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Celiac.com Celiac Disease & Gluten-Free Diet Forum: Do You Lose Your Marbles? - Celiac.com Celiac Disease & Gluten-Free Diet Forum

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Do You Lose Your Marbles? Rate Topic: -----

#1 User is offline   raisin 

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Posted 13 March 2009 - 07:03 PM

On gluten, I get extremely paranoid and neurotic.. on top of the negative moods, nightmares, anxiety, sleep problems, etc. I see things out of the corners of my eyes, and become ridiculously impulsive. I've learned not to talk to people if I have been glutened for an extended period of time, i just get too weird.

I read that certain vitamin deficiencies, common in celiacs, can make you flat out loony.

Does anyone else experience insanity-lite while on gluten?
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#2 User is offline   Ms Jan 

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Posted 14 March 2009 - 03:30 AM

Yes, I definately do !

I have always easily gotten stressed out with anxiety, obsessive thinking and like strange ideas, and in this stage I hallucinate - no drugs, no alcohol, simply straight forward brain created hallucinations. It used to scare the h... out of me. Coming from a family full of schizofrenia and other mental problems, I decided at a very young age to hold on to reality with all my might. So I gathered that all these symptoms were my borderlining the genetic insanities ... and that I just had to keep my head straight and keep reminding myself what was real and what wasn't. It did work, but demanded my constant attention and was immensely exhausting ! It was therefore such a relief when a few years ago I realized how closely linked the 'insanity symptoms' were to what I consumed. At the time I had no idea about the gluten, only that I couldn't digest wheat, and I noticed that the hallucinations appeared whenever I had too much wheat, sugar, additives, or coffee. They were also compounded by brain fogs and memory losses, which I didn't have as a child.

Since going gluten free and now on the SCD diet, I'm getting better day by day on all accounts. But if I get glutened or ingest sugar or additives, they immidiately return. Also, I have noticed that my presence of mind is much stronger since I started taking B12 and D vitamins, and a magnesium supplement calms me significantly. I'm still new to all of this, so I can't scientifically explain it all, just take note and try to learn. But I have no doubt that most of my family members with mental diseases would become much better if they went gluten free - but how does one get any psychiatrist to believe in and recommend a diet instead of pharmaceutica ... ?!

I know that whenever I exercise, my mind also gets much clearer and more 'serene'. But I'm not strong enough to exercise much at the moment ... that will have to wait until I get yet a bit better.

Do you have any specific experiences as to certain foods, or certain vitamins/minerals, exercise etc ?

Jan
QUESTION EVERYTHING (also the experts).
DON'T FOLLOW ANY ADVICE BEFORE YOU KNOW IT'S SUITABLE FOR YOU.
45 yrs; A life time of health problems, incl. arthritis and psoreasis; five years of debilitating 'poisoning' symptoms of headaches/vomiting.
Diagnosed Leaky Gut 2005.
Gluten free since nov 2008.
SCD diet/excl. all sugar&dairy since jan 2009. Finally improving!
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#3 User is offline   purple 

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Posted 14 March 2009 - 12:45 PM

View Postraisin, on Mar 13 2009, 07:03 PM, said:

On gluten, I get extremely paranoid and neurotic.. on top of the negative moods, nightmares, anxiety, sleep problems, etc. I see things out of the corners of my eyes, and become ridiculously impulsive. I've learned not to talk to people if I have been glutened for an extended period of time, i just get too weird.

I read that certain vitamin deficiencies, common in celiacs, can make you flat out loony.

Does anyone else experience insanity-lite while on gluten?


I am sorry, but I just had to reply to your question...when I was in the 1st grade (40 yrs ago), I used to beat all the boys playing marbles...they lost theirs to a girl :D I had a fine collection..cat eyes, boulders, clearies, stealies...those were the days...now its ipods and cell phones...oh for the simpler things in life... :blink:
Come unto me, all ye that labour and are heavy laden and I will give you rest. Matthew 11:28
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#4 User is offline   sugarsue 

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Posted 18 March 2009 - 05:14 PM

View Postraisin, on Mar 13 2009, 11:03 PM, said:

On gluten, I get extremely paranoid and neurotic.. on top of the negative moods, nightmares, anxiety, sleep problems, etc. I see things out of the corners of my eyes, and become ridiculously impulsive. I've learned not to talk to people if I have been glutened for an extended period of time, i just get too weird.

