Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Celiac Was On The News This Morning!
0

20 posts in this topic

There was a little girl w/celiac who's first communion didn't "count" because it was with a rice wafer rather than wheat. According the the Vatican doctrine, it must be made of wheat. The mother of course said this is absurd, and is petitioning to get that changed.

Poor little girl! When the interviewer asked what would happen if she ate wheat...she said she would get sick and die. I thought that was a little extreme, I hope the poor thing doesn't really think she'll die if she eats wheat. I know I am new to this and all, but I don't think I want to scare Emmie into not consuming wheat.

Anyway, just thought it was cool that celiac was at least mentioned on the Today show, any publicity is good.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I don't understand what communion has to do with wheat. By that I mean why does the wafer have to be wheat? What is the difference, as long as there are no leavening agents used?

0

Share this post


Link to post
Share on other sites

Here's an article...that issue was raised in......June? But it's recently come to the forefront again: ABC article on it

Plantime...it's Catholic doctrine and the Church is unwilling to break from tradition, if it means being more accomodating to celiac Catholics.

0

Share this post


Link to post
Share on other sites

This issue has been worked over BIGTIME on this board. There are some Catholic parishes that are willing to work with the celiac patient regarding blessing a rice wafer. Some are just not willing to do that because they say that Jesus communed with his deciples on wheat bread and that it must be wheat wafers. We all know what Jesus would have to say about this now, don't we? I feel sorry for celiac patients that are having to choose between their church and their health. As a Lutheran, I take rice crackers snapped in half and everyone on altar guild knows to put one in the plate for me. It will be a long time before the Catholic church settles this matter, though, I am afraid. I just can't imagine making a child feel bad about themselves over such a matter like this.

Barbara

0

Share this post


Link to post
Share on other sites

It's sad that those people have the one way of thinking..I mean Jesus knows the heart of someone who is taking communion and that's what matters...not the ingredients of the wafer.Jesus would not want us to hurt ourselves.

I go to a non denominational church that is similar to baptist and they allow me to bring my own communion and are very understanding.

0

Share this post


Link to post
Share on other sites




O.K., I enter this discussion with a bit of trepidation, but speaking as one who was brought up in the Catholic church and left it many years ago (and to be fair, Christianity altogether) (please, no prayers for my soul), here is something that I thought of as regards this sad situation.

As I recall, in the protestant religions, the wafer is viewed as SYMBOLIC of the body of Christ. But, in Catholicism, it is believed to be TRANSFORMED into the actual body of Jesus Christ. So I ask, why should the initial content of the wafer matter if in the end, it turns into Jesus?

Paula

0

Share this post


Link to post
Share on other sites

As a lapsed Catholic and a bible reader (have read OT & NT cover to cover as I ended up in older years attending a bible-based church) the resolution of this gluten-free host will never come to frutition.

The Catholic Church is slow and plodding when coming to the conclusion that others have reached. Example: Galileo was considered a heretic because he discovered that the earth rotates around the sun, instead of the opposite and for other supposed heresies; Martin Luthe (NOT Martin Luther King.) - church in late 20th century took the "anathema" off him as he professed that Grace/Salvation from God is a gift, not something that could be bought from the Church if you had enough money. They only now realized that Luther was correct and now he's considered a "son" of the church.

So don't keep banging your head against the brick wall. It may not be in our lifetime that they reverse themselves on gluten-free hosts. I suggest that if you are Catholic and feel strongly about this, then write to Rome; go around your Arch Bishop and write directly to Pope. I know Pope won't get to read them; even if he was well, someone would intercept the letters, but the volume alone and the pleas should be recognized.

0

Share this post


Link to post
Share on other sites

Mis spelling above: Martin Luther - years 1483-1546 (also was a Roman Catholic Priest)

0

Share this post


Link to post
Share on other sites

Thanks for the education. Learn something new every day!

