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Chrone's & Celiac? Or Ulscers?


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3 replies to this topic

#1 raisin

 
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Posted 15 April 2009 - 05:22 PM

I'm kind of freaking out. In 2 weeks I will have my medical records, but not officially have insurance for another full month (If I really rush it, maybe 3 weeks), and just want some information or peace of mind to hold me off until I can get formal testing done. For reference, I am age 19 and female.

I feel fine in the morning, and in the evening/night, I get sick. Practically every day for years. Salad makes me feel better. One of my parents has a hernia, and suspected stomach ulcers when my age, but testing wasn't available at that time. I'm getting tested for H. Pylori (stomach ulcers), but now I am also wondering about Chrone's or Ulcerative Colitis? Most alarmingly, I have been finding recently, bloating (constipation), then that there is mucus in my stools, and maybe rectal bleeding??


Current condition in simple terms :
* No vomiting, cramping, or diareah problems at all.
* No vitamin deficiencies, recently (finally) gained a little weight.
* A "spell of sickness" = stomach pains, belching, dizziness/tiredness, bloating, shaking hands, feeling cold? usually 1-2 hours
* Eczema, acne, constipation & mucus, eye irritation, tonsil swelling. (But that sounds like allergy symptoms??)
* As a child : chronic tonsillitis, large/long-lasting mouth ulcers, delayed growth, skinny, picky with food, stomach/joint pains.
*Temperature normally 97.6-97.8 (f)

Something other than just celiac is wrong with me, any idea as to what??
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#2 heathen

 
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Posted 16 April 2009 - 02:13 PM

I'm kind of freaking out. In 2 weeks I will have my medical records, but not officially have insurance for another full month (If I really rush it, maybe 3 weeks), and just want some information or peace of mind to hold me off until I can get formal testing done. For reference, I am age 19 and female.

I feel fine in the morning, and in the evening/night, I get sick. Practically every day for years. Salad makes me feel better. One of my parents has a hernia, and suspected stomach ulcers when my age, but testing wasn't available at that time. I'm getting tested for H. Pylori (stomach ulcers), but now I am also wondering about Chrone's or Ulcerative Colitis? Most alarmingly, I have been finding recently, bloating (constipation), then that there is mucus in my stools, and maybe rectal bleeding??


Current condition in simple terms :
* No vomiting, cramping, or diareah problems at all.
* No vitamin deficiencies, recently (finally) gained a little weight.
* A "spell of sickness" = stomach pains, belching, dizziness/tiredness, bloating, shaking hands, feeling cold? usually 1-2 hours
* Eczema, acne, constipation & mucus, eye irritation, tonsil swelling. (But that sounds like allergy symptoms??)
* As a child : chronic tonsillitis, large/long-lasting mouth ulcers, delayed growth, skinny, picky with food, stomach/joint pains.
*Temperature normally 97.6-97.8 (f)

Something other than just celiac is wrong with me, any idea as to what??


If you are not having the big D, crohn and ulcerative colitis are way down on the list of possibilities. rectal bleeding can be from hemorrhoids--especially if you've been having constipation and straining. you may want to check out your thyroid function, or you could just have a bug to explain the fatigue and chills. I think many of us are really sensitive to any changes in our bodies, and we tend to think that we have another big disorder because we suffered so long without a diagnosis for the Celiac Disease--kinda like "once bitten, twice shy." i hope it turns out to be something simple and easy to treat.
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Diagnosed Celiac in February 2006
Villus blunting and positive blood test

#3 raisin

 
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Posted 21 April 2009 - 11:05 PM

First, it was very comforting to hear that neither of those chronic (and rather scary) conditions would likely apply to me. I also really couldn't see it being a bug, based on how long my symptoms had lasted. I will at least talk to my doctor about thyroid, but because my general blood tests always shout "100% normal and healthy and every way," they told me once before that it was unlikely. I'm still going to get tested for H. Pylori, too, as ulcers still fit the bill.

Mainly; It's very strange.. The day after I posted this, my constipation and related oddities just stopped, and have yet to return. The day after that, and every day (excluding the two days after I ate a bowl of grapes), my dyspepsia has been absent, too..! I am no longer sure I'm bloated, and thinking.. maybe I'm just finally gaining more weight? I don't know how to tell the difference, sense I have essentially never gained weight before. But my bras went up a size, sense going gluten-free year ago, and my thighs and butt actually fit into a size 1 now, so probably? I just didn't think women gained lower-stomach-weight easily.

The change seemed to root from diet. I removed coffee and one gluten-free product from my diet, along with every single Birch-related food. I started to finally change my sleeping schedule back to semi-human hours, have had enough energy to clean up my apartment and go out for walks, and even started eating CornThins and Oranges for the first time in a long time!

Sadly, now my diet is pushed to a pretty extreme limit, but with a couple of months of allergy testing and finding a good nutritionist, it should only get better.
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#4 ravenwoodglass

 
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Posted 22 April 2009 - 04:10 AM

I am glad to hear you are feeling better. Don't loose heart with the extememly limited diet you are currently having to do. After you have had some more time to heal you can try cautiously adding back in one item a week, 3 times a day, in a pure a form as possible and watch for a reaction. Often after we have healed the gut for a while other intolerances may abate.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)




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