Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Help Understanding My Gluten Reaction


JEHS

Recommended Posts

JEHS Newbie

Can someone tell me why my reaction to ingesting gluten is so much worse now than it was when I was actually eating it regularlly? I have been on a gluten free diet for a month now and accidently ate some gluten on Friday and literally slept for 48 hours. I woke up long enough to go to the bathroom and get something to drink. I was exhausted with no enegy. I would really like to understand this. Thanks in advance for your help.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chasbari Apprentice
Can someone tell me why my reaction to ingesting gluten is so much worse now than it was when I was actually eating it regularlly? I have been on a gluten free diet for a month now and accidently ate some gluten on Friday and literally slept for 48 hours. I woke up long enough to go to the bathroom and get something to drink. I was exhausted with no enegy. I would really like to understand this. Thanks in advance for your help.

I can only speculate but here's my thinking. Before you were diagnosed and went on the diet you were probably at a level of coping that allowed you to get through the day. Obviously something led you to go about getting diagnosed. Once on the diet you probably started noticing more energy or some sort of change. I know the most difficult thing for me now is to avoid overdoing things because, after years, I finally can. Your body is beginning to heal and using a tremendous amount of your metabolic resources at healing the gut. Things are getting much better and then all of the sudden..wham.. a trigger to the immune system that sets of the chain of potential damage. Immune system overload and, instead of the gradual build-up and adaptation over the last several years you take a hit all at once and your body responds by shutting down. My thoughts: you were being very successful at avoiding glutens and CC and so your accidental glutening really was your first exposure in a while. Guess what happens if you sleep for 48 hours? Your body puts all its resources back into healing and you avoid eating.. perhaps a self preservative measure to make you avoid having the same thing happen again but at a physiological response level. It makes sense to me how you reacted.

Link to comment
Share on other sites
Salax Contributor

I have to agree here. I also have a Casein issue as well as Celiac and I had a bit of butter without realizing the food I was eating was cooked with it and it kicked my but for about a full day, I felt awful.

My idea is the body is so use to the intake of gluten or whatever

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,214
    • Most Online (within 30 mins)
      7,748

    Julez13
    Newest Member
    Julez13
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      I think sometimes the pain described here can be a result of a sort of 'perfect storm' of contributing factors.  Recently I had an appalling bout of lower back pain, lower burning gut pain and what felt like cramps.  I then started to think about what could have caused it and I realised it was several things that had set it off: I'd been carrying heavy luggage (back strain); I had been sitting down in a car for too long and wearing a tight belt (I have pudendal nerve issues and sacroiliac issues and this exacerbates the pain), and I had bloating and burning pain in my colon caused by eating too much soy, latte and caffeine, I guess putting further pressure in the lower abdomen.  I had this same pain prior to my diagnosis and a couple of years post-diagnosis, I'd quite forgotten how unpleasant it was. 
    • cristiana
      HI @Kirbyqueen That's great news your insurance will be kicking in soon.  Sorry to see that you have been dealing with this for six months now, but I do hope you have managed to find some relief with some of the suggestions in the meantime. Perhaps come back and let us know what the doctor says. Cristiana
    • Scott Adams
      I agree, and hopefully your doctor will contact you soon about the next step, which will likely be an endoscopy to confirm your diagnosis. Do you have celiac disease symptoms? 
    • Kirbyqueen
      Still dealing with this rash on my legs. I've eliminated ringworm (through use of topical ointments). And I also know it's not shingles, as I've never had chickenpox before and I'm still fairly young. Through a lot of online research, I'm leaning more towards dermatitis herpetiformis, eczema, or psoriasis. I've actually got a doctor's appointment in May (finally got some insurance) and I'm going to bring it up then. I'm feeling really hopeful and excited to maybe be getting some relief soon.   Big thanks to everyone for the suggestions and positive thoughts!
    • trents
      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
×
×
  • Create New...