Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Pre-eclampsia & Celiac
0

14 posts in this topic

With my daughter, I developed severe pre-eclampsia & HELLP at the end of the pregnancy. She is about to turn 4. One thing I have learned since is that many people who develop pre-e have underlying disorders since as blood-clotting disorders or auto-immune issues. I met with a high-risk OB last year to get tested for underlying disorders, and everything came back negative.

Now, 7 months after those tests, I randomly find out I have Celiac. I didn't think I had anything, went in for my physical, mentioned I was having reflux....find out a week later I have Celiac...I was shocked to say the least.

Now that I know pre-e is connected with AI issues, and Celiac is an AI, I am wondering if this is the connection?

Now that I discovered this, I am more terrified than ever to get pregnant again, because now that I know I have an AI that the pre-e/HELLP will come back.

Are there any other on here who have gone through pre-e and/or HELLP?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I've been pregnant three times and lost one child (Jibril) at 17 weeks. I never had pre-eclampsia, but I'm positive that my loss was related to undiagnosed hypothyroidism and celiac disease. The tricky thing is that a lot of OB/GYNs have NO CLUE about autoimmune disorders (which is ironic, since pregnancy can be one of the triggers). They think you can run a bunch of tests one time and that gives you all the answers... which is just not true. Disorders like lupus and celiac disease can be very complicated and take years to diagnose!

One book I can recommend is the "The Autoimmune Connection" by Rita Baron-Faust and Jill Buyon. It covers quite a few disorders and how they affect a woman through her lifetime (including fertility and pregnancy). It's definitely in your best interest to educate yourself and be proactive.

The more I learn, the more I think I'm done having kids. Maybe in three or four years my health will be more stable and I'll feel like I can give it another try... it IS a huge risk. Not just to the baby, but to my own health too :( If you stay on the gluten-free diet, celiac disease shouldn't complicate any future pregnancies. The problem is that AI disorders tend to cluster together... and you never know when a new one is going to rear it's ugly head.

0

Share this post


Link to post
Share on other sites

I had pre-eclampsia, this was many years ago, and no one ever talked to me about anything related to it. I was very ill and hospitalized for it.

0

Share this post


Link to post
Share on other sites

I had pre-eclampsia with my first child, who then was IUGR.

I also had hyperemesis with all three complete pregnancies (1 miscarriage). I was under the care of a high-risk OBGYN for all 3 pregnancies because of Hashimoto's (had had for 10 years). With the second and third, I consented to take medication for the hyperemesis, although about 1/4 the recommended dose.

With my second and third pregnancies, I did NOT have pre-eclampsia. I wasn't gluten-free (had never heard of gluten) until my youngest was 4, but I was instinctively gluten-lite for all pregnancies (lots and lots of fruit, eggs,veggies, and rice--that's what stayed down, imagine that!) But the stupid doctors kept telling me to eat crackers so I would have something in my stomach...

Hope that helps!

0

Share this post


Link to post
Share on other sites

thank you.

My daughter also had IUGR..she was born at 39 weeks, but only weighed 4 lbs, 8 oz. thankfully, she was perfectly healthy, just small =)

0

Share this post


Link to post
Share on other sites




I had pre-e and HELLP syndrome with my daughter and she was born at 33 weeks weighing only 2 lbs 12oz. I did not know that I had Celiac at that time. I was scared to death once I was pregnant again this time. All of my tests also came back negative for under lying disorders. I am now 34 weeks and so far so good! BP is behaving itself! I do have GD this time but I will take that over the pre-e and HELLP! My mfm said it def could be the AI that had caused it.

0

Share this post


Link to post
Share on other sites

I have 3 children and the pre-eclampsia has gotten worse with each pregnancy. I delivered my first 2 children (now aged 18 & 17) at 39 weeks. My last child (aged 5 ) was born at 29 weeks weighing 958 grams. Both of us were at deaths door. He was IUGR and required 11 weeks in a NICU.

I think the reason my first 2 pregnancies were able to last so long was that my then DH was an IBS sufferer and we didnt eat a lot of gluten products. I was almost 15 yrs older with my last pregnancy and had been sick for years before hand with what I suspect were many miscarriages.

I belong to a pre-eclampsia survivor forum and a lot of the women there suffer from infertility and well as delivering pre term. Many have lost children.

0

Share this post


Link to post
Share on other sites

I am recently diagnosed celiac disease. I had pre-eclampsia with my son (first and only pregnancy) three years ago. The ONLY symptom I had was a very high protein level in my urine. I went on bedrest at 28 weeks with my doctors hoping I would make it to 30 or 32 weeks. I made it to one week PAST my due date and delivered a totally healthy 8 pounds, 14 ounce baby boy. Six weeks after delivery, zero protein in my urine.

