Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Always Confused

christicrete

Recommended Posts

christicrete Rookie
christicrete
Posted

I am very confused. I was diagnosed with ulcerative proctitis about 8 years ago at the ripe old age of 22. A couple of years ago I went on the atkins diet and completely emlimated all grains from my diet. For the first time since diagnosis all my symptoms went away. I learned of celiacs disease and asked for a test from my doctor. The results were negative. So I started eating wheat again and then asked for a test and still negative. Now since I have been eating wheat and products I feel completely miserable, bloated, naseated and now my proctitis is back. Naturally I elimated wheat again and now seems as if I have a problems with most starches and sugars. I am completely confused and discouraged about ever eating anything pleasant again. I also have tons of heartburn all the time. If anyone out there could shed some light on anything I have mentioned It would be great. Doctors have not been much help, and I feel very uncomforatble around my gastro guy's bed side manner and dont have a choice to change docs. I am new to the forums but have been at this site numerous times for info.

Thanks

Christi

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest BellyTimber
Guest BellyTimber
Posted

Welcome, like me not long ago I hope you'll find it a breakthrough discussing your questions here.

Re. heartburn, antacids (in point of info.) are the wrong thing for it because you need more and better stomach acid not less (there may be several other matters too).

Search the forum for suggestions on things like digestive enzymes, betaine hydrochloride with pepsin, etc. (take as you begin to eat?)

Take it one small step at a time, sit back & sigh with relief there are many many people here that will try & help...

:)

Michael

Link to comment
Share on other sites
KaitiUSA Enthusiast
KaitiUSA
Posted

What tests did they test you for with celiac? Did they have your EMA and tTG done? Those are pretty specific for celiac. If you keep testing negative maybe you are gluten intolerant but not celiac. You could have an Enterolab done and they can check for celiac with that without requiring you to get back on gluten if you really think you have celiac. You may also want to consider York testing. They test for allergies and intolerances.

Also I would recommend you to get a good probiotic and some good enzymes(you always take the enzymes after you have at least 1 bite of food) Good luck :D

Link to comment
Share on other sites
ianm Apprentice
ianm
Posted

The Atkins diet is what led me to discover my gluten intolerance. You will find that there are plenty of good things to eat when you go gluten-free. It is not nearly as limiting or as restrictive as it seems at first. I was so sick for so long that I gladly gave up the foods that were poison to me and I don't miss them. Keep at it because it is worth it. Doctors were of absolutley no help to me. All they wanted to do was write prescriptions not find a solution to the problem. This website is easily the best resource for gluten intolerance.

Ianm

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      120,987
    • Most Online (within 30 mins)
      7,748
    happydays
    Newest Member
    happydays
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • TessaBaker
      Hair loss

      By TessaBaker · Posted

      It sounds like you're dealing with a complex situation, and I can understand how frustrating it must be not to have a clear answer. Gut health can indeed play a significant role in various aspects of our well-being, including hair health.
    • Celiac16
      Thiamine supplementation

      By Celiac16 · Posted

      I have found similar benefits from thiamine. I was diagnosed with celiac at 16 and never really recovered despite strict gluten and dairy free diet and no detectable antibodies on checkup bloodworks. I’ve tried stopping the b1 but start to feel bad again- I wanted my doctors to do more extensive testing for the different thiamine transporters and enzymes which would be a better indication if I was deficient or dependent on it but everyone dismisses it (there are know genetic mutations where you need to take it daily for life). I have looked into Thiamine Responsive Megablast Anemia and I have a lot of the more mild symptoms of the disease that manifest when thiamine isn’t given to the patient such as optic neuritis… I just find the parallels interesting. i think that celiacs could be a side issue of inflammation that resulted from vitamin deficiencies. I was eating a lot of sugar leading up to my diagnosis and since eating gluten free didn’t make me feel much better, I’m wondering if this was more the underlying issue (sugar heavily depletes b1). I usually take 1.5g thiamine a day.
    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Thank you for your welcome and reply.  Yes I've been carefully reading labels looking for everything in bold and have been amazed by what I have seen. However Heinz tomato and basil soup is wheat free so I m thinking I already have ulcers?  The acid could be causing the pain . My pain always starts in one place then follows the same route through me . GP confirmed that is the route of our digestive system.  So much pain from stabbing to tearing. If I throw in milk with lactose it's horrific.  Many years of it now, won't go into details but been seeing a consultant for a supposedly different problem . Wondering what damage has been done over the years. Many thanks for your reply. Wishing you the very best.    
    • trents
      Waiting for urgent referral.

      By trents · Posted

      Welcome to the forum community, @Fluka66! Did you realize that the vast majority of all canned soups use wheat starch as a thickener, including such common commodities as Campbell's tomato soup?
    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Hello. Any help would really steady my nerves right now. I realised recently that certain food left me in agonising pain so eliminated from my diet. I also have a swollen lymph node. My very caring Dr did some blood tests and I went back the other day to see another equally caring Dr . She looked at the test results one result has come back with something wrong. It came very fast so I'm afraid I didn't catch what it was. Anyway the urgent referral to ENT. She did say as I had already eliminated gluten it wouldn't say anything on the results and neither Drs nor I were prepared to reintroduce gluten . I've just had some tomato soup and again in agony only thinking this must have aggravated maybe existing problems. Does anyone know what I'm facing now ? My swollen lymph node , pain when eating gluten and lactose and I'm assuming the acidity of tomatoes triggering pain.  I'm trying to stay calm and to be honest I've been in intolerable pain at times rendering me unable to stand up straight but I've always just got on with it . Guess I'm reaching out and would really appreciate any wise or unwise words at this stage. Wishing you all the very best as you live with this illness. Fluka66  
×
×
  • Create New...