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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Joint Pain And Celiac Disease
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8 posts in this topic

I am a 39 yr old Indian male. I have just been given the verdict that I have celiac disease. I have seen a rheumatologist about an year ago for joint pain, the investigation led to celiac disease. My doctor also mentioned that celiac disease alone can cause joint pain but Rheumatoid Arthritis is not ruled out even though it's not discovered in the blood.

My question for this forum...

Fingers on both my hand are stiff in the morning, it is little stiff even when I type on the keyboard for a long time. This symptom is there for at least 2/3 years. My vitamin B and D levels are also low.

Did someone feel the same way during the onset or during the course of this disease. I think I have this disorder for a long time even though it's just diagnosed.

Thanks

Tas

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I had bad joint pain for about 12 years before diagnosis. After about a year on a gluten free diet it was gone. My finger joints were so swollen in the morning I had to stop wearing rings. Getting them off was a challenge even in the evening. I had ankle pain that caused me to quit dance classes. I had trouble holding my children in the morning because of wrist pain. Back pain was almost constant. Knee pain too. Now it only comes back with accidental gluten exposure. I hope that yours will go away too. Be patient, I didn't notice any difference for months.

Stephanie

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I had joint problems for more than a year before I was diagnosed with firstly, polymyalgia rheumatica, then rheumatoid arthritis (although blood test is RA negative), and finally, when the psoriasis appeared, with psoriatic arthritis. All of this was since 2000. Went gluten free November 2007. Sadly for me, the joint problems have not resolved; I have months when I am mostly okay and then will have a flare for 3-6 months--the psoriasis so far has not gone away, but I think my latest med. might be making a difference. Here's hoping.

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I am a 39 yr old Indian male. I have just been given the verdict that I have celiac disease. I have seen a rheumatologist about an year ago for joint pain, the investigation led to celiac disease. My doctor also mentioned that celiac disease alone can cause joint pain but Rheumatoid Arthritis is not ruled out even though it's not discovered in the blood.

My question for this forum...

Fingers on both my hand are stiff in the morning, it is little stiff even when I type on the keyboard for a long time. This symptom is there for at least 2/3 years. My vitamin B and D levels are also low.

Did someone feel the same way during the onset or during the course of this disease. I think I have this disorder for a long time even though it's just diagnosed.

not unusual at all. since gluten/gliadin triggers an immune reaction in your body, depending on the type and severity of that response, nearly ANY 'autoimmune' or immunity-related reaction is possible. my wife had similar joint problems as her celiac disease progressed and, now, when inadvertently exposed to dietary gluten gets swollen joints (especially fingers). a particularly bad episode (as we were learning just which foods contain gluten -- labelling in MUCH better these days), her knees were inflamed to the point she could not walk.

i have always wondered about the use of RA drugs (esp those that are interleukin or TNF antagonists) to treat symptomatic celiac patients. curiously, abatacept which acts on T-cells of the immune system, has been used to treat psoriasis. they can't CURE celiac; but, might have a more direct effect on the patients with transient exposure; or, to provide relief to patients just beginning a gluten-free diet (might drasticall shorten the time to relief of symptomology...).

this is just a thought, that's been rolling around my head for a while. i'm sure these drugs have NOT been approved for this use.

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Deficiencies in the vitamins you mentioned - B and D, can exacerbate the joint problems you describe. Some mineral deficiencies can too. If it were me, I'd take a good, strong B-complex, vitamin D3, magnesium, and a separate sublingual methylcobalamin (active form of B12), at least 3mg per day. The last two helped me quite a lot. The difference was seemingly miraculous, and I continue to take them, and others.

The damaged gut basically means malabsorption, making it harder for the body to get enough nutrients to maintain itself. The nutrients mentioned, along with others including calcium, iron, and I suspect more, are quite commonly deficient amongst celiacs. Many report that supplements help even when tests indicate levels within what the medical profession regards as the normal range.

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I had the identical symptoms you mention tas-- still do. My fingers are stiff in the mornings and I have pain in hips, knees and ankles.

Hang in there!

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yes, my joints seemed to suddenly "age" about 9 mos before my diagnosis (ankles, knees, hips, elbows, hands especially - mild to moderate pain, plenty of creaking, some swelling). My hips had been somewhat sensitive long before that, and sometimes my fingers would 'freeze' up - the knuckles not responding to my brain's instructions.

Once gluten-free, all joint issues resolved pretty quickly and close to completely. I do get joint pain when glutened sometimes - it's one of the ways I can tell if it was a glutening or just some run-of-the-mill GI issue.

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magnesium, and a separate sublingual methylcobalamin (active form of B12), at least 3mg per day. The last two helped me quite a lot. The difference was seemingly miraculous, and I continue to take them, and others

Just wanted to say thank you. Your mention lately of the improvement with Magnesium sparked me to read a book on the subject. I have now increased my dosage with very good results. I started the B12 a few months back and that has also been a great change for me. I would recommend any one to check into these supplements and the relief possible from them.

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