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Celiac Disease In The News
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113 posts in this topic

I get a couple articles every day from a news alert I have for celiac. I think instead of starting a new topic for each article, I'll just post a few articles under here every day. I'll only start new topics for those of great importance/interest:

March 24-25

http://www.casperstartribune.net/articles/...fcd0035eb0e.txt

http://www.detnews.com/2005/eatsdrinks/050.../D12-127064.htm

http://www.detnews.com/2005/eatsdrinks/050.../D12-126866.htm

http://www.modbee.com/life/buzzz/story/101...11003666c.html#

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Thanks celiac3270, those were great!

Keep posting!

Roo

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Thanks celiac3270!

I haven't been to that store in a while and that is big news to me about the new pasta products.

I visited that doctor in Troy and was more than a little disappointed. He explained to me how too many people think they have Celiac when they don't. Very different from the interviews I had read. Well I left the office getting another useless blood test ( gluten free diet ), and a written diagnoses of IBS (no diagnoses and the insurance company won't pay the bill).

Laura

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That was very interesting indeed.

Only:

She was forced to give up her bread-making hobby.

That's a pity as we know there are a number of ways of making gluten-free bread as we know (just got a bit out of practice, myself).

Michael

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celiac3270, how do you get these alerts? Is there a setting on your browser? Something that I can set mine to get?

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Another article...lol: article about a Celiac's Easter

Dessa, I get the news alerts from google. You can set them up so that if the word..."celiac" is used anywhere in the article, they will send it to you...I know there are others, but Google works well, so I'm satisfied with it.

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Thanks celiac3270! I'm going now to try and set it up!

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http://www.chroniclejournal.com/story.shtml?id=26410

http://www.macleans.ca/topstories/health/a...328_102657_4916

These articles aren't anything...new...but I just post them in case there's anything interesting in them for someone. Also, if someone won't believe you about...the celiac disease and osteoporosis link, you can show them 15 articles on it and ask if all the newspapers are lying :lol: just kidding.

Dessa, did the alert work?

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Yes, celiac3270, it did! It was very easy to set up, now I am just waiting for new articles to come out so I can read them! Thank you for the info!

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Death?

Since when does celiac cause an immediate death?

Could he be allergic to gluten and a celiac maybe?

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I saw that in that article, and decided the writer was trying for some drama!

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I'm happy to keep doing this if you'd like me to, but just want to know if people want to see the articles or not.....I don't want to keep posting here and bumping it to the front if nobody wants to read it. ;) I don't mind either way...just want to know if this is getting in the way or not. :)

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celiac3270,

Thank you so much for your dedication for providing this forum with more education. I am looking for more information on the gluten test sticks. I read an article on these small portable instant tests to check food for gluten.

Laura

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Hi celiac3270,

I for one check in here all the time for new articles...... Thanks for posting them!

Karen

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I like to see them too celiac3270 :D Thanks for posting them B)

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Keep posting the links, celiac3270. I keep checking in and reading them, too!

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    • thanks for your input, the reason I do the blood test is because I found out my duagther has it recently and she carry dq2 gene,so must be from my husband or me...im in the process waiting for my genetic test back,,by the way,I do have lots of celiac symptom,so it could be gluten sensitiive you said,thanks again.  
    • No I'm in the UK, from what I've been told that's a good thing for gluten labeling and standards compliance. What you and everyone else on here says makes me sense than what the doctors are saying (a confused message at best is what they're giving me, each one with a slightly different version of it). My referral letter is in the post so on theory appointment may not be that far away. I have a load of my favourite Quorn stuff (non-gluten-free version) in the freezer so perhaps using that up may be a good way to proceed for now. I'm out at the moment and torn whether to try chips from a café, in the strict gluten-free future would probably be a no-no but in current situation probably not so bad...
    • I also only really eat one meal a day and always after I get home. I never really feel hungrey. I call it 'Pavlov's dog in reverse'.  I think it comes from so many years of food making me sick. I have gotten to the point where I now at least can eat a sandwhich and some fruit during the day but it wasn't a quick process. When folks get like that it is very important to make sure that one meal has a good amount of both calories and nutrtion.  If your diet is how you describe you are starving yourself.  You need to get yourself used to eating again.  What helped me was carrying a baggie with some nuts and dry fruit with maybe even a handful of gluten free pretzels and always some chocolate baking chips. I just ate couple pieces when I thought of it throughout the day. A little bit of cheese and a couple safe crackers, a piece of fruit or a small tin or individual serving snack pack are also good. You need to get some nutrition during the day so you can feel up to cooking a simple full meal  for dinner. I hope your feeling better soon.
    • Ok, I can't seem to find my first lot of blood tests that were done for Celiac screening, they did include TTG I remember that much, and I am getting another copy of it but another test did come in today.  I don't know how different tests are done around the world and I don't get all the medical jargon but this is what it states, ******************************************************************************* HLA DR/DQ Genotyping for Coeliac Disease, Specimen type : EDTA blood Method : Detection of sequence-specific oligonucleotides (Gen-Probe). HLA-DR - 1, 13          DRB1 - 01, 13 HLA-DQ - 5,6        HLA-DQA1 - 5,6      HLA-DB1 - 05, 06 Interpretation : No genotype susceptibility for coeliac disease.  The DQ2 and DQ8 antigens associated with increased risk of coeliac disease were not identified in this patient.  In the absence of these antigens, coeliac disease is extremely unlikely.   *******************************************************************************   I have read the horror stories of blood tests and scope biopsies not be done right or flawed but here is what I do know as of now, At the moment the most non invasive test I can have done say negative.  I have double scopes (endoscopy and colonoscopy) booked for the 12th of October with results from biopsies expected a week or two after. Chances are they will show, a) signs of coeliac disease (even if the odds are low it can still happen), b) show signs of something else entirely and we will be busy dealing with the ramifications of that or c) it will show no signs of coeliac but I will still be suffering from gluten sensitivity (which is harder/impossible to measure clinically). My GP has told me that stress and anxiety can be a cause of all the symptoms I have been experiencing and suggests if the scopes show nothing that I may benefit from something to treat anxiety, i.e. antidepressants.  Not in a, "Oh we don't know what it is so have these," kind of way, he agrees with the thought that the scopes could indeed show coeliac, something else or even be negative. I did tell him that I could have a sensitivity and that even without benefit of clinical results, some people have gone on a gluten elimination diet for a period of time to see if they get any relief.  My question is this, if the scopes come up negative and I try eliminating gluten, how long would it be before I saw any results or improvements?  I have read enough here and elsewhere to know that everybody is different, some see results within days, some see results longer but are there any guidelines for how long a test like this should be undertaken for?  I have heard everything thing from two weeks to two months.  All of this is entirely moot at this point but I know that even if the results said clear, there would always be a little part of me that wonders if it could be a sensitivity that is the problem.  Any thoughts or advice greatly appreciated, and a thank you to all those who have taken the time to respond and offer advice and encouragement so far.        
    • We don't delete accounts but can delete any personal information and change your screen name if you would like. Just send me a personal message with three possible screen names. For the record you can edit most things in your account area with the exception of your screen name.
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