Help
Sorry to bother you twice, but my address is on my personal profile page. I had to give it to register but it shouldn't be on my profile. I can't get it off.
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#1
frecOregon 
- New Community Member
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- Group: Members
- Posts: 11
- Joined: 14-March 09
Posted 14 March 2009 - 11:42 AM
diagnosed 2002
fibromyalgia 2008
also can't have dairy, soy, corn, potatoes, citrus, coffee, sesame, nightshades
member since 2007--used to be frec
"In the fabric of space and in the nature of matter, as in a great work of art, there is, written small, the artist's signature." Carl Sagan
fibromyalgia 2008
also can't have dairy, soy, corn, potatoes, citrus, coffee, sesame, nightshades
member since 2007--used to be frec
"In the fabric of space and in the nature of matter, as in a great work of art, there is, written small, the artist's signature." Carl Sagan
#2
psawyer
- Oliver 1996-2012
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- Group: Moderator
- Posts: 5,049
- Joined: 28-December 04
Posted 14 March 2009 - 11:50 AM
Your address and other personal information is visible only to you. Other members can not see it--not even moderators. Only your date of birth, if you choose to provide it, is visible.
Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)
Celiac.com - Celiac Disease Board Moderator
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)
Celiac.com - Celiac Disease Board Moderator
#3
frecOregon
- New Community Member
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- Group: Members
- Posts: 11
- Joined: 14-March 09
Posted 14 March 2009 - 11:57 AM
psawyer, on Mar 14 2009, 12:50 PM, said:
Your address and other personal information is visible only to you. Other members can not see it--not even moderators. Only your date of birth, if you choose to provide it, is visible.
Thank you. I'm obviously a computer whiz. I've been wrestling with celiac.com for two months now...I missed having access!
diagnosed 2002
fibromyalgia 2008
also can't have dairy, soy, corn, potatoes, citrus, coffee, sesame, nightshades
member since 2007--used to be frec
"In the fabric of space and in the nature of matter, as in a great work of art, there is, written small, the artist's signature." Carl Sagan
fibromyalgia 2008
also can't have dairy, soy, corn, potatoes, citrus, coffee, sesame, nightshades
member since 2007--used to be frec
"In the fabric of space and in the nature of matter, as in a great work of art, there is, written small, the artist's signature." Carl Sagan
#4
Snubu
- New Community Member
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- Group: Members
- Posts: 8
- Joined: 16-April 09
Posted 22 April 2009 - 01:42 PM
I am not sure this is correct. By accident, I discovered a link from my profile in Google (celiac and headaches) and when I clicked on it it took me right to my full name, address and location! This is shocking. I now deleted my personal name/address info.
#5
Lisa
- Advanced Community Member
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- Group: Moderators
- Posts: 8,413
- Joined: 12-August 05
Posted 22 April 2009 - 01:47 PM
Snubu, on Apr 22 2009, 05:42 PM, said:
I am not sure this is correct. By accident, I discovered a link from my profile in Google (celiac and headaches) and when I clicked on it it took me right to my full name, address and location! This is shocking. I now deleted my personal name/address info.
Try to google other names. I do not believe that you can see other's personal information. I just googled your name Snubu, I could see no personal information.
Like Peter said, your personal information is visible only to you. Not to worry.
Lisa
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
Celiac.com - Celiac Disease Board Moderator
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
Celiac.com - Celiac Disease Board Moderator
#6
psawyer
- Oliver 1996-2012
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- Group: Moderator
- Posts: 5,049
- Joined: 28-December 04
Posted 22 April 2009 - 01:53 PM
Snubu, on Apr 22 2009, 05:42 PM, said:
I am not sure this is correct. By accident, I discovered a link from my profile in Google (celiac and headaches) and when I clicked on it it took me right to my full name, address and location! This is shocking. I now deleted my personal name/address info.
You were able to see it only because the server recognized that you were looking at your own profile. It determines that by examining the content of two cookies, forums_member_id and forums_pass_hash, which are set by this board. If these cookies do not exist, or do not match the profile being displayed, then the personal information is not shown.