0

Share this post


Link to post
Share on other sites

I can't believe that anyone could actually think that Jesus cared which grain was used. But some priests do. My grandmother on my dad's side is a devout Catholic and she cut out this article for me from some religious newspaper since it had Celiac mentioned in it. It was about the girl whose First Communion was invalidated because she used the rice, rather than wheat wafer. I'll quote from the end of the article (oh, by the way, the headline is: Church seeks options for those with celiac disease):

"But giving a gluten-free host, he says, is just playing charades. 'I don't see it as a sign of compassion or care. It's feeding into falsehood. When we offer words like compassion and pastroal concern, we mean them, but it doesn't mean you cn change things. You seek solutions. You provide options., You stand fast with the person who is suffering and encourage them along the way.

'But to those who ask, did Jesus really put emphasis on the material used,' Father Sirianni said, 'the answer is yes.''

I think the last statement (in bold) is the worst...I can't believe he can feel that way. Well, he said "put emphasis." I'd love to ask him, "Would Jesus rather have me poison my body and die?" or "So Jesus wouldn't be satisfied if a Celiac used a rice wafer instead, with the same belief as another?" I apologize if I offend other Catholics, but it just bothers me that they're so steadfast. I, PERSONALLY, am okay not taking Communion...but I am upset for those who aren't okay without it.

0

Share this post


Link to post
Share on other sites

I am rather sick of hearing all these disparaging opinions expressed by non-Catholics about Catholic belief. This is a Catholic matter. We're not in here belittling the belief of other denominations, so leave us be. And when I say Catholic, I mean practicing Catholic, not 'former Catholoc' or 'used to be Catholic' or 'my grandma was a Catholic' or 'I'll pick and choose my beliefs and call myself Catholic'.

It's not up to any priest to decide he will or will not "honor" a host made from invalid matter. The priest was wrong to do this. If the child's mother knew this was wrong, and was trying to join him in an end run around our belief, then she was wrong also. The reason the church invalidated her communion is because it was wrong - the host was not transformed. She did not receive the Body of Christ in her communion.

This is unwelcome news and difficult for all Catholic celiacs, but it is what it is.

I don't know why God made me this way, but He chose to do so, so I choose to obey and work to accept in my heart my situation. He has a reason - His reason and someday I will understand.

It is hurtful to hear one's beliefs insulted and reviled. Please stop!

0

Share this post


Link to post
Share on other sites

I am a life-long, active Catholic. I was dx with celiac 5 months ago. I completely understand the frustration concerning the seeming inflexibility of the Catholic Church regarding wheat-only communion wafers. I would like to share with you my personal experience with this issue.

When I met with my parish priests about receiving communion, they were very compassionate and helpful, even consulting with several religious convents that make low gluten wafers. However, since I attend daily Mass, I did not want to ingest even a small portion of a gluten-free wafer. So I decided to receive only the wine, which according to Church teaching is called transubstantiation and which I believe, is also changed into the Body and Blood of Christ. The substance of both the bread and wine are changed into the real Body, Blood, Soul, and Divinity of Jesus Christ.

In addition to the support of the priests, one of the deacons of my parish researched celiac disease and wrote an essay that was inserted in our weekly bulletin explaining the disease and why I would no longer be receiving communion under both species. This essay not only helped with my initial discomfort of other parisioners asking why I was not receiving the host, but also helped to educate our parish community about celiac disease. Recently, at a fund-raising bake sale, one of the ladies of our parish baked gluten-free chocolate chip cookies!

As you can see, I have been blessed with a loving and supportive Catholic community. I hope and pray that all celiacs who are struggling with this sensitive communion issue will be able to find a respectful resolution as I have.

kschmitz

0

Share this post


Link to post
Share on other sites
I am rather sick of hearing all these disparaging opinions expressed by non-Catholics about Catholic belief. This is a Catholic matter. We're not in here belittling the belief of other denominations, so leave us be. And when I say Catholic, I mean practicing Catholic, not 'former Catholoc' or 'used to be Catholic' or 'my grandma was a Catholic' or 'I'll pick and choose my beliefs and call myself Catholic'.

It's not up to any priest to decide he will or will not "honor" a host made from invalid matter. The priest was wrong to do this. If the child's mother knew this was wrong, and was trying to join him in an end run around our belief, then she was wrong also. The reason the church invalidated her communion is because it was wrong - the host was not transformed. She did not receive the Body of Christ in her communion.

