Help
Hello everyone,
I posted my story yesterday under a different heading about how I have lots of celiac symptoms that onset about 5 months ago but have had a negative blood test/biopsy - diagnosis. Going off of gluten has helped immensely w/ the bloating, constipation, intestinal cramps, weird cold sensations in abdomen/leg and the rash itchiness isn't nearly as bad, but I still have bad joint pain in both of my knees. I had an MRI of my right knee which showed nothing structurally wrong at all. Anyway, for those who have knee pain due to celiac, what does it feel like? I've had pain in my right knee for 5 months now which won't let up, and my left knee for about 3-4 weeks. It seems to be focused at the interior side of the upper part of the knee, kind of around the upper part of the knee cap, but it fluctuates. Sometimes the pain is below the knee, sometimes to the side, sometimes on the outside. It's usually a sharp pain, but I do get this burning feeling sometimes. It usually doesn't bother me unless I'm using them, so if I'm laying down it's not really as noticeable. I'm not sure this is due to celiac, but I think there's a high likelihood. I just started going back the gym for the first time in 3 months to work upper body again, but my knees aren't too happy about it. But honestly I'm sick of not working out, so I'll just suffer with the pain. What have been your experiences?
-Matt
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What Does You Glutening Knee Pain Feel Like?
I've been having pain I think may be assoc w/ Celiac
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#2
dilettantesteph 
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Posted 12 March 2009 - 03:57 AM
My knee pain seemed like arthritis. It didn't hurt lying down unless someone put weight on the kneecap. It went away after being gluten free some time, maybe 6 months, I can't remember any more. I was still able to exercise gently, but it was an annoying constant ache. I also had ankle pain bad enough to quit ballet lessons and swollen and painful finger joints. It all went away when I went gluten free. I hope you get rid of your pain too.
#3
r0ckah0l1c
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Posted 07 May 2009 - 04:07 PM
I wish I could explain it but it is sort of like a tired achy feeling, like your knees are asleep but it's so severe that it causes pain especially when you bend them or step down. I remember tingling and extreme weakness with the pain and sometimes it would happen at in coordinance with hip pains. Sometimes it would feel like an on-going jab in the funny bone but in your knees. That is the best way I can describe it. Sometimes I would have trouble fully extending my legs or bending them properly.
#4
Anna and Marie
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Posted 26 May 2009 - 10:12 AM
Hey!
The pain that I have with celiac reactions is kind of like I'm loose-jointed, watery almost. The pain shoots around, behind, and beside my knees, it's mind blowing. I hate running with reactions because my legs feel as if they're leaving me behind, I feel so heavy but thats probably the edema I have with reactions. But yes, I have that problem. Now I have arthritus in my knees so I may be a liitle off on the description. It shoud go away, mine was reaallllly slow in doing so!, unless you have other conditions. Good luck,
~Anna
P.S. Looking back at your original post Matt, yes that is exactly what happens to me! It sounds like Celiac to me!
The pain that I have with celiac reactions is kind of like I'm loose-jointed, watery almost. The pain shoots around, behind, and beside my knees, it's mind blowing. I hate running with reactions because my legs feel as if they're leaving me behind, I feel so heavy but thats probably the edema I have with reactions. But yes, I have that problem. Now I have arthritus in my knees so I may be a liitle off on the description. It shoud go away, mine was reaallllly slow in doing so!, unless you have other conditions. Good luck,
~Anna
P.S. Looking back at your original post Matt, yes that is exactly what happens to me! It sounds like Celiac to me!
Have had Celiac knowingly since June 2005 and have since been adapting to a gluten, casein, soy, peanut, and egg free diet. fave quote: 'Experience, that most brutal of teachers but you learn my God, do you learn.' C.S. Lewis.
