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Any Celiac(s) From Canada


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133 replies to this topic

#46 Raven's Mum

 
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Posted 05 November 2009 - 09:49 PM

Heya, I'm in Kingston Ontario :)



I used to live in Kingston! :)

I'm living in Surrey, B.C. now although it's my daughter that has celiac, not myself as far as I know.
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Mum to six year old Raven with Celiac and Cystic Fibrosis.

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#47 Raven's Mum

 
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Posted 05 November 2009 - 09:53 PM

I'm having a great difficulty figuring out sushi. I know soy sauce is out, but is miso soup and wasabi? Also, is there anything added to the rice that I need to avoid? Any other Canadians know these answers? Honestly....I can give up the beer....but really...sushi is just too much to ask! lol



We are sushi addicts and are traumatized about not getting to go out for sushi. :( We use the Braggs brand gluten free soy sauce at home, but I'm worried about the wasabi and cross contamination in restraunts. One of the food services people at the Children's hospital was telling us we can get shushi ready fish in Vancouver so we might have to start makig out own! lol
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Mum to six year old Raven with Celiac and Cystic Fibrosis.

#48 K-Dawg

 
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Posted 09 November 2009 - 10:24 AM

Shout out from Toronto Ontaro!

Welcome to the board.

K-Dawg


I am new to Celiac (54 year old female), even though I have watched what I ate for many years. I had Gluten problems for many years. Always sick at Christmas, and holidays, acid reflux problems getting worse, vitamin D deficiency, vitamin B12 low, and a list of other health issues getting worse.

Last year my doctor at the time told me to go Gluten Free for the rest of my life. He hoped it would stop the progression of other autoimmune diseases. Since going gluten free my diabetes is controlled, and my sleep apnea's pressure is coming down. I have since been diagnosed with Celiac.

I am from Ontario Canada, and wonder if there are there are others from Canada here.

Hugs

Gerri


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Many autoimmune disorders: Graves Disease in 1998, Psoriasis on or about 2000, Hashimoto's in 2008.

Severely anemic in 2007 (undetectable iron levels)

Elevated liver enzymes (ALT and AST) as of October 2008.

Negative blood test for celiac disease in February 2009, followed by diagnosis of celiac disease in April 2009 after positive biopsy.

#49 Ryan T

 
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Posted 11 December 2009 - 12:14 PM

Hey everyone! Im a 29 year old male from Edmonton. Havent been on the site for awhile, but plan to visit more often. Anyways just wanted to say hi..
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#50 KristaleeJane

 
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Posted 12 December 2009 - 10:16 AM

Welcome Canadians
I am living on Vancouver Island, I am originally from PEI. I have found this website very helpful especially in the beginning. I was diagnosed in Apr 2008, and have been strictly gluten free ever since, couldn't have it any other way. My sister got tested after I was diagnosed and she also has celiac disease and is Type 1 diabetic, she is symptom free as of today and is having a hard time going gluten free because she has no symptoms.
I would love to know of anyone who has found some great gluten free products,as I am always on the hunt for better cheaper products.

Krista
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Gluten Free since Apr 14-08
Mar 08.....Blood work-Positive for Celiac Results were High (92)
Apr 08....Biopsy Results indicating abnormalities associated with celiac disease & Villi atrophy.
May-08.... Appendicitis
July 08.....X-ray indicates Degenerative Disc Disease
Symptoms that the gluten free diet has helped: All Stomach Problems, Bloating, Vomiting, Heartburn & D, Energy, overall feeling of health again, Migraine, Degenerative disc Disease, and Infertility.

#51 DougE

 
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Posted 13 December 2009 - 08:10 AM

The list keeps growing.

I am originally from Moncton, now living in Halifax. To be more precise Cole Harbour (Sid Crosbyville). I was diagnosed 2 years ago. I am a silent Celiac, which means I don't get any symptoms. That is why I spend much time exploring this forum. I don't know if I am making mistakes unless I hear it from others.

Cheers,
DougE
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#52 CarbQueen

 
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Posted 13 December 2009 - 12:26 PM

Hello from Northern BC.

Self diagnosed gluten , yeast, dairy, and sugar intolerant with multiple allergies, later confirmed by naturopath.

Allergic to grass and tree pollen for many years, and recently diagnosed by specialist with multiple connective tissue disease, and arthritis.

A vegetarian most of my life with return to meat eating for protein. 10 years ago noticed sensitivity to most items. I decided to do multiple elimination diets to pin point problem, eventually determined that I am most sensitive to gluten.

I will see allergist in Jan '10 for first time in 20 years to confirm what I already suspect.

I'm on a gluten free, dairy, yeast and sugar free diet by choice later encouraged by naturopath.

