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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Glutenings Worse After Going gluten-free?
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5 posts in this topic

I am newly diagnosed, and have not yet gone fully gluten-free. Pretty much, and then after my daughter's bday next week, I will do it fully. I don't question the need to do it, I know it has to be done. But my question is this....after reading so much on here, one huge fear I have is, that I will feel worse after I go gluten-free when I come in contact with gluten.

Right now, I don't really have any symptoms...some gas and constipation, which I have always had, but I assume it is from celiac now. So, when I am completely gluten-free, and I accidentally come in contact or have CC, am I going to have a massive reaction, even though I have never had one before? Is it going to actually make me feel worse? Am I setting myself up to have a huge immune reaction?

My sister discovered she was allergic to wheat a year ago. Before that she had no symptoms. Now, when she does come in contact with it, on accident, she feels horrible for hours.

This really scares me. Especially since now, I am don't feel like that :(

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I am newly diagnosed, and have not yet gone fully gluten-free. Pretty much, and then after my daughter's bday next week, I will do it fully. I don't question the need to do it, I know it has to be done. But my question is this....after reading so much on here, one huge fear I have is, that I will feel worse after I go gluten-free when I come in contact with gluten.

Right now, I don't really have any symptoms...some gas and constipation, which I have always had, but I assume it is from celiac now. So, when I am completely gluten-free, and I accidentally come in contact or have CC, am I going to have a massive reaction, even though I have never had one before? Is it going to actually make me feel worse? Am I setting myself up to have a huge immune reaction?

My sister discovered she was allergic to wheat a year ago. Before that she had no symptoms. Now, when she does come in contact with it, on accident, she feels horrible for hours.

This really scares me. Especially since now, I am don't feel like that :(

Hello and welcome!

Good for you that you realize the need to go gluten free! You'll see that things get easier as time goes by.

It is a fact that when you go gluten free then you become very sensitive to gluten. But take it as a good thing. You will always be sure that you are / or aren't glutened. Otherwise, you would still get gluten from hidden sources - and you would still damage yourself without knowing it. Especially in the beginning it is very common to get cross contamination or get hidden gluten.

So take it as a wise way that your body has in order to warn you!

Meline

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after reading so much on here, one huge fear I have is, that I will feel worse after I go gluten-free when I come in contact with gluten . . . when I am completely gluten-free, and I accidentally come in contact or have CC, am I going to have a massive reaction, even though I have never had one before? . . . This really scares me. Especially since now, I am don't feel like that :(

I think someone once posted a study here that showed that for some people your reactions to gluten do become more violent after you go gluten free. Several others here have said the same thing. However, I can relate my personal experience which is different. I never had any symptoms before diagnosis, and I still have no symptoms after going gluten free for several months (I made a boo-boo and had some chili cheese Fritos but suffered no ill effects). BTW, after my diagnosis my gastro demanded that I go gluten free immediately and would not permit me to wait for even one day.

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About a year after going gluten-free, I scarfed down a huge hunk of homemade bread I'd made and missed so terribly. NOTHING HAPPENED. I had these awesome dreams of "planning" a cheat... maybe once a month... and was making a list of all the foods I might have! I didn't do the once a month cheat... and now I wouldn't knowingly put gluten in my mouth for all the $$ in the world. THAT'S how sensitve I became.

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My reactions are immediate, but quite mild. Not everyone's reactions get worse.

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