, depression as a teen and young adult, etc etc.

I hope I can help with Stylo and Miloandotis' sushi question. I am SUPER sensitive so keep that in mind. I have never encountered sushi rice that is a problem here, although when I was in Quebec they told me I could not eat sushi at all the restaurants I went to. It turned out the rice vinegar they use there contains barley malt. I suppose it's something that is common there and not so common here.

When I go out for sushi, I call beforehand and inform them of my allergy. When I am there an ask them to use a clean knife every time they cut my rolls and I ask about the wasabi and rice vinegar. I use Bragg's liquid aminos (pure fermented soy sauce) because it is less expensive than the wheat free soy sauce I can get here. I had a bad reaction to miso once so I don't do it. I used go to a sushi restaurant called Iki, on Broadway and MacDonald. If the owner of the restaurant is working (his name is Kyo) I feel really comfortable because he is quite knowledgeable.

I hope that helps you! Please feel free to ask anymore questions about Vancouver!

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i'm Jennifer here in the lovely fraser Valley of BC. So happy to have found an entire board just for us.

I'm not celiac but like i say in signature i'm pretty darn close. Its been a challenge especially with inlaws who refuse to understand, and am now at the point where i'm not eating at their house anymore. I'll bring my own food b/c i know whats in it. LOL

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Hi,

I'm in Vancouver, BC. I diagnosed myself a year and a half ago and have yet to meet another live person with Celiac Disease, but glad to find support here in the ether.

I haven't had any tests and my doc just said if I feel better than just stay gluten-free.

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Hi,

I'm in Vancouver, BC. I diagnosed myself a year and a half ago and have yet to meet another live person with Celiac Disease, but glad to find support here in the ether.

I haven't had any tests and my doc just said if I feel better than just stay gluten-free.

Hey, I'm in northern bc(ft nelson) there's a huge gluten free comunity in Vancouver. Just google gluten free vancouver

Cheers

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In Vancouver B.C. here...actually just on the outskirts, recently moved to Cloverdale. Nice to meet you all!!! :)

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Hi all,

New here and looking for some info.

We recently learned that we have Celiac in my family. Looking at the symptom profiles, my daughter has a cluster of issues that seem highly suggestive of Celiac. I too have had some of the more subtle symptoms. My question is, we have made an appointment with our GP, but how long can we expect the process of diagnosis to take? We are originally from the States and still somewhat unfamiliar with the process of referrals and wait times here in Canada. We are currently in Halifax. Anyone have experience? I have a gut feeling about my daughter and would like to start the diet ASAP but I know I must wait until she has been tested.

Thanks!

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I am new to Celiac (54 year old female), even though I have watched what I ate for many years. I had Gluten problems for many years. Always sick at Christmas, and holidays, acid reflux problems getting worse, vitamin D deficiency, vitamin B12 low, and a list of other health issues getting worse.

Last year my doctor at the time told me to go Gluten Free for the rest of my life. He hoped it would stop the progression of other autoimmune diseases. Since going gluten free my diabetes is controlled, and my sleep apnea's pressure is coming down. I have since been diagnosed with Celiac.

I am from Ontario Canada, and wonder if there are there are others from Canada here.

Hugs

Gerri

Hi Gerri; I'm from North Bay Ontario Have been Biopsied Celliac Since 2005 WOW what a change in eating habits. SinceI now adherr stictley to my gluten free diet I've Gotten a big belly And can't control my weight very well So have trouble with Diabettes as well. But life goes on so have fun Live, Love&,Laugh Ron

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Hi fellow canadians! I'm from Montreal!