Feeling healthy and definitely wiser, and looking forward to a productive and prosperous new year and wish the same to everyone at Celiac.com.
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#53 miche

 
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Posted 21 December 2009 - 07:01 PM

Toronto!

I are really annoyed about ontario not covering celiac testing. I think its just criminal.

If any of you have a good celiac friendly doc in Toronto (GI) please PM me.


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#54 miche

 
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Posted 21 December 2009 - 07:06 PM

Hi curious george,
I live in Hamilton Ontario , my test was covered , the secret is to get it done at a hospital lab, the insurance did not cover the test from the lab at my doctor's office , make a few calls , it must be the same in Toronto. Good luck!
Miche
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#55 MissKristy

 
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Posted 23 December 2009 - 03:16 PM

Hi all, I'm new to the gluten free life and live in beautiful BC.
I haven't been officially tested for celiac disease or gluten allergy/sensitivity, but got tipped off to the gluten-free diet when a friend was diagnosed.
I've had multiple autoimmune issues since I was 9 (and more suspected since I've started to look at connections), and had a range of severe pain symptoms over the last year, some attributed to internal scar tissue, some to injury of the ureter.
Ultimately the Dr suggested my bloating and cramping was due to adhesions wrapped around the intestines, but merely days after avoiding gluten I've had pretty much zero bloating and pain after eating.
I don't know that I'll go for full testing at this point, everything I've read online suggest that I can still be healthy as long as I get enough grains and protiens.

I just wanted to say hi because I intend to follow the diet someone who has celiac's would and may go for testing in the future. I am confident this is the answerr for me, my brain is clearer, I'm WAY more calm and rational, I have no more digestional problems after eating, and my skin is no longer so itchy I cuould claw it off. I have noticed a bit of acne which is abnormal for me, but I'm hoping it's just any toxins leaving my body.
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#56 J-Bo

 
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Posted 01 January 2010 - 11:28 AM

Hi I'm Jen, I live in Qualicum Beach (Vancouver Island). I suffered for years with major stomach problems and was finally diagnosed as celiac about a year or two ago. Since I have been gluten free my life has changed completely. I was so sick and so toxic that I lost 25lbs in a month and was completely emaciated. Since going gluten free, I no longer suffer from flare ups and am very strict about what I put into my body. I am still learning and am always researching new recipes and trying to learn everything I can on how to keep myself safe.

Just wondering if anyone here attends Celiac support groups and if so, what are their thoughts on it??

Thanks,
Jen
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#57 TobyinB.C.

 
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Posted 20 January 2010 - 05:06 PM

Hi, I am Toby, from Northern B.C. new here, just registered today.
Diagnosed as celiac as a small child. Re-diagnosed as celiac by biopsy in 1992, after three years of misdiagnosis by several doctors. In 1992 there were few choices available ( up here anyway ) for gluten free foods in the stores. Today, the selection and availability is nothing short of awesome. gluten-free beer, pizza, pasta, breads and mixes, life is good! One thing I have found that has not changed over the years is that most 'normal' people do not know what gluten is or whre it is present, and unfortunately this includes most people who work in restaurants. It has become second nature to decide what foods and ingredients are safe (not always right though!) but the issue of cross contamination is the most difficult thing we have to deal with. Bye for now.
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#58 sandiz

 
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Posted 02 February 2010 - 10:22 PM

Vancouver Island, Chemainus, BC
Gluten free for 1 mnth. false/positive blood test last month. Doc said I could go back on wheat for 2 wks to do test all over again. I feel so much better, eating lots of fruit and veg, lots of energy. Eating breakfast, never did before because I always felt sick. I eat about 5x a day, small snacks and my reg. meals. I find it easy to not eat wheat because of how I feel if I do. find some people feel "sorry" for me because I can't have the regular bread and goodies, but have found really great products out there. Best way I can explain it is I have found that the wheat/gluten is POISON to me.
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#59 poiuyanthony

 
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Posted 11 February 2010 - 07:05 PM

QUEBEC MONTREAL OVER HERE ! :)

ive had celiac for 1 and a half years and still adjusting to the whole forever thing :(

anyone else from montreal or quebec for that fact send me a message i would love to talk :D
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#60 New to This

 
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Posted 18 March 2010 - 08:38 AM

I am new to Celiac (54 year old female), even though I have watched what I ate for many years. I had Gluten problems for many years. Always sick at Christmas, and holidays, acid reflux problems getting worse, vitamin D deficiency, vitamin B12 low, and a list of other health issues getting worse.

Last year my doctor at the time told me to go Gluten Free for the rest of my life. He hoped it would stop the progression of other autoimmune diseases. Since going gluten free my diabetes is controlled, and my sleep apnea's pressure is coming down. I have since been diagnosed with Celiac.

I am from Ontario Canada, and wonder if there are there are others from Canada here.

Hugs

Gerri


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