Why is it that the doctors dont want to try me on dapsone, i had Celiac confirmed by biopsy and continue to get sores( blisters) on my back often, i ask the doc to try me on this but he said he dont know enough about dapsone ( MY MD), what do i have to do to get them to try this???[FONT=Impact]
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3 replies to this topic
#2
KaitiUSA
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Posted 24 March 2005 - 06:29 AM
Have you had a biopsy done on the blisters to see if it is DH? Some doctors I think require that even if you have been diagnosed with celiac disease. I don't know why he would do that though I mean it sounds likeDH so much to me and you are a celiac to me its a nobrainer. Have you had a second opinion? And does your doctor know alot about celiac?
Kaiti
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Gluten-free since January 2004
Arkansas
Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"
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Positive bloodwork
Gluten-free since January 2004
Arkansas
Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"
"One Nation, Under God"
Feel free to email me anytime....jkbrodbent@yahoo.com
#3
judy05
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Posted 24 March 2005 - 04:55 PM
Hi,
Dapsone has a lot of side effects. Docs don't like to prescribe it because of that. If they do it is only for a very limited time.
Dapsone has a lot of side effects. Docs don't like to prescribe it because of that. If they do it is only for a very limited time.
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The one resolution, which was in my mind long before it took the form of a resolution, is the key-note of my life. It is this,always to regard as mere impertinences of fate the handicaps which were placed on my life almost at the beginning. I resolved that they should not crush or dwarf my soul, but rather be made to blossom, like Aaron's rod, with flowers-Helen Keller
Judy- Gluten Intolerant
#4
lovegrov
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Posted 25 March 2005 - 08:15 AM
Dapsone CAN have side effects but the most serious ones are extremely rare and are easy to monitor. They are also reversible. I took dapsone for more than 20 years and my father took it for 30 years with no appreciable side effects. Going gluten-free is better, mind you, but I didn't know the celiac disease connection until I got real sick. I see no reason for a doctor to refuse to prescribe dapsone until the diet takes effect.
richard
richard
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