I've felt awful the last day and a half. I've been gluten free for a month and a half and felt much better at first and was starting to be a little skeptical as to how strict I needed to be, but now I know!
The only thing I had yesterday that I hadn't read every ingredient on was a packet of Crystal Light. So went I went back to look at it, I had two boxes. One box clearly labeled gluten-free and the other (the one I drank yesterday) was not labeled gluten-free and maltodextrin was the only ingredient difference between the two boxes.
I just can't believe this! For one, that I feel this bad (bloated intestines, exhausted, twitching eye, etc.) and, two, that there is gluten in crystal light!
Just thought I'd put the warning out there!
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Gluten In Crystal Light!
#2
Posted 04 March 2009 - 06:26 PM
Maltodextrin is gluten free:
http://www.accessdata.fda.gov/scripts/cdrh...cfm?fr=184.1444
http://www.celiac.com/articles/182/1/Unsaf...ents/Page1.html
http://www.accessdata.fda.gov/scripts/cdrh...cfm?fr=184.1444
http://www.celiac.com/articles/182/1/Unsaf...ents/Page1.html
#3
Posted 04 March 2009 - 06:29 PM
Kraft clearly labels any gluten so if the maltodextrin had gluten it would be listed. It might be worth contacting the company though and clarifying the label differences.
http://www.kraftfoods.com/kf/HealthyLiving...nFreeFoods.aspx
http://www.kraftfoods.com/kf/HealthyLiving...nFreeFoods.aspx
#4
Posted 05 March 2009 - 04:48 PM
For some of us the gluten reaction is delayed. Look at not just what you had right before you got ill but also for the 3 days before. It can sometimes be very hard to figure out what 'got' us especially early on.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#5
Posted 05 March 2009 - 04:53 PM
Also keep in mind that artificial sweeteners can cause issues for people with GI problems. I know that they give me terrible stomach cramps and D.
Positive Bloodwork 7/8/05
Inconclusive Biopsy 7/20/05
gluten-free since 7/23/05
Never felt better.
"So here's us, on the raggedy edge, come a day when there won't be room for naughty men like us to slip about at all. - Malcolm Reynolds"
Inconclusive Biopsy 7/20/05
gluten-free since 7/23/05
Never felt better.
"So here's us, on the raggedy edge, come a day when there won't be room for naughty men like us to slip about at all. - Malcolm Reynolds"
#6
Posted 06 March 2009 - 11:12 AM
A representative from Kraft called to assure me that they disclose all sources of gluten and require their suppliers to do the same. I thanked her for their commitment to taking gluten seriously.
I'm still not sure what made me sick....
I'm still not sure what made me sick....
#7
Posted 07 November 2011 - 04:24 PM
I had an reaction to crystal light. Arthritis in my Hands started aching after drinking it 2 days in a roll. I know, I know Kraft labels "Crystal Light" Gluten Free. Fooled me once, fooled me twice, Not a Third time...
#8
Posted 07 November 2011 - 06:05 PM
Okie Kei Bug, on 07 November 2011 - 04:24 PM, said:
I had an reaction to crystal light. Arthritis in my Hands started aching after drinking it 2 days in a roll. I know, I know Kraft labels "Crystal Light" Gluten Free. Fooled me once, fooled me twice, Not a Third time...
Just because you react to a product does not mean the company is lying about gluten. There are plenty of things to disagree with you artificial sugar, colors, flavors, etc. I have a son who does not have Celiac but Crystal LIght gives him stomach pain & bloating. We suspect the sweetener.
Celiac.com - Celiac Disease Board Moderator
#9
Posted 10 November 2011 - 11:32 AM
Kareng makes a good point. Once we identify gluten as the culprit, many of us blame everything on gluten. Sometimes other things I eat or drink "disagree" with me. That certainly does not mean they contain gluten.
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