If you log out from here, and do the same thing again, you will not see personal information. Logging out deletes the two cookies I mentioned above.
Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)
Celiac.com - Celiac Disease Board Moderator
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)
Celiac.com - Celiac Disease Board Moderator
#7
Snubu
- New Community Member
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- Group: Members
- Posts: 8
- Joined: 16-April 09
Posted 22 April 2009 - 02:08 PM
Because I deleted my personal info. immediately. It was there. Possible that it was a cookie issue and I was logged in, as Peter mentioned. At any rate, I was able to delete all my data. Thanks for input.
#8
GottaSki
- Advanced Community Member
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- Group: Advanced Members
- Posts: 354
- Joined: 13-March 09
Posted 22 April 2009 - 11:44 PM
Hello...I'm a newbie to this site as I was diagnosed celiac within the month. What caught my eye was someone's signature/tagline. While I was recently dx'd...my husband's side has both sjogren's and a grand or two with alzheimer's (sp?)
62 years? I'm 43 and recently diagnosed--good news for me after many years of unexplained illnesses. Do you have children? Are they Celiac?
My 26 (diagnosed Lupus at 13), 15 and 13 year old children, along with an 18 month old grand are undergoing testing...not so good thinking of my kids having to deal with it...although knowing at a younger age is certainly a huge advantage.
62 years? I'm 43 and recently diagnosed--good news for me after many years of unexplained illnesses. Do you have children? Are they Celiac?
My 26 (diagnosed Lupus at 13), 15 and 13 year old children, along with an 18 month old grand are undergoing testing...not so good thinking of my kids having to deal with it...although knowing at a younger age is certainly a huge advantage.
-Lisa
3/26/09 gluten-free - celiac confirmed from tTG IgA 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improved health for a few months -- then substantial deterioration (maybe one good hour per day for ~17 months)
8/10/11 - Started Elimination Diet for Autoimmune Disease
1/1/12 - Tomato, Pepper, Corn, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Seed, Shellfish and Gluten FREE
* Healthier than ever in my life. Didn't know how sick I really was until I removed all possible food intolerance *
"This is your life, are you who you want to be?" ~switchfoot
3/26/09 gluten-free - celiac confirmed from tTG IgA 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improved health for a few months -- then substantial deterioration (maybe one good hour per day for ~17 months)
8/10/11 - Started Elimination Diet for Autoimmune Disease
1/1/12 - Tomato, Pepper, Corn, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Seed, Shellfish and Gluten FREE
* Healthier than ever in my life. Didn't know how sick I really was until I removed all possible food intolerance *
"This is your life, are you who you want to be?" ~switchfoot
#9
Snubu
- New Community Member
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- Group: Members
- Posts: 8
- Joined: 16-April 09
Posted 23 April 2009 - 12:03 PM
[Hi GottaSki,
I am a newbie too! No, I do not have children (by choice). It is definitely an advantage to be diagnosed early. Looking back at my childhood, I now clearly see the symptoms of celiac: Many headaches, always thin, after age 20 migraines from the pill and occcasionally from drinking alcohol, very severe menstrual pain every month, same weight since age 20 (have never been on a diet!). During the last 10 years other symptoms developed and finally my alternative medicine/chiropractor diagnosed celiac. I have not found a medical doctor yet that understands celiac. However, knowing now what celiac is all about, I will have patience and hope that some of the damage (neurological, intestinal, etc.) will eventually disappear and hopefully I can stay away from doctors.
Yes, my Mom has Sjoegren's, but her blood test showed negative for celiac. Either the test was wrong, or she really does not have celiac. She is 86 and she said at her age she does not want to pursue a gluten-free diet and does not really care about the celiac part. I definitely suspect my father was celiac (died of Alzheimer's) and there are many relatives on his side that have Alzheimer's, Osteoporosis and Psoriasis.
