Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

My Son Saw Gi Doctor Yesterday
0

9 posts in this topic

Hello! I joined this message board a few weeks ago and I first want to start by saying THANKS to all of you. Everyone has been so helpful therefore reducing my stress greatly. Now to my son, his pediatrician sent us to a Pediatric GI doctor to check for Celiac, due to an increased AGA IgG level. When we went yesterday, she immediately put him back on a regular diet (he's been gluten-free for over two months) for 2-3 months. She did order all 5 blood tests yesterday even though he's been gluten-free for awhile. She is also having us collect stool so that she can check the fat content. At the end of the 2-3 months, she wants to repeat the 5 blood tests and if they show positive for Celiac, she wants to order DNA testing. I was shocked when she said this beacuse in all the posts I've read, most doctors won't order this. Am I correct? She never mentioned anything about scope or biopsy, just the blood tests and the DNA testing. What are your thoughts on all of this? Any information will be greatly appreciated.

0

Share this post


Link to post
Share on other sites


Ads by Google:

It sounds like she is starting with the least invasive tests first. If she comes up with positive results from the bloodwork and stool sample, she might not order an endoscopy. Although she might order it later to determine the extent of damage, but that will depend on what she finds in the other tests. It is my ~humble~ :D *opinion* that she is starting off very well! Perhaps you have found a good GI doc for your son!

0

Share this post


Link to post
Share on other sites

I am not sure if some doctors opt not to do that for celiac but it sounds like you found a good doctor who is being very thorough. My GI doctor ordered the 5 tests plus the gene test and at that point I had no clue what I needed to be tested for. Keep us posted :D

0

Share this post


Link to post
Share on other sites

Hi - I have a post out there, I'm new. I just read yours and wondered what are the 5 tests, and what gene test is being discussed?

My son, now 2 1/2, has not gained weight in over a year. The doctors don't seem to know what to do other than suggest a feeding tube but that terrifies me.

He was fine on baby food and Alimentum. The trouble all began with table food. He has foul-smelling stool, often has gas, and burps all the time.

My post has information about me (still up in the air) and since you mentioned a gene test, at this point, I'd do just about anything to find out what's ailing us both.

0

Share this post


Link to post
Share on other sites

trying4faith:

The thought of a feeding tube makes me want to vomit! FIND A NEW DOCTOR!! BLECH!!!!!!!!!!! My daughter, almost 4, just finally hit the 29-pound marker! I was thrilled, needless to say. She has been at 28 pounds for at least the last 6 months. In fact, she can now share some shirts with her 1-yr old sister! I suspected food allergies earlier this year. They tested her - and she's allergic to 7 different things. I brought her in for a follow up the other day, and they drew more blood. They are checking for celiac disease, cystic fibrosis, and "some other things" that can cause failure to thrive in a young child. What I *totally* appreciated - is that they're doing all these tests at once. So she only needs to be poked one time. They're also doing the stool test for fat that was mentioned in the original poster's message.

To answer your question on the 5 tests: I don't know them offhand. In the topic about testing and diagnosis.... I recently asked the question "Exactly what tests do I need". There is a terrific answer there - shows the long name (and abbreviated name) of all the 5 tests. You know... when it comes to our children, they should always start with the least-traumatic tests first. Drawing blood is harsh on them for a few minutes - but the terror goes away quickly. I can't imagine having to put a feeding tube in my daughter!!!! That would be just plain awful!!

If my daughter's test come back negative or inconclusive, we will probably just try the gluten-free diet and see what happens. I would certainly try the diet before putting her thru any invasive procedures (biopsy, etc...).

*hugs*

0

Share this post


Link to post
Share on other sites




These are the 5 tests I was talking about:

-Anti-Gliadin (AGA) IgA

-Anti-Gliadin (AGA) IgG

-Anti-Endomysial (EMA) IgA

-Anti-Tissue Transglutaminase (tTG) IgA

-Total Serum IgA

These are the most common tests for celiac.

0

Share this post


Link to post
Share on other sites

Thank you for the replies. I believe I was tested for three of the 5, plus wheat. Aidan, my son, has had blood drawn many times, unfortunately.

I do not know what exact tests were conducted for celiac disease for him, but will follow up with his GI and ask. I was told she is very familiar with celiac disease in children, she's at UNC hospital.

The idea of a feeding tube chills me as well. I've been putting that off for some time now.

His food allergy panel is positive for dairy, egg (very high), moderate for soy, and mild for peanut. He won't eat chicken or fish no matter how much I try to disguise them. Does not eat red meat either, but will eat pork.

It's been very hard. If anyone knows of a good cookbook for gluten-free foods for children, I'll try it. The issue is, of course, he goes to daycare so it will be a real challenge to remove G altogether.

0

Share this post


Link to post
Share on other sites
Thank you for the replies.  I believe I was tested for three of the 5, plus wheat.  Aidan, my son, has had blood drawn many times, unfortunately.

I do not know what exact tests were conducted for celiac disease for him, but will follow up with his GI and ask.  I was told she is very familiar with celiac disease in children, she's at UNC hospital.

The idea of a feeding tube chills me as well.  I've been putting that off for some time now.

His food allergy panel is positive for dairy, egg (very high), moderate for soy, and mild for peanut.  He won't eat chicken or fish no matter how much I try to disguise them.  Does not eat red meat either, but will eat pork.

