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Celiac.com Celiac Disease & Gluten-Free Diet Forum: A "shrinking" Morbid Obese Person Needing Help... - Celiac.com Celiac Disease & Gluten-Free Diet Forum

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A "shrinking" Morbid Obese Person Needing Help... Rate Topic: -----

#1 User is offline   Tabbiekatz 

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  Posted 02 March 2009 - 06:51 AM

I have been gluten-free for about 4 months now, just before Halloween 2008. I did a lot of research into this disease and found that it fit ALL my symptoms to a T.

I have an issue with this "gluten-free diet" that I'm on and was wondering if anyone has experienced this...

I am what doctors call "morbid obese". I haven't lost much in the way of pounds yet, but I am expecting it. I've lost inches...lots of inches. I'm down 1 pants size, 1 shirt size (and counting) 1 bra size and 2 shoe sizes...I didn't even know you could loose shoe sizes like this, and this has happened in the past month. The tops of my feet hurt like nobody's business and my hands are about the same. I can feel it in my bones, and I haven't felt them in almost 20 years. Any suggestions from the "gluten free" community?
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#2 User is offline   Watercolor 

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Posted 03 March 2009 - 11:09 AM

Hi Tabbiekatz!

I too am obese (BMI now a bit under 40).
I've been diagnosed and gluten-free about 4 weeks now.
I pee'd a lot the first week, and my clothes are looser.
I'm surprised I don't have a lot of weight loss,
only 4 pounds, because it looks like I've lost 20!

But I'll take it.....
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#3 User is offline   Gemini 

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Posted 03 March 2009 - 11:54 AM

It sounds like what you are experiencing is the LACK of bloating you probably had in your pre-gluten-free days. I was down to 98 pounds the week I got really sick yet I looked about 4 months preggers because of the bloating. You will also lose a lot of water weight because you probably are not ingesting much processed food anymore and that is loaded with salt and sugar. Feet and hands will notice this, first off.

I think once you heal from Celiac, you can count calories and be amazed at how much easier it will be to drop the weight! Good luck!
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#4 User is offline   HouseKat 

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Posted 03 March 2009 - 02:18 PM

View PostWatercolor, on Mar 3 2009, 01:09 PM, said:

I pee'd a lot the first week, and my clothes are looser.
I'm surprised I don't have a lot of weight loss,
only 4 pounds, because it looks like I've lost 20!

But I'll take it.....

I was surprised how much my urinary output increased when I went gluten-free, all that liquid had been going to my bowels before.

After a year and a half later, my weight on the scale is the same but people are always commenting on my "weight loss" and how good I look now.

Kate
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Celiac symptoms since 1985 (gluten-free since 9/2/07)
Vitiligo since 1991
Environmental allergies since 1992
Polycystic Ovary Disease since 1993
HLA DQA 1*05 (DQ5)
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#5 User is offline   missy'smom 

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Posted 03 March 2009 - 03:32 PM

This may/may not be relevant but I have nerve damage in my feet from diabetes and was reading that if blood sugars normalize and nerves start to heal, a person can feel alot of pain at first as the healing takes place.
Me: GLUTEN-FREE 7/06, multiple food allergies, T2 DIABETES DX 8/08, LADA-Latent Autoimmune Diabetes in Adults, Who knew food allergies could trigger an autoimmune attack on the pancreas?! 1/11 Re-DX T1 DM, pos. DQ2 Celiac gene test 9/11
Son: ADHD '06,
neg. CELIAC PANEL 5/07
ALLERGY: "positive" blood and skin tests to wheat, which triggers his eczema '08
ENTEROLAB testing: elevated Fecal Anti-tissue Transglutaminase IgA Dec. '08
Gluten-free-Feb. '09
other food allergies
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#6 User is offline   Tabbiekatz 

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  Posted 04 March 2009 - 07:16 AM

The water weight makes a lot of since...I've been tested for diabetes more than once in my life. My grandmother had it later on in life and I guess I'm just paranoid at the thought that I'd have it as well. She also had thyroid cancer, and a few other ailments that she suffered from. I'm guessing I got the gene from her.

View Postmissy'smom, on Mar 3 2009, 03:32 PM, said:

This may/may not be relevant but I have nerve damage in my feet from diabetes and was reading that if blood sugars normalize and nerves start to heal, a person can feel alot of pain at first as the healing takes place.

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#7 User is offline   Tabbiekatz 

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  Posted 04 March 2009 - 07:23 AM

Thanks! I did notice that my kidneys where working again...lol! I do have to watch the sugar intake though. I've been worried about it as of late. I drink way too much coffee for one person. (about a pot a day) and it needs to be sweet. I've tried the pink and blue packets and they make me sick. I'm going to try stevia here soon, but it is so expensive! Maybe I'll grow it this year?

