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Any Celiac(s) From Canada
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134 posts in this topic

Yes, I am from Ontario - Whitefish (near Sudbury). Moved here from Toronto about 8 years ago. where r the rest of u?

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I'm in Vancouver and new to the gluten-free life, but I feel so much better off the Gluten.

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Hello fellow Canadians!

My name is Toni and I am from the Fraser Valley BC, 25 years old.

I am new to this website, and new to celiac also. Just love this site- so much helpful info, I really feel the sense of community on here.

Its nice to not feel alone in this battle. :)

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Hi, I just joined the forum today. I was diagnosed in 2001, after years of suffering. The doctor I had refused to test me even though I have a sister that has been a celiac for 20+ years. I suffered through many barium xrays and other tests on a regular basis and was told I had irritable bowel syndrome. I fired that doctor and found one who had me tested via a trans glutenaise (spelling) test and popped a very high number. They then did the biopsy to confirm it. My liver had started into cirrhosis and I had a very low vitamin B12 count. I went on a gluten free diet and six months later I was getting back to a normal as can be life. My wife has done an immense amount of research and come up with alternatives to almost everything I used to eat. We bake all our own and I live very well. Dinning out is tricky at times but not impossible. On another note my father passed away at age 77 of liver cancer. He had constant problems with diarrhea and could not tolerate many foods. I think he was an un diagnosed celiac. How many have died due to not being tested?

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Hi, I just joined the forum today. I was diagnosed in 2001, after years of suffering. The doctor I had refused to test me even though I have a sister that has been a celiac for 20+ years. I suffered through many barium xrays and other tests on a regular basis and was told I had irritable bowel syndrome. I fired that doctor and found one who had me tested via a trans glutenaise (spelling) test and popped a very high number. They then did the biopsy to confirm it. My liver had started into cirrhosis and I had a very low vitamin B12 count. I went on a gluten free diet and six months later I was getting back to a normal as can be life. My wife has done an immense amount of research and come up with alternatives to almost everything I used to eat. We bake all our own and I live very well. Dinning out is tricky at times but not impossible. On another note my father passed away at age 77 of liver cancer. He had constant problems with diarrhea and could not tolerate many foods. I think he was an un diagnosed celiac. How many have died due to not being tested?

Hi Dennis. Thanks for sharing your story. I too wonder how many have died with celiac-related cancers and other illnesses because they were not tested. It would likely be startling.

I was diagnosed 1.5 years ago and do all my own baking - always have, always will. Dining out and international travel (airports, delays...) are frustrating and challenging at times. We must drive three hours to eat out safely. Thank goodness I adore cooking! :D

Welcome here! :)

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Hello!  I'm from Stirling, Ontario.

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i am from ottawa canada. I was just diagnosed this morning with celiac disease and am at a loss. This diet seems so complicated!

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    • I havent used it, not much of a baker tbh, but this one looks good: http://alittleinsanity.com/gluten-free-pie-crust-recipe/
    • As you say, there's no test, it's diagnosed by exclusion, so there's no metrics to check to assess compliance other than anecdotal response to symptoms. Conversely, I've not seen anything that says that NCGI can resolved or be cured either.  This paper gives a good summation.  Basically, there's not much research period! That is changing though, I think there's research underway which could help give answers.
    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
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