Life is pretty awesome! ;)
Life is pretty awesome! ;)
#5
JillianLindsay
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Posted 12 July 2009 - 07:50 PM
Mine is bad and getting worse!! I've only been gluten free for.... 5 whole days lol
I play soccer and have had terrible knee pain for the past 5-6 weeks. For me it's primarily the bottom of my knee cap and the inside of my knee. It seems to radiate to the outside and underneath my knee when it's at its worst and only hurts when I run. I've been icing them every day because I'm still playing soccer through the pain but I'm hoping the gluten-free diet will help my joint pain.
I also have fallen arches and got new orthotics for my cleats to see if that would help too.
Good luck!
I play soccer and have had terrible knee pain for the past 5-6 weeks. For me it's primarily the bottom of my knee cap and the inside of my knee. It seems to radiate to the outside and underneath my knee when it's at its worst and only hurts when I run. I've been icing them every day because I'm still playing soccer through the pain but I'm hoping the gluten-free diet will help my joint pain.
I also have fallen arches and got new orthotics for my cleats to see if that would help too.
Good luck!
jieve, on Mar 12 2009, 06:19 AM, said:
Hello everyone,
I posted my story yesterday under a different heading about how I have lots of celiac symptoms that onset about 5 months ago but have had a negative blood test/biopsy - diagnosis. Going off of gluten has helped immensely w/ the bloating, constipation, intestinal cramps, weird cold sensations in abdomen/leg and the rash itchiness isn't nearly as bad, but I still have bad joint pain in both of my knees. I had an MRI of my right knee which showed nothing structurally wrong at all. Anyway, for those who have knee pain due to celiac, what does it feel like? I've had pain in my right knee for 5 months now which won't let up, and my left knee for about 3-4 weeks. It seems to be focused at the interior side of the upper part of the knee, kind of around the upper part of the knee cap, but it fluctuates. Sometimes the pain is below the knee, sometimes to the side, sometimes on the outside. It's usually a sharp pain, but I do get this burning feeling sometimes. It usually doesn't bother me unless I'm using them, so if I'm laying down it's not really as noticeable. I'm not sure this is due to celiac, but I think there's a high likelihood. I just started going back the gym for the first time in 3 months to work upper body again, but my knees aren't too happy about it. But honestly I'm sick of not working out, so I'll just suffer with the pain. What have been your experiences?
-Matt
I posted my story yesterday under a different heading about how I have lots of celiac symptoms that onset about 5 months ago but have had a negative blood test/biopsy - diagnosis. Going off of gluten has helped immensely w/ the bloating, constipation, intestinal cramps, weird cold sensations in abdomen/leg and the rash itchiness isn't nearly as bad, but I still have bad joint pain in both of my knees. I had an MRI of my right knee which showed nothing structurally wrong at all. Anyway, for those who have knee pain due to celiac, what does it feel like? I've had pain in my right knee for 5 months now which won't let up, and my left knee for about 3-4 weeks. It seems to be focused at the interior side of the upper part of the knee, kind of around the upper part of the knee cap, but it fluctuates. Sometimes the pain is below the knee, sometimes to the side, sometimes on the outside. It's usually a sharp pain, but I do get this burning feeling sometimes. It usually doesn't bother me unless I'm using them, so if I'm laying down it's not really as noticeable. I'm not sure this is due to celiac, but I think there's a high likelihood. I just started going back the gym for the first time in 3 months to work upper body again, but my knees aren't too happy about it. But honestly I'm sick of not working out, so I'll just suffer with the pain. What have been your experiences?
-Matt
gluten-free since July 8, 2009!
#6
bittykitty
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Posted 13 July 2009 - 03:54 AM
My pain alternated between a jabbing pain,like something had torn,and a dull ache.My hips would occasionally feel like they were locking in place and didn't want to move.Had tests done for 10 years and couldn't figure out why it could look fine,but hurt that badly.Now I know.