The one thing about my weight is that it is evenly proportioned. I do look a little preggers, but my body (ie..big arms and large legs) just make it look normal (even though I have no behind..lol).

View PostGemini, on Mar 3 2009, 11:54 AM, said:

It sounds like what you are experiencing is the LACK of bloating you probably had in your pre-gluten-free days. I was down to 98 pounds the week I got really sick yet I looked about 4 months preggers because of the bloating. You will also lose a lot of water weight because you probably are not ingesting much processed food anymore and that is loaded with salt and sugar. Feet and hands will notice this, first off.

I think once you heal from Celiac, you can count calories and be amazed at how much easier it will be to drop the weight! Good luck!

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#8 User is offline   Tabbiekatz 

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  Posted 04 March 2009 - 07:33 AM

It will go faster. My first month, I lost 20 pounds (guessing it's the water weight) and I'm slowly loosing about 1 lb a week. It's amazing how much I eat now. I'm getting the big "double meat" platters at work with baked potato, instead of a big mac and fries. It cost's more, but I feel better for it. Sucks that taco bell puts soy sauce in everything though. I found a really good Mexican drive through I can go to when I don't want to cook, but even that gets old.
I try to eat more grains and veggies than meat though. Potatoes don't help much, but they don't serve rice here at our cafeteria. They do have frito's though :)
Cottage cheese. OMG! if you where ever lactose intolerant before, you won't be anymore...I couldn't get enough of the stuff....I went through 2 buckets (the large containers at the store) a week. It's calmed down now, but the cravings come and go. Listen to your body. It will tell you what you need.

View PostWatercolor, on Mar 3 2009, 11:09 AM, said:

Hi Tabbiekatz!

I too am obese (BMI now a bit under 40).
I've been diagnosed and gluten-free about 4 weeks now.
I pee'd a lot the first week, and my clothes are looser.
I'm surprised I don't have a lot of weight loss,
only 4 pounds, because it looks like I've lost 20!

But I'll take it.....

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#9 User is offline   Watercolor 

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Posted 04 March 2009 - 01:26 PM

Thank God for Mexican food!!!!!
I cook a lot at home, which has made the transition easier.
We're living off of Mexican and Meditteranean food,
since they both have a lot of rice recipes.
I have refused thus far trying the gluten-free pasta and bread.
I'm hoping when I finally break down and try it,
I will have forgotten what glutenized stuff tastes like.
That way I won't be comparing them.

Oh, and I'm diabetic and have polycystic ovaries.
Sucks to be me. Oh, well, we'll always have raspberries...
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#10 User is offline   Watercolor 

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Posted 06 March 2009 - 11:40 AM

Hey Tabbiekatz!, how's it going.

Lost another pound this week, so it looks like we're on the same schedule!
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#11 User is offline   Nancym 

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Posted 06 March 2009 - 01:24 PM

Quote

Thanks! I did notice that my kidneys where working again...lol! I do have to watch the sugar intake though. I've been worried about it as of late. I drink way too much coffee for one person. (about a pot a day) and it needs to be sweet.
There are a ton of alternative sweeteners out there. Splenda, Truvia, Lo Han, many are made quite naturally and all, IMHO, are better for you than sugar.
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#12 User is offline   ianm 

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Posted 08 March 2009 - 03:54 AM

I was once morbidly obese and can say that weight loss doesn't happen quite the way you would expect. There would be times when I would lose a lot of pounds but my body stayed the same shape. Then there would be times when my body would change drastically but no pounds came off. I started excersizing a lot and I reached a pont where my body got smaller and the pounds increased. This was from increased muscle mass.
If all the world is indeed a stage and we are merely players then will someone give me the script because I have no f!@#$%^ clue as to what is going on!

What does not kill you makes you stronger.
Nobody cares about losers and quitters never win. If you fail with the cowards then what's the message you send?
Can't get it right, no matter what I do. Might as well be me and keep fu@$ing up for you. - Brian Thomas (Halloween, the greatest metal band ever!)

Ian Moore. Self diagnosed at 36 because the doctors were clueless.
Started low-carb diet early 2004, felt better but not totally gluten-free. Went 100% gluten-free early 2005 and life has never been better.
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#13 User is offline   Rebecca's mom 

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Posted 22 March 2009 - 07:31 AM

I started on a gluten-free diet in May, 2008, after our youngest daughter was diagnosed with celiac disease (I have since realized that the skin rash that I had been battling for 3 years was DH, even though it didn't itch like most peoples' do). I started out at 275 pounds. I am now down to 237 (38 pounds in 10 months!), but you are right about the "shrinking" that takes place. I, too, am down several clothes sizes, and I look like I have lost MUCH more weight than the scales show. I KNOW that I am going to lose most, if not all, of the excess weight - it may take a few years, but I figure it took a LONG time to put it all on, so I can be patient!