This is unwelcome news and difficult for all Catholic celiacs, but it is what it is.

I don't know why God made me this way, but He chose to do so, so I choose to obey and work to accept in my heart my situation. He has a reason - His reason and someday I will understand.

It is hurtful to hear one's beliefs insulted and reviled. Please stop!

I am Catholic myself...and I go to church, not every week, but often enough to be able to say that I do practice Catholism. I don't take Communion.

I'm not bashing the faith at all...and I guess we can't really blame the priest who made the remark I quoted. He is simply reinforcing what those in authority are saying--and he has no power to change it anyway.

Do you take Communion? Or the low-gluten host? I realize that there is an "alternative" that has been deemed safe--the low-gluten host. But being so strict with this diet, it would be EXTREMELY difficult for me to intentionally ingest gluten--even if the amount is safe. And if we can go 3/4 of the way to a gluten-free host...I don't see why those....20 ppm (or however much is in it) have to be in it at all. And I bet we all get a slight amount of gluten ingestion every day...even if it's under 20 ppm...I'm just scared that if I intentionally ingested more gluten, it might push it over the edge to the point where it damages my intestines.

I realize that it's not the priest's fault for this...it's just that those in authority don't want to break from tradition. And that's nothing against the faith--steadfastness to tradition and ceremony might be what attracts people to Catholism in the first place. I was just saying that not accepting a gluten-free host is about holding to tradition--the way the Communion has been taken for hundreds of years.

I apologize for offending you, though.

0

Share this post


Link to post
Share on other sites

Dear KVOGT,

your unfortunate reaction to some of the remarks made here fully illustrates why I was somewhat apprehensive about weighing in on this sensitive subject. I am responding inasmuch as I am among those who you singled out with some disdain, as a former Catholic. Please know that I was very careful to choose words that expressed my point without sounding critical. The fact that I left the church, and indeed, Christianity as a whole, is not a criticism of anyone's faith. It simply did not suit my personal spiritual needs. You say that the question of a gluten-free host is a Catholic matter; I assert that the basis of every religion and of life itself is compassion, and the people's comments here reflect compassion and concern over a practice that, for Catholic Celiacs (and this is a Celiac discussion group) is causing physical and/or emotional harm...a practice that surely, out of love, could be remedied. Peace be to you.

Paula

0

Share this post


Link to post
Share on other sites

Dear KVOGT:

As a past and present, practicing Catholic, born Catholic, raised Catholic, married Catholic, all my children Catholic, husband teaches in a Catholic school, (does that pass as a "practicing Catholic"?) I can honestly say to you that in all honesty, I most likely will not be a "future" Catholic. My children will continue in the Catholic faith, as my husband will continue to take them every Sunday, but unfortunately I am no longer getting the spirituality out of the Catholic church to fulfill me. Why? Because I have felt more and more increasingly in the past few years that the Catholic church behaves like it is an "exclusive" club that you need to jump through hoops in order to become a member of, rather than an "inclusive" church who is willing to accept me as I am and does not impose restrictions on me just to be "part of them".....

I am not just talking about the celiac issue. I have had several other issues with the church in the last few years (i.e. my children's baptisms). For the first two baptisms, each time we had to go to the "classes" so we would "know what we are doing" (what? like I didn't know already....). But when I had the twin boys, who were preemies, when my husband and I tried to arrange for their baptism, the church insisted on us coming again to the classes, BUT VERY CLEARLY STATED THAT CHILDREN WERE NOT ALLOWED..... When asked how that can happen since I cannot get anyone to babysit four children including twin preemie babies, their response was: "Well, I am sure Pat wouldn't mind babysitting for you." (Pat happens to be my husband's father who is also a deacon at the church). Like I am going to ask a 70 yr old man to babysit four children, including twin preemies!! Also, when we went for the interviews for the baptisms each time, we were put through what I can only describe and the "Spanish Inquisition". And this is a church that we have belonged to since we were kneehigh to grasshoppers!!!

My husband ended up going to the class alone, and he stated that of the 20 couples who were there to get their babies baptised, by the end of the evening, after all the criteria had been laid out on the table, only 3 couples ended up being "worthy" of having their children baptised...... Sad.