It's been very hard.  If anyone knows of a good cookbook for gluten-free foods for children, I'll try it.  The issue is, of course, he goes to daycare so it will be a real challenge to remove G altogether.

<{POST_SNAPBACK}>

0

Share this post


Link to post
Share on other sites

To whoever asked about good gluten-free cookbook for kids: Incredible Edible Gluten Free foods.

Re; those who think you should not do biopsy b/c it is so invasive, I respectfully disagree. We just had one for our 4yo who had positive blood work. It was not that big a deal, and the dr. got to see the extent of the damage, and got to look at her body on the way down. She diagnosed an ulcer which could be the cause of our daughter's anemia, and gave us ways to treat it. In short, going in for a look seems to me to be the wisest way to go, especially since it is the "gold std." What if you just go gluten-free and don't know about some other problem that could be caught via endoscopy? Also, I know celiac disease mimics some other diseases (such as cystic fibrosis, Crohns) and the biopsy was not consistent w/ these, thankfully (although I'm still doing the sweat test next week for my own well-being). We bought the book "Eating Gluten Free With Emily" for kids, which my daughter loves, tells all about the diagnosis, etc.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,885
    • Total Posts
      919,478
  • Topics

  • Posts

    • Eeek confused! Positive biopsy, negative blood test???
      Thank you! My PA said that she still thinks it's celiac....but I don't feel like she's fully explained why. Some people are hard to get a solid answer out of! I think I'm gonna get a second opinion somewhere else.....appreciate the feedback. Makes me feel a little less crazy
    • Potato Crusted Quiche Breakfast Casserole (Gluten-Free)
      Here is the Potato Crusted Quiche Breakfast Casserole that my Significant Other came up with. View the full article
    • I'm actually scared to go to the doctor and could use some advice
      Hello Elle Among this online community you are not alone in either your symptoms or how you feel about visiting the doctor.  I for one understand the anxiety that you are going through, my own weird nerve stuff and other puzzling symptoms have had me really scared at times.   So much you are going through could very well be gluten related, it really could.   But if it isn't, in the end it is worth trying to find out what it is going on so you can get the treatment you deserve. After all, it could have a really simple, treatable explanation, once the doctors know what it is. I remember reading on another website something that has helped me with my own health anxiety - if one can summon up the courage to go and see the doctor, one should pat oneself on the back and be proud of oneself for doing the right thing.  I'm not terribly keen on the idea of being a proud person - but I think it was meant in the best sense, and it is always good to do the right thing, even if one does it afraid!  It always makes me feel that bit stronger when I'm in the waiting room at the doctors! There is lots of great advice above.  Do take it and make sure you come back if you need further support. There are some fantastic people here to help.        
    • I'm actually scared to go to the doctor and could use some advice
      Hi Elle......do you think you would have better luck obtaining a full Celiac panel from your GP or a gastro doc?  You really need to be tested for Celiac because of all your symptoms.  Many other people probably thought they were dying of some horrible disease because they had so many symptoms that docs ignored.  Very common problem for us.  Plus, your Mom has had "IBS" all her life.  I should add that IBS is not a diagnosis.  No one needs to be told their bowel is irritated......they already know that.  This is where the medical establishment, no matter where you live in this world, fail us.  They need to find the root cause and there always is one.  You also do not need to have any gastro issues to be a Celiac but you do have some, along with all your symptoms mentioned.  Anxiety is a huge problem with Celiac Disease and for many, it goes away just fine on the gluten-free diet, without need of meds...which should always be a last resort measure.  I have never had an anxiety problem in my entire life until after I was diagnosed with Celiac.  I may have had it but with all the other numerous symptoms I had, the anxiety may have gotten buried somewhere.  But guess what? On the extremely rare occasion when I am glutened or cc'd, I get major anxiety for about 4 days and then its gone. B12 is a water soluble vitamin so whatever you don't use, it exits the body in your urine.  It is pretty damn hard to overdose on the stuff.  I take a B vitamin everyday, very high quality ones and my B12 is usually in the high 600 range.  Optimally, it should be between 650-800 so yours was abysmal pre-supplementation.  Absorption can also be affected by PPI's.  You did notice improvement with the tingling sensation and fatigue once your levels were way up so take notice of that. My biggest advice is to get your mother and you tested for celiac, with a FULL PANEL. Then you'll have to wait and see what that shows. You could always trial a gluten-free diet if all testing is complete and the results were either negative or inconclusive. That sometimes happens with people, especially if they have Celiac's other cousin......non-celiac gluten intolerance.  This would be the best route to go with regards to your anxiety, unless it becomes disabling and you need meds, short term. Make sure you tell them that anxiety is a HUGE symptom of Celiac and it is not normal for younger people to have extreme anxiety like that, for no reason. Good luck to you and please call and make the appointment. I understand your fear....I hate doctors and it's pure mistrust. But sometimes you have to address a problem head on.    
    • newbie diagnosed mom - testing 8 yr old now
      good to know. I am not going for a biopsy. I do not have health insurance, i know i know please no political comments. My children do. My husband and I don't right now. If we lived in another state, we would have coverage. I just made an appt to do a full blood panel for my daughter this week. I would rather find some confirmation for her through a blood test, i feel a scope is too invasive for a child. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,929
    • Most Online
      1,763

    Newest Member
    Robyn08
    Joined