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Let's Write Dr. House
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34 posts in this topic

I wonder how many times "House" can misdiagnose a celiac disease patient??? :lol:

Any takers on a letter writing campaign to see if they'll do an episode on our lovely affliction??

I'm sure with over 200 symptoms and side effects they ought to be able to write some interesting script! Hey the first fatality I've seen on the show was from Rabies! :blink: I'm a huge fan and I know it's growing in popularity!

I nominate celiac3270 and Kaiti for the form letter, and we can all add our own personal experience to it! :D See, I'm the idea person here... then I like to delegate! :lol: Seriously though, I think it would be very interesting to see! B)

Thoughts...???

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Aack celiac3270!! You just bumped me off the front page!! :angry::lol:

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. . .the same could be said forany hospital show.

So, you want to send a letter to them asking for a thing on Celiacs?

I'd be afraid they would mess up and say some misconception.

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I think it's a challenging enough disease in itself that they would do a fairly good job of it. It would certainly be interesting! :P

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hhmm sounds interesting...I like it :D

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Kaiti ... does that mean you'll help do a form letter? :rolleyes::)

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Yep of course I'll help...how can I say no to that B)

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I love Dr House!!!! That would be a good idea for a show!!! LOL

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We could also encourage the writers to research this board, even do a poll such as some of the many researchers have done!

The whole premise of the show is at least three mis-diagnosis'... :blink: how many celiac disease patients go on and on being told they have everything under the sun before they find it's celiac disease?? :angry:

The drama of course would have to come from the extreme, immediately life threatening situations such as those who pass out from doing a gluten challenge, or have extreme cases of DH...

Since I am relatively symptom free, it would be good for those who have extreme symptoms to give some input!

Let's hear some ideas! :D

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how about the time I went to the emergency room thinking I was having a heart attack, and while I was there I couldn't stop vomiting !!!!!! fun fun fun!!! Of course they determined I wasn't having a heart attack, but since they didn't suspect celiac they said I just had a stomach virus and the "heart" pain was just "anxiety"

this was about 6 months before my diagnosis of celiac.

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Not to make light of what must have been an extremely distressing experience... :( BUT that is exactly what we're looking for! :D Maybe they'd even do a "casting call" on the board! :lol:

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what about someone who has gluten "shock" and doesn't realize they have celiac and goes to the ER a few times and and then the common factor is eating something with gluten and a doctor picks up on it and orders tests done and it turns out they are celiac and then he explains it.....ok I have never seen this show so I may be way off on my idea but just a thought. :D

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Oh Kaiti, you have to see it! :lol: House is the kind of Dr. real Dr.'s love to hate, he starts treatment before he's got a conclusive diagnosis, and then when the patient almost dies (or worse! :blink: ) then he looks for something else! There's a lot of humor, sarcasm and drama in the show!

Btw, glad you just posted again, I noticed the last post was #666! :blink::lol:

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sounds like an awesome show...let me know what ideas you come up with and maybe celiac3270(if he wants to) and I can help with the letter :D

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what about someone who goes to the ER for a supposed heart attack and is given medication for that(only to contain gluten) then the person reacts and they dont know whats wrong......im brainstorming here so don't mind me lol

and yeah maybe I'll get to 1000 posts soon :blink::lol:

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Hmmm, just found this on the Fox website...

11. I have written a script for my favorite FOX show. Where can I send it?

ANSWER:

Keep on writing.....the more you write the better you will get !!

But....

Do not send in ideas or scripts to FOX or to the show unless it is through an accredited agent. ALL unsolicited ideas and scripts are left unopened and are THROWN AWAY. This is for YOUR protection.

You can get a list of agents who are willing to look at new writers from the Writers Guild of America West (located in LA).

Anyone know of any "accredited agents"?? <_<

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Ohh this is a GREAT idea! I love this show! Keep us posted on what happens!

Twister2

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Not as dramatic... but how about being told for months/years that the extreme tiredness, dizziness, weight loss, chest pains, muscle pains etc were because "You're a mom with three young kids so of course your tired all the time" and "you're running around with young kids so you're losing weight" and "fibromyalgia, it'll never go away"

UGH!!!

I was often met with the "if you look good, you can't be sick" mentality. Might be interesting to show society's twisted sense that if your skinny it's all good... doesn't matter how you feel.

Until of course you're really sick... Dr. House to the rescue!

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I think you might be onto something there Kaiti! I think it would be a brilliant idea!

Sally :D

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what about someone who has gluten "shock" and doesn't realize they have celiac and goes to the ER a few times and and then the common factor is eating something with gluten and a doctor picks up on it and orders tests done and it turns out they are celiac and then he explains it.....ok I have never seen this show so I may be way off on my idea but just a thought.

That sounds great, and maybe the person getting sick could be a rebellious teenager who refuses to eat gluten free and then they get so sick they have no choice? Then the person starts the gluten-free diet and gets better!

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Good point...and that's a very real problem that parents often have w/ celiac teens ;)

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yeah I think they could make a pretty awesome show with that...I'm going to call around and see if I cen get any help to get a script or something presented to them...until then what do you all want to do about it?

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Well, let's start the script!

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Anybody remember the show "Doc" on PAX? They did a show of a teenager who was diagnosed with an eating disorder even though she kept trying to tell everybody (including Dr. Cassidy) that she was not trying to make herself throw up. She finally retreated in tears in the hospital bed. Doc Cassidy decided to listen to her and "check out just one more thing if it is okay with you". Viola! Celiac disease was diagnosed. It is the only time I have ever seen it on a TV doctor show, but it was great. My daughter and I almost cried watching it all happen. We had it figured even if nobody else did.

House would have a great time with my story...extreme weakness, loss of memory so bad I could only remember my husband's social security number (not his or my kid's names), loss of use of my left side, V and D, migraine headaches, muscle pain and spasicity, osteopenia, female problems to the extreme, and so on. It took tens of doctors decades to figure it out, only to have them deck the sides of their heads and go "Duh!" when it was finally diagnosed.

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    • I agree, it's very unlikely she doesn't have celiac disease.  Can you find a local celiac group to get a doctor recommendation from?  They might have the best idea of a local doctor who is familiar with celiac disease.  There is also a doctors sub-section of this forum which might help find one.  http://www.celiac.com/gluten-free/forum/6-celiac-disease-doctors/
    • Hi I'm newly diagnosed with coeliacs only 5 days ago so I have had 4 days gluten free , I felt more energised pretty quick but today have gone back to that sluggish feeling lethargic, could this be a withdrawal effect also did anyone have swelling whilst on gluten ?
    • Thank you! I will call and ask for a full panel and see where it leads!!
    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
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