Is It Just Me?
Posted 23 February 2004 - 02:49 PM
I know statistical projections say one in every 130, but to me, it looks to be about...oh I don't know...HALF!
Okay, maybe that's a bit much, but I do think it's more than the current projections state. Perhaps it's just a big jumble of different food intolerances, poor dietary habits and all of the pesticides and hormones in conventional foods that makes people look, act and feel the way they do. Still, I can't help but wonder.
Does anyone else feel the same way, or is it just me?
Posted 23 February 2004 - 03:15 PM
gluten-free since November 1, 2003
Posted 23 February 2004 - 05:36 PM
I have a hard time keep ing my mouth shut about it, when people have obvious symptoms. Like a 12 year old girl the size of my (small for his age) 9 year old, who also has digestive problems. And her mom who has rashes so bad on her hands that she has to wear hand splints and bandages, and who also has bad headaches and digestive problems. Or my sons teacher who has major joint pains, conbined with digestive problems and has seen doctors for years and been tested for almost everything, except celiac disease. And I could go on, but what would be the point. I just hope that someday this disease will get the recognition it needs and testing will be so common place that adults will hardly ever need to be diagnosed, because the would have already been diagnosed as children! And half the planet will be gluten free.
It makes for a nice dream though...
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 23 February 2004 - 05:39 PM
Posted 23 February 2004 - 05:58 PM
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 24 February 2004 - 08:09 AM
Posted 25 February 2004 - 03:01 PM
I've had several people ask me about my diet and then tell me gluten intolerance didn't make any sense and was impossible. Sometimes it really makes me mad, but then I remember that 500 years ago the earth was flat and the center of the universe. I guess all things change with time....er, I hope.
Posted 25 February 2004 - 10:08 PM
Anyway, it does seem like about half have big problems, I agree!
Posted 26 February 2004 - 09:50 AM
I can see celiac everywhere, too...
Here are some posts about the numbers:
celiac disease incidence, prevalence
Pretty interesting, huh?
Posted 26 February 2004 - 06:07 PM
It's been 3 years since my diagnosis, and not only do I still see celiac everywhere (much to the annoyance of a few of my patient friends ), but quite a few people I know have been diagnosed with celiac as a result of my telling them my suspicions. And those that don't have celiac ended up identifying some other severe food sensitivity (e.g. dairy or garlic or eggs or corn). Frankly it's hard for me to believe that the ratio may be 1 in 100 (as cited in the new UK study) when there are 2 celiac kids out of 11 of the kids in my daughter's class, and 3 celiac women (possibly 4!) working on my 13 person team at work.
I think that celiac is common - but that other food sensitivites are also very common. Maybe the two together add up to almost "everywhere?"
I'm glad you started this post because I thought it was just me!
Posted 01 March 2004 - 08:09 AM
What amazed me the most was my brother's GI doctor. My brother developed colitis in his teens and went on to have his gallbladder removed and now has sclerosing cholangitis (incurable inflammation of the bile duct so he is likely to ultimately require a liver transplant). I suggested he talk to his doctor about celiac testing because of my recent results and the doctor said since my brother has no symptoms now it doesn't seem necessary but that he could try to go gluten free for a little while and see if he feels better!
Our mother suffered horribly for years from rheumatoid arthritis, neuropathy, depression, personality disturbances--I suspect her problem was celiac disease but she is long deceased now so I'll never know.
Another case I wonder about is a co-worker of Irish ancestry who just had gastric bypass surgery for obesity deemed necessary because "everything else had been tried." Meanwhile this person craved carbohydrates in the extreme--wouldn't a blood test for gluten intolerance have been worth a try?
Posted 01 March 2004 - 01:22 PM
Anyway, when I told her of my diagnosis and suggested that she may have it, too, and should get tested, her reaction was priceless: "I already gave up lots of things in my diet, I'm not doing that, too!" As if the condition would only exist should she get tested and it were discovered. This way, she can just continue living in denial and running to the bathroom all the time...
Posted 01 March 2004 - 03:13 PM
I find the exact same thing with my family. I know of at least 3 family members who I think might have Celiac and will ignore my advice or their doctors think it's rare or some other junk!! Even when you tell them that it is in fact hereditary, they still want to ignore it!!! What is up with people taking such poor care of themselves?!? My grandfather also came over from Ireland, and I think he had Celiac.
Posted 02 March 2004 - 07:22 AM
My father is a health nut so I thought for sure he'd understand, so I sent him information about gluten intolerance. Later when I was visiting him I must have (suprise, suprise) gotten a little gluten contamination. I didn't have terrible reactions, but when I mentioned it he suggested that maybe I'm not getting enough vitamins since I don't eat wheat anymore and maybe the minor discomfort that comes with eating gluten is a worthy sacrifice in order to get my vitamins!
I had to come to the conclusion that he was a complete idiot and he had managed to hide it from me all these years...
OR that Mr Manhattanite Health Freak himself didn't even read what I had sent him because he had written it off as a FAD DIET!
I love my father, but boy I could of thrown him in the East River when he said that!
And and to make it that much more irritating, I really think that both, one of his best friends and HIS FIANCÉE have it. Arrrg!
Posted 11 March 2004 - 03:48 AM
I/We are self-diagnosed celiacs. I had the blood test done and it was high-normal, but I am on medication for lupus that calms down my antibodies, and I think I would have had positive results if I wasn't on this medication. (Why didn't my doc know this?)
Anyway, I believe my whole family has celiac. A bit hint is that my niece has autism and is hyper, my sister (her mom) obviously has asperger's. I believe my dad has asperger's too, and I have ADD. As you know there is a big gluten-sensitivity issue here. So far I am the only one to try the gluten-free diet. The rest of my family doesn't want to even try it. You would think my sister would try it on her daughter. If it were my child I would do it right away!
Hopefully the medical professional will get on the ball soon and realize that this is an epidemic. I bet eventually, gluten-free foods will be as popular as low-carb is now.
Christine in NH
Gluten-free since 2/2004 for gluten intolerance (celiac negative)
Mom to two gluten-free, soy free, low casein boys
IgG test currently showing intolerance to: casein/dairy, egg, sugar cane, yeast, white potato, coffee, amaranth, blueberry, garlic, kidney beans, sesame, whey, banana, pineapple, pinto beans, radish. Have removed these from diet on 10/28/07.
Not showing intolerance to gluten, wheat, barley, rye, soy, rice, oats or corn at this time, but still totally gluten-free for now.
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