Another example was my wedding. There was never any question in my head that my sister, whom I love dearly, would be my matron of honour. Well, I had to fight my way for that one also because, although being Catholic since birth, since she married a Greek Orthodox, she was somewhat "disqualified" and not "worthy" to be my matron of honour in the eyes of the Catholic church.

So, I am sorry if this post has upset anyone, but I am even more sorry that I have to go on a journey to find a church who is more in line with what I require spiritually and emotionally. I just can't "live up to" what the Catholic church requires of me.....

Also, I had assumed that this forum was to have constructive conversation, debates, opinions, etc. I wasn't aware that gave us the right to "attack" someone like I believed you attacked celiac3270. Again, to me that was just another example of the Catholic church's "It's our way or the highway!" celiac3270, as far as I am concerned, you have EVERY RIGHT to post your opinions without fear of reprisal.

Peace.

Karen

0

Share this post


Link to post
Share on other sites
Also, I had assumed that this forum was to have constructive conversation, debates, opinions, etc. I wasn't aware that gave us the right to "attack" someone like I believed you attacked celiac3270. Again, to me that was just another example of the Catholic church's "It's our way or the highway!" celiac3270, as far as I am concerned, you have EVERY RIGHT to post you opinions without fear of reprisal.

Peace.

Karen

Yes celiac3270 you have the right to post that. Not everybody agrees on these debates and I for one do agree with you celiac3270. I am not a Catholic but if I was I would not take communion either because I will not take gluten in any amount. Kvogt-celiac3270 was not attacking anyone or trying to be disrespectful in any way...he was voicing his opinion on what he thinks just like you did.

0

Share this post


Link to post
Share on other sites

Also, forgot to mention that I am in the unfortunate predicament of not feeling comfortable taking the low gluten or OR the wine. You see, I have lived through SARS first hand, and unfortunately it has left its scars.

My grandmother had a massive heart attack three days before the SARS outbreak. She was taken to Grace Hospital (the location that the outbreak started). We were told that she had 24 to 48 hours to live and that most people in their 70's don't survive that massive of a heart attack (Nanny was 92 at the time). Well, we were with her night and day because we didn't want her to die alone. Miraculously, she survived, and is still going strong today (she is now 93), it must be the Irish in her!!!! ;) We were informed while in the hospital that we must go home immediately and stay under quarantine for 20 days as we were in the next room to the people who brought SARS here when we were down in emergency. I had to stay in a room away from my children and family for 20 days, terrified that I was going to die because of this insidious disease. Miracles do occur, and not one member of my immediate family or other members at the hospital for those days, ever came down with SARS. We counted our blessings.

But to this day, it is ALWAYS in the back of my mind about germs, washing my hands disinfecting things, etc. etc. The thought of drinking out of the same cup as 20 other people at church, even though it is wiped with a "hanky" after each one, just sends shivers down my spine. I'm sorry, but to me a "hanky" is not going to wipe away any diseases of the rim of that cup. And one thing I have learned living through SARS, IT CAN HAPPEN! This pandemic that they keep talking about, CAN HAPPEN. This worldwide epidemic of SARS started in North America RIGHT IN MY BACKYARD, I WAS RIGHT THERE FIRST HAND! So, yeah, I am now overly cautious.......

Now my husband teases me and calls me "Howard Hughes" !!! :lol:

Peace

Karen

0

Share this post


Link to post
Share on other sites

To think that Jesus would care if our communion wafer was not wheat goes against everything we are taught about Jesus.

I can see where the priests are coming from, but they are forgetting the basic principles of their faith.

0

Share this post


Link to post
Share on other sites

As a former Catholic I am very dismayed at the approach the church has taken on communion. I inquired with several local Catholic churches about gluten free communion and there response was "No, that is not allowed." My response was "What do you think Jesus would do? Do you think that Jesus would force someone to eat something that would harm them?" When I asked that question they just hung up the phone on me. I simply cannot be a part of an organization that is that intolerant and clueless. It sounds like there are some Catholic churches that get it but not where I live.