I read that certain vitamin deficiencies, common in celiacs, can make you flat out loony.

Does anyone else experience insanity-lite while on gluten?


Wow, you just reminded me that when my daughter was younger, while she was still having seizures and before going gluten free, she used to tilt her face up to the sky and say that she could feel God touching her face. She spoke of reincarnation at a very early age before she had ever heard of the topic anywhere. I always wondered if her seizures were giving her a window into another realm. Maybe it was the gluten?
Susan
LYME diagnosed 11/2010, allergic to wheat, Hashimoto's Thyroiditis, allergic to all grasses, most trees, dust
Mom to 9 year old dd, lyme, diagnosed 11/2011, highly gluten intolerant, epilepsy w/ generalized seizures, mitocondrial markers, malabsorption, recurring candida - Gluten-free Casein-free since 9/16/08. Diagnosed with P.A.N.D.A.S. 6/20/09, seizure free since going gluten-free!
and 10 yr old dd, Lyme diagnosed 11/2011, severe dust allergy, allergic to most trees/grasses/weeds. Positive gluten intolerance testing. Gluten Free since 12/09/08. Diagnosed with P.A.N.D.A.S. 6/20/09
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#5 User is offline   munkee41182 

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Posted 19 March 2009 - 11:18 AM

I do...I had posted yesterday about how I dumped soap on left over cheesecake that isn't gluten-free. And I've been craving it and craving it.....I've been very mean to my H....depressed....I can't type and talk. It's crazy! I hate it!
Jami
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#6 User is offline   hermitgirl 

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Posted 19 March 2009 - 11:22 AM

I hope the damage isn't permanent in my case. I think I lose more marbels with each accidental glutening, I can only hope they come back the longer I stay gluten free.....
In regards to the soap on the cheesecake, I have an aunt who is trying to lose weight, and to control her portions she keeps a big salt shaker with her. To prevent her from nibbling more, she dumps the salt on the remaining food so she won't be tempted to touch it.

Don't you love genetics?
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#7 User is offline   munkee41182 

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Posted 19 March 2009 - 11:31 AM

View Posthermitgirl, on Mar 19 2009, 03:22 PM, said:

In regards to the soap on the cheesecake, I have an aunt who is trying to lose weight, and to control her portions she keeps a big salt shaker with her. To prevent her from nibbling more, she dumps the salt on the remaining food so she won't be tempted to touch it.


I would have used salt....but soap was the only thing near by. It just is so horrible that even if I am glutened accidentally I CRAVE gluten....bread, cakes, cookies, anything I can get my hands on. It's just like I'm a drug addict. I hate it!
Jami
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#8 User is offline   raisin 

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Posted 19 March 2009 - 11:40 AM

View Postsugarsue, on Mar 18 2009, 05:14 PM, said:

Wow, you just reminded me that when my daughter was younger, while she was still having seizures and before going gluten free, she used to tilt her face up to the sky and say that she could feel God touching her face. She spoke of reincarnation at a very early age before she had ever heard of the topic anywhere. I always wondered if her seizures were giving her a window into another realm. Maybe it was the gluten?

On the subject of mysticism, or whatever you want to call it, there are many who believe those who are made psychically weak/tired are more susceptible to spirit activity or more in sync with the supernatural side of the world. They also believe that link won't necessarily vanish if the person becomes healthy/alert.

I experience in similar ways, more so when glutened (or exhausted), but I don't think it's because of or even related to gluten, nor do I think it's a sign of insanity. But, one of my parents believes that kind of stuff. If I had different or less understanding parents, I would be worse off. I've never felt god touch my face, heard that tends to be more seizure-related, but you never know. ;)
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#9 User is offline   hermitgirl 

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Posted 19 March 2009 - 11:44 AM

View Postmunkee41182, on Mar 19 2009, 02:31 PM, said:

I would have used salt....but soap was the only thing near by. It just is so horrible that even if I am glutened accidentally I CRAVE gluten....bread, cakes, cookies, anything I can get my hands on. It's just like I'm a drug addict. I hate it!