My OB/GYN indicated there is about a 5% chance of any woman developing pre-eclampsia. But, now that I have had it with one pregnancy, he said there was a very high likelihoood of having it again. (I'm thinking he said 50% or closer to 75% but I could be wrong.). I'm not willing to risk it with regards to another pregnancy. We are adopting a baby girl from China (should travel next year at this time).

I had no idea there was even a possibility of preeclampsia and celiac disease having any kind of potential connection.

Thank you for starting this thread. I'm fascinated!

Nicole

I have 3 children and the pre-eclampsia has gotten worse with each pregnancy.

0

Share this post


Link to post
Share on other sites
I am recently diagnosed celiac disease. I had pre-eclampsia with my son (first and only pregnancy) three years ago. The ONLY symptom I had was a very high protein level in my urine. I went on bedrest at 28 weeks with my doctors hoping I would make it to 30 or 32 weeks. I made it to one week PAST my due date and delivered a totally healthy 8 pounds, 14 ounce baby boy. Six weeks after delivery, zero protein in my urine.

My OB/GYN indicated there is about a 5% chance of any woman developing pre-eclampsia. But, now that I have had it with one pregnancy, he said there was a very high likelihoood of having it again. (I'm thinking he said 50% or closer to 75% but I could be wrong.). I'm not willing to risk it with regards to another pregnancy. We are adopting a baby girl from China (should travel next year at this time).

I had no idea there was even a possibility of preeclampsia and celiac disease having any kind of potential connection.

Thank you for starting this thread. I'm fascinated!

Nicole

Nicole, i am in the same boat. I have already gotten info on Chinese adoption, but have to start the paperwork. I would love to hear about your experience. How long ago did you submit paperwork?

Also, did you have to tell them you have Celiac...I know they want to know some very detailed medical info from the parents. So, i wonder..if we don't get the biopsy then we are not "diagnosed", would that make a difference?

Good luck!!!

0

Share this post


Link to post
Share on other sites

Yes, they do have very specific medical info. they want. Your doctor has to say that you do not have any medical issues that would negatively impact your ability to parent. You are already a parent, right! I do agree that if you have not had a biopsy, then you do not have a true diagnosis which would need to be documented on the paperwork. And, even if you did, we are talking about a food intolerance here...

I emailed you privately as our experience is different than most because my husband is Chinese. We have a "shorter" wait (2 years, vs. 3-5 if he were not Chinese).

Nicole

Nicole, i am in the same boat. I have already gotten info on Chinese adoption, but have to start the paperwork. I would love to hear about your experience. How long ago did you submit paperwork?

Also, did you have to tell them you have Celiac...I know they want to know some very detailed medical info from the parents. So, i wonder..if we don't get the biopsy then we are not "diagnosed", would that make a difference?

Good luck!!!

0

Share this post


Link to post
Share on other sites

I went through the same thing with both of my girls. I was diagnosed with Celiac one year ago. I have had it for over 10 years and I thank God that I didn"t have any miscariages. I did not have the classic symtoms of Celiac. I was always iron defficient most of my life. When I was pregnant with my first daughter, six years ago, I was taking four iron pills a day and it did not help. I had pre-e at the end and i was induced. When I was preganant with my second, I developed high blood pressure and pre-e alot sooner, but i carried to full term. The only difference was that my second weighed only 5'14 compared to my first at 8'3. My second was also a twin that I lost in the very beginning. I truly believe that if I would have been diagnosed with Celiac before my preganancies, I would have not had thepre-e. I had a tubal done after my second because I was afraid to get pregnant again. Now that we know what was wrong, I wish that I could have tried one more time. If someone thinks they have Celiac, just ask your doc for the simple bloodtest needed to diagnose it, even if they fight you on it. If I would have known about Celiac, I would have prevented alot of damage to my body. Hope this helps and God bless!!

0

Share this post


Link to post
Share on other sites

Hi,

Thought I'd add my experience: I developed HELLP syndrome and my daughter was born at 34 weeks (4 lb). This was before I was diagnosed as celiac... I am not a doctor, but have been reading up on possible connections. My daughter is now 4 and she's amazing. I'm gluten free and feel great. So all in all a great outcome!

0

Share this post


Link to post
Share on other sites
Hi,

Thought I'd add my experience: I developed HELLP syndrome and my daughter was born at 34 weeks (4 lb). This was before I was diagnosed as celiac... I am not a doctor, but have been reading up on possible connections. My daughter is now 4 and she's amazing. I'm gluten free and feel great. So all in all a great outcome!

So Buendia,

i am just curious, being that you have also been through HELLP...are you planning to go for it again?

I am still on the fence.

0

Share this post


Link to post
Share on other sites
So Buendia,

i am just curious, being that you have also been through HELLP...are you planning to go for it again?

I am still on the fence.