"It is a mistake to think you can solve any major problems just with potatoes"Douglas Adams
#7
tiredofbeingsickandtired
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Posted 13 July 2009 - 04:56 PM
Thsi was why I stopped running, had one doc say that she was sure I had torn my acl...then the second one said it looked perfectly fine. I would have spells where one or both of my knees would swell and hurt terribly. I'm taking it slow but looking forward to getting back into running as I heal.
#8
JillianLindsay
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Posted 13 July 2009 - 06:37 PM
My pain is getting worse and it's getting very frustrating because I love playing soccer so much!
Something I realized was that I was indiscriminately taking advil before my matches without reading the ingredients and checking for gluten!
Something I realized was that I was indiscriminately taking advil before my matches without reading the ingredients and checking for gluten!
jieve, on Mar 12 2009, 06:19 AM, said:
Hello everyone,
I posted my story yesterday under a different heading about how I have lots of celiac symptoms that onset about 5 months ago but have had a negative blood test/biopsy - diagnosis. Going off of gluten has helped immensely w/ the bloating, constipation, intestinal cramps, weird cold sensations in abdomen/leg and the rash itchiness isn't nearly as bad, but I still have bad joint pain in both of my knees. I had an MRI of my right knee which showed nothing structurally wrong at all. Anyway, for those who have knee pain due to celiac, what does it feel like? I've had pain in my right knee for 5 months now which won't let up, and my left knee for about 3-4 weeks. It seems to be focused at the interior side of the upper part of the knee, kind of around the upper part of the knee cap, but it fluctuates. Sometimes the pain is below the knee, sometimes to the side, sometimes on the outside. It's usually a sharp pain, but I do get this burning feeling sometimes. It usually doesn't bother me unless I'm using them, so if I'm laying down it's not really as noticeable. I'm not sure this is due to celiac, but I think there's a high likelihood. I just started going back the gym for the first time in 3 months to work upper body again, but my knees aren't too happy about it. But honestly I'm sick of not working out, so I'll just suffer with the pain. What have been your experiences?
-Matt
I posted my story yesterday under a different heading about how I have lots of celiac symptoms that onset about 5 months ago but have had a negative blood test/biopsy - diagnosis. Going off of gluten has helped immensely w/ the bloating, constipation, intestinal cramps, weird cold sensations in abdomen/leg and the rash itchiness isn't nearly as bad, but I still have bad joint pain in both of my knees. I had an MRI of my right knee which showed nothing structurally wrong at all. Anyway, for those who have knee pain due to celiac, what does it feel like? I've had pain in my right knee for 5 months now which won't let up, and my left knee for about 3-4 weeks. It seems to be focused at the interior side of the upper part of the knee, kind of around the upper part of the knee cap, but it fluctuates. Sometimes the pain is below the knee, sometimes to the side, sometimes on the outside. It's usually a sharp pain, but I do get this burning feeling sometimes. It usually doesn't bother me unless I'm using them, so if I'm laying down it's not really as noticeable. I'm not sure this is due to celiac, but I think there's a high likelihood. I just started going back the gym for the first time in 3 months to work upper body again, but my knees aren't too happy about it. But honestly I'm sick of not working out, so I'll just suffer with the pain. What have been your experiences?
-Matt
gluten-free since July 8, 2009!
#9
tiredofbeingsickandtired
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Posted 08 August 2009 - 07:07 AM
arrghghh, I had a slip up in VBS Tuesday night and most likely glutened myself considering how sick I was. My feet hurt and my left knee is swollen and feels like my knee cap is locking-ouch it hurts. I'd started back on my couch to 5k program awhile back with no pain, so I'm hoping that this knee pain is connected to the glutening and not to the running..and that it will go away. I'm staying off my feet for a few hours this morning. I want to run but I'm going to give it till Tues (when I have dogs to run) and see how well it heals. I may go to the gym and get in the pool later. I'm just taking tylenol arthritis, trying to stay off ibuprophen because I wonder if it makes my joints swell up more.
Hope you can play soccer soon, praying that it heals up and stays that way!
Hope you can play soccer soon, praying that it heals up and stays that way!
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