Hello everyone, I was diagnosed with Celiac about 11 months ago while undergoing aggressive infertility treatment. I have had 2 major endometriosis surgeries in 1998 & 2004. I had about a 5% of chance of getting pregnant naturally. I did 3 IUI's, 4 months of Clomid, and never made it past the injections for IVF 1 time and they cancelled at least 5 cycles because of bad numbers, hormones. I got pregnant on my own in Feb., after a cancelled IVF cycle. It really was a 1x miracle. Have hope and let your body heal. If you have morning , afternoon, and night sickness- eat dried puffed rice and rice crispy cereal all day.
I think it's very individual. I got pregnant immediately after we started trying, and had a good pregnancy and delivery. This was pre-gluten-free for me, after major symptoms for about 10 year.
As for miscarriages, it simple to say, but don't fear them. Statistically, (celiac or not) about 50% of all pregnancies end early, many of them women don't even notice. I bet if you ask around in your family or neighborhood - many many of the moms will tell you they've had a miscarriage (or two, or three).
I was just diagnosed in October but I never had problems getting pregnant. My first was 1 month after we decided to start trying and the second was quite a surprise. I think everyone has different symptoms and luckily you caught it at a young age so I wouldnt worry yet!
Ladies- Thank you very much for the hope I needed. I realize that healthy women have miscarriages as well, but I just can't imagine losing my own flesh and blood. All of you are so strong- thank you so much.
Hi my mom was an undiagnosed celiac when she had me and my brother. She had to take some sort of fertility-enhancing something with us to get pregnant but it worked. She was never dxed until last year; she is 64.
I am almost positive my grandmother was celiac when she had my mom, too; my grandmother is in her 80s but has had symptoms that we now know are celiac symptoms her whole life. My grandmother had two kids. I do not know if she had trouble getting pregnant.
I know EXACTLY how you are feeling! My family has a laundry list of problems with pregnancy but they all insist that they are not celiac - mostly because none of them want to make the lifestyle change! There are LOTS of miscarriages, etc. So my husband and I moved forward with the assumption that we would likely have to adopt. We decided to give it a try (figuring we'd give nature a chance at least once before fear of losing a little one immobilized us) while we researched adoption from China. A little over 3 months later we found out that we had been blessed with a successful conception. We told everyone! We figured that if there was a problem we would need their support to get over it and if not they got to share our joy that much sooner. That was 4months ago and everything seems to be fine. My dr. says the baby has a heartbeat like a horse! We go on May 10 to have the ultrasound to find out the baby's sex and count fingers and toes and all. We can't wait. My doc has told me to repeat to myself often the mantra that everything in moderation is fine and that the worst thing for pregancy and baby is to stress too much. It's a leap of faith to let all that negativity and worry go - especially since I'm definitely not a new-agey type - but it seems to have worked so far....
You and your husband look so happy in that photo - use that to your advantage. Trust in the strength of your relationship and the love in your heart and one way or another, you'll end up as a Mommy! Good luck!
I'm soooo in the same place as you right now! I'm 24 and have been married a little over a year. I was diagnosed with celiac disease about a year ago and I have had 4 surgeries for endometriosis and ovarian cysts. My husband is a little leary still about being a daddy, but I really want to start trying. I guess partly because if we go ahead and have a baby than my mind will be at ease. I will know that this will be a part of my life. I am scared too, but I've done a lot of thinking about it and if you are good about your diet than the celiac disease shouldn't be a problem. The endometriosis is worrisome, but even if there is a problem....doctors can do amazing things to help. If we can't have them on our own, we will adopt. There is no reason why, one way or another, you can't be a mommy! It will all work out! Don't worry.
On the bright side, my husband brought up babies all on his own last night....he said MAYBE we can start trying before the summer is out...
