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Is Dapsone Discontinued In Some Places?

declan

By declan
in Dermatitis Herpetiformis

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declan Newbie
declan
Posted

I have had itching since i was a small child, horrible time, i don

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lovegrov Collaborator
lovegrov
Posted

Probably a local thing.

You should realize that because you have DH, you have celiac and are most likely doing yourself damage other than itchy skin. My father had few symptoms other than DH but at age 70 was diagnosed with definite celiac. He went gluten-free but still lost most of his teeth, most likely because of the years of eating gluten. I also had DH and and have been completely off dapsone for 8 years now.

There are many wonderful sauces that don't contain gluten and, at least where I live, curry doesn't contain gluten.

good luck

richard

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flourgirl Apprentice
flourgirl
Posted

I have to agree here. You could be sustaining so much more damage than just itchy skin! I happen to be one who has many symptoms, DH as well as severe intestinal damage. If you do a little research, you'll see the possible consequences of avoiding the gluten free diet. There are so many food options available to you....and many substitutions for wheat flour. I don't often feel like I'm missing out on anything. Occaisionally I feel like I miss the convenience of pre-prepared foods, but mostly I feel there is nothing I can't have...it's just different, and much, much healthier. I would urge you to do some reading, and not just here, for your own sake.

My DH was horrid. I had problems for years without knowing the cause until fairly recently. Now that I know the cause, and avoid it, I also avoid the painful, debilitating rash. I also can avoid a lot of other health issues. Good luck to you!

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  • 2 weeks later...
declan Newbie
declan
  • Author
Posted

Thank you. At the very least you made me realize how lucky i am, i have a very very mild form of DH.

I will look into a GFD, but am not looking forward to it. However my partner says that we can do it, so we

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ravenwoodglass Mentor
ravenwoodglass
Posted
Thank you. At the very least you made me realize how lucky i am, i have a very very mild form of DH.

I will look into a GFD, but am not looking forward to it. However my partner says that we can do it, so we

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