I am a newbie too! No, I do not have children (by choice). It is definitely an advantage to be diagnosed early. Looking back at my childhood, I now clearly see the symptoms of celiac: Many headaches, always thin, after age 20 migraines from the pill and occcasionally from drinking alcohol, very severe menstrual pain every month, same weight since age 20 (have never been on a diet!). During the last 10 years other symptoms developed and finally my alternative medicine/chiropractor diagnosed celiac. I have not found a medical doctor yet that understands celiac. However, knowing now what celiac is all about, I will have patience and hope that some of the damage (neurological, intestinal, etc.) will eventually disappear and hopefully I can stay away from doctors.
Yes, my Mom has Sjoegren's, but her blood test showed negative for celiac. Either the test was wrong, or she really does not have celiac. She is 86 and she said at her age she does not want to pursue a gluten-free diet and does not really care about the celiac part. I definitely suspect my father was celiac (died of Alzheimer's) and there are many relatives on his side that have Alzheimer's, Osteoporosis and Psoriasis.
#11
GottaSki
- Advanced Community Member
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- Group: Advanced Members
- Posts: 354
- Joined: 13-March 09
Posted 24 April 2009 - 11:49 AM
Snubu, on Apr 23 2009, 01:03 PM, said:
[Hi GottaSki,
I am a newbie too! ...
I am a newbie too! ...
Thanks for the info Snubu!
Been very sick this week...arthritis has gotten far worse since change to gluten-free. Hoping its my body adjusting while we adjust our lives and kitchen!
-Lisa
3/26/09 gluten-free - celiac confirmed from tTG IgA 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improved health for a few months -- then substantial deterioration (maybe one good hour per day for ~17 months)
8/10/11 - Started Elimination Diet for Autoimmune Disease
1/1/12 - Tomato, Pepper, Corn, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Seed, Shellfish and Gluten FREE
* Healthier than ever in my life. Didn't know how sick I really was until I removed all possible food intolerance *
"This is your life, are you who you want to be?" ~switchfoot
3/26/09 gluten-free - celiac confirmed from tTG IgA 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improved health for a few months -- then substantial deterioration (maybe one good hour per day for ~17 months)
8/10/11 - Started Elimination Diet for Autoimmune Disease
1/1/12 - Tomato, Pepper, Corn, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Seed, Shellfish and Gluten FREE
* Healthier than ever in my life. Didn't know how sick I really was until I removed all possible food intolerance *
"This is your life, are you who you want to be?" ~switchfoot
#12
RoseRobin
- New Community Member
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- Group: Advanced Members
- Posts: 21
- Joined: 25-April 09
Posted 28 April 2009 - 06:46 PM
I was appalled to find all my personal information displayed on my public profile. I thought when I signed up that this would only go to the board administrator. I cannot seem to edit it/ remove it. Please let me know how I can alter this.
#13
Jestgar
- Group: Moderators
- Posts: 8,768
- Joined: 13-June 06
Posted 28 April 2009 - 06:48 PM
You are the only one that can see it. If you go to someone else's profile and look at what's displayed, that's all that the rest of us can see on yours.
"But then, in all honesty, if scientists don't play god, who will?"
- James Watson
My sources are unreliable, but their information is fascinating.
- Ashleigh Brilliant
Leap, and the net will appear.
Celiac.com - Celiac Disease Board Moderator
- James Watson
My sources are unreliable, but their information is fascinating.
- Ashleigh Brilliant
Leap, and the net will appear.
Celiac.com - Celiac Disease Board Moderator
#14
RoseRobin
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- Group: Advanced Members
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- Joined: 25-April 09
Posted 28 April 2009 - 07:36 PM
psawyer, on Mar 14 2009, 11:50 AM, said:
Your address and other personal information is visible only to you. Other members can not see it--not even moderators. Only your date of birth, if you choose to provide it, is visible.
Thank you--Right after I sent you the message, my son pointed out exactly that information to me (that only I could see the private info while logged in). I apologize for the misunderstanding.
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