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Csa Regional Conference - Dc Metro
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***CSA/USA REGIONAL CONFERENCE, MARCH 27TH***

TYSON'S CORNER

CSA/USA Celiac Sprue Chapter #100

DC Metro Regional Conference & Dinner

March 27th 12:00pm - 8:30pm

Sheraton Premiere at Tysons Corner

8661 Leesburg Pike, Vienna, VA

Meeting Flyer can be downloaded at: http://www.wifidoctors.com

Keynote Speakers:

COMPLICATIONS OF CELIAC DISEASE

Peter H.R. Green, M.D.

Director of the Celiac Disease Center at Columbia University

Professor of Clinical Medicine at Columbia University, College of Physicians and Surgeons

"Mortality rates among adult Celiacs is about two to three times that of the general

population. In the first portion of Dr. Green's lectures, he will be discussing Celiac Disease's

relationship to mortality rates, it's autoimmune connection, fertility complications, and

related neurologic problems."

HEALTH BEYOND CELIAC DISEASE

Margaret Gill, M.D.

Mayo Clinic and Foundation Rochester, Minnesota Department of Family Medicine

"Dr. Gill lectures on her personal experiences as a Celiac and how to master the diet

--and follow it. She also provides medical guidelines for your health care provider on

monitoring your health and also discusses other preventative issues such as Cancer

screening guidelines (Breast, Colon, Cervical, Prostate, Lung and Ovarian), Osteoporosis

and Immunizations."

GLORIOUS GRAINS

Anne Roland Lee, MSEd, RD, Nutritionist, Celiac Disease Center Columbia University, New York

"Anne's research recently published in the American Journal Of Dietetics on the

"Effects of the Gluten-Free Diet on the Quality of Life of Individuals with Celiac Disease"

and her Nutritional Assessment Tools developed for dietitians to use while counseling patients

with celiac disease, provides for an insightful lecture on nutritional concerns with an emphasizes

on the nutrient benefits of the variety of grains available at the marketplace.

SPRING-TIME CUISINE: NATURALLY GLUTEN-FREE!

Glutenfreeda.com's chef, Jessica Hale

Explore delicious, wonderful naturally gluten-free foods this spring without shopping by mail

order or hunting down those products that are sometimes, if not always, difficult to find.

Glutenfreeda.com's chef, Jessica Hale, invites you into her "kitchen" to share some helpful tips

on how to enjoy living on a gluten-free diet. In this class we will demystify a classic Italian

dish and prepare a mouth-watering springtime entree and dessert perfectly suited for your entire

family or even special dinner guests.

Reserve your spot in this fun and informative class today! (fee for cooking class)

THE BASICS OF GLUTEN FREE BAKING

Lee Tobin, Whole Foods

In his lecture, Lee will discuss the basics of gluten-free baking, and give an update on

the gluten-free baking program that he is developing at Whole Foods Market.

Conference attendees who are interested in attending a tour of the grocery aisles at the local Whole

Foods Market at 143 Maple Ave. East Vienna, VA at 10:00am before the sessions begin, please email

Lee at: lee.tobin@wholefoods.com

***CHILDREN'S PROGRAM*****

CHILDREN'S EDUCATIONAL WORKSHOP

Nancy Patin Falini, MA, RD, LDN

Author of "Gluten-Free Friends An Activity Book for Kids"

All children who register by March 15th and attend the workshop, will receive a free copy of Nancy's

"Gluten-Free Friends An Activity Book for Kids", compliments of the CSA/USA Inc.

"Breakfast", "Lunch", "Dinner" and "Snacks"

Jessica Hale, GlutenFeeda.com

Chef Jessica Hale will discuss and prepare Kid's favorite foods

***SPECIAL PRESENTATION****

CELIAC CHICKS DOT COM

http://www.celiacchicks.com

Kelly Courson & Kim Danyluk

Kim and Kelly felt there was room on the World Wide Web for a site that was informative and entertaining

to help deal with the restrictions of celiac disease, and make the sometimes difficult transition a

little easier. It really doesn't have to be a drag! So, CeliacChicks.com was born as a way to share

their discoveries and save you the trouble of trial and error. Learn about their trials and travels

at this fun, informative lecture.

****MORE!!!***

GLUTEN FREE BEER (yes, gluten-free beer from Ramapo Valley Brewery)

SHOPPING AT THE MEETING

Healthway Natural Foods

It's Healthway Natural Foods philosophy is to provide the local community with the highest quality

natural products, a friendly knowledgeable staff, and great value without compromising integrity

or quality. Shop at one of nine locations in our area where you'll find only 100% certified organic

produce and a variety of gluten free products. Please take advantage of this opportunity to discover

and sample new Gluten Free products for purchase and to take home from the meeting.