I am 22 and have been married almost two years. (my husband is a little bit older) One of the reasons I got married young was because of my family history with pregnancies. I am so glad to hear that other women my age are worried about fertility, most people just brush me off and tell me I am to young to think of such things. I graduate from nursing school next July and we are planning to start trying. It's nice to know I will have some support out there
I know exactly what you mean! I hear all the time that I have plenty of time and I shouldn't be worried about it, or that we have only been married a year and we should take our time. I get sick of hearing it....I just want to tell them they don't know the whole story and its really none of their business...I usually just smile and nod though. ha
lol! I'm on the other side of things - 26 and hearing people start asking the "when are you going to have kids" question, and *I'm* telling them that I have plenty of time. ;-) Not that I'm saying *you* should (or shouldn't) wait... Everyone's got to make their own choices. I was originally thinking I should have kids earlier (my mother wasn't supposed to have me, and neither of us were supposed to make it, and she had complications out the wazoo... yada yada...), but these days, I'm not even sure if I want kids, let alone now! :-)
Good luck to everyone who's trying. As long as you stay strictly gluten-free, that, at least, shouldn't be an issue.
Tiffanyaka "Have I Mentioned Chocolate Lately?" Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy G.F. - September 2003; C.F. - July 2004 Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me Bellevue, WA
I agree... everyone does have to make their own choices. I'm almost 21, and of course i am not going to have a baby tomorrow but let's face it mistakes happen and I just want to make sure that if that would happen I would be the best "incubator" (so to speak) for a little one.
I just found out that I have an ovarian cyst. I'm a little worried...Cgilsing- i seen that you had the same problem... what should i be expecting in the terms of treatment and so on? Anything you or anyone could tell me would be great ( I live in a small town where doctors are not really on the ball- i have to do a lot of my own research )
Oh...I just pray to God I can have a few little babies someday!!!! GOOD LUCK TO ALL OF YOU THAT ARE TRYING!!
Overian cysts are actually a normal occurance. Everyone gets them each month when they ovulate. The problem occurs when the cyst won't let go of your ovary. I have had two cysts removed. One was tennis ball sized and one was orange sized. If your cyst is large like that they may opt to go in and remove it. (Not a big deal...they go in through a cut under your belly button and you are out of the hospital the same day) Some just take care of themselves too. I actually had a cyst rupture a few weeks ago and went in for some tests. They said I have a few more in there, but they are small and will probably take care of themselves. I'm pretty sure that cysts generally don't cause any scaring that would be dangerous to your fertility. So try not to worry too much about them.
The endometriosis is something to watch a little closer. Endometriosis is uterine tissue that has grown in places it shouldn't (like your ovaries or your tubes) It can cause scaring that could be problematic later on. I've had endometriosis and the first thing they do is a laproscopy (the surgury that goes in through your belly button) and they laser off all of the bad tissue they can. After that I went on a treatment called Lupron Depot. It's a fairly new drug and rather expensive but SOOOO worth it! It puts you in menopause for a period of time. I was on it for six months. I won't lie to you it's not fun. The hot flashes are the WORST! Be prepared to be the only person sitting in class in February with a tank top complaining about the heat! However it starves that bad tissue of hormone and it will go away completely. My doctor said it would last for at least 7 years than I may have to do it again. It's been 5...so far so good!
I'm so sorry that you have to go through these things...I know how scary it can be. It will all be alright though. Just keep yourself informed, see your doctor regularly, and know your body.
I hope this was some help. Let us know how everything goes with your doctor!
Well, i got my results back... I don't really have a "cyst" it's called a dermoid cyst but it's actually a benign tumor. And unfortunately i can not have laparoscopic surgery because the tumor is too big, so i have to have the surgery where they make an incision at the bikini line. Unfortunately, i will not be out the same day and i will have to be off my feet for 2-3 weeks... Im scared to death... but I have to do it.
Oh a dermoid cyst. That is different. I have a friend that had one, but she was little when she had it. I think she was 12 when she had it removed. I guess you can have them in different places too, not just your ovaries. Conciquently my friends' was on her ovary too though. I wish I knew more about that so I could offer some help. On they bright side, my friend hasn't had any more cysts since that one was removed (and she said she felt MUCH better after it was removed). I think they told her that she was born with it. I don't know if that is the case for everyone. My thoughts are with you. I hope the surgery goes well and you have a quick recovery. Feel better ok!
Hang in there gabrielle- I have a lot of the same fears as you (I'm 37 and got married in October) but I really believe everything will work out. I was adopted myself so I had always hoped to adopt in addition to having my own. Believe me, adoption is a beautiful thing- I was adopted by the BESt parents in the world. Not that I'm undervaluing having your own children because from what I've heard, it's an experience like no other, but just to know that you have another option is wonderful. Hey, Angelina Jolie's doing it!