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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

The Villi
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5 posts in this topic

I have been on the diet for about 10 days now. How long will it take for my villi to heal up and, once healed can it get flat again if an accident happens...?? My friend has been celiac for 10 years now and, he's gotten less sensitive...he really respects his diet..

mario

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Hi Mario;

I'm not an expert, but I've heard thta it takes a while for the villi to heal. It depends on the amount of damage. I think some people have noticed a difference in a few weeks, others in three or four months. If you hvae an accident and eat some gluten, there will be damage. It takes less than a milligram of gluten to do damage, so of course we have to be very careful.

I haven't been gluten free for long either, and I didn't have too much damage to my villi. I have been able to learn alot about celiac through my Mom (who has it) and my wife (who has a RN and her bachelor's degree in nursing). It is certainly difficult to understand, but it is possible to get it under control.

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it is possible to get it under control..but, my question was my gastroenterologist found my villi to be almost flat and, inflammed, he made a scetch of it and, told me that it was going to go back up in a couple months..he made a finger like scetch. Ok, what I'm trying to understand is, can just one small miligram of gluten flatten the villi all over again..??? :(

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Mario,

To begin with your villi most likely have not totally healed yet therefore are still somewhat flat. It does in fact take a couple of months for the villi to restore it's natural and healthy shape. I too, had massive damage to my villi and it took 3 months or more to get them back in shape. Yes the most minute amount of gluten can harm the villi. Gluten is poision to our systems. Think of it this way, if you give a plant a little bit of a chemical the leaves might wilt, but it won't die. The more chemical you give the plant the bigger impact it will have the plant physically but on a cellular level the damage is done. They won't totally flattened out again but there will be damage nonetheless. I've learned this the hard way. I've been on the diet for 8 years and I still make mistakes. It takes time, but you have to be very careful!! Hope that helps! :P

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thanks JsBaby G :(

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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
    • High Positive Test Results - Your thoughts please...
      With blood results like these, your husband most definitely has Celiac Disease.  The biopsy is just to check to see how much damage.  Keep in mind that even with high, high test scores like these, damage can still be patchy. Although I would be very surprised if they didn't find enough with numbers like these!  Thank goodness he was able to have a definitive diagnosis and reason for his symptoms!  Good luck!
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