The CSA Gluten-Free Product Listing 8th edition-October 2003

For Sale at the Meeting...only 30 copies will be available.

Free Taste Testing of Gluten Free Products

gluten-free DINNER

Mixed Greens w/candied Pecans & Cranberries

Dinner Rolls donated by Gluten Free Delights and Chebe Breads

Basil & Pine Nut Pilaf

Seasonal Vegetables

Grilled Herb & Balsamic Vinegar Chicken Breasts - Casein free

Teriyaki Salmon - Casein free

Steak Fajitas with Corn Tortillas

Chocolate Raspberry Pound Cake

Dairy-Free Carrot Cake

All Adult Entrees $29.95 (Earlybird Registration Price till March 15th)

Children Entrees $12.00 (Fajitas)

Contact CSA/USA Chapter #100 Chairperson for registration or more information at

mvineyard40@aol.com or 703-471-5047

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    • Susan Nash - this is interesting. Do you know anyone who has had success with supplements?  My doctor has just said to me that she has noticed a lot of celiac ladies have thinner hair in later life.  Obviously, that is just her observation. But I am going to ask for some vitamin and mineral testing so I can supplement any shortfall in case that is a problem.  I also am iron anemic which I'm sure isn't helping.   I have also read it is important that people who are worried about hair loss make sure they are eating enough protein.
    • Previous studies have indicated an increase in celiac disease rates in the United States, but these studies have been done on narrow populations, and did not produce results that are nationally representative. View the full article
    • No worries!!! 

      Yes I've been completely gluten free for over a year now, except when I get glutened from restaurants etc. My 'traces symptoms' have always been major bloating and lots of bathroom breaks but now during my gluten challenge so far I've had some super crazy symptoms... varying from loose stools to severe constipation, bloating 24/7, shortness of breath, rash, joint pains, mood swings, brain fog, headaches and some sharp pains similar to brain freeze but worse... the list goes on, but I'm determined to have a definite result! 
    • Ennis_TX - Your post rings true with me. I was only diagnosed in May, but from May through.... basically two weeks ago, I was out of my mind. I completely understand when you describe it. I had zero self control. I retired from the Army after 21 years and had always had pride in myself that I could handle just about anything thrown my way. That was until this disease. I found myself sobbing uncontrollably, not getting out of bed till late afternoon, hiding in the bedroom from my own family, missing work, not being able to make simple decisions, I was getting at most, 3 hours of sleep a night. I would sit up in bed and literally scream out loud in frustration. I asked my wife several times to bring me to the VA Psyc. ward (which she talked me out of). I had no pleasure or happiness in my life even though I have a very supportive wife of 32 years, and two ideal kids with three grandkids. I had NO reason to feel the way I did, but yet, there I was. And like you mentioned, I too had a "Bucket List" per say.  To top it all off, I had this horrible muscle pain in my legs and arms. Joints a little, but the muscles were in constant pain. One month ago they diagnosed me with Fibromyalgia. At this point I am not willing to accept that diagnosis.  They started me on Gabapentin and these last two weeks I have actually started feeling less pain in the muscles and my mind is bouncing back too. Although the muscle pain came back a bit Sunday, and has me a little concerned. I keep telling myself it has only been 4 months gluten-free, and that it will take time. But I have to admit, I do not have much patience and I want to start feeling better now.   I ran into an old Army friend a few weeks back, and he had been diagnosed in 2009. He told me everything he went through and other than diarrhea and an inflamed throat, his biggest symptoms were depression/anxiety and brain fog. He said his wife was so worried she sold all of his guns. He would sometimes find himself in the backyard just curled up in the grass wondering when it would end for him. Absolute craziness. When I shared the issues I was having he could relate 100%. He said he hasn't met anyone else that went through the same things as him and it was therapeutic for us both. He told me of some places that were Celiac friendly, and we agreed to let each other know when something new hits the market, or any other good news via text. Back in May I searched for a celiac support group near by, but no luck. I stumbled on this forum and it has helped me tremendously. Stories like yours helped to insure me I was not losing my mind. Which, I might add, I told many VA & civilian Psychiatrists that indeed I was. Thanks for your post, and I hope nothing but the best for you, here forward. Dharwood
    • It is enough for the endoscopy, but not for the blood panel.  It could be worth trying for the blood test, but there is a greater chance of it being negative.  I assume you have been gluten-free for a while.  I admire that you were able to do the gluten challenge!  (I guess I should have pulled up your previous posts, but I was busy getting my kid to school.)
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