I keep telling everyone who will listen that a gluten-free diet will do the same for them, regardless of if they have celiac disease or not. They can't believe that we (our family) can eat all of these "high-fat" foods, not worry about portions and/or calories, not exercise, and STILL look so good. This is BY FAR the easiest "diet" that I have ever been on, and I couldn't be happier! Best of all, all of my bloodwork numbers are going down (except HDL, which is going up!) - take THAT, all you skinny dieters!

Yes, what you are experiencing is normal, and I have a feeling that you will be like me and find yourself losing most of your excess weight over time. I have read on this forum about people who have lost 100+ pounds without even trying, so there is a lot to this gluten-free "thing". I have been doing a lot of personal research as to the reasons that this is so, and I really think that it boils down to our bodies finally being "full" since our intestines are finally absorbing all of the nutrients that we eat.

Congratulations, and welcome to the "losing" side!

Teresa Koch
Fort Worth, Texas
Teresa Koch
Fort Worth, Texas


Youngest daughter diagnosed with celiac disease April, 2008

Self-diagnosed Dermatitis Herpetiformis after daughter's Celiac diagnosis
Confirmation of HLA-DQ*05*0201 March, 2009 (Quest Diagnostics)


Whole family Gluten-Free since April, 2008
Mom - HLA-DQ 2.5, 3.7 (Confirmed celiac)
Dad - HLA-DQ 1.6, 2.2 (Non-Celiac Gluten Sensitive)
DD#2 - HLA-DQ 2.2, 3.7 (NCGS)
DD#3 - HLA-DQ 1.6, 3.7 (NCGS)
DD#4 - HLA-DQ 2.5, 2.2 (Confirmed celiac)
DD#1 - Away at college
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#14 User is offline   Tabbiekatz 

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  Posted 28 March 2009 - 02:34 PM

Thank you!!! I feel wonderful. I did have to up my vitamin b intake a bit, I was tired and couldn't wake up for a week, not wanting to move. Found out that I was a little anemic, and my regular vitamins weren't doing great. I did a lot of research in what types of vitamins and minerals where in wheat, and it came up primarily to vitamin b. Other than that, I can now feel my ribs, even though I've actually gained 4 lbs last week. There is a scale at work that I use every Monday. Being a woman...I look at it as water weight (you know, for the stranger that visits once a month???lol).

View PostRebecca's mom, on Mar 22 2009, 08:31 AM, said:

I started on a gluten-free diet in May, 2008, after our youngest daughter was diagnosed with celiac disease (I have since realized that the skin rash that I had been battling for 3 years was DH, even though it didn't itch like most peoples' do). I started out at 275 pounds. I am now down to 237 (38 pounds in 10 months!), but you are right about the "shrinking" that takes place. I, too, am down several clothes sizes, and I look like I have lost MUCH more weight than the scales show. I KNOW that I am going to lose most, if not all, of the excess weight - it may take a few years, but I figure it took a LONG time to put it all on, so I can be patient!

I keep telling everyone who will listen that a gluten-free diet will do the same for them, regardless of if they have celiac disease or not. They can't believe that we (our family) can eat all of these "high-fat" foods, not worry about portions and/or calories, not exercise, and STILL look so good. This is BY FAR the easiest "diet" that I have ever been on, and I couldn't be happier! Best of all, all of my bloodwork numbers are going down (except HDL, which is going up!) - take THAT, all you skinny dieters!

Yes, what you are experiencing is normal, and I have a feeling that you will be like me and find yourself losing most of your excess weight over time. I have read on this forum about people who have lost 100+ pounds without even trying, so there is a lot to this gluten-free "thing". I have been doing a lot of personal research as to the reasons that this is so, and I really think that it boils down to our bodies finally being "full" since our intestines are finally absorbing all of the nutrients that we eat.

Congratulations, and welcome to the "losing" side!

Teresa Koch
Fort Worth, Texas

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#15 User is offline   Tabbiekatz 

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  Posted 28 March 2009 - 02:38 PM

Actually, right now I'm fluctuating. I'll loose 5 lbs, then gain it back agian and I don't know how, other than excersize....lol spelling.
But my body is still shrinking, little bits at a time. I can now feel my ribs which I haven't felt in along time and my hair is getting thicker. Believe me, this is a good thing.

View PostWatercolor, on Mar 6 2009, 12:40 PM, said:

Hey Tabbiekatz!, how's it going.

Lost another pound this week, so it looks like we're on the same schedule!

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