Hi Anne,

I'm sorry to hijack this conversation, but I think I may have Celiac after a long web search and thinking and trying things. I finally searched "celiac" and "pre-eclampsia" and go this thread. Post after post said "HELLP" and "pre-e." I'm a HELLP survivor in my first pregnancy and my second was a mess, but no HELLP, thankfully.

Interestingly, I gained so much water weight while pregnant that neither baby got very big and even though I looked like I was gaining (rapidly some months), I was really swelling. I haven't been diagnosed with an AI issue, but I'm really wondering if celiac is the underlying issue.

After HELLP, I moved, so I had to get a new OB-GYN. I found one who specialized in high-risk pregnancies, so she was not phased by much. She was obessive compulsive and had me testing constantly. I could tell you my BP and platelet counts almost from 20 weeks on.

I developed HELLP at the end of my first pregnancy, so research shows that if you do get it again (and nothing says you will), you get it at the same time or later during the next pregnancy. So, I delivered early and avoided it. Platelets weren't that great anyway and I was starting to spill protein into my urine.

It's really a hard decision to make after HELLP. I went in with so much more knowledge and awareness. Good luck with your decision!

I can't wait to explore the rest of the board. I feel like I've found people who understand my weird stomach and reading all these Pre-E and HELLP stories just makes so much sense.

CJ

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,334
    • Total Posts
      920,437
  • Topics

  • Posts

    • Thank you cyclinglady! We'll just keep pushing forward and we'll get things figured out one way or another. You have been most helpful and informative and given me some great resources and things to consider. I really appreciate it! I definitely feel better as I've felt like a crazy mom lately thinking through the test results and everything. Even if it turns out to not be celiac or gluten related, at least I can say we did our due diligence and looked under every rock to find the source of his troubles. Thanks again!  Take care! 
    • Anxiety is quite a common symptom with undiagnosed celiacs. It should improve if not disappear when you go gluten free. Be sure to CONTINUE eating gluten until the endoscopy!   Welcome to the club!
    • Although serological tests are useful for identifying celiac disease, it is well known that a small minority of celiacs are seronegative, and show no blood markers for celiac disease. A team of researchers wanted to define the prevalence and features of seronegative compared to seropositive celiac disease, and to establish whether celiac disease is a common cause of seronegative villous atrophy. View the full article
    • This was absolutely me before diagnosis.  The worst of all of my Celiac symptoms occurred in the morning.  The anxiety was terrible in the mornings, I had horrible nausea, no appetite, felt light headed, dizzy and shaky, diarrhea, stomach cramps... the works.  Honestly, I don't know if it was the symptoms causing the anxiety, the anxiety making my symptoms worse, or a combination.  I almost dropped out of school because I felt so terrible every morning I didn't want to leave the house to go to class.  The first few doctors I saw insisted all of my symptoms were psychological and tried to give me anti-depressants/anti-anxiety meds, but I knew there was something else wrong with me.  I had always been a bit "high-strung," but for the year I was really sick before diagnosis, the anxiety got out of control. I was diagnosed with celiac disease 6 months ago and have been gluten free ever since.  It took time, but everything is gradually improving.  The morning anxiety is much improved and some mornings, is completely gone.  I realized a month or two ago that I no longer spend the first hour after waking up gagging and dry-heaving, something I had done for so many years that I just thought it was normal for me.  I can brush my teeth and my tongue without feeling like I'm going to puke.  I eat breakfast now, which I have never done, because I was always too anxious and nauseous in the mornings to be hungry.  I am not "all better."  I still have bad days and even bad weeks.  If I get glutened the anxiety comes back full force.  If I'm super-stressed out or letting my health slide (not eating well, not sleeping enough) the AM anxiety seems to return.  But, it has been slowly improving over the last 6 months and has become so much more manageable.   Your anxiety could be a separate disorder from the celiac disease, but for me, it seems it was absolutely related and continues to get better.  Don't get discouraged if you don't see an immediate improvement or experience relapses after improving.  Often, I feel like it's a two-step-forward, one-step-back kind of thing, but it is getting better.
    • I have suffered with GERD for 20 years and accidently found out it was a gluten intolerance. I had gone on Atkins years ago and noticed that I had no GERD symptoms while on the diet. I didn't make the connection at that time. Then I went on the Mayo Diet back in the winter and once again, the constant was having no bread primarily. I had also noticed that I would have major attacks anytime I ate Italian food. I blamed it on the onions, the tomatoes, herbs...but I could tolerate all those foods separately. Then, like a lightning bolt...it hit me...the culprit was the "innocent" pasta. BINGO!!  I went gluten-free in March 2016 and I have had no GERD now in 5 months. I feel as if it is a gift to me.   
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,389
    • Most Online
      1,763

    Newest Member
    EJ653
    Joined