Ianm

0

Share this post


Link to post
Share on other sites

Being more Catholic than any other religion I am content to sit out, I wonder if acceptance of God's gift to us through our guts will help us "commune" with Him in just as good a way as the conventional way. It's the only life God gave me and it's been very strongly shaped by the kind of guts God gave me. It's the only life I'll have. It's awesome.

Michael

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,681
    • Total Posts
      921,725
  • Topics

  • Posts

    • I also only really eat one meal a day and always after I get home. I never really feel hungrey. I call it 'Pavlov's dog in reverse'.  I think it comes from so many years of food making me sick. I have gotten to the point where I now at least can eat a sandwhich and some fruit during the day but it wasn't a quick process. When folks get like that it is very important to make sure that one meal has a good amount of both calories and nutrtion.  If your diet is how you describe you are starving yourself.  You need to get yourself used to eating again.  What helped me was carrying a baggie with some nuts and dry fruit with maybe even a handful of gluten free pretzels and always some chocolate baking chips. I just ate couple pieces when I thought of it throughout the day. A little bit of cheese and a couple safe crackers, a piece of fruit or a small tin or individual serving snack pack are also good. You need to get some nutrition during the day so you can feel up to cooking a simple full meal  for dinner. I hope your feeling better soon.
    • Ok, I can't seem to find my first lot of blood tests that were done for Celiac screening, they did include TTG I remember that much, and I am getting another copy of it but another test did come in today.  I don't know how different tests are done around the world and I don't get all the medical jargon but this is what it states, ******************************************************************************* HLA DR/DQ Genotyping for Coeliac Disease, Specimen type : EDTA blood Method : Detection of sequence-specific oligonucleotides (Gen-Probe). HLA-DR - 1, 13          DRB1 - 01, 13 HLA-DQ - 5,6        HLA-DQA1 - 5,6      HLA-DB1 - 05, 06 Interpretation : No genotype susceptibility for coeliac disease.  The DQ2 and DQ8 antigens associated with increased risk of coeliac disease were not identified in this patient.  In the absence of these antigens, coeliac disease is extremely unlikely.   *******************************************************************************   I have read the horror stories of blood tests and scope biopsies not be done right or flawed but here is what I do know as of now, At the moment the most non invasive test I can have done say negative.  I have double scopes (endoscopy and colonoscopy) booked for the 12th of October with results from biopsies expected a week or two after. Chances are they will show, a) signs of coeliac disease (even if the odds are low it can still happen), b) show signs of something else entirely and we will be busy dealing with the ramifications of that or c) it will show no signs of coeliac but I will still be suffering from gluten sensitivity (which is harder/impossible to measure clinically). My GP has told me that stress and anxiety can be a cause of all the symptoms I have been experiencing and suggests if the scopes show nothing that I may benefit from something to treat anxiety, i.e. antidepressants.  Not in a, "Oh we don't know what it is so have these," kind of way, he agrees with the thought that the scopes could indeed show coeliac, something else or even be negative. I did tell him that I could have a sensitivity and that even without benefit of clinical results, some people have gone on a gluten elimination diet for a period of time to see if they get any relief.  My question is this, if the scopes come up negative and I try eliminating gluten, how long would it be before I saw any results or improvements?  I have read enough here and elsewhere to know that everybody is different, some see results within days, some see results longer but are there any guidelines for how long a test like this should be undertaken for?  I have heard everything thing from two weeks to two months.  All of this is entirely moot at this point but I know that even if the results said clear, there would always be a little part of me that wonders if it could be a sensitivity that is the problem.  Any thoughts or advice greatly appreciated, and a thank you to all those who have taken the time to respond and offer advice and encouragement so far.        
    • We don't delete accounts but can delete any personal information and change your screen name if you would like. Just send me a personal message with three possible screen names. For the record you can edit most things in your account area with the exception of your screen name.
    • Thanks I never heard of that dye before, I guess I have to find more natural meat thanks for the suggestion. 
    • Yes, I only eat one meal a day. Sometimes salad or fries or whatever I can find. And thanks for the replies again.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,680
    • Most Online
      3,093

    Newest Member
    Misalina
    Joined