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May Is Celiac Awareness Month Let Congress Know You're Here
#1
Posted 29 April 2009 - 12:26 PM
Take a minute and let Congress know you would like their attention:
http://capwiz.com/celiac/issues/alert/?ale...21&queueid=[capwiz:queue_id]
http://capwiz.com/celiac/issues/alert/?ale...21&queueid=[capwiz:queue_id]
Lisa
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
Celiac.com - Celiac Disease Board Moderator
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
Celiac.com - Celiac Disease Board Moderator
#3
Posted 29 April 2009 - 04:57 PM
Thanks so much for posting! I sent the link to my whole email contact list.
Gluten Free since November 2005
.
"If you want breakfast in bed, sleep in the kitchen.." ---Ed Polish
#4
Posted 30 April 2009 - 06:47 AM
Thanks Lisa!
I editeed the text and attempted to send he form. Sadly my representative does not accept emails.
Sigh.
But this is a fabulous idea.
Lisa
I editeed the text and attempted to send he form. Sadly my representative does not accept emails.
Sigh.
But this is a fabulous idea.
Lisa
#5
Posted 30 April 2009 - 06:52 AM
Done. Thanks Lisa
Patti
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
Celiac.com - Celiac Disease Board Moderator
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
Celiac.com - Celiac Disease Board Moderator
#6
Posted 30 April 2009 - 07:36 AM
Here's the text of the proposed resolution: http://www.govtrack....?bill=hc111-110
#7
Posted 30 April 2009 - 08:40 AM
Please take a minute to fill this out and send it to your Representative. Thanks to those who have.
Lisa
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
Celiac.com - Celiac Disease Board Moderator
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
Celiac.com - Celiac Disease Board Moderator
#8
Posted 19 May 2009 - 08:07 AM
This is great i sent this out to everyone I know!~
Spread the word.. knowlege is contagious!
Spread the word.. knowlege is contagious!
"But let there be spaces in your togetherness and let the winds of the heavens dance between you. Love one another but make not a bond of love: let it rather be a moving sea between the shores of your souls.
Kahlil Gibran"
Kahlil Gibran"
#9
Posted 19 May 2009 - 08:17 AM
Momma Goose, on Apr 29 2009, 12:26 PM, said:
Take a minute and let Congress know you would like their attention:
http://capwiz.com/celiac/issues/alert/?ale...21&queueid=[capwiz:queue_id]
http://capwiz.com/celiac/issues/alert/?ale...21&queueid=[capwiz:queue_id]
thanks! sent mine in
#11
Posted 20 May 2009 - 07:43 AM
I just recieved this email from my Congressman:
[Thank you for writing in support of the goals of National Celiac Awareness Month. This is an important issue, and I appreciate your input.
Indeed, celiac disease is significantly under diagnosed in this country, though officially nearly 1% of the population suffers from this disease. As noted in your email, the disease is caused by a reaction to gluten proteins that are often found in wheat products. The only effective treatment for celiac disease is a diet completely free of gluten and other gluten products. I agree with you that the public should be educated as to the causes and effects of this disease. I look forward to discussing this resolution with my colleagues, and will keep your thoughts in mind when it comes to a vote.
Please feel free to contact me in the future with your thoughts. It is always good to hear from you.]
Does anyone have a good response to this letter that I could send as a reply, now that I have my congressman's attention? I'm new to this since my husband and 3 (out of 4) children have just been diagnosed this month. Thank you for your help.
WW
[Thank you for writing in support of the goals of National Celiac Awareness Month. This is an important issue, and I appreciate your input.
Indeed, celiac disease is significantly under diagnosed in this country, though officially nearly 1% of the population suffers from this disease. As noted in your email, the disease is caused by a reaction to gluten proteins that are often found in wheat products. The only effective treatment for celiac disease is a diet completely free of gluten and other gluten products. I agree with you that the public should be educated as to the causes and effects of this disease. I look forward to discussing this resolution with my colleagues, and will keep your thoughts in mind when it comes to a vote.
Please feel free to contact me in the future with your thoughts. It is always good to hear from you.]
Does anyone have a good response to this letter that I could send as a reply, now that I have my congressman's attention? I'm new to this since my husband and 3 (out of 4) children have just been diagnosed this month. Thank you for your help.
WW
#13
Posted 27 May 2009 - 08:25 PM
I just received a reply from my congressman too. He included the information that "While celiac disease is the most common genetic disorder in the world, more research is needed to fully understand and properly treat celiac disease."
Neroli
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
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