I know the feeling. I often wish this had been discovered when I was younger, before I got addicted to pizza, breads, and cream of mushroom soup. The worst is when you accidently ingest. I had an incident with Cool Ranch Doritos on Sunday, I had one nibble, and before I realized what I had done, I scarfed the whole bag. Finally starting to feel human today. Still can't stay awake, but the bloating, pain, reflux and stomach issues seem to have calmed.
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#10 User is offline   Chrissyb 

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Posted 21 May 2009 - 03:34 PM

I can so totally relate to craving what we can't have. I WANT CHOCHALTE CAKE. I know I can make a gluten free one but it is just not the same is it. I want a peanut butter and jelly sandwihich on nice soft bread now those I really crave, they are my comfort food and I can't have them now. I will live and I will live better now I know but I still want one.
Chrissy
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#11 User is offline   taweavmo3 

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Posted 21 May 2009 - 07:16 PM

I've always been anxiety ridden....and I find that it comes back in full force with a glutening. I used to worry incessantly about the smallest things, always. Since I've gone gluten free, I have found that I'm much more calm and even. Cutting out dairy has helped too.....especially with sleeping. But yes, losing my marbles would be a nice way to describe me on gluten, lol. And I'm very aware of it now, it's nice to know that it's not normal like I used to think. My mom's side of the family is full of psych disorders, so it's more reason for me to stick to the diet!

Oh, and I also have found that the calcium supplement w/vitamin D and magnesium helps keep me calm....it is the one supp. that I'll spring for if I can't afford anything else!
Tamara, mom to 4 gluten & casein free kiddos!

Age 11 - Psoriasis
Age 8- dx'd Celiac March 2005
Age 6- gluten-free/cf, allergy related seizures
Age 4 - reflux, resolved with gluten-free/cf
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#12 User is offline   ann72601 

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Posted 28 July 2009 - 11:36 AM

View Postraisin, on Mar 13 2009, 08:03 PM, said:

On gluten, I get extremely paranoid and neurotic.. on top of the negative moods, nightmares, anxiety, sleep problems, etc. I see things out of the corners of my eyes, and become ridiculously impulsive. I've learned not to talk to people if I have been glutened for an extended period of time, i just get too weird.

I read that certain vitamin deficiencies, common in celiacs, can make you flat out loony.

Does anyone else experience insanity-lite while on gluten?

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#13 User is offline   Mrs.Doyle 

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Posted 02 August 2009 - 06:50 PM

The emotional reactions have been what pushed me and pushed me to figure out it was gluten causing my issues. The joke with my friends is that if they need someone *taken out* to feed me a sandwich, wait for me to nap a few minutes and then set me loose because I get so hostile. My hubby has the patience of Job and just gently exists with me. I don't know how he does it!

I had a glimpse of what it was like to be gluten free with a happy mind... and now I'm doing a gluten challenge. All the same dark & negative mind sets are back. At least this time I can identify why they are there, separate them and understand that it isn't due to faulty thinking on my part, that it isn't something that talk therapy is going to fix. It will go away as soon as the gluten reaction works itself out of my system, and being able to see that in the future is a nice thing to hang on to in the middle of the unpleasantness.

Vitamin deficiency has a strong correlation to mental issues... might be worth looking into.
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#14 User is offline   SkinnyT 

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Posted 31 August 2009 - 07:33 PM

I go nuts.

Scary stuff , for real.
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#15 User is offline   ann72601 

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  Posted 31 August 2009 - 07:45 PM

View PostSkinnyT, on Aug 31 2009, 07:33 PM, said:

I go nuts.

Scary stuff , for real.

I've recently found out that gluten alone may not resolve the issue. I'm having to eliminate all grains. I have many food allergies and sensitivities so I kept getting nuts. Yes, a moment of sanity reveals the insanity. My ND assures me that it's part of the celiac and problems associated with it and has put me on the GAPS diet. You can go to www.gapsdiet.com and read it and determine for yourself if it's something you want to try. It means, 'gut and psychology' by the way. Hmmm....
I just read the other comments and only a celiac can laugh at another celiac. It's been pretty embarassing and I feel badly for people who have to love me.........like my family. My social life sucks!!
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