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    • Thank you everyone! Good to know I am not alone with this. I am asking for a referral to a new cardio. Hopefully it will all go away the longer I am gluten-free. It started up in February/March after a gluten challenge and mostly vanished until July when I had a lot of shortness of breath. It absolutely was CRAZY just a few days after the glutening. I was gasping for breath and the beats were all over the place just walking through a parking garage and I was only mildy anemic at the time.   But it seems to "quiver" and do funny things for a bit still. I sort of theorized maybe it was inflammation in the heart because after this last glutening, my head felt like it was in a vice and my eyes would sting or get stabbing pain hurt (that is finally going away thankfully...knock on wood).  The head/eye pressure I learned also happens to my sibling who has celiac and his naturopath told him that sometimes the brain gets inflamed. Hopefully I can meet the new cardio soon and feel confident that he is taking me seriously. It is sort of difficult to feel confident in the opinion of a doctor that your ticker is ok when they are not really listening and end up making you cry. LOL. A friend of mine in the mental health field recently listened to my story of doc after doc and test after test and said that it was akin to the folk story of blind men describing an elephant. A group of blind men all feel one part of an elephant (tusk, tail, ear, tail) and then compare notes only to find they all disagree.  In some  versions they argue intensely. In other versions they have to collaborate and listen to each other in order to "describe" an elephant.    
    • Good afternoon! I am new to this board and fairly new to researching Celiac Disease, although I had a general idea what it was. My health has become a huge mystery to me, and it's one that I am desperate to solve. The biggest issue right now is horrible, life affecting fatigue. I have been dealing with it for several years now- as many as 5 to 6. It has gotten progressively worse, and nothing at all helps. Sleep apnea has been ruled out. Intestinal issues are something I have dealt with for almost two decades. I'm 45, but I've already had two colonoscopies as well as two endoscopies. My first endoscopy was as a child for persistent, severe stomach pain. My last colonoscopy and endoscopy was two years ago. The only thing that has come from those is an Irritable Bowel type condition and GERD, which is pretty bad. My bowel movements have always been crazy. They can be very normal and healthy to completely crazy. I've had periods of persistent diarrhea to occasional constipation, which is a fairly new thing within the last year. Last week, I went from having diarrhea that morning to hard, round balls of stool by that evening. My most common stools here lately, though, are not quite diarrhea, but more fluffy, large piles. Gas is an ongoing, daily issue for me. I have copious amounts of gas every day no matter what I eat or drink. Most of the gas in non-odorous but it can be very loud. I am currently on a total of 60 mg of Ritalin per day just to function. I often add energy pills, purchased from places such as GNC, because the Ritalin isn't working. Yesterday, I took both doses of Ritalin and two energy pills, and I passed out on the couch after work. I work from 7:30am to 3:30pm, and my work day is nothing too crazy. I try to keep very consistent sleep hours and could easily sleep to 1:00pm or longer if I don't have to get up for something. I sometimes have short periods of energy in the mornings, but that is usually over by noon. The quality of my life is greatly affected. I don't want to go anywhere or do anything because I am way too tired. I'm trying to keep up with my exercising, but that is also a struggle.  I have a history of clinical depression for practically all my adulthood, but it has been very well managed for the last four years. The fatigue is currently causing a great deal of depression, but it is very different from the clinical depression that I use to deal with. When I don't feel sleepy and tired, I don't feel depressed. When the fatigue sets in, I feel very irritable and sad. I realize that the stimulants can cause irritability, but I don't feel irritable or sad when I'm not feeling fatigued.  I've only recently began to explore that the fatigue and the intestinal issues could be related. I have always accepted that I have a sensitive, cooky digestive track. The increasing, unrelenting fatigue is what has lead me to exploring the possibility that everything could be related. I did have blood work last November. My doctor did not test for anything Celiac Disease specific, but she did do a Vitamin D, ferritin level and overall metabolic panel. All of that is normal. My thyroid level is also normal, and I do take thyroid hormone because I had half of my thyroid removed 11 years ago due to what turned out to be a benign thyroid tumor.  I just saw my doctor two weeks ago, and she increased the dosage of my Ritalin. That has not helped at all. She has never mentioned Celiac Disease to me before. I made an appointment for this Friday afternoon to talk about it, but I keep wondering if I'm even heading in a direction that makes sense. I decided to post here for some guidance. I'm sorry this has been so long. I'm not really into cutting something totally out of my diet just to see what happens. I also feel like that if I have something that is poisoning my system, I need a real clinical diagnosis of that. I feel like maybe I'm grasping at straws now and imagining a correlation that isn't there. I am not looking for a quick fix, but right now I have no idea what needs to be fixed. I am open to any information and/or suggestions. Thanks so much!   Jennifer
    • Celiac disease sufferers or those who embrace a life without gluten can check out Canada's Gluten-Free Market when it makes stops in London and ... View the full article
    • I too have heart palps, flutters, skips whatever you want to call them. Ecg shows nothing. I was told by my doctor it is due to my low iron which is due to celiac. They pretty much went away after being gluten-free. But occasionally do come back. I've actually been having them for the past 3 days. But I was glutened with really severe reaction about a week ago so not sure if its due to that. Or if iron is low right now. I am on supplements but it still goes up and down. I hear you about doctors. It seems if you don't do research yourself or ask questions they don't say or do or test for anything. 
    • For a number of years pre diagnosis I had irregular heartbeats - anything from a fluttering type thing to seemingly skipping one or more beats to rapid beats to something like a short drum riff. I had multiple ECG's which didn't find anything odd. It never did it when I was at the doctors or getting the ECG's. Sometimes it seemed to pound very hard & rapid, at these times I discovered if I just laid down flat on my back, it would restore normal rhythm almost instantly. These things happened at random whether I was at rest, sitting, standing, running or working hard. It was always short lived -- lasting only 1 to several seconds, perhaps the longest was close to a minute. I too have little faith in docs as I've had my share of being blown off, to misdiagnoses. The whole heart thing quit after I had been gluten-free for a while but if I get glutened, it returns.
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