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Afraid I Won't Be A Mommy


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31 replies to this topic

#1 gabrielle

 
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Posted 24 March 2005 - 11:08 AM

[FONT=Arial] I was diagnosed in january with Celiac disease, and i am 20 years old. I've been reading up on the disease, and everywhere i read it says "trouble with pregnancy" or "difficulties getting pregnant"... that frightens me so terribly because i desperately want to become a mommy some day. I just wanted to know if anyone can tell me from their experience or knows anything that can calm me or help me understand a little more. I really appreciate any feed back.
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Gabrielle
Lancaster, Pennsylvania

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#2 Canadian Karen

 
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Posted 24 March 2005 - 11:43 AM

Hi Gabrielle:

Boy, have I been there!!!

I was diagnosed with both endometriosis and celiac disease in my early 20's. The celiac diagnosis was changed back and forth a few times between celiac, Crohn's, IBS, etc. (the usual bowel run arounds). ;)

When I was diagnosed with endometriosis, I was told at the time I had a 50/50 chance of ever conceiving a child. Wow, I was devastated. :( More than anything, I wanted a family.

Well, as it turns out, I didn't actually get married until I was 29. My husband and I decided to start trying right away as we though it might take us a few years to conceive if we were lucky. Four months later I was pregnant! ;) I am now the proud mother of 4 children, including twins!!!! :lol: Also, for all pregnancies, I was not on a gluten-free diet, as it was during that period that the doctors thought "it was not celiac...."

Have faith in yourself, it is possible!!!

Karen
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Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
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#3 gabrielle

 
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Posted 24 March 2005 - 11:49 AM

Karen- Congratulations on your 4 children. I hope to be so lucky one day. Thanks for the inspiration!
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Gabrielle
Lancaster, Pennsylvania

#4 lovegrov

 
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Posted 24 March 2005 - 11:51 AM

I think your odds of conceiving go pretty much back to normal once you've been gluten-free for a certain period and healed.

richard
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#5 Guest_Leidenschaft_*

 
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Posted 24 March 2005 - 12:06 PM

Hmm, could be a good place for a Poll! ;) How many of the celiacs on this board, were conceived by a celiac parent?? :D

My mom is Celiac, so I know she could conceive, she had me and my sister! :lol:

Remember that the symptoms and "side effects" of this disease are SO vast and varied, that conception issues may never play a part in the majority of sufferers!

Don't despair, just take it one day at a time! :P
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#6 gabrielle

 
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Posted 24 March 2005 - 03:14 PM

thanks to everyone that's responded... it's put me at ease!
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Gabrielle
Lancaster, Pennsylvania

#7 Twister2

 
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Posted 24 March 2005 - 03:14 PM

Hey there! I am currently pregnant with my third baby and all is well so far. In addition to having undiagnosed Celiacs with my first two, I also had severe Cervical Dysplasia prior to my first pregnancy and ended up having part of my cerix removed to avoid impending cancer. I was terrified that my husband and I would never have a baby, but in the end we have two beautiful girls and another on the way! Make sure you take Vitamin B-12 (folic Acid) about 3 months prior to trying to conceive and even gluten-free prenatal vitamins to get your body in good shape to support a pregnancy and you should be fine!!
I was also conceived by a Celiac parent, my Mom had undiagnosed Celiacs with all FOUR of us.

:)
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Mother and two sisters with Celiacs also
Edmond, Oklahoma

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Posted 24 March 2005 - 04:08 PM

In my early 20's I had cervical cancer and endometriosis and when my hubby and I started trying to start a family, I had 2 miscarriages. I had kinda self diagnosed myself after the miscarriages and was on a gluten free diet when I conceieved my daughter. I stayed on the diet through the first trimester until my OB convinced me that it wasn't celiac and the gluten-free diet was bad for the baby :blink: I had a complicated and difficult pregnancy and my daughter was born about 6 wks premature. after having her my health went into a steady rapid decline and when she was 3, I was finally officially dx with celiac. I think if the celiac had been dx early on, I could have had better luck with pregnancy. I'm too shell shocked to even consider trying again though. So many of the issues I had were because of UNDIAGNOSED celiac. once I got the dx, my health immediately began to improve.
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#9 plantime

 
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Posted 24 March 2005 - 08:50 PM

My mom was probably an undiagnosed celiac, she sure had all of the issues (except cancer!), and she had 5 babies and 1 miscarriage. I was undiagnosed until last year, and my kids are now 21, 16, and 15. I had three normal pregnancies, with healthy babies and no complications. If you have gone gluten-free now, your body will be pretty much healed by the time you get pregnant, so you should not have any celiac-type problems with it. Just give yourself a little time to heal first!
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Dessa

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#10 KayJay

 
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Posted 24 March 2005 - 10:48 PM

We waited for me to be on a gluten-free diet for at least 6 months before we started trying then it only took us 7 more months to get pregnant. I really think that in a few more months you are going to be feeling so great and healthy that your worries will go away. It is amazing but if you really stick to your gluten-free diet in about 6 months you will feel better than you ever have. good luck and don't worry yet.
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#11 gabrielle

 
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Posted 25 March 2005 - 12:15 PM

:D Thank you! You are all wonderful!! Thank you for giving me something to be excited about again! Much love.
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Gabrielle
Lancaster, Pennsylvania

#12 gf4life

 
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Posted 25 March 2005 - 03:09 PM

My mom (who was the likely Celiac in my parents) had 7 children, plus 3-4 more miscarriages in her lifetime. She was never gluten-free and died of health complications at 44 years old.

I was not diagnosed and on the gluten-free diet until after the birth of all three of my children. I had one possible (unconfirmed) miscarriage in between the boys. I would have only been about 2 weeks along, so it wasn't registering on the test, but NOT a normal cycle by any means.

My sister who is likely Celiac, but not diagnosed yet has three children and has had three miscarriages.

I think you will be fine as long as you are on the gluten-free diet. I agree that on the diet you have the same chances of having a baby as everyone else (non-Celiacs).

God bless,
Mariann
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~West Coast-Central California~

Mariann, gluten intolerant and mother of 3 gluten intolerant children

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Posted 28 March 2005 - 10:49 AM

I had trouble NOT getting pregnant ( :blink: ), but didn't know about the celiac disease until after my second child. Miscarried between the two. Hmmm... that seems like the common link. The posts ahead of me were peppered with miscarriages as well. It would be interesting to do a poll.
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#14 gabrielle

 
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Posted 28 March 2005 - 06:39 PM

Thanks for the feedback- i guess that is one thing that scares me, to lose a baby. I feel awful for all of your losses... but very happy that you have little ones in your lives.
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Gabrielle
Lancaster, Pennsylvania

#15 Guest_nini_*

 
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Posted 28 March 2005 - 07:50 PM

I consider myself really lucky to have my little one in my life. I feel badly that I passed the celiac gene onto her as well, but the good thing is by knowing early, hopefully she will have a very healthy life, and when she decides to start a family hopefully she won't have the same trouble I had.
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